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mixasu
12-27-2009, 07:19 PM
Hey guys !! My surgery is one week from tomorrow. I went for my pre-op testing a couple of days ago. As if I wasn't nervous enough, they told me that I have a heart murmur which I never knew I had. Now I need some special clearance after taking a couple more tests. Is this anything to be concerned about? It's been a few days since the testing and I still haven't heard anything from the doctors. They said not to worry about it. My surgery is in one week, talk about last minutee...

kt2009
12-27-2009, 09:24 PM
It's important to define "heart murmur." My "murmur" is a mitral valve prolapse that I've known about since I was a teen and is very slight. It is common in people with scoliosis as it seems to be part of this whole connective tissue disorder. I did see a cardiologist before my surgery. He did a standard EKG. I had had a stress echo a few years ago. He assured me that I was fine for surgery and that his office had doctors at the hospital that would be there in case there was any cardiac complication. So see what the tests say and you'll have a better idea of what's going on! Good luck!

sheri66
12-27-2009, 11:46 PM
I to have mitral valve prolapse and I agree with Kathy I think its common in people with scoliosis.I wish you well with your surgery and a speedy recovery.

Singer
12-28-2009, 07:21 AM
I have the same thing...very slight, a pretty common thing, and in most cases, no worries for surgery. Good luck!

debbei
12-28-2009, 08:09 AM
It's important to define "heart murmur." My "murmur" is a mitral valve prolapse that I've known about since I was a teen and is very slight. It is common in people with scoliosis as it seems to be part of this whole connective tissue disorder. I did see a cardiologist before my surgery. He did a standard EKG. I had had a stress echo a few years ago. He assured me that I was fine for surgery and that his office had doctors at the hospital that would be there in case there was any cardiac complication. So see what the tests say and you'll have a better idea of what's going on! Good luck!

REALLY? I had no idea MVP was common with scoliosis patients. Mine wasn't discovered until I was 40 years old!! Before surgeries I need to be treated with antibiotics to prevent complications. Now I also need it due to having the implants anyway.

I hope everything works out for you just fine. Think of it this way--it's better to know than not to know.

sillycoffeegirl
12-28-2009, 08:37 AM
I think i used to have a heart murmer when i was a baby and i was told it was an irregular heartbeat. But the last couple times i have been to my pcp shes says it sounds normal. So i hope everything is fine with you as well.:)

dolores a
12-28-2009, 10:14 AM
I also have a heart murmer, had it for a good while -- also anti-biotics before the dentist. When I had to have shoulder surgery, during my clearance with a heart doctor, he told me not to worry so much about it, but that anytime I had to have surgery, I would have to get it checked out first even thought it is slight.

kt2009
12-28-2009, 11:37 AM
Two years agao I was concerned that my now 12 year old son had many symptoms of Marfan's Syndrome (a connective tissue disorder). It has many of the signs that we with scoliosis sometimes have...long thin bones, MVP, chest abnormalities...though it is rather rare. Turns out, he's fine.The big problem is that Marfan's also affects the aorta and causes it to weaken. My son has pectus excavatum (a concave chest). His aorta is fine, but I asked the pediatric cardiologist to listen for an MVP. He said he didn't hear anything. But he also said that embryonically, when the chest forms so does the mitral valve. And chances are, if he has any malformation in his chest, eventually he might have an MVP. So we are watching for that. I found that very interesting.

52skeedoo
12-28-2009, 12:48 PM
I have had a murmer since I was about 10 or 12. In the 80's it was diagnosed as MVP. Before my surgery I was having increased problems with tachycardia and irregular beats so I was sent for a complete cardiac workup.

The cardiac specialist said that I did not have MVP and that many people were incorrectly diagnosed with that back in the 80s. I do have a heart murmer, irregular beats and occasional tachycardia, but it is not MVP. He ran a stress test and had me wear a monitor for a few days and said my heart is just fine. He gave me the go-ahead for the surgery and I had no problems at all.

Sheri

Doodles
12-28-2009, 01:48 PM
That is weird. I think I had all the same symptoms Sheri just mentioned in the last 10 years or so. I even had to take a beta blocker for awhile but after surgery went off it because my blood pressure kept going really, really low. I've had to have aorta checked due to a problem there--which I have already forgotten how to even describe but had to have the stress test with ultrasound for it. Makes you wonder if it's some kind of linkage with scoliosis at least with some of our anecdotal information here. Janet

mixasu
12-28-2009, 03:40 PM
Thanks everyone for your responses and good wishes =D

I did not know how common the heart murmur was. I kind of thought that the doctors were just saying that to get me to take an extra test. My aunt is a nurse, and the first thing that came out of her mouth when she heard about the heart murmur was cha-ching !! lol I've gone through many physicals and doctor appointments the past couple of months and no one has ever said anything about my heart until last Tuesday.

I called again today to try and get my results of the electrocardiogram and still got no answers. I did learn that I got clearance today by the hospitalist. If I got clearance for the surgery, then they must have gotten the results and it couldn't have been too bad !! That's another thing that I don't understand. Shouldn't it be your primary doctor who would have to issue the clearance for the surgery?? I guess that I was mistaken.

7 more days, and I'm surprisingly calm !!

kt2009
12-28-2009, 04:31 PM
You're doing great and believe it or not, you will get calmer as it gets closer...as I've said before...it kind of develops a life of it's own and you're just doing everything to get ready and then the doctors take over.

I also had one tachdycardia (sp?) event two years ago and I get a lot of wierd sensations and beats...apparently also common. I definitely have a mild MVP, but after the echo stress and wearing the monitor for 24 hours no one could explain the tach. event.

I did get clearance from my PCP, but when she remembered the event and I told my surgeon about it, they both wanted me to clear surgery with a cardiologist. I felt so much better after I did that.

About the connection...while researching Marfan's, I did come across information saying that many of these skeletal and heart conditions are found together, though it does not indicate Marfan's. We're just special, I guess!

loves to skate
12-29-2009, 04:32 PM
I have had a murmer since I was about 10 or 12. In the 80's it was diagnosed as MVP. Before my surgery I was having increased problems with tachycardia and irregular beats so I was sent for a complete cardiac workup.

The cardiac specialist said that I did not have MVP and that many people were incorrectly diagnosed with that back in the 80s. I do have a heart murmer, irregular beats and occasional tachycardia, but it is not MVP. He ran a stress test and had me wear a monitor for a few days and said my heart is just fine. He gave me the go-ahead for the surgery and I had no problems at all.

Sheri

I too was diagnosed with MVP in the 80's and before my surgery had another ECHO cardiogram and was told it wasn't MVP but that I have two floppy valves. What the difference is, I haven't a clue. I have irregular beats but no tachycardia. My PCP Doctor tells me it isn't serious, and I didn't have problems with a 14 hour surgery, so I guess he is right.

JenniferG
12-29-2009, 05:41 PM
You're doing great Mixasu, keep it up, you're nearly there!

I too was diagnosed with some sort of heart problem after surgery. They ran an ECG after I had severe indigestion, I suspect they thought I was having a heart attack because I had pain in my arm and shoulder and jaw. Anyway, it was just indigestion and Mylanta fixed it but the nurse did say the next day that they'd found a small problem with the ECG. After that I didn't hear anything further and nobody seemed to know anything about it.

After reading this thread I just phoned the hospital to see if I could get whatever notes were made at the time. It's interesting because it's starting to sound like Scoliosis and heart murmurs may be linked in some way.

osumike
12-29-2009, 08:06 PM
Interesting topic here...I have been told I have Marfan's Syndrome. Im a little skeptical though, since there is really no clear cut test to diagnose it. I do have a dialated aortic root in my heart though, and I'm undergoing tests to get clearance for surgery. I already had an electrocardiogram and an EKG. I go in next Tuesday for a CT coronary scan.

Anyway, good luck Mixasu!

Doodles
12-29-2009, 08:09 PM
The dilated aortic root--that was the other thing I had. They keep an eye on it but the size was such that it wasn't a big concern. Janet

sillycoffeegirl
01-04-2010, 11:48 AM
hey mixasu,

i think u said you had surgery on the 4rth or the 5th. I will say prayers for you and i hope all goes well. hope to hear how you are doing soon, and i will be post op in 2 days as well .woohoo :)

JDM555
01-07-2010, 09:18 PM
Hmmm seems scoliosis and heart problems go hand in hand. After surgery I was having an very high heart rate. Resting I was over 110 and when I got up to walk it would jump to 150ish. They had me do an echo and they said everything is looking fine, but for a 19 year old my heart isn't pumping as hard as it should be. I guess they said minor cardiomyopathy because that also makes the high heart rate. If my heart doesn't pump hard enough it pumps faster to make up for it and that is why it seems like I have tachycardia or w.e and I had to go to a cardiologist and he said he wants to add a monitor on my heart. Maybe give me beta blockers too down the road. I just hope to become an energetic teen again because lately I don't feel like I have energy to do anything. I'm always tired.

Anyways GL with your surgery and keep us posted.