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  1. Welcome! While I have degenerative adult onset...

    Welcome! While I have degenerative adult onset scoliosis, neither of my adult children have spine problems. Of course, as they grew up we had lots of challenges and I was far from a perfect mom, but...
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    Linda: Yes, Dr. Hart showed me the xray and the...

    Linda: Yes, Dr. Hart showed me the xray and the evidence that there was bone growth and hopefully some degree of fusion. I thought that it was very interesting and somewhat encouraging.
    Susan
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    While we as patients want to know exactly what...

    While we as patients want to know exactly what will be done surgically, there are always decisions that are made intra-operatively. Xrays, CT, and MRI can give the surgeon a good vision of what the...
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    Re: fusion or not? Of course the question of,...

    Re: fusion or not? Of course the question of, "Do you see fusion" is one that most of us ask at the first year visits. From my reading, I don't believe that one can "see" fusion, but probably lack...
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    Steph: Welcome! My scoliosis and kyphosis...

    Steph: Welcome! My scoliosis and kyphosis occurred when I was in my early 60's, maybe 50's which is probably "old" to you [it is to me!], so I did not experience being a young adult with scoliosis. ...
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    Billy, so glad to hear that you are doing well. ...

    Billy, so glad to hear that you are doing well. I think that you owe your recovery to you mum's good cooking. Make sure that you give her a big hug tonight!
    Keep enjoying life!
    Susan
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    Gayle: So sorry that you need more surgery, but...

    Gayle: So sorry that you need more surgery, but I am confident that Dr. Hart can help you.
    I wonder about an infection.
    Dr. Hart reinforced my hardware with rods in various places. I think that I...
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    It is quite understandable why you and others...

    It is quite understandable why you and others here are "worriers" about any problem/change that occurs. My experience has similarly caused me to pause with any change and not trust my body. I hope...
  9. Jamie: You are very sweet to call me your hero,...

    Jamie: You are very sweet to call me your hero, but I am just a scoliosis/degenerative disc surgery survivor like you. My usual style in life is to be fairly transparent and self-disclosing. I am...
  10. Fortunately, paraplegia from instrumentation...

    Fortunately, paraplegia from instrumentation problems/loose screws is quite rare. While the hours of paralysis were terrifying, the most frustrating/scary part was the inability of medical persons to...
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    Welcome George! So glad that you are doing well...

    Welcome George! So glad that you are doing well and able to follow your passion.
    Susan
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    Hoping that tomorrow is better. Sounds like you...

    Hoping that tomorrow is better. Sounds like you are doing everything to ride it out, if that is possible. Sorry that I cannot answer your question about a fracture, but wouldn't something be seen...
  13. Thank you all for your kind words. I find my...

    Thank you all for your kind words. I find my journey through life challenging, yet I have no choice but to keep trying to get into the mainstream of life. My brother said that he thought that I was...
  14. CT done....??? lumbar fusion, SI Joint pain!

    I have had continued progressive lumbar discomfort of sacral/pelvic tightening when I walk. Dr. Hart ordered a CT exam: questionable lumbar fusion [surgery 1.5 years ago, but have a spinal infection...
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    I am from Massapequa Park, Long Island....but...

    I am from Massapequa Park, Long Island....but live near Portland, OR so if you are ever in this neck of the woods or I am in New York, we could drink together!

    Congrats on your increased activity...
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    Steroids? You will get your house cleaned with...

    Steroids? You will get your house cleaned with your tons of energy!

    So sorry about your fall. You seem to be doing a correct management strategy and I love your very specific descriptions of...
  17. Thread: New body

    by susancook
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    How long were you in your "old" body with...

    How long were you in your "old" body with scoliosis? A long time! Give it time and you will learn to like your new body. Sure, there are some things that are different after surgery. The fact that...
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    Lizard: I looked at your X-rays....where is...

    Lizard: I looked at your X-rays....where is your L pelvic anchor fixed?
    Susan
  19. Linda: "It's not over...till" Dr. Hart has not...

    Linda: "It's not over...till"
    Dr. Hart has not confirmed anything. I suppose that he is waiting for the results of the CT of the pelvis that I had last week before he lets me know what he thinks....
  20. I continue in PT, usually 2x/week. Doing home...

    I continue in PT, usually 2x/week. Doing home exercises and walking with Canadian crutches. I have a lot of pelvic tightness with walking and wonder if it is related to my broken pelvic screw or if...
  21. Linda: I hope that you can view the broken screw...

    Linda: I hope that you can view the broken screw above. I just had a CT of the pelvis and will see the results this week.
    Susan
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    Gardenia: I cannot speak for any surgeons except...

    Gardenia: I cannot speak for any surgeons except the 2 that I contacted: Drs. Hart and Hu. Both said that they are specialists in "adult degenerative scoliosis". So, there are orthopedic surgeons...
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    Hope that it works for you! One less hassle. ...

    Hope that it works for you! One less hassle. Things are turning around for you.
    Susan
  24. Love the "overdoing it in an effort to force...

    Love the "overdoing it in an effort to force recovery". Love your recovery ethic!

    Dropping your undies in the dressing room can certainly poise a challenge! Have you thought about going...
  25. Peggy: Why did we think that recovery would be...

    Peggy: Why did we think that recovery would be progressively easier? I think that we were just hoping that it would be!

    Congratulations on your walk! I am impressed!

    Susan
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