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Charcot-Marie-Tooth + Spinal Fusion

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  • Charcot-Marie-Tooth + Spinal Fusion

    Hello new community! I'm having a two-part fusion procedure next week at Georgetown Univ. Hospital in D.C. Besides having an "S" curve of 56 and 68 degrees, I also have a peripheral neuropathy -- Charcot-Marie-Tooth (CMT) disease. CMT patients have weak hands and leg muscles, which means I'm unable to squat to bend down and buttoning shirts is problematic. I have two questions: 1) Has anyone been a patient of Dr. Fred Mo? 2) Do any other Forum members suffer with CMT.... I'm looking for advice on how they may have made adjustments and how long they were in rehab facility. I've been told to expect a week in the hospital and 1-3 weeks in a rehab facility.

    Judybug
    50ish female, married, two teenagers
    adolescent scoliosis (Milwaukee brace)
    soon to have cages L5 -- S1 and fusion T4 to pelvis

  • #2
    http://www.scoliosis.org/forum/showt...hlight=charcot
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

    Comment


    • #3
      Hi Judy,

      Next week is right around the corner....

      Can I ask about your CMT? Was this diagnosed as an adult?

      Welcome to the forum

      Ed
      49 yr old male, now 63, the new 64...
      Pre surgery curves T70,L70
      ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
      Dr Brett Menmuir St Marys Hospital Reno,Nevada

      Bending and twisting pics after full fusion
      http://www.scoliosis.org/forum/showt...on.&highlight=

      My x-rays
      http://www.scoliosis.org/forum/attac...2&d=1228779214

      http://www.scoliosis.org/forum/attac...3&d=1228779258

      Comment


      • #4
        Hi Ed, CMT1A was diagnosed in early childhood. I'm fairly independent. I do wear AFOs and avoid marathons, extensive hiking and weight lifting

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        • #5
          Judy, I can see marathons being out with the foot drop issues. My father had ALS and had the same problem....He was diagnosed late in life....

          Have you been waiting a long time for this? and are you ready? Some of us cant wait for surgery and some of us wait forever....like me. My pain was out of control and didn’t have a choice.

          I tried a search for Dr Mo here, and didn’t find anything. But I see he did a fellowship at HSS...which is good.

          Wishing you all the best.

          Ed
          49 yr old male, now 63, the new 64...
          Pre surgery curves T70,L70
          ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
          Dr Brett Menmuir St Marys Hospital Reno,Nevada

          Bending and twisting pics after full fusion
          http://www.scoliosis.org/forum/showt...on.&highlight=

          My x-rays
          http://www.scoliosis.org/forum/attac...2&d=1228779214

          http://www.scoliosis.org/forum/attac...3&d=1228779258

          Comment


          • #6
            Thank you Ed and Linda for your help.

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