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    Our Scoliosis journey is almost over

    My daughter and I have been infrequent visitors to this forum over the past few years and have taken away lots of valuble advice and info.

    We're finally ready to delete our bookmark to this site...
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    Hi Still Hoping A lot of JIS kids see very good...

    Hi Still Hoping
    A lot of JIS kids see very good results with the SpineCor brace - maybe because their spines are so flexible? We used the SpineCor in combination with Scroth.

    We thought our...
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    Spine Camp in Raleigh NC - Oct 30th

    On Saturday, October 30, 2010, Raleigh Orthopaedic Clinic and WakeMed Health & Hospitals are co-hosting the third annual Spine Camp in the Health Park on WakeMed Raleigh Campus.

    Children, teens...
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    Karen (golfnut)-Dr. Lenke-St....

    Karen (golfnut)-Dr. Lenke-St. Louis-T4-sacrum-Jan. 5
    Haley (HaleyMom) - Dr Hey - Raleigh - T3-L1 - Dec 7
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    Meet Miss NC 2009

    Meet Miss North Carolina, Katherine Southard, this Saturday from 10:00-11:30at the Wake Med Health Park on New Bern Ave in Raleigh.This event is sponsored by Backtalk - a support group for teens with...
  6. Hi Gayle The investigators actually filed a...

    Hi Gayle
    The investigators actually filed a patent (WO/2008/119170) on their blood test back in 2008 claiming that their test is in fact predictive. In the patent, they recommend screening starting...
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    Spine Camp in Raleigh NC

    Spine Camp
    Saturday, October 17
    9 am to Noon
    WakeMed Raleigh Campus - Rehab Health Park

    Have you or a friend been diagnosed with scoliosis or another spinal condition?
    Then don't miss Spine...
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    [QUOTE=Pooka1;80774]From the Hey clinic... ...

    [QUOTE=Pooka1;80774]From the Hey clinic...

    amazing-disappearing-juvenile-scoliosis.html

    "Abigail is a young lady who was placed in a brace 3 years ago at age 7 and has decreased her curve from...
  9. FYI - Scoliosis Support group for teens in the Raleigh, NC area

    FYI - Scoliosis Support group for teens in the Raleigh, NC area

    A new support group called Back Talk, organized by a teen who had fusion surgery. The next meeting is May 23, 10-11am at the Wake...
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    Sorry to hear about your granddaughter. There is...

    Sorry to hear about your granddaughter. There is an infantile scoliosis support group that may have more info for you

    "Infantile_Juvenile_Scoliosis@yahoogroups.com"
  11. These machines are finally making their way into...

    These machines are finally making their way into the US - my daughter had an xray in one this afternoon - incredibly clear images. The machine captures an AP and LAT image in a single scan with...
  12. Thread: spinecor

    by HaleyMom
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    The thigh bands hold the pelvic base level by...

    The thigh bands hold the pelvic base level by anchoring on the outside of the leg rather than the inner thigh area like the crotch bands. Without the thigh bands the the straps around the hips would...
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    New Procedure for PE developed at UCSF

    This new treatment for PE was posted on another scoliosis forum.
    Fascinating procedure. Maybe they'll be able to adapt it for scoliosis someday:)

    Magnetic Mini-Mover Procedure
    For more than 50...
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    Peak velocity growth info taken from...

    Peak velocity growth info taken from http://www.usc.edu/student-affairs/Health_Center/adolhealth/content/a1.html

    The beginning of the increase in growth velocity is about age 11 in boys and 9 in...
  15. Hi Sharon Since we won't be seeing any double...

    Hi Sharon
    Since we won't be seeing any double blind clinical trials for scoliosis any time soon, the medical community has established a database (Scolisoft) to track surgical procedures and...
  16. Hi Sharon Thanks for passing on all the...

    Hi Sharon
    Thanks for passing on all the interesting info.

    Did the geneticist give you any recomendations to go along with the hypermobility syndrome diagnosis?
    If this syndrome is the...
  17. Thread: spinecor

    by HaleyMom
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    1,091,980

    We didn't have to go to a separate Dr. They...

    We didn't have to go to a separate Dr.

    They had a computerized mat in the office that they had her stand on. The mat created a topological map of the bottoms of her feet as well as determined the...
  18. Thread: spinecor

    by HaleyMom
    Replies
    3,919
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    1,091,980

    Inserts

    Interesting response from Drs Coillard and Rivard!
    Our Dr did prescribe custom-made orthotics for Haley. At first it was just her ankles that bent inwards but then her knees started to do the same....
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    My daughters Dr pointed out her straight neck on...

    My daughters Dr pointed out her straight neck on her xray and mentioned that he's never had a AIS patient that didn't have a straight neck. If he sees natural curvature in the neck he gets suspicious...
  20. I'm a medical researcher for a drug company and...

    I'm a medical researcher for a drug company and briefly worked with BMP2 many years ago - though, I was looking at it from an oncology point of view.

    The consequences of BMP2 in children, woman...
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    Hi Badoomchick12 I'm not sure there's any...

    Hi Badoomchick12
    I'm not sure there's any evidence to suggest Spinecor only works on really skinny people and it's certainly not a criteria for being fitted with the brace. My daughter is in the...
  22. Thread: spinecor

    by HaleyMom
    Replies
    3,919
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    1,091,980

    Hi Laura Haley spent a week at girl scout camp...

    Hi Laura
    Haley spent a week at girl scout camp last summer -cabins with no air conditioning. She wore her brace over a one piece bathing suit all week. The brace was filthy but she survived and had...
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    We've had ours for a year - no rust at all. Is...

    We've had ours for a year - no rust at all.

    Is the rust on the snaps or the crotch strap buckles? Both can easily be replaced.

    What are you using to wash the brace? Do you have unusually hard...
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    Sorry to hear you're not getting off to a good...

    Sorry to hear you're not getting off to a good start with your brace :(
    My daughter was so nervous the first day she wore her Boston brace to school that she almost threw up in the car. After a...
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    Over time leg length discrepencies can lead to...

    Over time leg length discrepencies can lead to scoliosis, as well as knee, hip and ankle problems, if the difference is significant. Do a Google search and you'll find lots of info.

    There are both...
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