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  1. Replies
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    Wishing you and your daughter the best. After...

    Wishing you and your daughter the best. After she comes home from the hospital, you will marvel at how strong both of you were.
    Sending good thoughts your way.
    Susan
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    I am still hoping for improvement and it is good...

    I am still hoping for improvement and it is good to hear that it may be down the road. A friend of mine said that this may be "the new normal". If it is, so be it, but I would like a little less...
  3. Take meds at the most frequent interval possible...

    Take meds at the most frequent interval possible at the highest end of the range that you can. When you find out what really works, take that level for at least a month and then consider decreasing...
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    Jenee, Your comment about needing to "grill your...

    Jenee, Your comment about needing to "grill your Doctor about lordosis" was interesting. I don't think that it is the job of patients to be experts on their surgery. I never talked to my surgeon...
  5. Bummed again.........

    The Pain Management MD injected into the L5, SI joint, and one other spot....but not at the site of the iliac screws. Unsure why not. Procedure did not help at all. Bummed. Regroup and move on. ...
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    See your Private messages. I will give you my...

    See your Private messages. I will give you my email. Again, thanks. I am actually doing well, but have some nagging discomfort in my L thoracic area and then in my sacral area. I figure since I am...
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    Thanks, Jane. I really know that you were trying...

    Thanks, Jane. I really know that you were trying to be supportive, but the thought of having another large surgery sounds like another big chunk out of my life. Linda said that removal of screws...
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    I think that she is still trying to figure out...

    I think that she is still trying to figure out what the problem is that is causing the sensation. Dr. Hu is also on a 2 month vacation or consulting. Thanks for the suggestion. Irina said that...
  9. Linda, I do have a good PT. The section of my...

    Linda, I do have a good PT. The section of my lower back that hurts is in my sacral area. I do not feel any discomfort when I push on the area, but have a sensation of tightening which gets worse...
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    Jenne, so glad that you are active again on the...

    Jenne, so glad that you are active again on the forum, but sorry about the reason that you have resurfaced. I have always been impressed with you "Can Do" attitude. Mark Katz had surgery at O HSU...
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    Thanks, Jane. "Not nearly as difficult as her...

    Thanks, Jane. "Not nearly as difficult as her spinal fusion" is light years from how difficult I had hoped that screw removal would be! My spinal fusion surgery was 2 days, 2 days in ICU, 10 pints...
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    Thanks, Jess I did read her old posts. I did...

    Thanks, Jess
    I did read her old posts. I did not find details on exactly what the removal entails and what happens to the stability of the rest of the hardware. You have been very helpful.
    Susan
  13. Thread: Update

    by susancook
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    Hope that your foot heals! So sorry about the...

    Hope that your foot heals! So sorry about the fracture! Just follow the doctor's recommendations. Enjoy your summer. Sending good vibes your way, Susan
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    Our pain seem to be different. There is not any...

    Our pain seem to be different. There is not any discomfort with palpation. My discomfort is a "tightening" sensation. When I wake up and have not moved yet, I have zero discomfort. As soon as I...
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    Linda, Both Dixiesmom and I have asked what is...

    Linda, Both Dixiesmom and I have asked what is involved with removal of the pelvic screws. Nobody answered. I read in a lit review that screw removal is "common" and that on average 30% of people...
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    I will Gayle. He is an amazing guy with an...

    I will Gayle. He is an amazing guy with an awesome attitude. Good to hear that his 10 hour surgery went well. I will pass on your congratulations to him via Ethel. Susan
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    Rise, welcome to the other side! Life will...

    Rise, welcome to the other side! Life will progressively get better but expect setbacks. My PT said that my back is just starting to adjust to the muscles being relocated with the changes from the...
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    Springchicken [surely, that's not your name?], ...

    Springchicken [surely, that's not your name?],

    What next? Unsure. Hope against hope, I would like to think that the steroid component of the injection just takes a while to "kick in"....and no,...
  19. Thread: Apt May 23

    by susancook
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    I'm with everyone else! You are doing a great...

    I'm with everyone else! You are doing a great job taking care of yourself, but call Dr. Kelly for his advice.
    So sorry that this happened. S... happens!

    Susan
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    MKatz has surgery July 11th

    I received a message from Mark's wife, Ethel:

    "Surgery over, Mark is in ICU at least until sometime tomorrow. Dr. Hart was quite optimistic and feels Mark a good candidate for faster than...
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    Bummed.....

    I had my "instrument injection" on Monday and while I entered the process with great hope, I did not find any relief from pain. I demonstrated to the Pain Management MD, Dr. Chen the exact location...
  22. One minute we are talking about getting into a...

    One minute we are talking about getting into a bathtub and the next about pedophilia. Did I miss the link between the two?
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    Curve magnitude may be slightly larger in the...

    Curve magnitude may be slightly larger in the evening because the weight of the vertebrae increases loading over the day. We are also taller in the morning than the evening for the same reason ....
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    "Lucency" on X-ray around pelvic screws

    Hmmmmmm........... I had an X-ray of my abdomen for symptoms of nausea and there was a comment on the X-ray about lucency in the area of the screws, "possibly meaning screws were loosening".
    ...
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    I saw a chiropractor for thoracic severe pain on...

    I saw a chiropractor for thoracic severe pain on the recommendation of my pain management doctor. He did some gentle manipulation, as I told him that he could not perform any fast twisting jerks.
    ...
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