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  1. OMG Susan! That seems to be such a sudden change...

    OMG Susan! That seems to be such a sudden change in your condition. I have the opposite problem - I have tried to walk forward at times, but actually take a step or two backwards until I steady...
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    Teacher Gal, Wanted to ask if you have made...

    Teacher Gal,

    Wanted to ask if you have made further progress in your search for a surgeon. I have had two major surgeries for severe scoliosis and have been fused from t-2 to the sacrum. Last...
  3. Thread: 9 weeks post

    by Joyce B.
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    WOW, you are phenomenal! Straight as an arrow!...

    WOW, you are phenomenal! Straight as an arrow! Keep up the great success! One thing I learned in my 66 years is that you must keep your body strong! (Which I have not). Joyce
  4. Thread: 9 weeks post

    by Joyce B.
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    Misty, I am a believer in the benefits of...

    Misty,

    I am a believer in the benefits of Aqua-therapy. Because of knee-problems, it was determined that water therapy was the only avenue for my post-surgery rehab. After 3 months of...
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    Karen, first thoracic surgery in 1969 when I was...

    Karen, first thoracic surgery in 1969 when I was 19, revision surgery t-2 to the sacrum in 2006. I was not in the best shape despite working very hard as a realtor. I had many complications, almost...
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    Jackie, you have been through so much more than...

    Jackie, you have been through so much more than me. Yes, the article spoke of many complications caused by scar-tissue because it can further compress the nerves.

    After all you have been through,...
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    Jackie, no, I'm not 100% sure, but I am confident...

    Jackie, no, I'm not 100% sure, but I am confident that the surgeon addressed correcting flat-back syndrome as well as correcting the curves as much as possible. When I run my hand down my spine, it...
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    Can Anyone Recommend an Adult Scoliosis Revision Revision Surgeon?

    Yes, Linda, I have sent myself this past Spring for PT & Aqua Therapy specifically geared toward improving balance. After about seven weeks of visits 3x per week, my re-evaluation showed no...
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    Linda, thank you very much for responding. I'm...

    Linda, thank you very much for responding. I'm sorry to hear that you have some of the same issues that I have. I had been on Lyrica for sciatica in my right leg, but I weaned-off a couple of years...
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    Linda, I didn't see your post until...

    Linda, I didn't see your post until today...sorry. My first surgery was in 1969 by Anthony DePalma. He was head of ortho at Jefferson U in Phila until he retired the following year. Richard Rothman...
  11. Thread: Joyce B

    by Joyce B.
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    Ed, I would also like to know what other...

    Ed,
    I would also like to know what other members think about my question. My surgeon is at the Rothman Institute at Jefferson Univ. Hosp in Philadelphia and is highly rated. I did my research prior...
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    Linda, you are right on every point. Joyce B.

    Linda, you are right on every point. Joyce B.
  13. Thread: Joyce B

    by Joyce B.
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    5,530

    Hi Ed, I just watched your video - you are...

    Hi Ed, I just watched your video - you are amazing! and truly blessed! One would never suspect that you have been through such a difficult surgery bc you have had such a great outcome! I know I did...
  14. Thread: Joyce B

    by Joyce B.
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    5,530

    Ed, I forgot to mention that I could not access...

    Ed,
    I forgot to mention that I could not access your pictures of bending and twisting. I was able to open the link to your neutral standing X-ray, but not the others. If you could perhaps send to...
  15. Thread: Joyce B

    by Joyce B.
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    Ed, the confusion with the threads is my fault -...

    Ed, the confusion with the threads is my fault - not very proficient using this site yet. Unfortunately, I have no X-rays from 1969. That surgery was from T-2 to just above my waist (sorry don't...
  16. Thread: Joyce B

    by Joyce B.
    Replies
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    I've submitted twice, first to extensive surgery,...

    I've submitted twice, first to extensive surgery, then to adult revision surgery, by supposedly one of the top
    neuro/orthopedic spine surgeons in the country. But it hasn't taken away my pain or...
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    You Are Amazing and Very Lucky!

    God bless you! You are doing so well! My story is very different! Where did you have your surgery and who performed it! I think you are fantastic! Good luck always! Joyce B.
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    Ed, I just looked at your X-ray now (as I have...

    Ed, I just looked at your X-ray now (as I have had some difficulties with the site, could only access the first link). You are fused like I am. I am uncomfortable 24/7, even when trying to sleep....
  19. Thread: Joyce B

    by Joyce B.
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    Thank you Ed!

    The stem-cell avenue is very interesting and impressive. I'm not sure if it could help me. But like the much younger woman in the video, I can't run, Nike, lift, or hardly walk unassisted. I have to...
  20. Thread: Joyce B

    by Joyce B.
    Replies
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    Joyce B

    I'm new to the forum today. I need some help please. I'm a 66 year old female who had thoracic scoliosis, probably before age 10. I don't believe that my parents understood the severity of my...
  21. There are always dilemmas involving surgery!

    I have just joined the Forum, and this is my first post. I agree that you should get a second opinion, and even a third. The decision for you is not to be made lightly - you need to have complete...
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