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  1. Hi Tableone, I don't remember ever hearing...

    Hi Tableone,

    I don't remember ever hearing mention of him…have you considered UCSF? They have plenty of experienced revision surgeons, which is where Linda Racine works. There is also Serena Hu...
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    Hi Kara, I liked reading your report and...

    Hi Kara,

    I liked reading your report and hearing all the details you remember about your experience with scoliosis and Dr Gupta. It's amazing that over 5 years have passed since then! It sounds...
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    Hi there, Have you been to see a doctor and...

    Hi there,

    Have you been to see a doctor and have spine x-rays to check how everything is looking? It is impossible to advise or know what you can try until you find out the condition of your...
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    Hi Irina, I am so happy to read your great...

    Hi Irina,

    I am so happy to read your great report…I know Susan is on all of our minds but she is tough and has a great attitude. I am sure reading your good news is helpful for those approaching...
  5. Thinking of you Susan

    Hi Susan,

    I have been thinking of you this week and wonder how your surgery went. I hope you are comfortable and starting baby steps on the road to recovery.

    Please let us know how you are...
  6. Hi, I had to return to work at 14 weeks...

    Hi,

    I had to return to work at 14 weeks post-op my original surgery, then at 12 weeks post major revision, due to financial and job concerns. I was also getting bored, lonely, and isolated at...
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    Melissa, I am really surprised that you are...

    Melissa,

    I am really surprised that you are dismissed from Dr Bederman when your broken rod surgery was just a few months ago. Doesn't he need to follow you up for that?

    I am glad you had such...
  8. Dr Hart will fix you

    Dear Susan,

    I was stunned to read your update, and feel so bad for you. I really do know how disappointing it is to suddenly be faced with broken rods and starting back to square one with...
  9. Hi, You can ask your surgeon to put you in...

    Hi,

    You can ask your surgeon to put you in touch with other patients who have had similar thoracoplasties done by him. Then get in touch with them and ask them for their experiences. I did this...
  10. I know you directed your question to Linda, but I...

    I know you directed your question to Linda, but I wanted to chime in. I am sure a sacral fracture is extremely painful, so I would consider that a big problem. They can require surgery to stabilize...
  11. Linda, I am kind of surprised to read the high...

    Linda,

    I am kind of surprised to read the high rates of reoperation, pseudoarthrosis, and infection: Forty-one percent (n = 19) of the unilateral cases and 50% (n = 13) of the bilateral cases...
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    Sharon, That is shocking. Do you know what...

    Sharon,

    That is shocking. Do you know what happened to her?
  13. Hi there, I am glad to hear how well you are...

    Hi there,

    I am glad to hear how well you are doing! And a very good 6-week report. I had a single side iliac screw. The purpose of the iliac fixation is mainly to prevent sacral fracture, and...
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    Do you know about their pediatric partner, Scott...

    Do you know about their pediatric partner, Scott Luhmann? That was Leah's surgeon.
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    Hi there, Great advice above, and I especially...

    Hi there,

    Great advice above, and I especially agree with PeggyS that maybe you should only plan on graduation at the end of the year. I also think you may be too tired and sore, not to mention...
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    Hi Sharon, the little "wires" you see are skin...

    Hi Sharon,

    the little "wires" you see are skin staples.

    The article mentions she has had many spine surgeries, starting at 6 weeks of age…I guess I don't understand then why she wasn't fused as...
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    how is your balance?

    Hi Ed,

    That is pretty cool, it looks so beautiful where you are in the photo. Very tropical looking. I wonder how your balance feels up on the horse? I am not a rider, but I got on a mountain...
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    Hi Fifa (Rhonda), Have you tried Miralax? It...

    Hi Fifa (Rhonda),

    Have you tried Miralax? It doesn't produce the liquid effect that Milk of Mag produces. I stayed on it for awhile once I was off pain meds and it was just right.

    It sounds...
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    Hi there, will your fusion be T4-S1? Many...

    Hi there,

    will your fusion be T4-S1? Many here have that fusion and can speak to how they feel after. I wore a brace in jr high, and found that more restrictive than my T8-sacrum because the...
  20. I want to second what green m&m said about...

    I want to second what green m&m said about getting your post-op pain meds filled---I had surgery at a large university hospital 2 hours from our house. My husband was turned away by the Safeway...
  21. Hi there, those are great questions to ask...

    Hi there,

    those are great questions to ask about pain control. It is frequently helpful to have a family member or friend who can advocate for you when it comes to pain control.

    I am...
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    Hi Jess, Have you ever tried TENS? ...

    Hi Jess,

    Have you ever tried TENS? (Transcutaneous electrical nerve stimulation). Some PT's use it as an adjunct to very tight or spasmed muscles. My insurance bought me a TENS unit several...
  23. Thread: Update

    by leahdragonfly
    Replies
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    Hi Kara, I'm glad you had a nice Christmas,...

    Hi Kara,

    I'm glad you had a nice Christmas, and that your recovery is going well. One month down in the wheelchair, hopefully 2 more to go then you'll be on your way! It must be nice to get out...
  24. Linda, I am fused T8-sacrum and can wipe from...

    Linda,

    I am fused T8-sacrum and can wipe from the back without any aids. I think a lot depends on shoulder flexibility.

    I agree with Melissa that there a lot of things and movements I can do...
  25. It's really difficult to evaluate this info...

    It's really difficult to evaluate this info without reading the whole publication…But, I have to note, in the description the authors state the subject curves ranged from 6 degrees to 120 degrees. ...
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