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  1. Replies
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    Thanks, Sharon. Hope all is well with you and...

    Thanks, Sharon. Hope all is well with you and your family. :)
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    Thanks, Ed. The article was interesting. I wish...

    Thanks, Ed. The article was interesting. I wish the instagram link that Sharon included would work for you... it's the comments on the sidebar that are pretty interesting too - so many from others...
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    20022003 I didn't click on your link until...

    20022003

    I didn't click on your link until after posting, then realized it was a photo showing the scar. Maybe you can see the x-rays here... (above)
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    Ha ha, Ed. I never watch Inside Edition but did...

    Ha ha, Ed. I never watch Inside Edition but did tonight 'in case' -- and yes, they show her scar pretty clear and close. Sorry, but it is in the back "V" of her gown. ;) It was a nice little pitch...
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    Hmmmm. Just read an article highlighting her...

    Hmmmm. Just read an article highlighting her wedding and decided to come to the forum and saw your thread. Maybe this is old news to everyone but the article included this:

    "Eugenie's dress was...
  6. You are all so kind and understanding. Thank you...

    You are all so kind and understanding. Thank you for your notes of sympathy. Am about to go visit (1,000 miles away) the couple who lost the twins. The babies should have been born in August, so we...
  7. Sad update

    The day after I posted this thread my youngest daughter gave birth to her first babies - twins - prematurely, at 24 weeks. They were helicoptered to an NICU hospital and we traveled to TX to be with...
  8. 10 year anniversary, saying "hi", and health update

    Hi from the past! I used to be very active on here but dropped out last year after some sadness in my life. I thought I would stop in and say hi since this is an important day to me and I was...
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    Thank you, dear friends, for your heartfelt...

    Thank you, dear friends, for your heartfelt messages. They are a balm of sorts to an aching soul. I appreciate your friendship and your caring so much. This has always been my favorite spot online to...
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    To my friends/scoli bros and sisses

    I think I have come to a point where I will at least take a long break if not just plain leave. I didn't want anyone (would there be?) wondering what happened to me. I am griefstricken with the...
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    Thanks for the response, rohrer! Yes, I've read a...

    Thanks for the response, rohrer! Yes, I've read a lot about CMT in the MD site, but had not even noticed the change in the "D" word! I think CMT was originally included because even though it is...
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    Dear Jackie - I am so sorry about your continued...

    Dear Jackie - I am so sorry about your continued problems. I am praying for you and that this will be the end of the surgeries-- with a good outcome and maybe the recovery time won't be as bad as...
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    Since Sharon said she hoped some other adults...

    Since Sharon said she hoped some other adults would chime in, here I am! Spitfire- love your name! So sorry about the difficulties you are having. I was never DXd as a teen with scoli (slipped...
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    Thanks for the suggestion, Ed. I went to the SRS...

    Thanks for the suggestion, Ed. I went to the SRS site and noted the doctors (just 4), most of whom seem to be neurologists. I did send some info on to her and she will ask her rheumatologist in March...
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    Scoli docs in Seattle area?

    My sister has been told she has a pretty bad case of scoliosis by another of her doctors... I told her she needs to see a scoliosis specialist to do at least a baseline study. Does anyone have...
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    Cathy - so glad to hear that "all is well" with...

    Cathy - so glad to hear that "all is well" with you. Take care.
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    I'm SO SORRY about the rotten deal with your...

    I'm SO SORRY about the rotten deal with your father. Yes, you needed to share that with us. It is so unfortunate when people are viewed more as objects. It must have been very difficult for all of...
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    It's so good to hear from you again, Rohrer. I am...

    It's so good to hear from you again, Rohrer. I am so sorry about your pain, but it's good to know the SI joint injections helped. Ah, yes, thrush... I developed a bad case of it back in college when...
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    Thanks so much, Rohrer, for the informative post....

    Thanks so much, Rohrer, for the informative post. So sorry to read about your niece-- so busy and with so many problems. I read about people who are terribly afflicted with their CMT in this facebook...
  20. Rohrer - I responded already in your timeline,...

    Rohrer - I responded already in your timeline, before I saw this one... sending my best, Susie
    Here-- I decided to cut and paste so things could be together...

    Dear Rohrer - I appreciate the...
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    Dear Rohrer - I appreciate the update and want...

    Dear Rohrer - I appreciate the update and want you to know you're in my thoughts and prayers. How good of you to warn others about awareness of hypokyphosis and its possible complications, all in the...
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    Hi SewBzzzy! Welcome to the forum! I don't know...

    Hi SewBzzzy! Welcome to the forum! I don't know if what I say may be a help or not, but I'll go ahead. I had my surgery, T2-L4, when I was 56. I was the elementary school librarian, and I'm sure my...
  23. Susan - that sounds like you are doing remarkably...

    Susan - that sounds like you are doing remarkably well - 20 steps! I'm impressed. As Dorothy said, "There's no place like home..." and I'm so glad you are there now. It sounds like you have a good...
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    It is so hard to set that date and go for it! Now...

    It is so hard to set that date and go for it! Now you have a definite hope and goal, and that seems like a pretty good Christmas gift. I'll be praying for a very successful surgery and for your...
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    Dear Ginger - I'm absolutely delighted to hear...

    Dear Ginger - I'm absolutely delighted to hear your update and I'm sure it will benefit many who wonder... I am 8 years out and able to do much, with some limitations, plus CMT. Enjoying life to the...
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