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    Hi Gayle, You would probably understand more...

    Hi Gayle,

    You would probably understand more about this than me, but the mom who explained it described it as a cushion where 40-50% of the stuffing is removed. She said she did not fully...
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    Improvements to VBT (tethering)

    I learned from another parent (confirmed to me by Dr. Betz) that kids who might not have been VBT candidates before might now be able to opt for tethering rather than fusion. Some larger curves,...
  3. If you would like to research Vertebal Tethering,...

    If you would like to research Vertebal Tethering, I can offer some suggestions. The link in my signature refers to vertebral stapling, but that group has actually branched out to include many...
  4. I would try to get a consult with a surgeon who...

    I would try to get a consult with a surgeon who performs tethering - if for no other reason, than for peace of mind that you did all you could to help your daughter avoid fusion. Please let me know...
  5. Happily, those results are not that uncommon. ...

    Happily, those results are not that uncommon. There are several patients that were in similar situations who have had great results as well.

    Another positive part of the whole...
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    Yes, i love that face!! He looks like he is...

    Yes, i love that face!! He looks like he is doing great!!

    Jackie sends doggie hugs!!!!!!!!!!!!!
  7. Fifa - Absolutely NO apology necessary - that's...

    Fifa - Absolutely NO apology necessary - that's why I put my email address out there and I was happy if I was able to do anything to help you.

    Karen - I never realized the "contact us" link went...
  8. Linda, Just a thought (because I really feel...

    Linda,

    Just a thought (because I really feel for these people waiting a long time for access to the forum), but these folks reach out to me because I posted my email address. If Joe doesn't want...
  9. Linda, I haven't had much luck in the past...

    Linda,

    I haven't had much luck in the past contacting Joe (or getting a response from him), but if you prefer I don't go through you, I will certainly honor your wishes. I get that all you can do...
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    Hi Tim, I'm no doctor, but for what it's worth...

    Hi Tim,

    I'm no doctor, but for what it's worth I agree with everything you said. My theory is that since we don't know what works for who, and when, if your child can tolerate something like...
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    Indeed, congratulations! It is so nice that...

    Indeed, congratulations!

    It is so nice that your determination and hard work (and Nalina’s) are paying off. My best wishes for continued success!!
  12. Two More Members Needing Assistance

    Hi Linda,

    Two more folks have contacted me by email with similar problems - one registered back on August 11 and is still waiting to be approved. She said she sent an email to 'scoliosisadmin'...
  13. Thanks, Linda. I'll shoot Matt an e-mail to let...

    Thanks, Linda. I'll shoot Matt an e-mail to let him know.
  14. Hi Linda, Just wondering if Joe was back yet...

    Hi Linda,

    Just wondering if Joe was back yet and if you happen to know whether or not he had a chance to approve Matt's membership yet.

    Thanks.
  15. Message for Linda/New Member Needs Technical Assistance

    Hi Linda,

    I received an email from a guy named Matt who said that he activated his account on 9/2 (or at least thought he did) but he is unable to post and has no way of contacting you so he...
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    I just came across this article which lists Mount...

    I just came across this article which lists Mount Sinai Hospital in NYC (where Dr. Betz is now affiliated) on the honor roll of the best hospitals in the country. I just thought it might be a source...
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    Just an update on Dr. Betz' new practice. We saw...

    Just an update on Dr. Betz' new practice. We saw him today in his NYC office (5th Avenue). He and Dr. Antonacci are performing both VBS and tethering. Dr. Betz sees patients most days in his NJ...
  18. Yes, it does look very promising after the first...

    Yes, it does look very promising after the first 2-3 years. What is also encouraging is that many insurance companies have covered surgeries performed outside of Shriners (by Drs. Betz/Antonacci in...
  19. Thread: HSS experience

    by mariaf
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    I don't have personal experience with the...

    I don't have personal experience with the hospital, but living in New York City, it doesn't seem to me that HSS enjoys the same reputation it once had. I hope it's not on the decline.
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    Excellent advice - and much of it (maintaining a...

    Excellent advice - and much of it (maintaining a positive mental state, not allowing a single challenge to overtake your life, doing things that make you feel good about yourself) can be applied not...
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    That's great news! I also reached out to Dr....

    That's great news! I also reached out to Dr. Betz as promised for a recommendation, so we'll see what he says. Look at you - now you may have several docs to choose from :-))))

    I think Sparky...
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    That's so true. I can't imagine anyone keeping...

    That's so true. I can't imagine anyone keeping up boot-camp style exercises (or any other regiment of that nature) forever. As you point out, life gets in the way.

    Some days I can barely find...
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    Agreed. To be objective, I guess we have to...

    Agreed.

    To be objective, I guess we have to ask ourselves if another method (bracing, VBS, or whatever method you choose) was shown to have great success in ONE patient, wouldn't we want to be...
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    That sort of reduction (42 degrees to 22 degrees)...

    That sort of reduction (42 degrees to 22 degrees) is indeed EXTREMELY rare and therefore it is natural that it raises many questions. My questions would be similar to Sharon's regarding how...
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    I agree it is fantastic to see different methods...

    I agree it is fantastic to see different methods used in conjunction with each other. Sometimes you need to use more than one tool in the toolbox!
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