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    Thanks so sorry you had this journey too. They...

    Thanks so sorry you had this journey too. They have seen ID and they and other departments looked into things. The trouble has been there is no talking to one another especially in the same room. I...
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    short answer

    yes! one has the stuff in the other just recently had it out.
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    Too much to think about

    Hi again,

    i agree some symptoms may not play role with scoliosis but they may - and who am I to say -play a role with a bloodstream infection which p acnes can be as well as if osteomyletis...
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    Just the facts

    Same surgery day 2009
    oh yes both no no menses!!!! for over a year!
    twin 1

    Winter 2010 clean out and removal of screw

    Spring 2010 sinus tract infection burst with drainage instrumentation...
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    Thanks this has been a very unbelievable journey....

    Thanks this has been a very unbelievable journey. I hope it ends well! Thanks for your support! Mary
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    ok

    yes it was confusing but the last two years have been confusing! M. had her surgery to remove a screw and was fine then had infection with four impacted wisdom teeth that ID Docs said was probably...
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    Back again after 5 years! HELP!

    I used this forum and got great help five years ago with one of my twin daughters. We are back with the other twin who also turned out to be infected by the same bacteria. She went to several docs...
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    Thanks

    Thanks. I don't know that much about drainage issues after the healing has commenced. We have tried a health club but the girls weren't consistent. The guilt over what has happened makes us prime...
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    Soo complicated

    Thanks for the responses! It is always helpful to hear other voices.

    We did get in and saw the doc. He thought it was due to the some sutures coming through and possibly her increased level of...
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    Drainage from surgical incision

    I have started a new thread for this issue. My daughter's surgical scar widened and had sutures popping out. Doc said no problem. Now there is drainage looks like blood but it also could be pus. It...
  11. Thoughts

    Well everyone, the girls are coping well with things as they are. Surgery will probably happen but after Basketball Season. Meg is just continuing on with the pain. Maddie is dealing with the...
  12. Something worrisome about the other twin

    Hi again. My other daughter has been complaining of pain off and on. At a neuro exam for headaches, they had her touch her toes and on her back a hard bump came up which hurts when it is touched. ...
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    No vent how wonderful! I am amazed at the length....

    No vent how wonderful! I am amazed at the length. of surgery! Hope all continues to do well! Mary
  14. Another long one

    Hi, Thanks for the comments. Sorry - MFE stands for Multi Factored Evaluation the meeting and tests used to show a need for an IEP. She passed. This time she can come to school and still have home...
  15. New Question re: Return to School

    Hi again, I am not posting a new thread so please give me a round of applause! My daughter continues to do very well. She has gone to a pro basketball game and HS soccer game with her brace and...
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    News

    Great to hear, about more good news! You know one perswon I know, makes golf clubs as a hobby - the wood ones- maybe you coulld take iti up while you wait! Mary
  17. Sorry

    Hi Amanda,

    I have been reading this and although my experience with this is all adolescent scoliosis, I empathize. So sorry! Second Opinions - especially when you are very intelligent - put you...
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    good luck

    Don't let that anxiety get a hold of you!!!! Think positive it really is worth the effort. You will do great! Mary
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    Sharp Pains

    I missed all of this ! At least I help with stabbing pains. Both of my girls and now one of the twins are and have dealt with this. Valuim seems to work well.
    Glad surgeries went well. The shoulder...
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    Our Experience

    My daughter had both MRIs. They were looking for infection. Our problem was more logistics since we had to travel to a further away med center for the MRI with contrast. It also was much more of an...
  21. No Bacteria!!!!!!!!

    After so many months my daughter is bacteria free!!!!!!!!!!!!!!!!!!!! No more antibiotics!!!!!!!!!!!! This is with belly and earing piercings - which did start to get slightly infected in the...
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    Docs

    I can give you names of Peds Ortho in Cleveland two who are SRS and might give you the names of Adult SRS Otho. just PM me. Good luck with all of this. Mary
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    Wow Sorry I missed this!

    I am so sorry for all that you have been through!!!!! My daughter was the only one 100% behind our doc for her surgery and for the ID doc. Despite our concerns the issue of not doing the surgery...
  24. More good news!

    My daughter had her post op visit and all looks well. She even handled a short trip to the clothes store yesterday. There is still an issue with her left arm and left hip tingling and and...
  25. Just wanted to say Good Luck

    Sorry to hear of your issues. I loved the wine induced joke!!!!!
    It's sorry hard to deal with the anxiety when you see and or feel it daily.
    Try to stay out of your head and push the negative...
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