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  1. Patient Advocate asked if I would like to have...

    Patient Advocate asked if I would like to have such an "encounter".

    Not better.

    Difficult to measure sense of sincerity, but I believe that it was genuine.

    Emotionally damaging? I have a...
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    Thanks forms ting, Linda! Comments about...

    Thanks forms ting, Linda!

    Comments about presentation about "my people":

    First of all, this surgeon needs a new person to do his Power Point! How embarrassing and unprofessional to show such a...
  3. Jenn, how are you doing? I really think that the...

    Jenn, how are you doing? I really think that the surgery is frequently more difficult for the family. Tell Peggy that I am thinking of her and wishing her healing and pain relief.

    Pain control...
  4. Meeting with doctors involved with my first admission w/ incorrect diagnosis

    I met with the doctors involved in my first hospitalization, the Internal Med and Neurologist and also my spine surgeon who finally did my surgery, Dr. Hiratzka and the Patient Advocate and the Risk...
  5. Thread: Adding on

    by susancook
    Replies
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    I think that a surgeon would want to know where...

    I think that a surgeon would want to know where the screw (that appears to be misplaced) is in the vertebrae. Having just experienced the fallout of having a screw that moved, it might be a piece of...
  6. Welcome, Liz! Glad that you found a surgeon that...

    Welcome, Liz! Glad that you found a surgeon that you like who does scoliosis surgeries regularly. Don't fret about the fused to the sacrum bit. I really do not feel limited at all.

    Ed's comment...
  7. Peg, sending healing thought towards St. Louis...

    Peg, sending healing thought towards St. Louis from Oregon! Us older folks are fighters and just keep going when it gets tough. Close your eyes and imagine a picture of your surgeon and say to...
  8. You are on your way to healing and the rest of...

    You are on your way to healing and the rest of your life! Many people have a minor bump in the road with healing, so don't be surprised if there is a surprise!

    Do exactly what you are told in...
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    I have not looked these drugs for osteoporosis up...

    I have not looked these drugs for osteoporosis up in the literature for a while, but what might be important is if the drug builds BACK bone, or if it focuses on other bone in the body.

    Make sure...
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    Linda, as I understand it, the kyphosis increased...

    Linda, as I understand it, the kyphosis increased and thus pulled away from the hardware. By pulling away, the screw went into the thecal sac since the screws are screwed into the vertebrae at an...
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    Linda, explain it to me! Susan

    Linda, explain it to me! Susan
  12. Thread: Anterior

    by susancook
    Replies
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    590

    Irina, I think that you and I are the "bad luck...

    Irina, I think that you and I are the "bad luck kids".
    Susan
  13. Thanks! My initial kyphosis was 90* and that was...

    Thanks! My initial kyphosis was 90* and that was much lower in my thoracic area. This kyphosis is higher....at the end of my instrumentation at T3.

    Susan
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    Call me the 1%

    Just wanted to add another postop problem to the list that was alluded to previously, is an extension of proximal Junctional kyphosis which is "proximal Junctional failure". This can play out as a...
  15. Appt w/ surgeon

    I had a follow up appt with the spine surgeon, and the L thoracic pain the I am having is not due to any problems with the hardware....YEA! If he had said that I needed another revision surgery...
  16. Thread: Anterior

    by susancook
    Replies
    23
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    590

    Dixiesmom: I had an anterior (ALIF) and side...

    Dixiesmom:

    I had an anterior (ALIF) and side or lateral (XLIF) in addition to the posterior PSF surgeries. For me, the anterior and side were done on the same day and the posterior a couple of...
  17. Thanks, Ed. I promise to stay young.....or at...

    Thanks, Ed. I promise to stay young.....or at the very least, continue to act immaturely!
    Susan
  18. Tamena, I am unsure if I should feel good about...

    Tamena, I am unsure if I should feel good about my situation helping you to feel better, but "it is what it is". If I can be here for you, it is my pleasure. Glad that at least someone goer...
  19. An attempt to add pictures from my revision surgery

    166416651666166416651666166416651666

    An attempt to add pictures. I had 3 attachments and somehow it added many duplicates. Help me figure out how to do this like most of you have already figured...
  20. Wishing your daughter the best on her upcoming...

    Wishing your daughter the best on her upcoming surgery. My only last thought is: be prepared for something to go wrong, in my experience in talking with folks, do not be surprised. Most everything...
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    Pardon my repetition if I have said this before!...

    Pardon my repetition if I have said this before!

    Visitors: just very close family that you like. Said before: it's all about you. I do not remember any visitors except my husband and daughter,...
  22. Interesting day. Got out of my Toyota...

    Interesting day.

    Got out of my Toyota Highlander (daughter driving) for lunch....no problem as gravity is your friend
    Getting back into a Toyota Highlander after lunch, well that was quite a...
  23. Linda, I am unsure how to take your comments...

    Linda, I am unsure how to take your comments above that followed my posting of frustration about my situation. I do not see my situation as similar to the person presented by Dr. Hey. Did I miss...
  24. Tamena, thanks for your kind words. Come over...

    Tamena, thanks for your kind words. Come over here and we can cry together. I. Still have. Some tears left to cry. My brother asked me if I regretted having the first surgery. I thought for a...
  25. Hi! Missed yesterday's posting because I spent...

    Hi! Missed yesterday's posting because I spent the day being depressed and bitching at everyone. I am stuck in the regret stage...."if only I had".....you know the drill. I hate being dependent on...
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