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  1. Replies
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    Richard, I have not had surgery, but do have a...

    Richard,

    I have not had surgery, but do have a pretty large rib deformity under my left scapula. I also know people who have had surgery.

    Just something to remember; you don't have that much...
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    Thank you both for your kind words. It's...

    Thank you both for your kind words. It's appreciated! My dad outlived his "life expectancy" by about five years. In fact, months before he died they kicked him out of the hospice he was on because...
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    It's Official

    My dear scoli friends,

    Like the title of my topic, it's official that my downward spiral is speeding up. I may not be strong enough to survive a surgery. I haven't heard from Dr. Folgeson's office...
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    Ed, That upper back and neck pain is horrible....

    Ed,

    That upper back and neck pain is horrible. I never expected to have lower back pain as my problem has been upper back and neck pain with arm involvement since I was about 12 which really took...
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    Wow! That's one big fish. Do you ever watch...

    Wow! That's one big fish. Do you ever watch "Wicked Tuna"? I never realized how big tunas really are.
    I hope your pain is better. I don't remember mentioning those things. I used to live eerily...
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    I'm just updating my thread. I got approval...

    I'm just updating my thread.

    I got approval from insurance company to see Dr. Folgeson in Rochester, MN. Waiting on appointment.
    I also had my first facet joint injections. These were the easiest...
  7. As far as the research I've done, and it's posted...

    As far as the research I've done, and it's posted somewhere on here Chiari Malformations are associated with left primary curves, affecting 40% of those with convect left curves. I'm not going to go...
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    My sister that lost a lot of hair has a short...

    My sister that lost a lot of hair has a short hair cycle. She could never grow it past shoulder length. I lost about 50% of my hair once. I don't know why. It gradually grew back. My hair is too...
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    My insurance accepted the referral request with...

    My insurance accepted the referral request with the stipulations that any tests he wants done have to be done in-house AND warned me that they may charge more than they are willing to pay, leaving me...
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    Burdle, I'm glad your hair will come back. My...

    Burdle,
    I'm glad your hair will come back. My sister started losing hers in her 30's and it never came back. You can see her scalp, so she bleached it a lighter color so it isn't so obvious. My hair...
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    Melissa, If they can get a spinal cord...

    Melissa,
    If they can get a spinal cord stimulator in past your fusion, there is another option. They have a morphine pump that bathes the spinal cord with morphine and eliminates/reduces pain. If my...
  12. So are you fused C2 - pelvis? That sounds about...

    So are you fused C2 - pelvis? That sounds about like Melissa. My neck hurts so bad now, it's probably nothing compared to what you are feeling! I'm glad that part is over with for you. I'm so sorry...
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    So what will be the limitations on using your...

    So what will be the limitations on using your arm, especially since it's your dominant arm? Will it be limited range of motion? Will you risk tearing the muscle graft if you lift your arm too high? ...
  14. I was going to post here, too, until I saw the...

    I was going to post here, too, until I saw the date.
    Ed, I hope everything turned out all right. I've heard of Kleinfelter's Syndrom but never knew anyone that had it or was related to anyone that...
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    Thank you, Jackie. I will keep that in mind. You...

    Thank you, Jackie. I will keep that in mind. You have a VERY long fusion. Did it take place all at once or in steps like Melissa? Okay, you answered my question in your signature. I didn't look until...
  16. Thread: Now my dad

    by rohrer01
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    Kara, I'm so sorry to hear that your dad is...

    Kara,
    I'm so sorry to hear that your dad is always in pain. I can empathize with him there.
    You can let him know that your scoliosis friends wish him well.

    Rohrer01
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    I really hope that all this lifelong exercise...

    I really hope that all this lifelong exercise works for Scott. If it doesn't, exercise never hurt anyone and he will be in great shape if, hopefully not, surgery is ever needed.

    Good Luck,...
  18. Thread: Now my dad

    by rohrer01
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    That can make a small scoliosis progress. Some...

    That can make a small scoliosis progress. Some people get scoliosis strictly from degeneration. I hope he's okay and his curve/s stay small and he's not in pain. I wish him all the best. He has our...
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    Thank you, Melissa. That is very kind. I'm...

    Thank you, Melissa. That is very kind. I'm guessing it's very debilitating? I don't plan on having a fusion like that. I'll meet with the doctor if my insurance allows and see what he says.
  20. Thread: Now my dad

    by rohrer01
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    Kara, I'm so sorry to hear that your dad has...

    Kara,
    I'm so sorry to hear that your dad has scoliosis, too. On a positive note, he's probably had it for a very long time and they just never noticed it. That is if it's not arthritis...
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    Even if the study started when he was in medical...

    Even if the study started when he was in medical school, he could have gone to school with this particular interest in mind and teamed up with a professor to get involved (I had a couple of favorite...
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    I don't mind a thread taking a turn to a relevant...

    I don't mind a thread taking a turn to a relevant topic. Conversations evolve, so you don't need to start a new thread.

    I'm sure that if anyone has feedback on this doctor they will chime in...
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    I think I stood my ground pretty well. THIS is a...

    I think I stood my ground pretty well. THIS is a PRIME example of why religion or at least particular religions should NOT be discussed. There are always going to be haters. I think it's sad that the...
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    Ed, First of all you didn't derail this thread....

    Ed,
    First of all you didn't derail this thread. You didn't bring up religion, especially a particular one. Sharon did that. I'm not upset with you. You know that I take narcotics and you shared your...
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    Believe me, I am aware that the students do a...

    Believe me, I am aware that the students do a lion's share in the actual work in a study or a published experiment. I did a ton of work as an undergrad. With that said, if she published the paper my...
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