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  1. Susie, I'm fused T1-L4 but don't feel restricted...

    Susie, I'm fused T1-L4 but don't feel restricted in any way. My back doesn't prevent me from doing any activities that I like doing (such as hiking, climbing mountains, swimming and cycling). I'm 38...
  2. Well, whilst I do think the fencing-foil monk...

    Well, whilst I do think the fencing-foil monk sounds very dodgy, the other boys' school I referred to - where the nude swimming took place - was a private non-religious grammar school. Nude swimming...
  3. I assume that you ladies who are having problems...

    I assume that you ladies who are having problems lying back in the bath are having trouble because of being fused to the sacrum or pelvis? I don't think I can offer any useful advice as I'm fused to...
  4. Sorry Ed, didn't mean to sound stern! I should...

    Sorry Ed, didn't mean to sound stern! I should have put a *smileyface* - it's an easy mistake to make *smileyface*

    Linda, I very rarely hear of open thoracotomies - in fact I can't remember the...
  5. Hi Linda, I think Ed is referring to the forum...

    Hi Linda,

    I think Ed is referring to the forum that I'm mod/admin at, SSO (scoliosis-support,org, *not* SOS, that's the name of a nonsurgical clinic). I am a member of the NHS's Complex Spinal...
  6. Thread: Rhinos

    by tonibunny
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    48,143

    This is, on the whole, an excellent and very...

    This is, on the whole, an excellent and very supportive forum which also has lively debates regarding the pros and cons of surgical and nonsurgical treatments. Although I am an admin at the UK's...
  7. Thread: Rhinos

    by tonibunny
    Replies
    82
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    48,143

    "No, she will probably not live through her...

    "No, she will probably not live through her twenties, however, she is living and experiencing life without major pain or life threatening surgeries"

    And yet my friend who had surgery on her 140+...
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    Here in London it is almost all flats/apartments...

    Here in London it is almost all flats/apartments unless you are a multi-millionaire, especially where I live. I live right in the middle of London, so central that it takes just 10 minutes to walk to...
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    Thanks, Rohrer, for your kind wishes. I tried...

    Thanks, Rohrer, for your kind wishes. I tried Botox before but had little success compared to the trigger-point injections, so I returned to having those. I've also had dry-needling and acupuncture...
  10. Thread: Rhinos

    by tonibunny
    Replies
    82
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    48,143

    This looks like a genuine case to me. I have...

    This looks like a genuine case to me. I have friends who had, or had, curves larger than this. One (a lady in her 50s) lives with a 155 degree curve - she does well but she is on biPap to help her...
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    Rohrer, I'm intrigued by your case as in a lot of...

    Rohrer, I'm intrigued by your case as in a lot of ways it is similar to mine, although I had infantile idiopathic scoliosis (now considered to have been caused by EDS, which I was diagnosed with a...
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    Only too true. I would always ask myself if the...

    Only too true. I would always ask myself if the person promoting a novel new health fad has any money to make from doing so, too......
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    Seaweed can be very tasty Ed :smile: it's often...

    Seaweed can be very tasty Ed :smile: it's often used in Japanese cuisine. I eat regularly at a sushi bar and always have a yummy bowl of seaweed as a side.
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    Can I point out that growth hormones are banned...

    Can I point out that growth hormones are banned in Europe, so anyone from the UK or mainland Europe needn't worry about those.

    Also, it seems that conventional medicine holds that it is...
  15. As Hudugger suspects, unfortunately Dr Mehta is...

    As Hudugger suspects, unfortunately Dr Mehta is very frail and elderly now and is not able to correspond with scoliosis patients anymore. However, when I met her a few months ago she told me how much...
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    Hi Camilynns, please try not to fret too much...

    Hi Camilynns, please try not to fret too much about the future. It may seem like all the adults who had surgery when they were teens are now having problems, but remember that there are also many...
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    Nice one Linda! :) I know several children who...

    Nice one Linda! :) I know several children who have had the VEPTR here in the UK, mainly to help with thoracic insufficiency in cases of congenital scoli, but they're not used as permanent rods. I...
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    Oh I see! Sorry, I misread. How long does the...

    Oh I see! Sorry, I misread. How long does the VEPTR stay in place following fusion surgery?

    Anything that can help combat PJK is very encouraging.
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    That's very encouraging news Linda! I'm guessing...

    That's very encouraging news Linda! I'm guessing that this is a possible fix for PJK that stays below the cervical region, is that right?
  20. I don't think so Sharon. I know this isn't your...

    I don't think so Sharon. I know this isn't your area, but IIS can be quite accurately determined as either the progressive or resolving type by measuring the Rib Vertebra Angle (RVAD) - Min Mehta did...
  21. Infantile Idiopathic Scolisis is said to be seen...

    Infantile Idiopathic Scolisis is said to be seen in more children of Northern European ancestry than in kids from anywhere else though. I don't know if there have been any formal studies done, but...
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    There are a handful of kids here in the UK who...

    There are a handful of kids here in the UK who have MAGEC rods as it was trialled here by Hilali Noordeen, one of our country's top scoliosis surgeons. Incidentally, he is based at the Royal National...
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    It would be wonderful to see some x-rays please!...

    It would be wonderful to see some x-rays please! I had surgery back in 1986 and am delighted with the results to this day (despite having an old-style Harrington Rod) but of course, if results can...
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    yes, that's why I said "she lived 100 years later...

    yes, that's why I said "she lived 100 years later and was totally unrelated" :smile: I just thought you might be interested to hear about another historical case of scoliosis related to the royal...
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    I know a couple of people who have 150+ degree...

    I know a couple of people who have 150+ degree curves, and a handful who have had 100+. You might be interested to look at the thread Linda posted, titled "Pretty Inspiring" - it has a link to an...
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