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  1. Replies
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    Oh Jess. (sad face). Yes, the weather is doing a...

    Oh Jess. (sad face). Yes, the weather is doing a number there-- I've been following it closely as I have a daughter/family in New Hampshire just an hour from Boston and they've been getting all that...
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    Yes, congratulations on your baby! It's so easy...

    Yes, congratulations on your baby! It's so easy to get caught up in a disagreement between your two doctors' views and worry about your health. Over the years there have been a number of women on the...
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    Fifa - my heart goes out to you. What you are...

    Fifa - my heart goes out to you. What you are going through is very difficult, but for the most part they are problems that many people have dealt with on here over the years. The depression is...
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    I'll just highlight Linda's word about being...

    I'll just highlight Linda's word about being disappointed. I was an elementary librarian when I had my surgery, responsible for teaching classes in 45 minute increments from K-5 all week long, no...
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    No, it's not such good news as what we would have...

    No, it's not such good news as what we would have wanted, but it is still news, so we are thankful for that, Jess. You are right, Jennifer, about the good spirits. What a dear soul. Please let her...
  6. Thread: Update

    by Susie*Bee
    Replies
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    8,677

    That is wonderful news!!! (Super big smiles!!!)

    That is wonderful news!!! (Super big smiles!!!)
  7. That is exciting to have your date set and to be...

    That is exciting to have your date set and to be getting ready! Plus it can give you that roller-coaster ride of being a little nerve-wracking also... The exercise I did to prepare was using a...
  8. Thanks for the info. Yes, always north to south....

    Thanks for the info. Yes, always north to south. I should have said that. (big smile). I may not have had the info all there, but you don't change the direction of wiping from when you had wiped from...
  9. You will only get an infection if the fecal...

    You will only get an infection if the fecal matter actually gets past the labium (protective 'lips') and enters into the vagina. At least that is my understanding. That is why little girls are taught...
  10. Fifa and anyone having problems -- I was fused...

    Fifa and anyone having problems -- I was fused T2-L4 and it was a really long reach for me plus I wore a brace. I never used tongs-- just figured I could manage somehow. I still cannot wipe from the...
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    It's been awhile for me, but I remember having...

    It's been awhile for me, but I remember having difficulties with body temperature regulation. You are probably on course. It's just really tough with so many things for awhile. Hang in there. It does...
  12. You heard from her -- Chris WBS. (smile) Very...

    You heard from her -- Chris WBS. (smile) Very nice and helpful.
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    Fifa - that sounds like a very peaceful way to...

    Fifa - that sounds like a very peaceful way to celebrate Christmas. And the best way for you and your father to keep the stress levels down and continue with your recoveries. I am so sorry about your...
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    Thanks so much!

    Thanks so much!
  15. I've never set off an alarm. There's no point...

    I've never set off an alarm. There's no point worrying about things ahead of time. As Linda said, it's usually no big deal.
  16. Again, I am not fused to the sacrum but will butt...

    Again, I am not fused to the sacrum but will butt in anyway. I am fused T2-L4, so 15 vertebrae. Just picture a LONG amount of your back 18-20" (?) with rods built in -- that is the word picture Linda...
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    http://nypost.com/2014/12/01/sloppy-doctor-botched...

    http://nypost.com/2014/12/01/sloppy-doctor-botched-spine-operation-disabling-girl-suit/

    There, I think that works...
    That's a shame. All surgeons have problem cases, and this was in 2007.
  18. Replies
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    Dear Fifa - I am so sorry you are going through...

    Dear Fifa - I am so sorry you are going through all these problems. Some do and some don't -- and you just never know. The one thing to keep thinking of is that you will get through this. And I know...
  19. Thread: need advise

    by Susie*Bee
    Replies
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    1,290

    I find this all very interesting, as I'm not...

    I find this all very interesting, as I'm not fused to the sacrum but have some of the same difficulties as Linda. I think it is the age factor and arthritis in my knees and hips. I don't have a...
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    Dearest Fifa-- I have been following along and...

    Dearest Fifa-- I have been following along and read with horror at the mistreatment you received from the hospital when they dismissed you way too soon. I cannot believe it! When you are feeling...
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    Thanks for the suggestion but I didn't start a...

    Thanks for the suggestion but I didn't start a new one because Rohrer set this up (see bold) for others to use also in the initial post. I just put part of that post here so you can see.

    Yes,...
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    Here are what parts of my EMG report said if...

    Here are what parts of my EMG report said if anyone is interested:

    -Right and left peroneal and tibial motor nerve compound muscle action potentials were severely reduced. Conduction velocities...
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    Dear Marjorie - I just retired... so this year I...

    Dear Marjorie - I just retired... so this year I can sleep in if desired. (hooray!) But yes, I did find that my energy level decreased very much after my surgery. It took me a good 3 years to...
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    Has anyone heard from Rohrer lately? I am...

    Has anyone heard from Rohrer lately? I am concerned. As far as my CMT, I have definitely been confirmed with it through my mother's genetic testing, my bloodwork, and EMGs, etc., with my new...
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    From the IV solution. Sometimes they give you a...

    From the IV solution. Sometimes they give you a super IV -- Ti-ed could tell you a little about that. But it is heavy duty stuff. I have a really low metabolism so it doesn't take much for me to gain...
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