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  1. Thread: Appt at CHOP

    by cyprusmom
    Replies
    13
    Views
    5,237

    Dear Melissa, I found your update. Wow, you have...

    Dear Melissa,
    I found your update. Wow, you have "the date". That is the one moment I remember crying when I got the phone call from the hospital. It was actually a big relief and I am sure you feel...
  2. Thread: spinecor

    by cyprusmom
    Replies
    3,919
    Views
    1,100,902

    Hi Melissa, I just replied to your e-mail but...

    Hi Melissa, I just replied to your e-mail but seeing your comments on dancing I thought I should tell you about Anastasia who, as you know not only looks like your Nicole but had been dancing and...
  3. Replies
    12
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    6,793

    P.S. Hey Gerbo, hope you will be watching...

    P.S.
    Hey Gerbo,
    hope you will be watching Marcos Bagdhatis tonight versus Agassi.......It's going to be a great match. Being in the States now I will have to listen to the American...
  4. Replies
    12
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    6,793

    Thank you Tulsamom and Inetzer. Very relieved to...

    Thank you Tulsamom and Inetzer. Very relieved to hear your stories. I thought I had read about every possible pre- and post op issue in the forums, but ofcourse every kid is different and there is...
  5. Replies
    12
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    6,793

    I am still at the stage where I follow exactly...

    I am still at the stage where I follow exactly what they instructed us on discharge day: Changing the dressing that covers the steristrips......I have to do that until September 5th when the doctor...
  6. Replies
    12
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    6,793

    Taking care of the incision

    My daughter 12, is 4 days post-op with a fusion of T3-L4.
    I know it is probably too early but I'd like to hear any advice on taking care of the wound once we go home and we get the ok from the...
  7. Thread: spinecor

    by cyprusmom
    Replies
    3,919
    Views
    1,100,902

    Hello wonderful mothers and fathers, thank you...

    Hello wonderful mothers and fathers,
    thank you for thinking about my daughter. She had a very successful surgery yesterday, all went very well, doctors and nurses are very happy with the results and...
  8. Thread: spinecor

    by cyprusmom
    Replies
    3,919
    Views
    1,100,902

    Hello to everyone, as you know my daughter is...

    Hello to everyone,
    as you know my daughter is going to have surgery. By now we are all very positive about it and know that it is the best we can do for her. The Spinecor was a great hope for us but...
  9. Replies
    10
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    7,099

    Hi John how are you doing? Hope you are...

    Hi John how are you doing? Hope you are recovering well and fast. Just to let you know that my daughter is having surgery with Masso on Aug.16th. We will be there on July 18th for the first blood...
  10. Replies
    10
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    7,099

    Thanks for posting the photo John! How long did...

    Thanks for posting the photo John! How long did you stay at the hospital after surgery, I assume that was taken at home.
    Just wondering if it was dr. Mak who performed the surgery since you said...
  11. Replies
    23
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    24,664

    Jer, you are one of the people who I love to...

    Jer,
    you are one of the people who I love to read posts from: 'grown-ups who had surgery in their teens and are doing great'!!! I am also a great believer in 'listening to your body' when it comes...
  12. Replies
    23
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    24,664

    Lindsay, I read several of your previous posts...

    Lindsay,
    I read several of your previous posts but never knew you were on a swim team. That is definetely to your benefit as you must be in a great shape for your surgery tomorrow. Wish you the best...
  13. Replies
    10
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    7,099

    Hi there, I can't tell you how happy I am to...

    Hi there,
    I can't tell you how happy I am to hear you had this positive experience there. You are the first person on this forum that I know of, who had surgery at Springfield, Shriners. Just...
  14. Replies
    27
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    9,147

    So Linda, would you say that most doctors do NOT...

    So Linda, would you say that most doctors do NOT use it any more today and if so what are the extra risks with it. The surgeon at Shriners said they would do it with my daughter. I had never heard of...
  15. Replies
    23
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    24,664

    Great to read all the posts. I heard all my life...

    Great to read all the posts. I heard all my life that swimming was considered one of the best, if not the best, form of exercise one can get. I started swimming laps when in college and got hooked....
  16. Replies
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    24,664

    Is breast-stroke swimming bad for scoliosis?

    My daughter has joined a group for swimming, nothing competitive but she gets a good work-out 2-3 times a week. We want her to stay as fit as possible as she very probably having surgery in the next...
  17. Thread: spinecor

    by cyprusmom
    Replies
    3,919
    Views
    1,100,902

    Just wanted to add my latest thoughts and all...

    Just wanted to add my latest thoughts and all this we are ALL going through. Yes, I also hate scoliosis and I also cry when I think of the 'invasion' she will probably have to go through with...
  18. This is so great to read Nikki. All of us parents...

    This is so great to read Nikki. All of us parents who are still in the 'waiting' for surgery or still researching and trying to make sure we make the right decision, when reading your post how noone...
  19. Hi Cheryl and everyone, my husband is 6'4'' and...

    Hi Cheryl and everyone,
    my husband is 6'4'' and I am 5'6'' so I believe my daughter who is now 1.61m(thanks to Alice I know that's 5'3'') should get to be taller than me. I can see how her large...
  20. This was one of my many concerns too since we...

    This was one of my many concerns too since we were told she needs surgery. My daughter is almost 12, Risser 0 and curves T50, L30. The surgeon from Shriners MA, said she will mostly grow in her limbs...
  21. Replies
    11
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    14,164

    Just wondering how old you are now Etoile and how...

    Just wondering how old you are now Etoile and how old when you had the surgery. Six inches is a lot.
    I read about the 'growth' one gets from straightening the spine with the fusion, but what...
  22. Thread: spinecor

    by cyprusmom
    Replies
    3,919
    Views
    1,100,902

    Pola, the school nurse recommended a book for...

    Pola, the school nurse recommended a book for Nicole called Growing Up With Scoliosis by Michelle Spray. I bought it from Amazon. Nicole has been reading it. This true story takes you through the...
  23. Thread: spinecor

    by cyprusmom
    Replies
    3,919
    Views
    1,100,902

    [QUOTE=Celia Vogel] Crazy question.....has...

    [QUOTE=Celia Vogel]


    Crazy question.....has anyone had trouble with the snaps coming undone ?? Strap # 1 is not holding as of today and as you know it's a long weekend and I doubt anyone will...
  24. Thread: spinecor

    by cyprusmom
    Replies
    3,919
    Views
    1,100,902

    I would think that you will get a re-adjustement...

    I would think that you will get a re-adjustement on Tuesday so that the straps hold the thoracic curve more. Maybe a new type of exercise? Let us know what the Spinecor docs say. Wasn't Nicole found...
  25. Thread: spinecor

    by cyprusmom
    Replies
    3,919
    Views
    1,100,902

    Melissa, please empty your private messages...

    Melissa,
    please empty your private messages box, it will not accept the one I am sending you :) ......Pola
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