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  1. Replies
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    Poor baby bunny is right!! :( Jess - what, if...

    Poor baby bunny is right!! :(

    Jess - what, if anything, will they have to do to treat this cyst? or don't they know yet? This poor little guy really has to catch a break soon - it's not fair!
    ...
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    Aw, that poor little guy!! I was not on here in...

    Aw, that poor little guy!! I was not on here in a while and was hoping for good news about Sparky. Do you know how much longer they'll need to do this??

    And your story about the vet tech made me...
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    I thought I recalled another thread on this topic...

    I thought I recalled another thread on this topic a while ago - maybe worthwhile to do a search for it. Seemed to vary a little by doctor, but 6 years seems like a long time. Did the GI doc say why...
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    Hang in there, Jess!! I keep hoping Sparky...

    Hang in there, Jess!!

    I keep hoping Sparky will turn a corner real soon and start to feel better (you too)!!!!!

    Please keep us posted - I came on tonight specifically to see how he was doing -...
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    And I would give him people kisses right back...

    And I would give him people kisses right back :-)))))
  6. Replies
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    You must be a wreck with worry, Jess - hang in...

    You must be a wreck with worry, Jess - hang in there. I am hoping the little man comes home in time for Christmas!!!!
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    Please keep us posted!!!!

    Please keep us posted!!!!
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    I am so sorry to hear this news, jess. I will...

    I am so sorry to hear this news, jess. I will have you both in my thoughts. Fingers crossed that they can get this poor little guy some relief and you can both catch a break!!!!

    Xoxo
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    Hi Gayle, You would probably understand more...

    Hi Gayle,

    You would probably understand more about this than me, but the mom who explained it described it as a cushion where 40-50% of the stuffing is removed. She said she did not fully...
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    Improvements to VBT (tethering)

    I learned from another parent (confirmed to me by Dr. Betz) that kids who might not have been VBT candidates before might now be able to opt for tethering rather than fusion. Some larger curves,...
  11. If you would like to research Vertebal Tethering,...

    If you would like to research Vertebal Tethering, I can offer some suggestions. The link in my signature refers to vertebral stapling, but that group has actually branched out to include many...
  12. I would try to get a consult with a surgeon who...

    I would try to get a consult with a surgeon who performs tethering - if for no other reason, than for peace of mind that you did all you could to help your daughter avoid fusion. Please let me know...
  13. Happily, those results are not that uncommon. ...

    Happily, those results are not that uncommon. There are several patients that were in similar situations who have had great results as well.

    Another positive part of the whole...
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    Yes, i love that face!! He looks like he is...

    Yes, i love that face!! He looks like he is doing great!!

    Jackie sends doggie hugs!!!!!!!!!!!!!
  15. Fifa - Absolutely NO apology necessary - that's...

    Fifa - Absolutely NO apology necessary - that's why I put my email address out there and I was happy if I was able to do anything to help you.

    Karen - I never realized the "contact us" link went...
  16. Linda, Just a thought (because I really feel...

    Linda,

    Just a thought (because I really feel for these people waiting a long time for access to the forum), but these folks reach out to me because I posted my email address. If Joe doesn't want...
  17. Linda, I haven't had much luck in the past...

    Linda,

    I haven't had much luck in the past contacting Joe (or getting a response from him), but if you prefer I don't go through you, I will certainly honor your wishes. I get that all you can do...
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    Hi Tim, I'm no doctor, but for what it's worth...

    Hi Tim,

    I'm no doctor, but for what it's worth I agree with everything you said. My theory is that since we don't know what works for who, and when, if your child can tolerate something like...
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    Indeed, congratulations! It is so nice that...

    Indeed, congratulations!

    It is so nice that your determination and hard work (and Nalina’s) are paying off. My best wishes for continued success!!
  20. Two More Members Needing Assistance

    Hi Linda,

    Two more folks have contacted me by email with similar problems - one registered back on August 11 and is still waiting to be approved. She said she sent an email to 'scoliosisadmin'...
  21. Thanks, Linda. I'll shoot Matt an e-mail to let...

    Thanks, Linda. I'll shoot Matt an e-mail to let him know.
  22. Hi Linda, Just wondering if Joe was back yet...

    Hi Linda,

    Just wondering if Joe was back yet and if you happen to know whether or not he had a chance to approve Matt's membership yet.

    Thanks.
  23. Message for Linda/New Member Needs Technical Assistance

    Hi Linda,

    I received an email from a guy named Matt who said that he activated his account on 9/2 (or at least thought he did) but he is unable to post and has no way of contacting you so he...
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    I just came across this article which lists Mount...

    I just came across this article which lists Mount Sinai Hospital in NYC (where Dr. Betz is now affiliated) on the honor roll of the best hospitals in the country. I just thought it might be a source...
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    Just an update on Dr. Betz' new practice. We saw...

    Just an update on Dr. Betz' new practice. We saw him today in his NYC office (5th Avenue). He and Dr. Antonacci are performing both VBS and tethering. Dr. Betz sees patients most days in his NJ...
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