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  1. Brynn, We were wondering what happen to you at...

    Brynn,

    We were wondering what happen to you at the support group meetings! I'm so glad that Dr. Akbarnia has worked out well for you. I hope that you are doing well and come back and see us soon....
  2. MEETING!! January 28, 2006 3030 Children's...

    MEETING!!

    January 28, 2006

    3030 Children's Way
    Medical Office Building next to Children's Hospital
    Room 113

    2pm-5pm
  3. Hi, I just wanted to let you know that the...

    Hi,
    I just wanted to let you know that the Scoliosis Association of San Diego is having a meeting on January 28, 2006 at 2pm. It is being held at 3030 Children's way at the Medical Office Building...
  4. Hi, I just wanted to let you know that the...

    Hi,
    I just wanted to let you know that the Scoliosis Association of San Diego is having a meeting on January 28, 2006 at 2pm. It is being held at 3030 Children's way at the Medical Office Building...
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    Swimming is one of the best exersises a person...

    Swimming is one of the best exersises a person with Scoliosis can do. Depending on what type of brace your son has he might not be able to participate in tennis or school P.E. but everyone is...
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    many of those symptoms also can relate to a neuro...

    many of those symptoms also can relate to a neuro muscular disorder called Charcot Marie Tooth. There is the link if anyone is interested in finding more information about CMT....
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    i have some diffucultly with eye and hand...

    i have some diffucultly with eye and hand coordination as well but I was told that it was not from my Scoliosis but my CMT (Charcot Marie Tooth). I am very short and so I had to give myself sort of a...
  8. Sweetie, I'd be glad to be email pals with you...

    Sweetie,
    I'd be glad to be email pals with you if you'd like. I have had 4 spine surgeries so far and I'm currently fused with no rods. Feel free to email me if you'd like. redrum1016@yahoo.com
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    Going through surgery and the time it takes for...

    Going through surgery and the time it takes for recovery can be hard to deal with but things will get better. Just know that you are not alone. Make sure that you have someone to talk to, be it your...
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    The only piercings I had when I had my major back...

    The only piercings I had when I had my major back surgeries was my ears. I took them out for the procedure and put them back in about a week later. I had a more minor surgery and I did have to take...
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    I would hope that you are not treated...

    I would hope that you are not treated differently. I live in California and I am on Medi-care and Medi-cal. I have not found any big differences except that it is harder to find a doctor that accepts...
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    I wore both a back brace and foot orthotics for...

    I wore both a back brace and foot orthotics for years (about 9-14y/o). The foot orthotics was for my Charcot Marie Tooth. Not all, but many people with Scoliosis/Kyphosis also have CMT. Your...
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    I no longer have rods in my back but when I did I...

    I no longer have rods in my back but when I did I set off most detectors. Especially in Chicago and London airports. This was actually back way before 9-11 too. Now that I don't have the rods I never...
  14. For anyone who is interested our next meeting...

    For anyone who is interested our next meeting will be Saturday June 18th at 2pm. The building is located at 3030 Children's way next to Children's Hospital, Room 113. Our speaker this month is Dr....
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    I have, I answered your PM. :-)

    I have, I answered your PM. :-)
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    When I was younger I had no problem sitting in...

    When I was younger I had no problem sitting in the back seat and would only get motion sickness if we were going to the mountians or something. As I've gotten older it has gotten worse, I have to be...
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    I have not been able to crack my neck or back on...

    I have not been able to crack my neck or back on purpose since surgery. Sometimes it might crack on its own but that doesn't always feel good either. Cracking anything is really not that good for you...
  18. Oh ok, well there is no where to sign in or...

    Oh ok, well there is no where to sign in or anything. You just click on the tab of the page you want to look at. Hope you like it.
  19. There shouldn't be any need to sign in :-( Can...

    There shouldn't be any need to sign in :-( Can you tell me where it said that so that I can make sure that it doesn't happen to anyone else? I will still keep you posted anyway. Hopefully you can try...
  20. No there are no groups in North County....our...

    No there are no groups in North County....our chapter was recently developed and the closest one before ours was in Orange County. We usually have our meetings at Children's Hospital on Children's...
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    I too have CMT. I was diagnosed at the age of 8...

    I too have CMT. I was diagnosed at the age of 8 with CMT Scoliosis and Kyphosis. There are certian types of CMT that seem to have a strong connection with Kyphoscoliosis. I want to say type 3 but I'm...
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    I have a neromuscular disorder called CMT...

    I have a neromuscular disorder called CMT (Charcot Marie Tooth) that causes foot problems and pains but it might be something completely different than what you are asking. There has been some...
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    I think that I've posted this before, but I too...

    I think that I've posted this before, but I too have Scoliosis/Kyphosis and severe CMT. I was diagnosed at 8 for all....if there is anything that I can do, or help I can give please feel free to ask....
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    Kmhame- Your story was very interesting to me...

    Kmhame-
    Your story was very interesting to me because I had almost the exact situation. My scoliosis curve is still around 75 degrees and my kyphosis curve is around 30 degrees, after three back...
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    I have. I had the bars put in when I was 11 or...

    I have. I had the bars put in when I was 11 or 12. The rods were put in and then about a year later I fell down playing with some cousin's and when I got up I had a huge fluid filled lump on the top...
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