How often do your Doctors want to re-adjust the spinecor brace and take xrays? he wants us every 5 months but I just read online that it should be every 3 months, 4-5 months if the risk of progression is low, well hers isn't low, he just has us come every 5 months because of the distance that we live to there.
I wish he would take the xray before they re-adjust the brace, I am curious to know her curve before it's tightened again.
When we had our first in-brace appt. last week our Orthotic explained to the doctor how the brace works compared to the Boston Brace which is the brace the doctor wanted to use. Dr. Chang or any other Dr. at Miller's Children Hospital in L.B., CA has not used the Spinecor before. They are actually very excited to see the results because Jeremy (Orthotic from Hanger) explained that the Spinecor brace is attempting to do actual correction not just stablize the curve like the Boston Brace does. Dr. Chang said if it actually does some correction or even keeps it at the same curve he will put it on all his scoliosis patients that need bracing. Dr. Chang said in the Boston Brace her curve would go back to the original curve or worse so he said if the Spinecor will even just keep it at the original curve it would be worth using becuase kids would be more likely to wear it. There is still that 20% that bracing will no work on. Anyway you probably know all this but we were told that her shoulder had to rotate and it had to create an opposite curve to achieve the correction.
We are going to see Jeremy every three months for adjustments and to Dr. Chang every four months for x-rays. How often do they have you go?
Kathy I we only go every 5 months now. Well she got the brace on March 20th, we went back on April 24 and then he said every 5 months after that, although I couldn't go in Sept because of work, so we have to wait till October, which is closer to 6 months... I think she needs an adjustment already though!
Yep, see Halle went from 20 degrees in Jan to 32 in March... she jumped 12 degrees in 2 months! Although she really took to the spinecor brace and in the first xray she went from 32 degrees to only 9 degrees!!! 1 month later she was still holding at 9 degrees in brace...
yeah, I think I have to wait until the October appointment because I just started a new job last week but I am going to request next time that the time inbetween be less.
How old is your daughter Kathy?
I take my daughter to Atlanta every 4-5 months to get her brace adjusted and an xray. (although this visit in Oct. will be closer to 6 months). My daughter has been in the brace for a little over a year now, and this past June I did have an out of brace xray done (as her ortho has asked me to several times in this past year). Her curve out of brace was still around 24 degrees, so there has been no correction, but she is at least stable. In March her in brace xray was 12 degrees.
I am a little concerned now about the frequency of the xrays this year. This year Emily will have had 4 xrays. After Oct. I'm going to space the visits closer to the five month mark at least, as I don't want her exposed to so much radiation. Even though the doctors use filters and vests on the xray machines, I'm still a little nervous about it.
MJB, I didn't realize how much correction Halle got so fast, that is amazing!!
I understand your concern even though we were told the amount of radiation is so small that it is not to be a concern it is hard not to think about it.
It is wonderful that she is holding out of brace and getting good correction in brace. Seems like it is working for her. I look forward to getting that one year point because Jen will be close to maturity then. Take care.
Hi. I am a 20 year old figure skater who has been struggling with my scoliosis for several years. Two years ago doctors were really pushing for surgery to correct my 47.5 degree s curve. That would mean 12 metal rods and 24 metal screws. That would also mean the end of my skating career, which just thinking about brings tears to my eyes. See I am internationally and nationally ranked and I have a lot to look forward to with my skating. The surgeons however gave me "false" hope by saying that I could be back on the ice within 3-6 months in about the same form that I was. Now, any sane and intelligent person could tell that that was incorrect. My parents, seeing my distress went into to super parent mode and while I was barricaded in my room with the music playing really loud they happened to stumble upon SPINECOR. My dad email and called Dr. Gary Deutchman at like 10:30pm and that same night at about midnight they received a call from, one of the men who has changed my life. By the time I came out of my room the next morning my mom and I were booked on a redeye flight to Chicago for me to be fitted the back brace. I was not too happy about having to wear a back brace, but my parents said it was that or the surgery. At first I hated the brace because it was too tight, pulled my body in strange directions, bruised my back and made me even more self conscious of how I looked. After I made it through the introduction phase and built up my wearing time to 20 hours a day I began to see, feel and notice the difference. I quickly learned to hide it, so much so that most of my friends still do not know that I wear a brace and that I even forget I am wearing it. I have now been wearing it for two years and have seen dramatic results. I started with a curve of 47.5 and I am now down to 37.6. We are all amazed by my success. This was not supposed to be possible because of my age and the fact that I should have stopped growing, but x-rays can't lie. My back no longer hurts as much, my skating has gotten better, and I am now 5'10 1/2" with prospects of getting taller if my back continues to straighten out. It has not been all fun and games, but I would not change a thing because I can now go an entire day or more without my back hurting so much that all I want to do is sleep. I urge anyone who has been told that they need surgery or have to be put in the hard shell brace to check out SpineCor.
Hi! I have been in the brace for 2 years. Try wearing dance or ice skating tights or leggings. It really keeps the brace from rubbing. Hope this works for you guys as it has for me.
No way, no HOW is she valid. Don't be taken in by "her".
They wanted to put *12* rods in her back?
She claims her curve was 47.5 to 37.6°, and only Deutschman (not ANY other doctor I've met - or heard of -in THIRTY years), is skilled enough to measure to 1/10th of a degree? That all other doctors are too stupid to get within a ±5° margin of error?
That she achieved any viable correction after skeletal maturity?
She's a plant, plain and simple.
So even if you could physically measure the curve on the film to that precision, it's still meaningless.
Also, the shill, er... I mean poster, stated she had a double curve but only stated one measurement. I guess that's were the "12 rods" come in to save the day. :cool:
It's curious that the Spinecor folks have now taken to adverting on fora. I would think they have enough customers.
OMG, this is becoming another case of someone posting the same thing (ala BETAll) over and over again, in this case in an attempt at some free advertising for Dr. Deutchman!
I also can't stop laughing since I read that he (Deutchman) apparently uses a DIGITAL PROTRACTOR and that's how he alone is able to measure curves to within 1/10 of a degree when, as Pam said, the BEST doctors in the world admit there is a 5 degree margin of error. I hope nobody buys this HOGWASH!!
By the way, isn't Dr. Deutchman the guy who tried to con some parents into paying for vestibular testing claiming that there was a connection between scoliosis and one's inner ear!!!???? I believe there are several posts on this forum on that topic.
"Measuring Cobb angles to a tenth of a degree."
Normally I'd suggest they just give Deutchman the Nobel in physiology or medicine but this breakthrough is of such a large magnitude that I think it warrants a whole new category of prizes. :D
Yes, Sharon - and doesn't a "digital protractor" sound like something you've seen on your child's school supply lists??? LOL!!!
Sorry, but I still find that hysterical.
The "Twelve Rods Path," sort of like the "Eight-Fold Path"...
Why is Spinecor advertising now? That is the more interesting question to me.
I never quite understood why THAT treatment method was singled out and everything else, including Spinecor which is also a relatively new treatment alternative, could be posted about constantly without anyone questioning that those folks were "advertising".
In fact, back when only Shriners was performing VBS, nobody was making a dime off the procedure since Shriners does not charge for their services. I doubt the prescribers of Spinecor can say the same, so wouldn't that make posts regarding Spinecor closer to "advertising" since someone is profiting from it????
VERY interesting indeed............
Yes I agree Maria.
There is no comparison between recommendation by anyone of VBS and Spinecor.
Spinecor is a bracing technique (in a world where bracing efficacy in general is questioned) that costs an arm and a leg and has most of its publishing ahead of it to prove efficacy.
VBS is a surgical technique with some publications under its belt and is free from the Shriner's hospitals.
The Shriner's doctors seem to have their dance card perennially full and so it doesn't see like they have to advertise. Spinecor doesn't see to be in that boat just in terms of how much they get away with charging for the materials and service.
Well said, Sharon. In fact, the wait to even be seen at Shriners can sometimes be months so, no, they surely don't need to advertise or recruit for patients as some have ridiculously alleged in the past.
OMG, not you 3 again!
Will you please go away and leave us in peace?
Okay, okay. Sorry I snapped.
I honestly don't think it's The Spine Corporation people advertising; they have too much class to pull a stunt like this. You never know, she may be legit??!! Stranger things have happened.
I know that when I first discovered Spinecor I was fairly evangelical about it too.
Thanks for putting me straight though!
Evangelical is fine.
But when you were evangelical, I'm sure you weren't claiming tenth of a degree precision in Cobb angle measurements and the alternative to bracing being 12-rod surgery.
You and this poster don't overlap in the credibility department AT ALL. You are at one end with us non-woo-woos and the poster appears to be pegged at the other end.
Apologies for the interruption to point out Deutschman's advertising (and, BTW, I do believe it's HIM again vs. Spinecor ... he's a repeat offender), but dsicequeens claims were so ridiculous I couldn't, in good conscience, let them stand.
Her entire post was full of misinformation (or worse). My only reason for responding here was to point anyone buying her story to the other thread (same post) she started. I didn't say a word against Spinecor: I just wanted to make sure the inaccuracies and impossibilities she claimed were known.
I guarantee you, had no one said anything, ~someone~ would have believed them. They may have anyway.
Between Deutchsman and the chiro that stole my surgical photos from here (and used them on his website to show people the horrible surgery they'd need if they didn't let him "cure" them), I have very little respect for that profession.
Pass the soap, Sharon.
Once again, you have resorted to hostility (i.e., your comments that we should "go away"). I don't understand WHY you feel the need to get so defensive right away. It's as if nobody can question ANYTHING related to Spinecor (in this case, we weren't even referring to Spinecor but rather were talking about Dr. Deutchman).
You ask to be "left in peace". Funny, I had hoped for that same thing when I would post in the past regarding VBS and would be interupted over and over again by folks, including yourself, who had NO personal experience with, or knowledge of, the procedure.
At least I was sharing from personal experience, what I had learned, and was posting valid information that I had gotten from extremely reputable orthopedic surgeons, not quacks like Deutchman.
And now you seem to have a problem because "us 3" are questioning someone who claims to use TWELVE RODS and have the ability to measure one's curve to within a tenth of an inch???!!!
Ah, Pam makes a good point. It is likely NOT Spinecor but Deutchman who is advertising.
That makes mucho more sense. Those wacky chiro types! <waving my fist in the air wildly>
In re claims, it's okay to be evangelical for Spinecor or VBS or whatever. What isn't okay is making counterfactual claims.
The offending poster in this case made several counterfactual claims. Aside from all those, I think it is known that Spinecor can help alleviate pain in adults.
I don't know anything about Dr. Deutschman, but I have been dealing with the inventors of spinecor over the past year and I, too, would be shocked if they would post fake testimonials on spinecor. In fact, Dr. Rivard was nothing but forthcoming to us. He made no promises but did explain to us who the better candidates for spinecor were and how my daughter fit into that profile. Then when we we got a really good in brace correction he did provide hope (not promises) that we can hopefully hold the curve for the next couple years, but even he pointed out that it will be a challenge to hold her curve during her peak velocity growth period. He didn't even talk about permanently reducing her curve (out of brace). Very realistic. No hard sell. No miracle claims. If so, we would have run for the hills. However, there have been individuals who have had fantastic results which does provide some hope for the rest of us-even though we won't all be that lucky. Hopefully over time they will be able to further refine a subset of candidates that are most likely to have successful results. Unfortunately these things take time and we have to make our decisions today.
The takeaway is to take everything with a grain of salt and if you hear something interesting on these boards, independently verify before you make decisions based upon posts on the internet. But I just wanted to chime in that even if somebody is posting "advertisements" on behalf of a spinecor provider, that doesn't mean the entire spinecor system is not reputable (which several of you have already pointed out, above. just chiming in with my agreement). I don't want somebody to be turned off from even considering spinecor if it might be a good fit for their child. It's not for everybody, but it is a valid option for many to consider.
Just an FYI-Erie Shriners braced with Spinecor as well as other hard braces with an orthopedic surgeon overseeing the orthotist when we went in 2006. We did go there and they do not charge for the brace if recommended. We were advised no brace would hold my daughters curve, which was also advised as true by a second opinion at Scottish Rite, and confirmed with eventual surgery. However Spinecor has been recommended and used, by an orthopedic surgeon there, at least then, but I don't know if they still do or not, to be honest. Just thought that was worth mentioning. I don't think that Spinecor, developed by orthopedic surgeons, to my knowledge, Dr. Rivard, or most are the problem or issue. I do think there are a minority of those bracing, that are the ones giving Spinecor an unfortunate negative taint. I agree parents have to research and do what they feel is best for their own child.
Thank you Pam & Sharon for your intelligent & reasonable posts.
Jill, thank you for putting into words what I would have wanted to. That was a fine post.
Maria :eek:. You're beginning to scare me.
For whatever reason, you do not like me personally and believe me, I could care less - but your bias against me is quite obvious with that last post. It's really a disservice to the forum when one constantly brings personalities into it rather than focusing on substance.
Therefore, since it is obvious that you can't comment rationally on anything I post, why don't you just refrain from posting (albeit indirectly) back to me or commenting on what I have to say every chance you get? For the good of the forum, wouldn't that be more constructive than trying to start an argument?
I think that the main reason this thread becomes so intense is because of the ridiculous claims SOME people make about spinecor (not most of the parents but people like dsicequeen). Spinecor seems to be the only brace that people feel a need to prove is THE answer for all in treating scoliosis. I have yet to read anyone write so passionately about the Boston Brace, Providence brace or Wilmington brace and claim that it is the best thing since sliced bread. For example, in dsicequeen's post...........If you replaced the word "spinecor" with the words "boston brace" I am sure you would be reading the same doubt in the replies of the parents who have responded.
There is no "one size fits all" treatment for scoliosis. We all make the best choice we can given the info and options available for our child. I truly believe the parents here just want newbies to make sure their decision is based on facts that they have gotten from a credible doctor, not influenced by ridiculous testimonials and advertising. There can sometimes be significant health issues that may be an underlying cause to scoliosis that NO brace can fix, and these issues need to be ruled out by a medical professional.