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    posture after surgery?

    as so of you may remember from previous posts, our son is a severe special needs child so he doesn't know how to express himself so i am asking for your help please.

    Ben is healing very well but...
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    thank you everyone for all your positive &...

    thank you everyone for all your positive & encouraging messages.
    I hope everyone who is, will be or has gone through this surgery is doing well. I feel very good about our Ben, he is absolutely...
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    Sorry there were no updates for awhile - I stayed...

    Sorry there were no updates for awhile - I stayed in the hospital 24/7 with Ben & the husband was there first thing every morning - we did all we could to help & the nurses were wonderful &...
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    Ben's surgery update

    Day 1==== Ben is out of a +12 hour surgery & is being taken care of in the pediatric ICU for a couple of days. The doctors did a great job & are very tired. He went in with 110 degrees curve & was...
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    thank you all for your kind thoughts/comments... ...

    thank you all for your kind thoughts/comments...
    6 am tomorrow morning, hope the ICU has an open bed & Ben will be done!
    I sure am glad Ben has no concept of what is going to happen... hard...
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    update: Surgery delayed/rescheduled

    Ben's May 12th surgery had to be delayed because 3 children were injured/sick & required the ICU beds...
    We are re-scheduled for the 19th of May === all pre-op is done & ready:) don't want to do a...
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    I am glad to hear they set you up with a new...

    I am glad to hear they set you up with a new date... is there any exercises you can do to get your lungs stronger by then?? I hope it goes with no problems... we will keep you in our prayers.

    yes...
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    new surgery date yet?

    Hello Syd just wondering if you had any word on a surgery date since your last was cancelled & are your lungs getting stronger? Are there exercises you can do to help?

    My Ben will be going in on...
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    Ben's Date for surgery

    Our Ben has just had his scoliosis surgery date confirmed - May 12/2010 @ the Edmonton Stollery Hospital.
    Ben is an 11 yrs with special needs child ... he has Smith Magenis Syndrome (SMS) plus his...
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    Sticky: I'm also sorry Linda but my scoliosis child is...

    I'm also sorry Linda but my scoliosis child is 11 yrs but has a severe disability & I find the kids have some different perspectives that may help me understand how my son may feel...why is it so...
  11. Hello Syd, I am so sorry your lungs are not so...

    Hello Syd, I am so sorry your lungs are not so strong right now...I hope you breathing becomes strong enough soon so you can feel better!!
    Ben has not had a recent MRI or xray, they say everything...
  12. How are you doing?

    Hello Syd, I was wondering how you are doing after surgery?
    My son is 11 yrs with a curve over 96 degrees - surgery this spring - sometime soon I hope... he is special needs (he has SMS - Smith...
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    Mandy you are absolutely stunning in your gown......

    Mandy you are absolutely stunning in your gown... I am very glad you are doing so well so quickly & that you are sharing this with us.
    My 11 yr old son is set to have surgery this spring (Apr or May...
  14. I am a mom & I have to say you kids are breaking...

    I am a mom & I have to say you kids are breaking my heart - my little boy is going to be 11 in Feb & his scoliosis has been severe & noticable ever since he started school at 4 yrs old - he is...
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    actually our 10 year old (who is also severe...

    actually our 10 year old (who is also severe special needs) has been experiencing some form of discomfort in his back - he tells us "itchy" so we will scratch or rub his back but the husband & I have...
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    When Ben was wearing his brace we had to lay him...

    When Ben was wearing his brace we had to lay him down before we did up the straps - this made his back straighter & align better in the brace - otherwise it just wouldn't sit right & he got red rub...
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    I am glad you are wearing your brace regularly -...

    I am glad you are wearing your brace regularly - that seems to be one of the hardest things a parent has to contend with is getting the kids/teens to understand that it is important for you & only...
  18. Good luck with your son's recovery --- for your...

    Good luck with your son's recovery --- for your situation, do you think they might send a home care nurse or therapist to your home to help you with your son? - even a couple time a week might help...
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    Our son was in 3 TLSO body braces over 3+ years -...

    Our son was in 3 TLSO body braces over 3+ years - each time the brace did nothing to stop or even slow down the progression of his curve - we were trying to buy him time for upper torso growth - just...
  20. Hello Patti, I never had testing done - it is...

    Hello Patti,
    I never had testing done - it is a long story but it was a very difficult time as doctors were not believing our son had a medical condition & we were taking matters into our own...
  21. when Ben was 4 he had a 38 degree curvature, he...

    when Ben was 4 he had a 38 degree curvature, he was small for his age & we were still searching for a diagnosis to his physical/behavioral/mental situation-

    we put Ben on a nutritional drink 2 X...
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