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  1. Replies
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    They do have 100mg dose. I was told to reduce...

    They do have 100mg dose. I was told to reduce 100mg a week. But I had been on it a long time. It took awhile to adjust the sleep cycle.
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    Yes I just stopped and delt with the side...

    Yes I just stopped and delt with the side effects. It was hard!
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    Cathy, I had a terrible time getting off of...

    Cathy, I had a terrible time getting off of tramadol. It was harder than the narcotics. I know they say it shouldn't act like that but it did. I just bit the bullet when I decided to get off it and...
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    Thank you for the information. Did you find the...

    Thank you for the information. Did you find the surgery difficult?
  5. Thread: Meningocele

    by jackieg412
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    Meningocele

    I just got the results of a new CT scan. It was taken to try to figure out what has caused the right shoulder to drop and right scapula to shift. The university doctors are teaming up to find that...
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    We are still working on the right solution to...

    We are still working on the right solution to this problem. I did meet with my scoliosis specialist and with another scoliosis specialist from the university. My doctor was very against doing...
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    Hi I just want to tell you it will get better....

    Hi I just want to tell you it will get better. Rest is key. Of course early on the body doesn't give you a choice. Small walks at first many times a day. You will build up strength. Even after 6...
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    It is hard to read them but they are so cool...

    It is hard to read them but they are so cool being 3d. The front view can show how depressed the right shoulder is .If you look under the arm it will read r or l. The view from the bottom of spine...
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    Ed I could not post the pictures but I sent them...

    Ed I could not post the pictures but I sent them to your email address. They are from the CT scan. We do look different when the skin is removed. I can't get over how unstable the arm movement feels...
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    No it is out to the side almost right under my...

    No it is out to the side almost right under my arm. It is the right side it is down out an inch below left and out to the arm side not the midline. The nerve they are referring to has even been ...
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    Here is the latest opinion. Went back to my spine...

    Here is the latest opinion. Went back to my spine team. Will not do the work on the ribs. I understand that because we have to make sure that is necessary. The scoliosis specialist said it is scapula...
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    I too fell through the cracks. I insist my grand...

    I too fell through the cracks. I insist my grand children get screened. I remind their parents all of the time. My oldest granddaughter has a 14degree curve and is ok. She is 18.
    I found out I had...
  13. Did you make it home and how are you?

    Did you make it home and how are you?
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    Glad you are doing so well!

    Glad you are doing so well!
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    Susie we never forget somethings. But as you say...

    Susie we never forget somethings. But as you say it does get better. On my anniversary date I write a thank you to the doctor. But I should include my family, friends everyone here and myself for...
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    So sorry to hear of your continued struggles. It...

    So sorry to hear of your continued struggles. It is tiring when no one has the answers. The pain meds are awful and may take the pain but at a price. It does seem that when we compensate for a...
  17. hi Linda, I am fused t2 -pelvis. And c4-7. When I...

    hi Linda, I am fused t2 -pelvis. And c4-7. When I had the cervical fused it took care of a lot of the issues you are having. I am not fused c7 to t2. I can turn my head well. Maybe not as far as...
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    I did talk to the doctor at the university again....

    I did talk to the doctor at the university again. He has someone at the university named doctor Lee. He (or most likely his staff) is to be calling me. I found this out yesterday. He does have the...
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    No Linda . The doctor thAt I saw in the...

    No Linda . The doctor thAt I saw in the University hospital said this about the rib. He has not done this operation in a long time. He referred me back to the doctors that did fusion. (They sent me...
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    thoracoplasty doctor

    What doctor or doctors do a thoracoplasty? The university specialist seems to think that needs to be done. This is not cosmetic as I have a rib or ribs that will not allow my shoulder blade to work...
  21. I know about going through this alone. It will...

    I know about going through this alone. It will not be easy but I do think your surgeon can arrange for better pain control. At first it will be IV that you self administrator. Also you can have the...
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    The results of the CT SCAN . The university...

    The results of the CT SCAN . The university specialist read the scan and he has identified where the shoulder blade is trapped. It is mid scapula on those ribs. Not a growth but a deformed set of...
  23. Getting closer to the move home. Wonderful!

    Getting closer to the move home. Wonderful!
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    I have the hardware that was removed I was amazed...

    I have the hardware that was removed I was amazed at my reaction when I first saw it.my PT wanted some of it but I could not give it up. It was a part of me. Not that I am doing anything with it but...
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    I made the request to have my hardware after it...

    I made the request to have my hardware after it was removed. I went back to the hospital and picked it up from pathology.
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