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  1. Replies
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    Hi Jackie, Best of luck in the coming days - I...

    Hi Jackie,

    Best of luck in the coming days - I hope you can get all the financials dealt with and get the surgery done. You have waited so long to get some relief.

    Please let us know how...
  2. Hi Susan, I'm glad you got to Stanford so...

    Hi Susan,

    I'm glad you got to Stanford so quickly and had the hardware repaired. Pretty incredible and worrisome that OHSU didn't pick that up on your scans.

    Hang in there, rest and I hope...
  3. Replies
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    2,151

    Hi Sheila, I am glad to see you are getting a...

    Hi Sheila,

    I am glad to see you are getting a second opinion. I think it is always a very good idea before this type of major surgery. Each doc may have a slightly different approach to your...
  4. Replies
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    1,266

    When I had my revision for broken rods I also...

    When I had my revision for broken rods I also asked Dr Hart to take out the single pelvic screw I had. That left SI or screw area had bothered me since surgery. Since I was about 15 months post-op...
  5. Replies
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    5,149

    Hi Martha, Robert Hart at Oregon Health and...

    Hi Martha,

    Robert Hart at Oregon Health and Sciences University (OHSU), Portland, Oregon http://www.ohsu.edu/xd/health/services/providers/index.cfm?personid=314

    Here is a link: ...
  6. Replies
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    5,149

    I am shocked all over again at how badly you have...

    I am shocked all over again at how badly you have been treated by this physician's office. The recent imaging exams (CT, MRI, x-rays) should be readily available from the radiology department where...
  7. Hi Susan, I'm so sorry to hear about this...

    Hi Susan,

    I'm so sorry to hear about this set-back. You were doing so well…do the docs/neuro's have any idea what is going on?

    Take care, and let us know when you have some news.
  8. Hi there, I think it is really common for the...

    Hi there,

    I think it is really common for the curves to "settle" a little and the appearance of the back to change somewhat over time. It doesn't mean anything is wrong with the fusion or the...
  9. Thread: Update

    by leahdragonfly
    Replies
    15
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    1,082

    Hi Kara, Wow, that's great news that you don't...

    Hi Kara,

    Wow, that's great news that you don't need foot surgery.

    I hope your foot is hurting you less!

    Are you doing any art this summer?

    Take care,
  10. cutting toenails: T8-sacrum

    I am fused T8-scarum, and at 4 months I thought for sure I would never be able to cut my toenails. I even posted that very question at some point during the first year.

    I gained a lot of...
  11. Hi Mark, Hang in there - this is the tough...

    Hi Mark,

    Hang in there - this is the tough part.

    At 12 days I think I was taking oxycontin (long-acting) 10-20 mg twice a day, plus oxycodone 40 mg every 4 hours around the clock, plus...
  12. Hi Rise, Ahh, I feel your frustration and...

    Hi Rise,

    Ahh, I feel your frustration and impatience and I see myself in you. Ed laid it out like it is, there is no hurrying this recovery, it is not a choice how long it takes. And it does...
  13. Hi Susan, Bummed for you…..why is it so hard I...

    Hi Susan,

    Bummed for you…..why is it so hard I wonder to get them to inject the screw area? Didn't Dixie also go in for a screw injection and they ended up trying/failing to do a lower lumbar...
  14. Replies
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    2,081

    Dear Jenee, Like the others I am so surprised...

    Dear Jenee,

    Like the others I am so surprised and sorry to hear of your flatback and pain now. You made all of us a little jealous with your easy recovery (just kidding but you know what I mean)!...
  15. Thread: Update

    by leahdragonfly
    Replies
    15
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    1,082

    Hi Kara, Sorry your foot is still so bad. I...

    Hi Kara,

    Sorry your foot is still so bad. I was hoping the cast would help you.

    I wonder if Shriner's discharged you because they knew UC Davis would be the best place for you to have surgery...
  16. Hi Rise, You sound so very much like me (and I...

    Hi Rise,

    You sound so very much like me (and I had a similar length fusion, T8-sacrum), I recognize myself in your post!!! I know you feel impatient now, but my friend you have a LOOONG way to...
  17. Replies
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    312

    Hi Susan, Thanks for updating! Please send my...

    Hi Susan,

    Thanks for updating! Please send my best wishes to Mark and Ethel from another of Dr Hart's patients. Mark and I corresponded by e-mail several times before his surgery.
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    Hi Tamena, I'm so sorry to hear that! I agree...

    Hi Tamena,

    I'm so sorry to hear that! I agree with Karen that you should definitely call your surgeon since it is not getting better after a week. See if they recommend x-rays.

    Take care,
  19. Replies
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    Hi, I was 42 when I was fused T8-sacrum…but...

    Hi,

    I was 42 when I was fused T8-sacrum…but that's nearly the new 30, right?

    I stayed in the hospital 6 days and needed every bit of it. I had very inadequate pain control, made worse by my...
  20. stretching hamstrings

    Hi Irina,

    My hamstrings were incredibly tight after surgery - not sure why. I stretch them one side at a time by sitting along the edge of the dining room table or a low window sill with one leg...
  21. I know, right??? People should refrain from...

    I know, right??? People should refrain from hijacking the original poster's thread to interject their ideas about religion and pedophilia. How about we keep the topic to scoliosis.

    I am fused...
  22. Replies
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    6,965

    Hi Spring, I know exactly what you mean about...

    Hi Spring,

    I know exactly what you mean about everyone forgetting you had surgery and thinking you should be perfectly normal by now. Showing an x-ray occasionally is helpful for clueless people...
  23. Replies
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    6,965

    Hi Spring, I think it is very common to have...

    Hi Spring,

    I think it is very common to have these plateaus along the way, which are very discouraging. Your horrendous commute is probably taking quite a toll on your energy and healing, so try...
  24. Replies
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    4,603

    One member here successfully purchased a...

    One member here successfully purchased a used/good condition MedX torsion rotation machine from Craigslist for something like $150. Maybe you could find one for your daughter that way. Also some...
  25. Replies
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    Great news

    Hi mamandcrm,

    I have thought of you and G many times over the last several years. She and Leah are really very similar in age as I recall, and both were diagnosed at a similar age. I am thrilled...
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