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  1. Thanks, Linda. I'll shoot Matt an e-mail to let...

    Thanks, Linda. I'll shoot Matt an e-mail to let him know.
  2. Hi Linda, Just wondering if Joe was back yet...

    Hi Linda,

    Just wondering if Joe was back yet and if you happen to know whether or not he had a chance to approve Matt's membership yet.

    Thanks.
  3. Message for Linda/New Member Needs Technical Assistance

    Hi Linda,

    I received an email from a guy named Matt who said that he activated his account on 9/2 (or at least thought he did) but he is unable to post and has no way of contacting you so he...
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    I just came across this article which lists Mount...

    I just came across this article which lists Mount Sinai Hospital in NYC (where Dr. Betz is now affiliated) on the honor roll of the best hospitals in the country. I just thought it might be a source...
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    Just an update on Dr. Betz' new practice. We saw...

    Just an update on Dr. Betz' new practice. We saw him today in his NYC office (5th Avenue). He and Dr. Antonacci are performing both VBS and tethering. Dr. Betz sees patients most days in his NJ...
  6. Yes, it does look very promising after the first...

    Yes, it does look very promising after the first 2-3 years. What is also encouraging is that many insurance companies have covered surgeries performed outside of Shriners (by Drs. Betz/Antonacci in...
  7. Thread: HSS experience

    by mariaf
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    I don't have personal experience with the...

    I don't have personal experience with the hospital, but living in New York City, it doesn't seem to me that HSS enjoys the same reputation it once had. I hope it's not on the decline.
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    Excellent advice - and much of it (maintaining a...

    Excellent advice - and much of it (maintaining a positive mental state, not allowing a single challenge to overtake your life, doing things that make you feel good about yourself) can be applied not...
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    That's great news! I also reached out to Dr....

    That's great news! I also reached out to Dr. Betz as promised for a recommendation, so we'll see what he says. Look at you - now you may have several docs to choose from :-))))

    I think Sparky...
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    That's so true. I can't imagine anyone keeping...

    That's so true. I can't imagine anyone keeping up boot-camp style exercises (or any other regiment of that nature) forever. As you point out, life gets in the way.

    Some days I can barely find...
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    Agreed. To be objective, I guess we have to...

    Agreed.

    To be objective, I guess we have to ask ourselves if another method (bracing, VBS, or whatever method you choose) was shown to have great success in ONE patient, wouldn't we want to be...
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    That sort of reduction (42 degrees to 22 degrees)...

    That sort of reduction (42 degrees to 22 degrees) is indeed EXTREMELY rare and therefore it is natural that it raises many questions. My questions would be similar to Sharon's regarding how...
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    I agree it is fantastic to see different methods...

    I agree it is fantastic to see different methods used in conjunction with each other. Sometimes you need to use more than one tool in the toolbox!
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    I'm not sure it has been proven (not yet, at...

    I'm not sure it has been proven (not yet, at least) that progression can be stopped with this or any sort of PT.

    However, having said that, it seems that doctors have found use for this form of PT...
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    Hi Mariya, First of all, congratulations on...

    Hi Mariya,

    First of all, congratulations on the new baby on the way!!!

    I know it's tough when you feel so comfortable with a surgeon, but rest assured there are many good and compassionate...
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    Hang in there, Jess. As you now know,...

    Hang in there, Jess. As you now know, unfortunately, the endo my friend's daughter uses does not treat adults, but she should be able to recommend someone. She will need to transition my friend's...
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    I just e-mailed my friend and will let you know...

    I just e-mailed my friend and will let you know as soon as I hear back.

    Tell our little man Sparky to hang in there!!!!
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    Hi Jess, I haven't really checked in much...

    Hi Jess,

    I haven't really checked in much during the past few weeks, and I was SOOOO sorry to read about all the troubles you and Sparky have been going through and dealing with :-(((

    Big hugs...
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    I have heard of tests, in the case of children,...

    I have heard of tests, in the case of children, performed at the request of an endocrinologist where they draw blood every hour or so - I'm guessing it may be the same type of thing - I think this...
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    Just a quick update - Dr. Betz is now seeing...

    Just a quick update - Dr. Betz is now seeing patients in his NYC office, as well as in Princeton, NJ. The Institute for Spine and Scoliosis has opened its Fifth Avenue office (right near Central...
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    Hi Jess, Sorry to be chiming in late, but I...

    Hi Jess,

    Sorry to be chiming in late, but I just read these posts about what you've been going through :-(

    So sorry to hear you've had to deal with all this - did you find out anything further?...
  22. Thread: Quackery

    by mariaf
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    My husband actually goes to a chiro occasionally...

    My husband actually goes to a chiro occasionally for back pain, as does a friend of mine. I absolutely believe that there are some honest ones and that they can help adults to manage pain in a lot...
  23. Thread: Quackery

    by mariaf
    Replies
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    Hi Susan, I am truly very glad that the chiro...

    Hi Susan,

    I am truly very glad that the chiro you saw was able to help you manage your pain.

    I think the thing that people caution others about here, however, is when a chiro either says he...
  24. Hi Jean, First, congrats to you and your son...

    Hi Jean,

    First, congrats to you and your son on a job well done. Eight years is a long haul.

    I'm sure you are not the only one who has wondered whether or not surgery would have been avoided...
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    Yes, as far as I know, St. Louis has a really...

    Yes, as far as I know, St. Louis has a really good spine program - and I do know a few folks who have seen Dr. Luhmann and were extremely pleased with him.
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