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  • Pain Management

    Wow its been awhile since I posted last. I am still have a lot of pain and my primary said I should see a Pain Dr but wanted clearance from my surgeon who has ok'd it and gave me a 'script for a consult. Problem is both say I'm not a candidate for injections or manipulation and that is all any of the people they have suggested want to do. Are there any people out there in the greater Philadelphia area that know of any Drs that accept Aetna and are not into dealing with everything by injection?
    Briarose if you found any help please let me know
    2 60* curves, DDD, left trunk shift, some rotation, rib and lumbar humps, annular tear at L5-S1
    surgery 5/08 planning fusion T3 or T4 to sacrum with iliac fixation
    Dr. Anderson at Rothman Institute
    5/16/08 ALIF L1-L5
    5/23/08 fused T2-sacrum w/fixation and I'm all Titanium
    6/4/08 open all back up to clean out for Staph infection
    (left open with just clear dressing)
    6/6/08 recleaned and closed
    3/30/2012 revision planned, broken rod and removal of iliac bolts

  • #2
    Hi Sharshe,

    I'm sorry to hear you are still in pain. I had a cortisone injection today and so far I'm feeling better. I'll see if it helps at work tomorrow. I don't know of any doctors, but I will ask around at work. My job has Aetna as the insurance, but I'm on my husband's plan. Are you allowed to try acupuncture? Have you taken Ultram (I've been wanting to try it)? I hope things turn around soon.

    Shell
    Chemist, 30

    1998- 18 degrees
    2003- 33 degrees
    2005- 37 degrees
    2006- 44 degrees
    May 2007- 47 degrees
    December 2007 - 50 degrees X-ray

    Surgery May 27, 2008
    Fused T1 to L2
    Curve corrected to 15 degrees X-ray

    Comment


    • #3
      Shell,

      I took Ultram this entire summer, and I was fine with it unless I did way too much. I did something really stupid and stoved up my body. The Ultram didn't work so well then.

      I've gone back to my stronger med for the winter weather, cold and damp get to me. At least we can predict the weather.

      Take care,
      Shari

      Comment


      • #4
        Hi Sharshe
        i am so sorry to read that you are in pain...

        i have 2 very good pain management doctors...i just came back from seeing one in manhattan yesteray...i have another in CT....my insurance is aetna

        i take strong oral pain meds...also get botox injections in nyc (for thoracic pain).....the botox freezes the muscles so they cant spasm or bunch up, which causes me great pain...i have also had (for lumbar pain)epidurals, facet block, nerve ablation, & sacroiliac injections (that last one worked the best for me personally)

        i have not had surgery...yet...& am not suggesting you have injections or any other procedure..unless your surgeon suggests/OK's it...but i do know that both meds & injections are staples of what pain doctors work with...

        i hope you find a solution for your pain...perhaps just a consult with pain management doctor could give you an idea of what is possible...

        best of luck
        jess

        Comment


        • #5
          Thanx for the replies.
          I have more calls in to more pain management places. Waiting for replies from some of them and no luck with others.
          I am definitely NOT looking forward to winter as I already had medical issues with the cold/damp weather.
          Shell I hope the cortisone helps (was it for your shoulder?) I had that YEARS ago when I tore some ligaments in my shoulder digging up a front yard
          2 60* curves, DDD, left trunk shift, some rotation, rib and lumbar humps, annular tear at L5-S1
          surgery 5/08 planning fusion T3 or T4 to sacrum with iliac fixation
          Dr. Anderson at Rothman Institute
          5/16/08 ALIF L1-L5
          5/23/08 fused T2-sacrum w/fixation and I'm all Titanium
          6/4/08 open all back up to clean out for Staph infection
          (left open with just clear dressing)
          6/6/08 recleaned and closed
          3/30/2012 revision planned, broken rod and removal of iliac bolts

          Comment


          • #6
            I am from the area also and I have not heard of any good pain management practices. Before surgery I had the shots in the spine and they did nothing for me. I would try acupuncture and may try it if my thoracic region doesn't calm down. I am still on pain meds (9 months from surgery) and can't imagine at this stage, not taking them. I guess it's taking me longer than other people to be all recovered. Anyway, I just wanted to say good luck in finding some decent treatment. Would you think of going to NY for pain management as Jess does?
            Take care,
            Avis
            1987 Lumbar Laminectomy (forget which levels)
            2005 A/P fusion, L2 - L5, 2/2005
            2009 2 Posterior fusions, T6 - Pelvis, 2/10 & 2/18,
            Dr. Frank Rand, NEBH

            Comment


            • #7
              Dear Avis
              it really depends on where they put the shots...cause i know what you mean about shots not working...cortisone never helped me at all...anywhere...
              also, epidurals didnt do much...sacroiliac shots helped alot for a little while(i was blissfully pain free in lower back for a while...heaven!)... nerve ablation also, & facet blocks helped somewhat...for me, they use some kind of steroid, but not cortisone...i think the doctors really need to target the spot(s) they inject to the location of the worst pain of the patient...it is different for everyone.

              thank goodness for the botox shots for my thoracic curve....it kills the pain cause the muscles can no longer do anything after the shots..just got botox again in nyc wednesday....instant relief...whereas the other shots for lumbar take a while to work their way in..at least a week...& when in severe pain, a week can feel like a year, as we all know! i get the botox 3-4 times a year...

              i hope those who need pain management can find doctors they trust...even just to talk to & find out what may be possible...i had nothing to lose, cause i was in pain so bad i had to early retire...& i loved both my jobs, even though they were both so stressful...i had nothing to lose with the pain doctors...i have had no surgery...yet...& was pretty desperate for some kind of relief...just to get out from under for a while! and my insurance paid for the treatment!

              best of luck to all who search for relief
              jess

              Comment


              • #8
                Originally posted by Sharshe View Post
                Thanx for the replies.
                I have more calls in to more pain management places. Waiting for replies from some of them and no luck with others.
                I am definitely NOT looking forward to winter as I already had medical issues with the cold/damp weather.
                Shell I hope the cortisone helps (was it for your shoulder?) I had that YEARS ago when I tore some ligaments in my shoulder digging up a front yard
                Have you tried the Center for Pain Control in Wyomissing? There's Dr. Matthew T. Kline at the Pinnacle Mid Atlantic Anesthesia Associates in Wilmington, DE. There's also the Interventional Spine Pain Consultants in Wilmington and Newark. I think they all take Aetna. I'm not sure exactly where you live, so these might be too far.

                The cortisone shot was for my shoulder. It's just crazy that I had that pain for 9 years, have been to countless doctors and that was all it was. At least it's better. I'm still having a lot of pain running down my arm. It apparently wasn't related to the scapular tendonitis. I'm giving Neurontin another try.
                Chemist, 30

                1998- 18 degrees
                2003- 33 degrees
                2005- 37 degrees
                2006- 44 degrees
                May 2007- 47 degrees
                December 2007 - 50 degrees X-ray

                Surgery May 27, 2008
                Fused T1 to L2
                Curve corrected to 15 degrees X-ray

                Comment


                • #9
                  Acupuncture or X-Stop Spacers for Lombar Pain?

                  Has anyone had experience with acupuncture to reduce lombar back pain? I have 70 degree lumbar scoliosis and stenosis L3-L4 with considerable back pain, particularly in the morning before taking 7 mg prednisone (tapering down). I am seeing a neuro surgion who says I may be a candidate for two X-Stop Spacers which should reduce pain but not reduce scoliosis by much.
                  Anyone have any experience with either treatment?

                  Thanks, Ed

                  Comment


                  • #10
                    I'd love to know about pain management. I've had my problems since I was 27 and am interested in accupuncture suggested by my doctor but have had some strange experiences years ago. A doctor who was boob obsessed and insisted on putting needles under my breasts then another who left me in a room for ages and forgot about me! I'd like to hear of others good experiences and did they help. I'm now 61 and need a lift! Just changed pain regime but so far not helping.

                    Comment


                    • #11
                      Hi...

                      I've tried 3 or 4 different acupuncture practitioners over about 20 years. At one time, I was getting fairly good pain relief, but it was very short-lived. It rarely lasted more than 12-18 hours.

                      Regards,
                      Linda
                      Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
                      ---------------------------------------------------------------------------------------------------------------------------------------------------
                      Surgery 2/10/93 A/P fusion T4-L3
                      Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

                      Comment


                      • #12
                        Hi all...
                        acupuncture never helped my back pain..it did help me relax when they left the "thumbtacks" in my ears for a few days, but never helped back pain...in fact, sometimes my muscles would "jump" & then spasm when the needles went in....& then it didnt feel much better after that...no matter how long the needles were left in...

                        botox shots do the opposite...my muscles cant bunch or jump or do anything at all cause the botox freezes them...for months at a time, thank goodness!

                        for my lumbar pain, acupuncture didnt help...i wish it had..i tried it several times, with both American doctors trained in China & a Chinese doctor...it just didnt help...sacroiliac shots did, & nerve ablation & facet block did...

                        best of luck to you acupuncture folks...may the needles bring you relief...
                        jess

                        Comment


                        • #13
                          I didn't have any luck at all with the acupuncture for pain control. Of course that doesn't mean much since the guy doing the procedure wasn't Chinese.

                          I have seen open heart surgery on television, done with acupuncture, with the patient watching.Amazing stuff!

                          I guess you just have to pick the right person in acupuncture same as with scoli surgeons, chiros, masseuses, etc.

                          Ed
                          49 yr old male, now 63, the new 64...
                          Pre surgery curves T70,L70
                          ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                          Dr Brett Menmuir St Marys Hospital Reno,Nevada

                          Bending and twisting pics after full fusion
                          http://www.scoliosis.org/forum/showt...on.&highlight=

                          My x-rays
                          http://www.scoliosis.org/forum/attac...2&d=1228779214

                          http://www.scoliosis.org/forum/attac...3&d=1228779258

                          Comment


                          • #14
                            I have had facet blocks done to determine which nerves were giving me problems. Then the doctor did ablations. Ablations last from 6 months to 18 months. The more times you have it done, the longer it lasts. I just had T8 - T12 area done for the third time. The second time, it lasted 18 months. I will probably be going back to have T4 -T8 area done for a third time in the next couple of months. I use Ultram when the pain starts getting bad until I can get another ablation. Remember ablations help with nerve pain not arthritis. I feel the weather with my arthritis.
                            T12- L5 fusion 1975 - Rochester, NY
                            2002 removal of bottom of rod and extra fusion
                            3/1/11 C5-C6 disc replacement
                            Daughter - T7 - L3 fusion 2004

                            Comment


                            • #15
                              I have had ablation...it lasted about 3-4 months only....of all the shots, the sacroiliac shots helped me the most...facet block helped less...epidurals not at all...

                              i think it depends on the person & where the pain is originating...nothing much helps my arthritis at all..it is all over my body due to lyme disease...relafen & other anti-inflammatories dont seem to help me. i take oxycontin when the pain gets bad, hydrocodone other times...

                              i think where the shots go depends on where the pain is & how well the pain doctor knows the patient...each back looks different under the fluroscope..everyone is different, thus the same shot will not help everyone...my doctor & i dont give up & we keep trying...

                              best of luck to all who seek pain relief
                              jess

                              Comment

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