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Maxxi19
09-24-2004, 10:38 PM
Am 67, was probably born with the condition, remember it in grade school, with a few kids mimicing me how I looked. Have had no help with what I know face. My fault, never talk to my doctor about it & he never brings it up. Would be willing to chat with others, thru e-mail about our problems, dressing, going out & being looked at, & especially the things we can't do because of it. Am so happy I found this site, never realized that others thought like I did.

michelleseibers
09-25-2004, 10:41 AM
maxi, i can absolutly understand how you feel. this is a great forum to come to and even vent at times. are you seeing a doctor or are you still refusing to speak?
michelle

Maxxi19
09-26-2004, 11:11 AM
Sorry for not replying sooner, have not been on-line over the weekend. Thanks for the info, am seriously going to make the effort to get in touch with a doctor who can help.

letty
09-27-2004, 04:49 PM
You can email me at letty4065@hotmail.com. I would be happy to talk to you.

Letty

Amazed
10-29-2004, 12:50 AM
Maxxi I am new to talking about my severe scoliosis. Funny about waiting this long ( I am 53.) I would be glad to talk with you about exactly the different topics you mentioned. Send me a reply.

Danite
11-30-2004, 04:36 PM
Hi Maxxi,

I too was born with scoliosis, only at age four did it turn real ugly almost lost my life because of it. I had the first spinal surgery in the state of michigan at U of M at four years old, I have no support of any kind in my back. So after fifty some years of wear and tear it is worn out but good. People do notice and of course inclusion thru-out life has been hard, descrimination because of my appearance has been very popular. But you know, we are people first, and our disability is second. We all have real true friends that has accepted us for what we are, and now we have this fantastic forum. I have felt so good since finding this, I have felt alone for so long. It is great to have so many new friends that we can talk too, God Bless....

Robin0203
01-04-2006, 05:43 PM
I am finding it difficult to age gracefully with my scoliosis. At 50 I notice my failings when I am with others my age. I have even been mistaken for my best friend's mother. She is 50 also. I walk bent over a bit, I have a big hump, have trouble breathing and my head is tilted to one side. But I am still beautiful.

Karen Ocker
01-05-2006, 10:38 AM
Robin:
I strongly suggest visiting an ADULT scoliosis specialist. There is definitive help. You can find the name a a good one by searching the posts. Indicate where you live.
I had the same problem as you: breathing impairment, tilted to one side and an enormous hump. I was re-fixed at age 60(3 years ago) with excellent results. I had an old form of surgery in 1956.
The problem is there is no aging gracefully with scoliosis. Large curves can increase 1-3 degrees a year lifelong causing unnecessary terrible disability and pain.
I could not do that to my family or myself.
Karen

Suzanne in TX
02-17-2006, 07:33 AM
Hi! I'm new to this forum and am 52, female and have sufferred with "S" my entire life. I wore a body brace for several years during adolescence. I've recently lost about 30 pounds and really notice the worsening of my curve. Does anyone have any suggestions or hints of what can be done at my age to help prevent further degeneration? I exersize avidly, hence the weightloss and believe that should help to prolong the worsening. I live about 3 hours from Dallas and have a daghter who lives in San Antonio, if anyone knows of a specialist in either of those areas. Thank you for your help. Suzanne in TX

LindaRacine
02-18-2006, 03:09 AM
Hi Suzanne...

How do you know that your curve is worsening? When one is thinner, it's easier to see scoliosis curves. It's still a good idea to have your scoliosis checked. You can find a list of specialists here:

http://www.srs.org/directory/directory.asp

Regards,
Linda