Search:

Type: Posts; User: cdhheidi; Keyword(s):

Page 1 of 3 1 2 3

Search: Search took 0.08 seconds.

  1. Replies
    5
    Views
    8,253

    Stenting

    Good Morning,

    I haven't had time to check in here lately, but when I saw that your darling daughter needed some stenting done I thought I might post a bit. My son Sean has had 14 cardiac...
  2. Thread: Back home!

    by cdhheidi
    Replies
    6
    Views
    5,177

    So glad that you are home! And so thankful that...

    So glad that you are home! And so thankful that things went so smoothly, considering the issues and concerns for Hunter.

    I am sorry it took me so long to write back, and I had planned on sending...
  3. Replies
    2
    Views
    4,183

    Hunter (black widow's son)

    I just spoke with black widow, and hunter did very well with his fusion on Monday. He is still in PICU, but hopefully will be out on the floor by the weekend. She said he really is doing better than...
  4. Replies
    16
    Views
    12,010

    Regarding the apnea, has he ever had a sleep...

    Regarding the apnea, has he ever had a sleep study? Sean has both kinds of apnea and the difference once he started on bipap was amazing...

    as for the blood clotting issues, Sean is on...
  5. Replies
    16
    Views
    12,010

    yes, it IS hard

    But you will do what you need to do. That is what mothers do...

    My thought in addition to what has already been shared, dont be afraid to ask for help from the staff. One of the things I had...
  6. Thread: Please Read!!

    by cdhheidi
    Replies
    10
    Views
    7,876

    Brenda, So sorry I didnt see this sooner, we...

    Brenda,

    So sorry I didnt see this sooner, we also live in Idaho and my son has severe scoliosis, also seen by the same practice as Dr King. Sean was seen by Showalter for many years, had 5...
  7. Replies
    12
    Views
    6,239

    You are correct Linda, Sean's first two sets...

    You are correct Linda,

    Sean's first two sets of rods were SS and were the same size as the titanium. It amazes me that something so small can be so powerful.... but then I look at Sean and he is...
  8. Somehow my mail got lost to you... I am sorry...

    Somehow my mail got lost to you... I am sorry about that... I dont remember all that I had in it at this point. I think what you need to do is maybe make a list of pros and cons for each hospital,...
  9. Replies
    12
    Views
    6,239

    Ditto on asking the surgeon. BUT... I happen...

    Ditto on asking the surgeon.

    BUT... I happen to have my son's first and 2nd set of rods handy (they gave them to us after his later surgeries along with his other hardware including screws,...
  10. Blackwidow, you have mail

    Blackwidow, you have mail
  11. Sean did not have his first sleep study until...

    Sean did not have his first sleep study until after his fusion, so I dont really know if his apnea was present prior to it. Because he has mixed (both obstructive and central) I would not be...
  12. I have to say YIKES on the O2 levels at night. ...

    I have to say YIKES on the O2 levels at night. Yes, I would say he definitely needs O2 at night, and frankly, he may also need the bipap. I know it is really hard to get them to wear it, but it is...
  13. There are actually good reasons to do an anterior...

    There are actually good reasons to do an anterior fusion as well as posterior if it is physically feasible for your son. By doing posterior only, there is a possibility of something known as...
  14. Sean's VQ actually looked at both perfusion and...

    Sean's VQ actually looked at both perfusion and ventilation... Thankfully he didnt have clotting, he does have what are called blebs all over his lungs. Basically a bleb is like an overblown balloon...
  15. This is a link that explains the VQ study pretty...

    This is a link that explains the VQ study pretty well.

    http://www.uhcwv.org/pages/diagnostic/nuclearvq.html

    In Sean's case it was done at Seattle Childrens, and we arranged for him to be...
  16. Good Morning! Some kids have worsening lung...

    Good Morning!

    Some kids have worsening lung function after, some have improved. In Sean's case it sadly worsened, a little, as after his first fusion is when he had to go back on O2 24/7 instead...
  17. Thread: daily pain

    by cdhheidi
    Replies
    21
    Views
    15,382

    Many doctors (and patients) are afraid of pain...

    Many doctors (and patients) are afraid of pain meds because of their reputation for addiction. The thing is, if it is treating real pain, it is not like what most people think of as addiction. My...
  18. Thanks for asking, unfortunately STILL not...

    Thanks for asking,

    unfortunately STILL not done. It was postponed till this week as our surgeon was out of town last week. Wed is the the first procedure, with the 2nd being a few days later (not...
  19. Replies
    7
    Views
    9,841

    I am afraid your doctors offer to terminate...

    I am afraid your doctors offer to terminate really hit a nerve with me... let me explain.

    My son was born with a birth defect that led to scoliosis as well as other issues, and I have to tell you...
  20. Thanks ladies for the good wishes for Master...

    Thanks ladies for the good wishes for Master Sean... much appreciated! He is NOT looking forward to these procedures... but he also knows sometimes you dont have a choice! Will continue to check in...
  21. I agree, Dr King is really good. My Son's local...

    I agree, Dr King is really good. My Son's local doc is Buzz Showalter, and Dr King and Dr Shea have both worked with him on Sean's complicated issues. We did end up needing to go elsewhere for...
  22. Sean did not need blood for his first fusion...

    Sean did not need blood for his first fusion (yeah!) but for his 2nd he lost a fair amount. He ended up needing 4 units as well as various other blood products (platelets, etc). It actually was the...
  23. Happy Birthday to your son! For kicks I...

    Happy Birthday to your son!

    For kicks I looked up your area at the SRS website, and the only doc that came up is Stephen P. Delahunt, MD. I would suggest maybe he would be someone you could...
  24. Hi Back Carmell! :) We have a mutual...

    Hi Back Carmell! :)

    We have a mutual admiration society, as Carmell has also done an amazing job at making sure Braydon has the best quality and consistency of care. Important when taking care of...
  25. I am glad to share what I can. Sean is a...

    I am glad to share what I can.

    Sean is a trooper for sure. Back in his NICU days they called the Knight of the NICU, and that has always been true of his life.

    Do you have one doctor that...
Results 1 to 25 of 55
Page 1 of 3 1 2 3