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    I think all have had great input as for what you...

    I think all have had great input as for what you could possibly do next. I know you have so much to deal with! I just wanted to say that I am 29 and was born with congenital scoliosis. I believe...
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    Very true! I have been very grateful to have...

    Very true! I have been very grateful to have found this forum. My husband and two children (12 and 6) are wonderfully supportive, and I am very lucky on many counts. All I ever wanted going...
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    Thank you very much for the support. It has been...

    Thank you very much for the support. It has been a very trying time and has made me very mad and upset to hear that it's just going to be that way. Although I function very well, and could be much,...
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    Actually it was a scoliosis specialist who then...

    Actually it was a scoliosis specialist who then sent me to a pain management place for the shot. His words were harsher than necessary, of course, but I wasn't upset about having gone to him. He...
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    Looking for ideas please!

    I was diagnosed with congenital scoliosis (a hemivertabrae) at a very young age (really not sure) and had two surgeries at ages 7 and 9 to do a spinal fusion which involved two rods and some bone...
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    Looking for ideas please!

    I was diagnosed with congenital scoliosis (a hemivertabrae) at a very young age (really not sure) and had two surgeries at ages 7 and 9 to do a spinal fusion which involved two rods and some bone...
  7. Tracy, Thank you for posting this. I know...

    Tracy,

    Thank you for posting this. I know that it is a struggle. I had rods put in 22 years ago at the age of 7 (and another surgery done at 9). I had little to no trouble until about 5 yrs ago...
  8. It is in Wichita, and I was referred to a Dr....

    It is in Wichita, and I was referred to a Dr. Adams there. It sounds like it's very comprehension, has sports medicine, specializes in spinal disorders, and other things. I originally went to KUMC...
  9. Anyone familiar with the Kansas Joint and Spine Institute?

    I have been referred there for further help for my congenital scoliosis and am unfamiliar with them. Any info would be appreciated!
  10. Anyone familiar with Kansas Joint and Spine Institute?

    I have been referred there for further help for my congenital scoliosis and am unfamiliar with them. Any info would be appreciated!
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    Thank you for your words. Yes, actually that was...

    Thank you for your words. Yes, actually that was the scoli dr that I spoke of. He took over my former dr's patients when he retired. I have had wonderful scoli drs and cardiologists in the past,...
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    Congenital Scoliosis

    I am wondering if there was anyone with experiences concerning 20+ years after rods, persistant pain, and what seems to be shrinking. I had my rods put in at the age of 7, but it probably would have...
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    I keep hearing Dr. Lenke's name but had never...

    I keep hearing Dr. Lenke's name but had never been familiar with him. Up until now I have only dealt with drs at KUMC, and they have been so awesome. They have some of the best ortho and cardiac...
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    Ed, thank you for the info. I will look into Dr....

    Ed, thank you for the info. I will look into Dr. Lenke as well if need be. Thanks!
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    congenital scoliosis questions

    I am wondering if there was anyone with experiences concerning 20+ years after rods, persistant pain, and what seems to be shrinking. I had my rods put in at the age of 7, but it probably would have...
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    Thank you for the well wishes and your thoughts. ...

    Thank you for the well wishes and your thoughts. I am so reluctant to ever go to the doctor that these last two experiences have just compounded the problem. But I do have an appt. set with my...
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    Shrinking 20 yrs later

    Does anyone have any experience with, or knowledge about, shrinking long after surgery? I had rods put in at age 7, another surgery to place a rib in front of my spine at age 9, and I am now 29. I...
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    Congenital Scoliosis treated at age 7

    I am new to posting but have viewed this site from time to time and found it very helpful. It has been very hard for me to talk with anyone about all of my health issues, but being on here and...
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