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  1. Thread: 11 years out

    by Scared
    Replies
    22
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    992

    Brace?

    In the book on Scoliosis by a patient, I believe he talked about sometimes a doc will require you to wear a brace. To be fused probably at least mid-Thoracic to sacrum is it pretty common for you to...
  2. Thread: 11 years out

    by Scared
    Replies
    22
    Views
    992

    Wow!

    Kathy , you look amazing! I had to start using a cane April of this year due to severe sagittal imbalance (about 3 inches off on R leg) plus severe low back pain. I use to be a gym rat up until age...
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    Gabapentin/Neurontin

    I have been on Gabapentin aka Neurontin for about 11 years. It was prescribed after bi-lateral hip replacement. I donít recall if it helped in the early stages but now no relief. It was prescribed...
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    Stage?

    I donít understand term ďstageĒ -does that mean surgery is done on same day but at different times or next day? Of course Iím not going to be driving 🤨. Why canít you discuss having full fusion? I...
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    Really?

    Linda I am not stupid. I knew that I would have to shower (already have a shower seat). But just wanted DETAILS. I am alone trying my best to get prepared as much as 1 can. Donít understand why you...
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    X-Rays

    Ed back in 12/17 my fiancť at the time (mechanical engineer) could only get 1 pic from CD. Any advice as to how to download the other pics from X-Rays taken on computer? There were at least 4-5 films...
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    Suv?

    Well Ed good to hear from you FINALLY- Per logical thinking I am assuming that I would get the Cervical fused 1st. Donít know where in the Thoracic spine fusion will start but know it ends at...
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    Thanks

    I was told 12/17 dr would do anterior & posterior cuts. Since I will be in rehab 2 weeks hopefully will be able to get home by a more comfortable SUV. Have so much to plan for.
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    Perhaps bigger SUV?

    Thinking a bigger, newer SUV with electric seats would work? Originally thought about a van but probably donít want to lie down & have to log roll out (may get stuck) on way home. Thanks Tina
  10. Thread: 11 years out

    by Scared
    Replies
    22
    Views
    992

    Thank you for returning

    Ditto for what Tina stated. I havenít read everything but enough for now. Really appreciate the info you shared especially for us 1st timers.
  11. Replies
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    Advice on Type of Vehicle to get me home

    As I am preparing to go out of state to get 1st surgery done I need advice as to what kind of vehicle to get me home ďcomfortablyĒ. This is about a 6 1/2 hour drive. So I would probably be flying to...
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    I TOTALLY agree-I canít believe what the docs get...

    I TOTALLY agree-I canít believe what the docs get away with- I use to lead Joint Commission Surveys. The drs I have seen were not in compliance on many things including Patient Education.
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    Thanks for sharing

    You havenít caused my depression as itís already there (too much pain over too many years). I want to emphasize how helpful it is to receive details of others experiences. This type of info is so...
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    Donít know what Iím going to do

    I really appreciate the details you gave. I NEED the DETAILS vs generalities. I am totally overwhelmed & donít know how Ií manage 3-12 months after surgery. X is only giving $18,000 towards surgeries...
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    Full fusion vs not?

    Don't know how old you were esp in 1998 but given I'm 63 I think it would be wise to go forward w/ full fusion as I do not want to be facing another surgery at age 66 +? Nancy
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    Any progress with bendable rods?

    Linda- Has there been any research or actions in US with this type of bendable rod? If so who/where?
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    Shoes

    I live in comfort shoes depends on size, etc but I wear 8 1/2 & like Jambu - tried Sketchers but they were 2 small. www.hammacher.com has pair of house shoes that provides the back support I/we need...
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    Thanks for info- Ithey have various dry shampoo-...

    Thanks for info- Ithey have various dry shampoo- I use Dove- itís a dry spray that you spray on the roots of hair (I section my hair 1st spray & work it in- stay away from the foam ones - they are...
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    Clarification?

    Thanks for the details!
    I have just a basic bathroom tub/shower w/ tile; Is the basin like a rectangular, tubber ware container? I was also thinking about installing handles on wall of bathtub-...
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    Thanks Linda

    Thanks Linda
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    New Medicare Plans Suck in KY

    I got new Medicare Plans for 2020 & they are horrible (for the 1s I can afford). Went w/ Anthem MediBlue PPO w/ maximum in/out of pocket $6,700. However, my PT appts now $10 per visit going up to $40...
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    Shower???

    I understand that Iíll have to use a shower chair BUT how in the world after you are in shower, pull shower chair (facing facet) pulled up enough so you donít ďbendĒ to reach facet??? I am a bath...
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    Thanks for Info

    Tina & Linda -Appreciate your thoughts & info. Of course I was/am freaked out by the MRI report. I looked up every word on that document. I already knew my spine was/is a mess (WE know our bodies...
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    MRI findings

    Tina, Here's Dr. G's report 12/17: degenerative scoliosis w/ coronal imbalance 8cm R, positive imbalance of 14cm, flat lumbar, fused L2-3, curvature at that time was 13 degrees in thoracic. I did see...
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    How do you wash your hair since you canít bend...

    How do you wash your hair since you canít bend over? I have problems now doing this at the sink Nancy
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