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  1. Hi Mark, Hang in there - this is the tough...

    Hi Mark,

    Hang in there - this is the tough part.

    At 12 days I think I was taking oxycontin (long-acting) 10-20 mg twice a day, plus oxycodone 40 mg every 4 hours around the clock, plus...
  2. Hi Rise, Ahh, I feel your frustration and...

    Hi Rise,

    Ahh, I feel your frustration and impatience and I see myself in you. Ed laid it out like it is, there is no hurrying this recovery, it is not a choice how long it takes. And it does...
  3. Hi Susan, Bummed for you…..why is it so hard I...

    Hi Susan,

    Bummed for you…..why is it so hard I wonder to get them to inject the screw area? Didn't Dixie also go in for a screw injection and they ended up trying/failing to do a lower lumbar...
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    Dear Jenee, Like the others I am so surprised...

    Dear Jenee,

    Like the others I am so surprised and sorry to hear of your flatback and pain now. You made all of us a little jealous with your easy recovery (just kidding but you know what I mean)!...
  5. Thread: Update

    by leahdragonfly
    Replies
    7
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    372

    Hi Kara, Sorry your foot is still so bad. I...

    Hi Kara,

    Sorry your foot is still so bad. I was hoping the cast would help you.

    I wonder if Shriner's discharged you because they knew UC Davis would be the best place for you to have surgery...
  6. Hi Rise, You sound so very much like me (and I...

    Hi Rise,

    You sound so very much like me (and I had a similar length fusion, T8-sacrum), I recognize myself in your post!!! I know you feel impatient now, but my friend you have a LOOONG way to...
  7. Replies
    4
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    203

    Hi Susan, Thanks for updating! Please send my...

    Hi Susan,

    Thanks for updating! Please send my best wishes to Mark and Ethel from another of Dr Hart's patients. Mark and I corresponded by e-mail several times before his surgery.
  8. Replies
    10
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    1,892

    Hi Tamena, I'm so sorry to hear that! I agree...

    Hi Tamena,

    I'm so sorry to hear that! I agree with Karen that you should definitely call your surgeon since it is not getting better after a week. See if they recommend x-rays.

    Take care,
  9. Replies
    19
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    970

    Hi, I was 42 when I was fused T8-sacrum…but...

    Hi,

    I was 42 when I was fused T8-sacrum…but that's nearly the new 30, right?

    I stayed in the hospital 6 days and needed every bit of it. I had very inadequate pain control, made worse by my...
  10. stretching hamstrings

    Hi Irina,

    My hamstrings were incredibly tight after surgery - not sure why. I stretch them one side at a time by sitting along the edge of the dining room table or a low window sill with one leg...
  11. I know, right??? People should refrain from...

    I know, right??? People should refrain from hijacking the original poster's thread to interject their ideas about religion and pedophilia. How about we keep the topic to scoliosis.

    I am fused...
  12. Replies
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    6,664

    Hi Spring, I know exactly what you mean about...

    Hi Spring,

    I know exactly what you mean about everyone forgetting you had surgery and thinking you should be perfectly normal by now. Showing an x-ray occasionally is helpful for clueless people...
  13. Replies
    31
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    6,664

    Hi Spring, I think it is very common to have...

    Hi Spring,

    I think it is very common to have these plateaus along the way, which are very discouraging. Your horrendous commute is probably taking quite a toll on your energy and healing, so try...
  14. Replies
    46
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    3,267

    One member here successfully purchased a...

    One member here successfully purchased a used/good condition MedX torsion rotation machine from Craigslist for something like $150. Maybe you could find one for your daughter that way. Also some...
  15. Replies
    31
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    10,284

    Great news

    Hi mamandcrm,

    I have thought of you and G many times over the last several years. She and Leah are really very similar in age as I recall, and both were diagnosed at a similar age. I am thrilled...
  16. Replies
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    6,238

    pelvic screw removal

    Hi Susan and Dixie,

    I agree there is very little info about iliac screw removal here. There are a few old threads with some mention of it, but none of those people are still active on the forum. ...
  17. Hi Rise, I think there is a huge variation in...

    Hi Rise,

    I think there is a huge variation in care available "at rehab." I had my surgery in Portland, OR at the large university hospital, but I live 2 hours away in a smaller college town of...
  18. Hi, This is a frequent question, and it always...

    Hi,

    This is a frequent question, and it always depends on how the person is doing after surgery. I personally used my shower chair once then never again. I never needed a bottom buddy, but a tub...
  19. Hi Rise, I was fused T8-sacrum/pelvis three...

    Hi Rise,

    I was fused T8-sacrum/pelvis three years ago at the age of 44. I too was very worried about my loss of mobility. While I will never love being fused, I am not so terribly restricted in...
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    1,361

    Hi there, My surgeon doesn't allow his...

    Hi there,

    My surgeon doesn't allow his patients to pre-donate their own blood. He told me it weakens you going in to surgery and also increases your risk of infection, as does cell-saver in his...
  21. Replies
    10
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    1,892

    Wow Tamena, I'm amazed it's been six months...

    Wow Tamena, I'm amazed it's been six months already. How have you been doing?

    Best of luck with the appointment, and please let us know how you are doing these days.
  22. I'll be curious to hear what answer Linda...

    I'll be curious to hear what answer Linda reports, but I don't think this would work for two reasons. One is fluoro is just live/moving x-rays, which we already know doesn't show the fusion terribly...
  23. B-L-T restrictions

    I was instructed no bending, lifting or twisting for 6 months after my surgery. I agree it seems to vary a lot by surgeons/circumstances.
  24. Replies
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    4,773

    Hi Kara, I am really sorry to hear the latest...

    Hi Kara,

    I am really sorry to hear the latest news about your foot. I hope the air cast is providing a little relief. Do you still have to stand 5 hours per day?

    I hope your insurance is...
  25. Hi Dixiesmommie, I am really sorry to hear of...

    Hi Dixiesmommie,

    I am really sorry to hear of your continued pain, and I can tell you are very worried from reading your posts. Unfortunately I don't really have any advice to share, although you...
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