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  1. Thank you Ed, Polka,Mariaf, Susan and others. I...

    Thank you Ed, Polka,Mariaf, Susan and others. I simply preparing for the worst and hoping for the best. As probably all of us are. Tomorrow the TTS machine is going to come in. Shall try to post...
  2. Meeting with Dr. Lenke

    Here are the excerpts of my meeting with Dr. Lenke last week :

    Surgery looks imminent was his opinion when we met us. He was ok with us waiting and watching while monitoring the progress of the...
  3. Crystal James is the New PAtient intake...

    Crystal James is the New PAtient intake Co-ordinator at Shriners Philly. Have asked him to connect to Dr. Betz.

    A copy of the mail has also been marked to Janet Cerrone and you as well.

    Would...
  4. Thank you Randy. Have sent them an email ....

    Thank you Randy. Have sent them an email . Looking forward to their response.

    Maria - Spoke to Dr. Hey's assistant. She looked at the Xrays and said that the fusion would go down to L4 if not L5. ...
  5. Help Wanted with Dr. Lenke's Appointment

    By some fortuitous turn of events Association of Spine Surgeon of India (ASSI) is organizing the SRS (Scoliosis Research Society) World Wide Conference (WWC) at Kolkata on the 23rd/24th of January...
  6. Thankyou for your thoughts. There could have been...

    Thankyou for your thoughts. There could have been many things that could have gone wrong with our children. Scoliosis is something that people live with after the necessary adjustments. Yes it has...
  7. Okay just to reiterate the sooner than later...

    Okay just to reiterate the sooner than later comment was of the surgeon. infact his exact words were the sooner the better. And this was echoed by all the five surgeons we have met so far.
    ...
  8. Thank you Pooka. Every drop in the ocean counts....

    Thank you Pooka. Every drop in the ocean counts. Lol.
  9. Dear Ed, Pooka and Susancook, Points very well...

    Dear Ed, Pooka and Susancook,

    Points very well taken. Just to explain when I said three month windows is to see the rate of curve progression over these periods. since her growth spurt is nearing...
  10. Just back from the second opinion from the doc....

    Just back from the second opinion from the doc. He too has suggested a full fusion posterior surgery sooner than later. Suggested levels T3/T4 to L4.

    Attached are latest xrays.

    We have decided...
  11. ..None.. Just an armchair economist hoping for a...

    ..None.. Just an armchair economist hoping for a much awaited turn of the curve (pun intended) LOL...
  12. Dear Linda, My questions and observations...

    Dear Linda,

    My questions and observations emanate from the posts in this forum. Cannot express how grateful we (and many other parents like us) are for having such a huge repository of information...
  13. Thank you Sharon. Will keep it in mind....

    Thank you Sharon. Will keep it in mind....
  14. Dear Ed, Thank you for your inputs Will...

    Dear Ed,

    Thank you for your inputs

    Will surely ask the specialist I am seeing next week regarding the neck thing.

    Whilst there are a lot of surgeons in India who are doing scoliosis surgery...
  15. Thank you Pooka for your detailed and timely...

    Thank you Pooka for your detailed and timely response as always. I appreciate that opinions of informed parents like yourselves are just that and cannot be substituted for doctors advise. However it...
  16. 13 year old daughter with a 44 degree lumbar curve

    ]Our 13 year old daughter has been diagnosed with adolescent idiopathic structural thoracolumbar scoliosis about six months back. We are based in India. We had been to Mumbai for consultation with...
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