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    the xray of the hemi on T4

    #26 posting has the xray which was taken in October, 2011.
    this shows the congenital scoliosis and was the very first xray we had taken and the first time we had known about this.

    The xrays taken...
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    thanks for all the encouragement and support!!

    Sorry I haven't been back before now. The very day of Samuel's appointment with Dr. Moriarty, the neuro-surgeon, was my first day back to school and it has been "life in fast forward" ever since...
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    New Development - syrinx!

    Not sure anyone will see this.....but after our visit with Dr. Betz in June, we had the MRI done a few weeks ago. Just found out yesterday there is a syrinx.

    Now, first of all, please realize, I...
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    June 5th to see Dr. Betz...

    .....is just in a few days....

    Samuel is still doing well, although he has had more pain lately. However, those days were the ones where he had to stand excessively.
    I've really noticed lately...
  5. I don't really have anything to add or share,...

    I don't really have anything to add or share, except to say that we are getting our second opinion next week (well, actually June 5th) with Dr. Betz at the Philadelphia Shriners (with a GREAT BIG...
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    Philly Shriners on June 5th

    HeatherD, Thanks so much for sharing from your personal experience. I am so sorry you have gone through so much. At only29 years of age, and with so much pain and herniated disks, that's just too...
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    Shriners in Philadelphia!!!

    Based upon your advice on this forum, I *did* send an email to Janet.....sent her a copy of the xray that I posted on here, as well as the information about Samuel. Asked her if we should consider a...
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    What a great article, Mustang. Thanks! My heart...

    What a great article, Mustang. Thanks! My heart just broke when I saw the picture of that young girl...I realized that my son has nothing to worry about compared to her. I just hope the worst is...
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    T3-t4

    It probably doesn't matter much, but I just reread the report.....my son's hemi is in the T3-T4 (I originally thought it was T4-T5)
    Merry Christmas, everyone!!
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    You guys are awesome!

    Thank you, everyone, for all of your comments, encouragement, advice, experiences, and more.....I know how blessed we are in our situation.

    Our son has no pain whatsoever with his scoli. Some...
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    let me know....

    ...if you're able to see the xray or not...
    again, my son had to do it for me....just couldn't quite figure out how to get it on here.
    I know how to post pictures on FB, send attachments on...
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    Finally!

    Thanks, Pooka...
    the files on the CD were something I'd never encountered before, naturally....
    but my son started messing with the computer, and with a matter of some clicks here and some clicks...
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    going to try the picture now...

    The CD on which we have the xrays won't download (upload??) to anything...or at least that I can figure out....
    but I accidentally found out that it would copy/paste....
    so I'm going to try it...
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    thanks for this...

    Hi Coco?????...
    I'm a recent newbie on here....
    Our 14 y.o. son was just diagnosed with congenital scoli last month.....
    his hemivertebra is in the T4-T5 with a 34 degree curve.
    This was his...
  15. So glad for you and Sierra!!

    I'm so happy to hear that the Phillly Shriners are going to look at Sierra....but I am so sorry she is in so much pain. I can't even begin to imagine...bless her heart. I will be praying for her. ...
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    Restults from tests...

    First off, thanks Pooka - for taking time to share the link for the website with the info about congenital scoli. Samuel is already in the 50% group, having his curve in the 30+ range. I'll do some...
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    SB education....thanks!

    I'm actually GLAD you gave me an education on spina bifada (I think I just spelled that wrong...sorry!!).
    One of my favorite students is SB, and he is one of the sweetest, happiest young men I've...
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    Wishing you the best, along with everyone else :)

    Debbie, I'm a newbie on here, having just joined last week because of my son's new diagnosis....I'm following your story (or at least *trying* to), just to help educate myself in all areas of...
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    wow, Mustang!

    Mustang, Thanks for sharing your experiences!
    I feel I have NOTHING to complain about after all you've been through....I realize that was not the purpose of your posting, but it did give me a great...
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    thanks, Ed....and all :)

    I've shared this info. with my husband....and about the Shriners hospitals with my son.
    I do think we will get the 2nd opinion.

    We need to get the xrays on our own disk/flashdrive or something. ...
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    wow- you all are amazing!!

    I knew I had come to the right place!!
    Ladies (I'm assuming, ladies, anyway...you sound like VERY informed moms to me!!!!), thank you for taking so much time to "talk" to me and give me so much...
  22. thanks...

    Leah's mom...
    thanks for taking time to reply.
    I will find your reply on the other thread.
    I'm sorry for posting in three different locations, but I wanted to make sure I was reaching out to as...
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    Congenital Scoliosis - T4-T5 in teenager

    I posted this also in the teenager section, but am posting here in case someone else sees this here and not there.....

    Our 14 y.o. son was just diagnosed with scoli last month, and we just saw the...
  24. you're in Louisville?!?!

    to Sierra's mom...
    I've just joined the forum and noticed your daughter's surgery was done in L'ville.....I've not heard of your daughter's doctor, but your experience scares me to death. We're...
  25. newbie here - 14y.o. son with congenital scoli, w/hemivertebrae

    Our 14 y.o. son was just diagnosed with a 34 degree scoliosis curve. His right shoulder sits about 4-5 inches higher than his left. The xrays show a triangular shaped hemivertebrae at the T4-T5. ...
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