PDA

View Full Version : Creeping toward 60 degrees...



green m&m
10-28-2009, 05:39 PM
Hey all,

I haven't posted in a while. Just had my visit with my ortho. Updated my signature to reflect the new measurements from today.

From the first visit with my doctor in 2005, I think it's safe to say there is defintely some progression, even with the +/- 5 degrees discrepancy. He said he wouldn't yet consider any surgical correction until I hit 60 degrees, which is 3 degrees away. Have a feeling by my next visit in 2 years, I'll hit that number.

Regardless of the number I'll put it off as long as possible or rather, longer than I should. I have other issues that require frequent MRIs and basically the area of the most concern is exactly where the most amount of instrumentation would need to be if I were to get fused. While new surgical metals usually are not ferrous, there are MRI machines/techs that can get around the artifact caused by the instrumentation, ect... Don't really want even small amount of artifact distorting my scans and making it difficult to tract any changes. It'd be pointless to have a nice straight spine if I end up kicking the bucket from my tumor turning malignant.

Now that I've put that in writing it's quite concerning, but I'll cross that bridge when I'm on it.

Hope everyone is doing well.

Shari
10-30-2009, 12:31 AM
Welcome Back M & M.

Seems like quite a few of us come back at some point.

Good to see you,
Hope all is as well as can be,
Shari

Lorraine 1966
10-30-2009, 02:34 AM
Good to see you back again, I was under the signature of macky when we last posted. I am also sorry you health besides your scoliosis which is bad enough, isnt the best. You certainly have quite a bit to cope with,

Thinking of you
Lorraine.

Pooka1
10-30-2009, 06:45 AM
You seem to be be moving no more than 2-3 degrees a year on average and given the precision as you point out.

It would have been interesting to have data between 1993 and 2003 because it might go against the paradigm of being under 50* at skeletal maturity and that meaning you would never reach surgical territory.

Pam made it to 50* and stayed there for about two decades before her surgery. It is possible your curve might stop progressing. That would be good given the other issues.

The surgeons can help you if you need them.

Good luck.

green m&m
10-30-2009, 12:29 PM
I'd love to know what my degree was when I finished growing(much to my dismay) at 15. I'd imagine 40's with the measurements known. I was 12 back when my first measurement was taken, which I don't even know if it was accurate since a chiro measured it, but it's the only thing I got.:rolleyes:.

I could have gotten a copy of the xray I had taken in 1999 when I went to a chiro for pain management and have my ortho measure it, but never did, and no matter now really. My ortho is pretty sure that if I had gone to a scoli surgeon as a teen I'd have been fused. So for that I'm glad the all around failure of my childhood heathcare providers worked in my favor.

In terms of my other issues, I am at a better place now then I was in 2006 when the tumor in concern was first discovered, at least for now I know it's stable and just chilling out, no growth no signal changes on scans... ect.

It's entirely possible both fusion and tumor resection would need to be done at the same time... that'd make things all kind of interesting considering I am not letting anyone at my ortho's hospital do tumor surg. related stuff and all the cancer/tumor surgeons prob. aren't apt at spinal fusion for long term stability...

Doodles
10-30-2009, 01:40 PM
M & M--
Glad to have you back here. I wish it was for better reasons; you are facing quite a dilemma with 2 major issues. Good luck with all of this. Janet

jrnyc
10-30-2009, 03:53 PM
Hi M&M
i really hope things go well for you..sounds like alot to deal with!

i need scans for a benign (we hope) tumor in left femur & pelvic scans for cysts...was told it wouldnt be a problem if/when i have fusion T11-S1 & L4-sacrum....

my curves didnt cause too much pain for about 26 years...till i herniated discs..then all heck broke loose..also, after that, the curves progressed much faster...i am wondering if you have injured your back in such a way...or if the progression is just happening by itself...also...i was told i could have titanium or stainless steel...dont know if that makes a difference to future scans...

wish you best of luck dealing with all these issues!

jess

green m&m
11-01-2009, 10:39 AM
hi Jess

i don't think you'd have problems w/ scans, the areas you need scanned might be far apart enough that even with artifacts caused by surgical metals, the area being scanned won't be affected.

For me, my tumor is right up against the apex of my curve so any spine instrumentation would be in the same area being scanned, which is the only reason i'm concerned.

No injury but I'm guessing having two wedged vertebrae and the tumor on the convex side might be contributing to progression.

jrnyc
11-01-2009, 05:10 PM
Hi again m...
thanks for the reply...

wow...so sorry to hear how much you are dealing with right now...i dont remember you saying anything about pain....i hope you are not dealing with a great deal of it....?

thoughts & prayers go out to you...

jess

green m&m
11-02-2009, 01:30 PM
Thankfully, not much pain, and I'm pretty much used to the whole monitoring the tumor thing now.

I know I'm at high-risk for it turning malignant(hopefully never!), but no good comes from dwelling on it. I did go through a grief period for a while but it's been long enough that it rarely stresses me. It would have been better if the tumor decided to grow far away from the spine, but ah well.

Thanks everyone for your concerns :)

Shari
11-04-2009, 02:09 AM
Hi M & M,

I hope everything turns out for you.

You will be in my prayers. I wish I could hug you!

God bless you and yours,
Shari