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  1. Replies
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    I have never had surgery, just bracing. My...

    I have never had surgery, just bracing. My curves ended at about 27 degrees each when my Shriner's records ended at age 20. As you can see from my signature they have increased a bit over the past...
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    Records from Shriners

    I'd bet you can get your medical records from Shriners. Call the main number and ask for Medical Records. I was able to get my records from Philadelphia Shriners and I was a patient there in the...
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    Sorry to hear of your daughter's progression. ...

    Sorry to hear of your daughter's progression. Scoli really is so unpredictable.

    At least you avoided bracing for a few years. Thanks for posting.

    Best Wishes to you and your family.
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    Vbs

    Welcome.

    My daughter had VBS recently at Shriners in Phila. If you are considering this I would recommend contacting them for an appointment. They are the pioneers of the procedure. They've...
  5. Summer Bracing

    Hello and Welcome.

    My daughter wore a Boston Brace for a year and a half. Last summer was a challenge for us all: the lack of typical routine of the school year, more activities and the hot...
  6. There's so much to do and see in San Diego! ...

    There's so much to do and see in San Diego! There's the "World Famous San Diego Zoo" which is actually great. In the summer it's really hot there mid day, but they're open in the evening in the...
  7. So Cal Scoli Specialist

    I highly recommend Dr. Peter Newton at Rady Children's Hospital in San Diego. He is always willing to answer all of my questions, is professional and easy going. Has a good style with my child. He...
  8. undergarment issues...

    sorry for the confusion and the delay...

    my daughter preferred the seamless cami's much more than the Knit Rite undershirts. She wore either one or the other.

    With the Knit Write / Orthotist...
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    My daughter had similar belly button issues...

    My daughter had similar belly button issues initially. Our Orthotist cut many air holes in her TLSO including one directly over the navel and that has solved that problem. Each air hole is about 8...
  10. the countdown to VBS...

    My daughter had her appointment with Dr. Samdani last week and all went well. As others have said, he was sincere and informative and had a calm presence. We discussed the rib cage changes which have...
  11. seamless cami's

    my daughter prefers the seemless cami's over the knitrite tanks. once we get the brace fastened she likes to pull down the spaghetti straps and have me secure them into the brace's velcro straps, so...
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    Andi, Best Wishes to you and your family as...

    Andi,

    Best Wishes to you and your family as you go on this journey with Odella.

    Not surprisingly, you've received wonderful advice from some experienced moms on this site. I agree with all...
  13. Thank you!!!

    Thank you Maria and your friends who pioneered the VBS site.

    Please know that you have made the difference in many children's lives by getting the word out!

    Thank you all for paying it...
  14. Mom to PJ, Best wishes for your daughter! Do...

    Mom to PJ,

    Best wishes for your daughter! Do you go to Shriner's Philadelphia too?

    Yes, we are on similar paths.

    We will be at Shriners on 3/29 for an office visit and then check in on...
  15. djjane, Welcome to the forum. I'm sure you'll...

    djjane,

    Welcome to the forum. I'm sure you'll find a lot of info and support here.

    My daughter is a pt of Dr. Newton, mentioned above, so I wanted to just share: He is wonderful. He is truly...
  16. Dessy's mom, I agree with the wise advice...

    Dessy's mom,

    I agree with the wise advice above. I also am not familiar with the doctor you mention but would recommend that you take your daughter to an Orthopedic Surgeon who specializes in...
  17. Thanks for the well wishes and creative idea. ...

    Thanks for the well wishes and creative idea. Just as I thought, someone not as stressed as I am would have some great insight. Appreciated.
  18. How to help my child accept the idea of hardware inside her body??

    As my family and I prepare for VBS for my daughter I am sure I will have many questions to post to this wonderful experienced group.

    Here's the first: My daughter is concerned about having the...
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    thanks for the update. Best Wishes Gayle!!!!

    thanks for the update. Best Wishes Gayle!!!!
  20. As always, I appreciate the insights from others...

    As always, I appreciate the insights from others on this forum. Thank you.

    My daughter is doing well in her new brace and has correction to 15 degrees. Dr. Newton had reviewed the December out...
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    i'll be thinking of you all day tomorrow, Gayle....

    i'll be thinking of you all day tomorrow, Gayle.

    Best Wishes and keep hitting that PCA button!
  22. Thanks Gayle, especially for weighing in just a...

    Thanks Gayle, especially for weighing in just a few days prior to your revision. Hope you are doing alright.

    This all came up just as we were ordering a new brace anyway. I will certainly speak...
  23. did the brace break her rib??

    I heard back from our doctor's wonderful RN. She said upon review with the radiologist the current thought is that the spot in question on her rib is a healing fracture, that does not look like a...
  24. My 9 year old has flattening of her rib cage from her brace

    Hi all,

    Just thought I'd update and seek some support as we are in a cross road again.

    My daughter now has flattening of her left side of her rib cage on X Ray. "moderate" Hopefully her new...
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    Oh Gayle, Sorry to hear that you have to have...

    Oh Gayle,

    Sorry to hear that you have to have another surgery. Best Wishes for a date as soon as possible so you can start to move forward. I know you will get a lot of support here, you give so...
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