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View Full Version : Willow - Day 12 - meds data point



Pooka1
10-17-2009, 09:32 PM
If anyone is even following along any more at this point and I wouldn't blame them if they weren't... :eek:

Ran out of the prescription meds (percoset, 60 pills) today and transitioned to Tylenol. I was a little worried at first but it seems to be working well enough at the moment. We will see. We were able to go out to eat tonight on straight Tylenol so that's a good sign.

JenniferG
10-18-2009, 04:39 AM
That's really amazing, on Day 12. She's doing wonderfully well. Sounds like life is returning to normal already.

I won't mention what I was on/doing on Day 12.:(;)

Vali
10-18-2009, 06:48 AM
I'm guessing that your Tylenol (don't know if we have it here?) is the same as our Panadol (paracetamol). If it is, she is doing great and oh to go out for dinner on day 12 - excellent! According to my journal, i was still spending a lot of time in bed and could not really stomach anything. Keep up the good work! Like i have said before - kids are resilient!:)

Pooka1
10-18-2009, 09:44 AM
That's really amazing, on Day 12. She's doing wonderfully well. Sounds like life is returning to normal already.

I won't mention what I was on/doing on Day 12.:(;)

Yes there is a light at the end of the tunnel. There usually is. :)

Pooka1
10-18-2009, 09:55 AM
I'm guessing that your Tylenol (don't know if we have it here?) is the same as our Panadol (paracetamol). If it is, she is doing great and oh to go out for dinner on day 12 - excellent! According to my journal, i was still spending a lot of time in bed and could not really stomach anything. Keep up the good work! Like i have said before - kids are resilient!:)

Well, like you, her appetite is still coming back and not there yet. That was the most food I've seen her eat since surgery although I really haven't been watching her in that way. I know she does eat some.

And in re Panadol, I think it's the same though Tylenol is acetaminophen I think. So now we have to ask if paracetamol is the same as acetaminophen. :eek:

And I just looked at the bottle... they substituted "oxycodone-APAP 5-325 mg TABMCK" for the percosets. I guess it is equivalent. So she was taking that instead of percosets.

Oh and someone asked about tapering... we did not taper... she took the last hit of two pills on time. She never took less than the two pills and always by 6 hours but usually after 4 or 5 hours. That's why I was worried that she would fall off a ledge when transitioning to the straight Tylenol. But it hasn't happened. Fooled me.

I didn't think to post this kind of data for the first kid. It's just I have noticed several posts asking about pain meds so it seems people might be interested in it. It seems to me it's just a function of pain tolerance which I think is largely but not completely physiologically based.

And the meds situation with adults is just different unfortunately. It's so much harder.

valleygirl
10-18-2009, 03:53 PM
Congratulations on Willow's ongoing successful recovrery. She's doing great. My guess is part of that is due to her youth and part is due to her wonderful support team (family) at home, which I believe makes a world of difference.

Please keep posting on her recovery as I, for one, am very interested and watching, and wishing her the very best of recoveries.

laurieg6
10-18-2009, 04:50 PM
Hi Sharon,

I'm so glad to hear how great Willow is doing. It sounds like she's off the pain meds really early - great news!

Pooka1
10-18-2009, 08:09 PM
Congratulations on Willow's ongoing successful recovery. She's doing great. My guess is part of that is due to her youth and part is due to her wonderful support team (family) at home, which I believe makes a world of difference.

Please keep posting on her recovery as I, for one, am very interested and watching, and wishing her the very best of recoveries.

Hey Valleygirl, thanks so much for the post and the kind words. She's lucky to have the physiology she has that let's her bounce back from this. Her identical twin was not so lucky and suffered more.

Ill keep posting on topics that folks seem interested in. New folks come along and you just can't guess what they might want to know. That's why I'm doing this and trying to label the threads in some logical way so anyone who wants can follow each of my kid's recovery, albeit as only two data points.

Pooka1
10-18-2009, 08:14 PM
Hi Sharon,

I'm so glad to hear how great Willow is doing. It sounds like she's off the pain meds really early - great news!

She's not off pain meds! She is on the maximum daily dose of Tylenol and will be on that for the next several days I am guessing. She would be doing the narcotic if she had them.

I was a little worried about running through the narcotic but not so bad as for the other kid... we were rationing those towards the end so she wouldn't have to go off them cold turkey. She managed on Tylenol after they were gone but it was dicey... very dicey in my opinion.

Thanks for the note. :)

By the way, I've been wondering how Alex is doing with the Alexander Technique. Are you still seeing good results? Does he like the name of the technique? :D

ddb
10-19-2009, 01:51 PM
I look forward to your updates. Please keep them up. I'm more lurking now - we will know after next weeks appointment more about when surgery will be scheduled. The news hit us hard so reading through updates helps a lot!! Thanks for sharing.

Dee

Pooka1
10-19-2009, 05:32 PM
I look forward to your updates. Please keep them up. I'm more lurking now - we will know after next weeks appointment more about when surgery will be scheduled. The news hit us hard so reading through updates helps a lot!! Thanks for sharing.

Dee

The news hits everyone hard. Please don't sweat that.

Please post any questions you have. There is a bunch of us who can chime in with some answers if we know them. We may not... I know I have been stumped with certain questions.

Surgeons have their own way of doing things and there are a lot of things where there is no one right answer.

Good luck.

ps. It's Day 13 and I hear my kid practicing her drums. I expect she will go to this week's lesson. Light at the end of the tunnel.

pmsmom
10-20-2009, 07:14 AM
Congratulations that Willow is doing so well.

Paula is just a bit past 4 weeks and is down to 1 tab of 10mg oxycontin at night. Later this week we'll drop that last dose.

She's taken nothing for pain during the day, although she complains of stiffness in her right shoulder. I don't know what that is but she doesn't want to take anything for it.

She's very tired though. Sleeps about 12 hrs. at night and is still napping about 2 hrs. during the day. Hope that ends once she's off the oxycontin, however, she still is anemic. We'll find out just how much once we get some blood work done this week.

Snoopy
10-20-2009, 07:23 AM
ps. It's Day 13 and I hear my kid practicing her drums. I expect she will go to this week's lesson. Light at the end of the tunnel.

I didn't know your daughter played the drum! What kind does she play?

My 16 y.o. Junior in High School has played the snare drum since 4th grade.

Mary Lou

Pooka1
10-20-2009, 07:52 AM
I didn't know your daughter played the drum! What kind does she play?

My 16 y.o. Junior in High School has played the snare drum since 4th grade.

Mary Lou

Cool! She must be quite accomplished by now.

Willow plays standard drum set drums as far as I know what it's called. Forgive me... I'm not a musician. She has been taking lesson for a bit over a year so she's really just begun. She seems to love it, looks forward to her lessons, and practices at least once a day on her own.

Her sister Savannah plays guitar and they have a band with another girl who sings and are trying to recruit yet another girl who has been taking bass lessons for years. Is "bass" correct? That's a fish, no? Os that also how you spell the instrument? It looks funny. :eek:

My husband is musical... they get any talent they might have from him. He played in a country/western wedding band for several years with his parents. He also has been composing songs for years.

Pooka1
10-20-2009, 07:57 AM
Congratulations that Willow is doing so well.

Paula is just a bit past 4 weeks and is down to 1 tab of 10mg oxycontin at night. Later this week we'll drop that last dose.

She's taken nothing for pain during the day, although she complains of stiffness in her right shoulder. I don't know what that is but she doesn't want to take anything for it.

She's very tired though. Sleeps about 12 hrs. at night and is still napping about 2 hrs. during the day. Hope that ends once she's off the oxycontin, however, she still is anemic. We'll find out just how much once we get some blood work done this week.

Willow sleeps a lot too. I mean A LOT. She is on no set schedule and does not do "day" and "night" at present. She is just up when she's up and asleep when she's asleep. It really doesn't matter until we get a few days out from returning to school.

Vali
10-20-2009, 08:26 AM
Hi Sharon,
ran a search on Wikipaedia and found the following:-
Only in the U.S. and Canada is paracetamol known as "acetaminophen".
Question answered.
She is doing really well. I used only panadol on and off from day 15 post-op.:)

ddb
10-20-2009, 08:28 AM
The news hits everyone hard. Please don't sweat that.

Please post any questions you have. There is a bunch of us who can chime in with some answers if we know them. We may not... I know I have been stumped with certain questions.

Surgeons have their own way of doing things and there are a lot of things where there is no one right answer.

Good luck.

ps. It's Day 13 and I hear my kid practicing her drums. I expect she will go to this week's lesson. Light at the end of the tunnel.


Thanks for the advise! It was a long time before I could even sit down and read through this forum. I'm so glad I worked up the nerve - there is so much positive energy and encouragement from everyone one this forum.

Hearing the stories of progress helps so much! Your daughters stories of surgery and recovery are amazing! It really helps me gather strength.

My thoughts are with all going through this for positive results and heathly futures.

Thanks again for sharing. Our next appointment is 10/26 and I think I'm more prepared from the info learned from this forum and have new strength to deal with the results.

Wishing speedy recovery to Willow!!
Dee

Pooka1
10-20-2009, 10:12 AM
Hi Sharon,
ran a search on Wikipaedia and found the following:-
Only in the U.S. and Canada is paracetamol known as "acetaminophen".
Question answered.
She is doing really well. I used only panadol on and off from day 15 post-op.:)

Hey thanks for looking that up.

It sounds like you really did well getting off the meds!

Pooka1
10-20-2009, 10:16 AM
Thanks for the advise! It was a long time before I could even sit down and read through this forum. I'm so glad I worked up the nerve - there is so much positive energy and encouragement from everyone one this forum.

Hearing the stories of progress helps so much! Your daughters stories of surgery and recovery are amazing! It really helps me gather strength.

My thoughts are with all going through this for positive results and healthy futures.

Thanks again for sharing. Our next appointment is 10/26 and I think I'm more prepared from the info learned from this forum and have new strength to deal with the results.

Wishing speedy recovery to Willow!!
Dee

Thanks, Dee. I appreciate your kind words.

This place is a village that has really helked me on my journey to help my kids. I am contributing back whatever I can to help as are a bunch of other folks.

Good luck on 10/26.

Ask your surgeon about how safe this surgery has become. I think what tends to blow people's minds is the fear of permanent neurological injury. With the advent of real time neuro monitoring, the injury rate, already fairly low, is now really small. And many injuries tend to resolve completely. It's good to have the facts which in my case calmed my nerves.

WNCmom
10-20-2009, 10:46 AM
I've been away over the last 10 days, Sharon. Great to hear how well Willow is doing. Drums--imagine!

Mary Ellen

Pooka1
10-20-2009, 01:18 PM
Thanks Mary Ellen.

Glad you are back. :)

titaniumed
10-21-2009, 12:40 AM
Sharon
Willow plays drums! That's great! I played for 18 years. I started as a lead snare drummer in a PAL band in 1967. Switched to jazz and jazz rock.

Watch these till the end as they get very complex.

http://www.youtube.com/watch?v=I8cvKImVadE

http://www.youtube.com/watch?v=wK2RT_9Kri8

Just goes to show that you can never practice enough rudiments in drumming..

It starts with common time 4/4 drumming and NEVER ends.............

I've been very busy lately with work projects. All I can do lately is glance at the forum.
I'm an old drummer and had to respond to this.
Ed

Pooka1
10-21-2009, 06:53 AM
Ti Ed! That's great that you play. I know you mentioned you are musical and so is your family. I'll send her those clips.

Willow loves it. She practices at least once a day and twice or three times if she has time.

She is not a prodigy but her drum teacher is working with a 5 or 6 year old who is.

There are also some very talented older kids... one composed a solo drum piece was was really astounding.

Snoopy
10-21-2009, 07:26 AM
Cool! She must be quite accomplished by now.

Yes, Tracy is quite accomplished. Playing drums is what she does.

Willow plays standard drum set drums as far as I know what it's called. She has been taking lesson for a bit over a year so she's really just begun. She seems to love it, looks forward to her lessons, and practices at least once a day on her own.

Cool! Tracy started out on the snare drum (ask Willow, she'll show you which one it is in the drum set ;)) before 4th grade and that's her favorite drum. However, we have a drum set sitting in the middle of our dining room with the table pushed into the corner to make room for the set.

Her sister Savannah plays guitar and they have a band with another girl who sings and are trying to recruit yet another girl who has been taking bass lessons for years. Is "bass" correct? That's a fish, no? Os that also how you spell the instrument? It looks funny. :eek:

Do the girls have their band practice at your house? It takes a wonderful parent to allow band practice at their house. LOL I love my girls being involved in musical things. Jamie played the flute from 4th-8th grade in the school band until she discovered competitive swimming and Tracy has been in the school bands since 4th grade. She does marching and concert band and loves it! You will know Savannah is totally hooking on the drums when she starts drumming on EVERYTHING with her fingers and doesn't even realize she is doing it! I'll be talking to Tracy and she'll be drumming on the counter and not even realize she is doing it.

My husband is musical... they get any talent they might have from him. He played in a country/western wedding band for several years with his parents. He also has been composing songs for years.

A musical husband and daughters....hmmmm, does that make you their groupie?



Mary Lou

Pooka1
10-21-2009, 12:49 PM
Do the girls have their band practice at your house? It takes a wonderful parent to allow band practice at their house. LOL I love my girls being involved in musical things. Jamie played the flute from 4th-8th grade in the school band until she discovered competitive swimming and Tracy has been in the school bands since 4th grade. She does marching and concert band and loves it! You will know Willow is totally hooking on the drums when she starts drumming on EVERYTHING with her fingers and doesn't even realize she is doing it! I'll be talking to Tracy and she'll be drumming on the counter and not even realize she is doing it.

My husband drums on everything but Willow hasn't started that yet.

Willow has a regular kit and an electronic kit both of which are in the music room above the DETACHED garage. :D She prefers the regular one. Still I can hear her practice from my home office in our house. The music room is my husband's home office but also where he keeps some of his many guitars and where he records songs using Cakewalk? (or whatever it is).


A musical husband and daughters....hmmmm, does that make you their groupie?

I think so if the "groupie" is the one driving folks to and from lessons. :)

titaniumed
10-22-2009, 02:45 AM
Mary Lou

I must be reading really fast or going blind to have missed your post about Tracy. Yes, she must be good after 14 years.

I know what that's like with the drums in the dining room! LOL

I have not been playing for a few years now. I had too many "back issues" and was in too much pain to practice leading up to my surgeries. I know that it will take a few months at 3-4 hrs per day just to get up to snuff. Not to mention all the "hand stuff" we drummers go through. I'm thinking of blowing the dust off and setting back up again. I will start practicing to "tie a yellow ribbon, round the old oak tree".....

I don't think you are a groupie. Maybe a "bandie"
Here is a John Bonham triplet lesson tid bit for the girls. LOL
http://www.youtube.com/watch?v=pwffE1FfCdo

I think about how drumming and skiing have really covered all the muscle groups. I wonder how that affected my scoliosis through the years?
Ed

Pooka1
10-22-2009, 06:54 AM
Ti Ed, Thanks for that video! I think Willow will dig it.

Snoopy
10-22-2009, 07:27 AM
Mary Lou

I must be reading really fast or going blind to have missed your post about Tracy. Yes, she must be good after 14 years.

I know what that's like with the drums in the dining room! LOL

I have not been playing for a few years now. I had too many "back issues" and was in too much pain to practice leading up to my surgeries. I know that it will take a few months at 3-4 hrs per day just to get up to snuff. Not to mention all the "hand stuff" we drummers go through. I'm thinking of blowing the dust off and setting back up again. I will start practicing to "tie a yellow ribbon, round the old oak tree".....

I don't think you are a groupie. Maybe a "bandie"
Here is a John Bonham triplet lesson tid bit for the girls. LOL
http://www.youtube.com/watch?v=pwffE1FfCdo

I think about how drumming and skiing have really covered all the muscle groups. I wonder how that affected my scoliosis through the years?
Ed

Hi Ed,

Don't worry about missing my reply about Tracy--you found it now, so that's all that matters! Correction--she's been playing about 8 years or so. If she had been playing for 14 years, I've have to say she is a prodigy since she is only 16 now! :) Sorry if this sounds like I'm bragging, but I am very proud of her accomplishments. Last year she was the only girl drummer who made it to the High School County Band and at tryouts she earned first chair. For those not familiar with County Band, it is kids from all over our county and tryouts are not easy. Tracy has been practicing her music for County Band tryouts since the spring and tryouts aren't unil the beginning of December! :eek:

Dining room includes: drum set, flute, keyboards, and a guitar. LOL

Back issues: yeah, drumming and back issues don't work well together. I hope you can get back into playing. Tracy is my "non-Scoli" child and if she had been the one to need a spinal fusion, I'm pretty sure it would have ended her marching band activities. It would have crushed her!

Thanks for the link. Tracy will love it.

Mary Lou

P.S. Maybe we need to start a "Hobby" thread instead of highjacking someone else's thread!

Pooka1
10-22-2009, 07:55 AM
Sorry if this sounds like I'm bragging, but I am very proud of her accomplishments. Last year she was the only girl drummer who made it to the High School County Band and at tryouts she earned first chair. For those not familiar with County Band, it is kids from all over our county and tryouts are not easy. Tracy has been practicing her music for County Band tryouts since the spring and tryouts aren't until the beginning of December! :eek:

No that's not bragging... that's AMAZING! Congratulations to Tracy!

Dining room includes: drum set, flute, keyboards, and a guitar. LOL


P.S. Maybe we need to start a "Hobby" thread instead of highjacking someone else's thread!

No actually I just showed this thread and these videos to Will and the drum stuff is probably the only stuff she finds interesting! So if she doesn't consider it hijacking then we shouldn't!

laurieg6
10-26-2009, 01:06 AM
I've been gone for a few days and finally came on and found this interesting conversation. First, Sharon, I'm so glad that Willow is doing so well. It's great that she's already playing her drums and able to focus on that for a while each day.

You had asked about how the Alexander Technique is going. I think it's helping somewhat so we're continuing with it for a while even though it's expensive and not covered by insurance.

I wanted to ask Snoopy/Mary Lou why you think that your daughter couldn't have been in the marching band after a spinal fusion. That worries me because Alexander plays clarinet (and piano) and really wants to be in the marching band at his first opportunity next spring. He's totally looking forward to it so I hope it won't be a problem.

Since we're talking about our kids and their instruments, my other son, Zach, plays guitar, just started trumpet and really loves the drums although we don't have a set because we don't have room for a drumset right now. He drums on anything though, with any object, everywhere.

Snoopy
10-26-2009, 07:24 AM
I wanted to ask Snoopy/Mary Lou why you think that your daughter couldn't have been in the marching band after a spinal fusion. That worries me because Alexander plays clarinet (and piano) and really wants to be in the marching band at his first opportunity next spring. He's totally looking forward to it so I hope it won't be a problem.

Laurie,

Please don't worry about Alexander being in the marching band. He should be fine.

The reason I said Tracy wouldn't be able to be in marching band had she had a spinal fusion is because she carries a drum. Drumline is brutal! They practice as much as 5 hours per week more than the rest of the band. The drum weighs 20-40 pounds. I'm not sure of the exact weight, but either way it gets heavy very quickly. The harness to hold the drum sits on the shoulders and I'm sure between the harness and the weight of the drum, it would have put way too much stress on her back. This is just the tip of the iceberg, as I could go on with more details, but simply put, Tracy would not have been able to be in drumline had she had a spinal fusion. And Tracy would not have accepted being in any other part of the band. It's drumline or nothing for her!

Please talk to Alexander's band director long before the practices start. Make him/her aware of his situation as he might need to rest his arms or take an occasional break in the beginning. If he finds that marching is too much for him, I'm sure they can find a spot for him in the FE (front ensemble; some call it the pit) if the marching is too much for him.

Mary Lou

laurieg6
10-26-2009, 12:17 PM
Thanks Mary Lou,

That extra information really helps a lot. I will definitely talk to the band director to let him know about Alexander's issues...