Search:

Type: Posts; User: mom to PJ; Keyword(s):

Search: Search took 0.10 seconds.

  1. Yes! We did make it to Shriner's and are...

    Yes! We did make it to Shriner's and are currently on the waiting list for tethering while we consider our decision. It is amazing to me how many people are dealing with this disease with so little...
  2. Hi Resilience! It sounds like you and I are on a...

    Hi Resilience! It sounds like you and I are on a very similar journey with our daughters. I have been reading your thread and just have not had the time to sit down with thoughtful reply =)

    I...
  3. Thread: frustrated

    by mom to PJ
    Replies
    26
    Views
    22,841

    Thank you Maria =) I have visited the VBS site...

    Thank you Maria =) I have visited the VBS site and am glad to see all the info. I will be looking at it more in depth hopefully today.

    We have a list of questions and I think I am going to...
  4. Thread: frustrated

    by mom to PJ
    Replies
    26
    Views
    22,841

    Thank you Sharon! I intend to do just that =)

    Thank you Sharon! I intend to do just that =)
  5. Thread: frustrated

    by mom to PJ
    Replies
    26
    Views
    22,841

    Thanks Maria! I see that your son had the VBS...

    Thanks Maria! I see that your son had the VBS and is doing well! I am impressed with the information on tethering but am nervous about the newness of the procedure. DD is very nervous about the...
  6. Thread: frustrated

    by mom to PJ
    Replies
    26
    Views
    22,841

    WOW! You all were right on the money with...

    WOW! You all were right on the money with Shriner's. They are unbelievably AWESOME! They do indeed take into consideration what you have to say! Janet, Dr. Samdani and all who were there were...
  7. Thread: frustrated

    by mom to PJ
    Replies
    26
    Views
    22,841

    Just to update - we are headed to Philly for a...

    Just to update - we are headed to Philly for a Friday appointment :) We will be seeing Dr. Samdani. Janet and the staff have been as wonderful as everyone said they would be. I am trying to read up...
  8. Thread: frustrated

    by mom to PJ
    Replies
    26
    Views
    22,841

    Thank you! I will definitely be contacting Janet...

    Thank you! I will definitely be contacting Janet at Shriners. After looking it up it's only 5 1/2 hours away!

    Leah - she did have an MRI last year and they ruled out any spinal issues thank...
  9. Thread: frustrated

    by mom to PJ
    Replies
    26
    Views
    22,841

    Thanks everyone for the encouraging comments. ...

    Thanks everyone for the encouraging comments.

    Elisa, I read your whole story one evening and I must say it was quite an experience. i am so glad that you were able to get the help you needed...
  10. Thread: frustrated

    by mom to PJ
    Replies
    26
    Views
    22,841

    frustrated

    Hello everyone! So glad I found this forum.

    My 10 year old daughter was diagnosed with 2 thoracic curves and a compensatory lumbar curve at the age of 8 in early 2010 (she just turned 10 a couple...
Results 1 to 10 of 10