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    Baroness, This is also another chair I...

    Baroness, This is also another chair I own.....which is an option.....It’s a little heavy but comfortable.

    Chairs are like beds, you have to go to the store and sit on them or lay on them for a...
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    Hi Nan! Hope things are well in Utah and the...

    Hi Nan!

    Hope things are well in Utah and the back is good!

    Sitting is a science for us.....even though I have that backpack chair, I also like variety in chairs....provided they offer some...
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    I have bought quite a few different types of...

    I have bought quite a few different types of portable chairs through the years.......

    This one is my current favorite.....It has lumbar support and shoulder slings and is adjustable through the...
  4. Wow Gail, $2200 is nuts. I didn’t realize...

    Wow Gail,

    $2200 is nuts. I didn’t realize that a bunch of years has passed, and insurance rates have pretty much doubled under Obamacare. I guess “we” all have to make damn well sure the...
  5. Most of us have some sort of rib hump since that...

    Most of us have some sort of rib hump since that comes with the rotation that happens with scoliosis. With todays modern hardware, they do have the ability to reduce our humps through de-rotating or...
  6. Thanks for the update Irina... There are many...

    Thanks for the update Irina...

    There are many of us that are concerned and thinking about Susan. I hope she gains strength quickly.....

    Ed
  7. Hi Meagan Welcome to the forum! Just...

    Hi Meagan

    Welcome to the forum!

    Just wondering where you were done in 1994? Was that in San Diego?

    Ed
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    Glad to hear things went well Jackie.... Hang...

    Glad to hear things went well Jackie....

    Hang in there

    Ed
  9. Susan Glad to hear you didn’t have to travel,...

    Susan

    Glad to hear you didn’t have to travel, its quite an ordeal if not walking.

    We are rooting for you!

    Hang in there

    Ed
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    Wow! Such good news! Deep breaths.... Ed

    Wow! Such good news!

    Deep breaths....

    Ed
  11. Susan, If you are ok sitting in a chair all day,...

    Susan, If you are ok sitting in a chair all day, I would fly. Can you maintain with the pain?

    Fly Portland to San Jose......arrange for a wheelchair transport van in Portland and in San Jose. They...
  12. Ohhh Susan, your brother is soooo right, take it...

    Ohhh Susan, your brother is soooo right, take it one day at a time.....Sigh....

    I was there for my dad who had ALS years ago.....and many of the thoughts that my father had were conveyed to me at...
  13. I noticed this.....but is has been 17 months for...

    I noticed this.....but is has been 17 months for Susan.

    Its so hard to tell with the human body being so complicated.....it seems its always something new.

    When Richard Pryor was diagnosed...
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    What I mean is that you will see constructs like...

    What I mean is that you will see constructs like mine without cross connectors and some with one or a few. Companies might recommend a cross pc for certain parameters, with the surgeon making the...
  15. “Temporary paralysis of fibromyalgia”........ ...

    “Temporary paralysis of fibromyalgia”........

    Wow, Susan....

    Any new developments? What are the docs saying?

    Ed
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    Jackie, its good to see a plan in place....... ...

    Jackie, its good to see a plan in place.......

    I have read about cross members in the past but cant remember why and when they use them. Maybe Linda would know? I have never seen any discussions...
  17. Jackie and I are on the same page....I also knew...

    Jackie and I are on the same page....I also knew someone with Guillain Barre.....and they also recovered....

    Hang in there Susan, Its going to be all right......this is just a temporary setback.
    ...
  18. No, I was thinking more like Blue Coral. ...

    No, I was thinking more like Blue Coral.

    Susan, what do you think is going on?

    Ed
  19. With a pressure washer? Did you get the wax for...

    With a pressure washer? Did you get the wax for the $2? If not, insist on it the next time.

    Susan, Rohrer, at least you guys have a sense of humor in all of this.....lets hope this all passes...
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    I don’t, but there could be posts if you...

    I don’t, but there could be posts if you search....this is a very rare thing.

    I wouldn’t hesitate taking her back to the hospital if need be....try to stay strong through all of this.

    I’m so...
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    I wasn’t ready since I owned a precision...

    I wasn’t ready since I owned a precision manufacturing company and had 52 employees. At the end of 2007, my efforts at pain control were not working, and I finally set the date. That triggered the...
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    Linda That would be great. I like the patient...

    Linda

    That would be great. I like the patient panel idea....If you need a volunteer, let me know I will come down....

    Video would be a good idea....

    Ed
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    Susan has some good posts above....makes it hard...

    Susan has some good posts above....makes it hard to follow.

    Of course its hard not to like Dr Hu, Berven or Burch....

    Linda, are you going to organize another meeting again at some point? I...
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    Yup.....4340 chrome moly steel.... Now, if I...

    Yup.....4340 chrome moly steel....

    Now, if I can manage to suck my beach ball in, I’m almost there....(smiley face)

    Ed
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    Which example? #23 gets the hardware award for...

    Which example?

    #23 gets the hardware award for sure....

    Ed
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