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    This is Ti Ed, one of the forum's spokesmodels ...

    This is Ti Ed, one of the forum's spokesmodels :-)

    He is doing a seated twist. His shoulders are displaced at least ~65* away from his hips I would say. That is QUITE a twist and he is fused to...
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    Look at Ti Ed's pictures in his signature (I...

    Look at Ti Ed's pictures in his signature (I think)... he is fused to pelvis and can still twist through a large ROM with shoulders. I think he hit about 90*.

    When I assessed my daughter's ROM...
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    No that is only for lumbar fusions. My kids have...

    No that is only for lumbar fusions. My kids have something indistinguishable from full ROM bending forward because they are only fused to L1. If your fusion ends at L1 I suspect you will not notice...
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    Good luck, Gayle. Time for you to catch a break....

    Good luck, Gayle. Time for you to catch a break. :-)
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    My kids have T4-L1 fused and they claim they...

    My kids have T4-L1 fused and they claim they don't notice a difference from before. But I think that is because they had a lower ROM just from having curved, rotated spines. They do not have the...
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    Hi and welcome. Don't beat yourself up. You...

    Hi and welcome.

    Don't beat yourself up. You are doing a good job! The fusionless surgery is so promising.

    Your son is not near surgical range so I don't understand that comment from the...
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    Those are good videos. As I understand it, they...

    Those are good videos. As I understand it, they are trying to fully explain everything to the patients so the patients can partially own the decision.

    Patients can't ask about the evidence case...
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    I agree with this. I am going to edit my post to...

    I agree with this. I am going to edit my post to make it about what I would do as opposed to suggesting what others should do. And that people should get reasons from their surgeons for these...
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    I guess I wouldn't trust a surgeon who...

    I guess I wouldn't trust a surgeon who recommended iliac crest bone harvest. :-) Or at least I would get 3-4 other opinions before accepting that. And I'd want to see ever paper every written on...
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    Okay but I know a person who claims the ongoing...

    Okay but I know a person who claims the ongoing pain associated with the bone harvest site is much worse than anything associated with her back. She traded one bad pain for another which may or may...
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    EDITED If a surgeon ever suggested to me that...

    EDITED

    If a surgeon ever suggested to me that I or my kid needed bone taken from the iliac crest, I would ask them why, I would ask for evidence, I would ask about the risk of pain the rest of my...
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    If both your curves are structural then both...

    If both your curves are structural then both would be fused in an adult. If he said you will have some curve left in your lumbar after fusion, it might mean you have the same type of curve one of my...
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    Stefan, I am very impressed by your thought...

    Stefan, I am very impressed by your thought process! It is obvious you have been researching and weighing your options.

    I think you are missing a key piece of information... whether or not your...
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    A top surgeon in this field stated that if you...

    A top surgeon in this field stated that if you just need a T fusion that only goes to about T12 or L1 and the lumbar alignment is good, you will likely never need to fuse the lumbar. That is...
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    By the way, I remembered a comment our surgeon...

    By the way, I remembered a comment our surgeon made about physical restrictions and kids. He said about 95% of kids need no physical restrictions to get a good fusion. They can resume life as their...
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    My daughters had T fusions as teenagers and were...

    My daughters had T fusions as teenagers and were back in school full time at around 3 weeks post op. They felt back to normal in a few months.

    Here is a surgeon's blog about his patients. ...
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    Hi there. Although you are an adult, you are...

    Hi there.

    Although you are an adult, you are a very young adult. Based on the testimonials I've read here which may not be representative, my guess is you would recover as fast as a teenager...
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    Gayle! I am so sorry! I was hoping it wasn't...

    Gayle! I am so sorry! I was hoping it wasn't broken rods again. I hope they can figure out why this is happening.

    Thinking of you.
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    I am not a patient but only a parent of two...

    I am not a patient but only a parent of two patients. I know shear fear can get in the way of the pursuit of high quality information and reasoned discourse. I think some parents who are otherwise...
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    Why can't you just stop reading and posting? ...

    Why can't you just stop reading and posting? What is the point of deactivating the account?

    Just curious.
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    Good point. Chiros read radiographs. Given...

    Good point.

    Chiros read radiographs. Given that, anyone can read them FULL STOP.
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    Hi. Because this area deals with adults who can...

    Hi. Because this area deals with adults who can do whatever they want and there are no innocent children involved, I actually don't have a strong opinion. But I just wanted to make a suggestion...
  23. I think Ti Ed has a genius at writing posts that...

    I think Ti Ed has a genius at writing posts that are always spot on for whatever situation arises on the forum. He is easily the funniest poster in my opinion. Love Ti Ed. :-)
  24. Hi Dajl, I am glad you posted about your...

    Hi Dajl,

    I am glad you posted about your daughter and I am sorry she and your family are dealing with this.

    There are not many parents on here with children who have JIS. I am guessing that's...
  25. Thread: Side Planks

    by Pooka1
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    You are always allowed to respond rationally,...

    You are always allowed to respond rationally, Fer. Your choice.
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