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  1. Sheila... Your surgeon can put you in touch with...

    Sheila... Your surgeon can put you in touch with a patient or two who have had a PSO. If they can't, run the other way.

    --Linda
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    If you're concerned, you should mention it to...

    If you're concerned, you should mention it to your surgeon. Unless you've been recruited for a study, or if you're having new symptoms, there's really no specific reason to take xrays on the regular...
  3. Looks to me like he's been approved. If he's...

    Looks to me like he's been approved. If he's still having trouble, please have him contact Joe directly. Thanks.
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    There are different methods of closing, and I...

    There are different methods of closing, and I thin it may depend on the size of the fat layer.

    I can't really tell from your description, what you're seeing.

    --Linda
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    Jackie... I'm unclear of what the problem is. ...

    Jackie...

    I'm unclear of what the problem is. If you're concerned that your doctor is taking less x-rays, you shouldn't be. That's a very good thing. There has been discussion among the...
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    Gardenia... What you're seeing is completely...

    Gardenia...

    What you're seeing is completely normal. When they change the shape of your spine, the soft tissues also change. The fact that you've had a recent weight loss probably makes it more...
  7. Glad the outcome wasn't MUCH worse.

    Glad the outcome wasn't MUCH worse.
  8. Hi Maria... Unfortunately, while I can...

    Hi Maria...

    Unfortunately, while I can moderate posts, I have no control over member status. His status is showing up as awaiting moderation. I think Joe O'Brien is the only one who can approve...
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    I think I've only seen the diagnosis a handful of...

    I think I've only seen the diagnosis a handful of times. I'm really curious whether it's that patients aren't getting diagnosed or if those who have CMT don't look to have their scoliosis treated. ...
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    Rohrer... Has anyone talked to you about cervical...

    Rohrer... Has anyone talked to you about cervical myelopathy? I don't know if your hand weakness issues are normal for CMT, but it's definitely normal for cervical myelopathy.

    --Linda
  11. In order to post a LINK, you would need to put...

    In order to post a LINK, you would need to put the photo up on a website. I suspect that what you want to do is to include a photo with your post. To do that, you'll want to send the photo from...
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    I'm surprised to read that 1 in 2,500 people have...

    I'm surprised to read that 1 in 2,500 people have CMT. We actually have very few patients with the diagnosis. Maybe there's a whole bunch of people who haven't been diagnosed.
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    Hi Rohrer... Glad you have a definitive...

    Hi Rohrer...

    Glad you have a definitive diagnosis, but sorry it's CMT. Your scoliosis would now be considered neuromuscular.

    Linda
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    Hi Ronee... Welcome, and don't take this the...

    Hi Ronee...

    Welcome, and don't take this the wrong way, but my advice would be to go away from here for awhile. You're still in what would be considered the early recovery period from a big spine...
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    Hi Becky... Falls are super common after big...

    Hi Becky...

    Falls are super common after big back surgeries. I fell down a flight of stairs when I was <6 months postop. My feet went out from under me, and my back hit the front of a step. It...
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    I don't think it's anything to worry about. The...

    I don't think it's anything to worry about. The paper was published in 2008, so the surgeries were from the 90's, when they didn't use BMP and didn't know everything they know today.
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    I think the return of the rib hump is actually a...

    I think the return of the rib hump is actually a relatively rare thing, at least in people who got good correction originally. I can't imagine what would cause it to occur in a small subset of...
  18. Try Sam Bederman at UC Irvine.

    Try Sam Bederman at UC Irvine.
  19. Hi... It's definitely a dilemma. What does...

    Hi...

    It's definitely a dilemma. What does your current surgeon want to do? Before you commit, I'd encourage you to get another opinion, to see if it might be possible to do a limited fusion. ...
  20. Susan... If you can't afford to fly...

    Susan...

    If you can't afford to fly commercially, check out AngelFlights.

    http://www.angelflight.com/

    Linda
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    The National Scoliosis Foundation is the group...

    The National Scoliosis Foundation is the group that sponsors this forum. I assume Dixiesmommie means the Scoliosis Research Society. And, while the SRS is the best place to identify good surgeons,...
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    We use to routinely give patients any implants...

    We use to routinely give patients any implants that were explanted, but I haven't seen that happening recently. I've been trying to give our Pathology lab to release a broken rod so I can send it to...
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    Hi Sheila... I know, it can be quite...

    Hi Sheila...

    I know, it can be quite overwhelming.

    While I think narcotics can be helpful for acute issues, my personal opinion is that they're not a good long-term strategy. I think that many...
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    Hi Sheila... First, here's some names for you:...

    Hi Sheila...

    First, here's some names for you:

    Bart Sachs
    Medical University of South Carolina
    Professor of Orthopaedics
    169 Ashley Avenue
    P.O Box 250332
    Charleston, SC 29425
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    Hi Sheila... There are a lot of us here who...

    Hi Sheila...

    There are a lot of us here who had flatback and have had revision surgery. I can tell that there is life after revision surgery. While I'm not happy with my lack of flexibility, I'm...
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