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L.J.
11-04-2009, 07:54 PM
My 14 year old son has SMA, Type 3, a neuromuscular disorder, and scoliosis. I would like to hear from anyone who also has the same. Did you require surgery? Did the surgery affect your SMA?

Thanks for your input.

L.J.

Carmell
11-16-2009, 10:52 PM
I know of several children with SMA who have had VEPTR rods placed for severe scoliosis. Let me know if you are interested in emailing them. Most I know are younger than your son.