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  1. Replies
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    all is OK...just a simple mis-communication.... ...

    all is OK...just a simple mis-communication....

    wishing you a peaceful restful and warm
    wkend...gonna get colder in northeast...
    and changing the clocks...dark out earlier....brrrrr

    from...
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    i thought she started out asking for a discussion...

    i thought she started out asking for a discussion of
    dystonia...that is exactly what rohrer started out
    writing about...until she got the new diagnosis....

    this is one small part of a post by...
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    i think if you search for "rohrer" on this forum,...

    i think if you search for "rohrer" on this forum, you may
    see that she discusses it at length...her forum nickname is "rohrer"
    but since then, she received a new diagnosis...
    of Charcot Marie...
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    no...i did not miss that sentence. i do not...

    no...i did not miss that sentence.

    i do not think anyone can make a blanket statement...
    however, i was told that my bursitis in hip is from uneven
    loading of spine...so am i to believe that...
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    hmmmm.....WHAT? i cannot walk anymore....i am...

    hmmmm.....WHAT?

    i cannot walk anymore....i am guessing that counts...?
    i have flatback tho i never knew...thought everybody had similar
    spine...never looked, really....
    i have stenosis,...
  6. Replies
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    funny....that is exactly how he got his name...he...

    funny....that is exactly how he got his name...he went off like a spark plug when first introduced....all 2.2 pounds of him! thanks for asking...
    he is doing great!

    see GP today....to get blood...
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    saw pain doc Physician's Asst today in NYC she...

    saw pain doc Physician's Asst today in NYC
    she thinks the facial flushing and shoot up in blood pressure
    that i had after last steroid shot in left hip should be checked out...

    no NSAID's cause...
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    Doreen...so glad you are OK... thank...

    Doreen...so glad you are OK...
    thank goodness....but so sorry for the pain you have been in..
    i hope it is short lived and gone very soon...

    hope you stay safe...and that Dr Lenke gives you
    a...
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    my spine is worse and i can barely walk from car...

    my spine is worse and i can barely walk from car to store...

    but Sparky is so much better....

    jess....and Sparky
  10. Replies
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    hi Sharon thanks so much for your kindness and...

    hi Sharon
    thanks so much for your kindness and concern...
    you are so right....bunnies do NOT understand...

    he has a check of stitches on Oct 22nd.....they may tell me
    then how long cone has to...
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    momma awake watching over little puppy...such...

    momma awake watching over little puppy...such
    extensive serious surgery he just had...

    my spine is so tight from tension...feels like i lost benefit of botox shots
    i just had barely a month...
  12. hi Susan had to look that one up myself...cauda...

    hi Susan
    had to look that one up myself...cauda equina syndrome...
    wow...so many things listed as possible causes...
    including "poorly placed screws...." and "spinal stenosis"...
    and a whole list...
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    puppy looked like he was asleep on bed... turned...

    puppy looked like he was asleep on bed...
    turned around to type on computer...
    turned back around...he climbed over quilt and
    snuck onto pillow on bed, right in back of me, to get closer to...
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    thank you, Leah, Sharon, Jen, and Maria...and...

    thank you, Leah, Sharon, Jen, and Maria...and Jackie doggie

    yes, he is home...laying on my bed...with wee wee pad under him...he never had one of those til hospital...but i put him down in yard...
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    ..[ATTACH]1639[/ATTACH here is my sweet...

    ..[ATTACH]1639[/ATTACH


    here is my sweet "emotional support animal"
    they removed cone while we visited...

    j.
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    hi Sharon thanks for kind support... whenever...

    hi Sharon
    thanks for kind support...

    whenever lab report comes in...
    it might take a week i think...they have to analyze the tissue..
    which is harder than just checking to see if fluid is...
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    thanks so much, Jen...hopefully he can come home...

    thanks so much, Jen...hopefully he can come home tomorrow..
    we just saw him...rushed over to try to get him to eat...he has
    food there that i left for him...but he won't eat at hospital....

    got...
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    off topic...but about my "emotional support...

    off topic...but about my
    "emotional support animal" who helps me feel better
    just being around...
    just got call from vet surgeon...
    (Sparky had surgery today....but it was done late in afternoon,...
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    hey guys... just wanted to write that i have...

    hey guys...
    just wanted to write that i have that stuff and i have NOT had
    fusion surgery....
    have tronchoteric bursitis thing (splg?) in left hip...verified w/MRI...
    was told it is caused by...
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    the intense burning pain in left hip is back...

    the intense burning pain in left hip is back about 50% of time...
    i believe the head pain doc DID give me full steroid dose, not
    half dose as i asked for...i do not trust him...
    the pain is JUST...
  21. Thread: Update

    by jrnyc
    Replies
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    hi Kara sorry to hear that you will need foot...

    hi Kara
    sorry to hear that you will need foot surgery....but i hope
    it corrects the problems and that you will be free of the pain
    after you heal...
    please write and let everyone know the date...
  22. Thread: Newly Diagnosed

    by jrnyc
    Replies
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    you are welcome...i meant every word of it......

    you are welcome...i meant every word of it...
    she seems brave beyond her years....
    of course she will have some "moments"...she is a super
    hero, but still human...

    i am sorry she will have to...
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    hi fifa welcome... i am just shocked that no...

    hi fifa
    welcome...

    i am just shocked that no "standing" films were taken sooner...
    i thought X rays while standing were the simplest, cheapest to
    do and the first ones doctors ordered, vs. more...
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    thanks, Sharon... they have since relayed to me...

    thanks, Sharon...
    they have since relayed to me that they will "try" to remove
    cyst on Sparky's prostate but IF they cannot, they will drain
    it again, flush area with antibiotics, etc...
    been...
  25. Peggy... as for what to do for while you are...

    Peggy...
    as for what to do for while you are away...

    is your mail being taken in/looked after?
    any bills to prepay, like phone or anything to pay in advance
    so you owe nothing on utilities if...
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