Ok so I finally went and saw Dr. Rand On Sept 1..My appointment was for 10 They sent me down to have full x-rays taken of my back. By the time I got to see him it was probably 12:45..He spends alot of time with his patients..so his secretary assured me. He was very nice I can't complain. He told me I have TWO curves, and that I would need to be fused from the top to pelvic..So I am assuming T1-Sancrum ((sp)) He warned me I wouldn't be able to bend or be as flexible as I was now.. ((Scary!!)) He also informed me that there was no rush that he wanted me to go see other Dr.s and find out there opinion's as well. He hasn't worked on anyone with OI but he thought it may be like working with his older patients that had Osteoporosis, I felt a little discourage as I was getting shoved off, but he did let me know that he would indeed do the surgery if I wanted him too..and that he would and COULD get a correction..
OK so he wanted me to go see Dr. Emans and Dr. Shappero ((SP)) at Boston's Children. I saw Dr. Emans today..He was such a sweet old man haha..He looked at my X-rays and told me yes indeed I needed surgery..I have two severe curves he said the top was 90 and the bottom was 100..He sent me to x-ray to have Bending x-rays done and told me that I wansn't rigid that I had some flexiability. wooohoo haha.. Umm but heres the kicker!! He wants me to be in traction for 3-4 months and then go and have the surgery..All I can describe it as is it looks like a freakin ELECTRIC CHAIR!! I must have had a look on my face, because he just laughed and said you don't seem like this option works for you.. I was just taken back by how long and that I would not be able to do ANYTHING..I would need to quit school, which I am paying for out of pocket, and be stuck at home in this sitting contraption for 3-4 months..I don't think anyone is going to jump at that!!!
Anyy waay, he ALSO ended up referring me to see his friend Dr. Kirkham Wood at mass general..he wants me to see if he is willing to take on such a large curve..he is a child specialist, he said and that he would like for me to get an opinion with Dr. Wood and together me him and this Dr. would sit down and come with a decision.
I am just tired of this running around. I want to really get this done and over with.. Sorry I haven't updated in away..I got a couple of emails from you and thought I would hurry and update..Thank you for all your prayers and concerns =) It really means a lot to me to know I have friends out there pulling for me.
Thanks,
Meghan.
OK so he wanted me to go see Dr. Emans and Dr. Shappero ((SP)) at Boston's Children. I saw Dr. Emans today..He was such a sweet old man haha..He looked at my X-rays and told me yes indeed I needed surgery..I have two severe curves he said the top was 90 and the bottom was 100..He sent me to x-ray to have Bending x-rays done and told me that I wansn't rigid that I had some flexiability. wooohoo haha.. Umm but heres the kicker!! He wants me to be in traction for 3-4 months and then go and have the surgery..All I can describe it as is it looks like a freakin ELECTRIC CHAIR!! I must have had a look on my face, because he just laughed and said you don't seem like this option works for you.. I was just taken back by how long and that I would not be able to do ANYTHING..I would need to quit school, which I am paying for out of pocket, and be stuck at home in this sitting contraption for 3-4 months..I don't think anyone is going to jump at that!!!
Anyy waay, he ALSO ended up referring me to see his friend Dr. Kirkham Wood at mass general..he wants me to see if he is willing to take on such a large curve..he is a child specialist, he said and that he would like for me to get an opinion with Dr. Wood and together me him and this Dr. would sit down and come with a decision.
I am just tired of this running around. I want to really get this done and over with.. Sorry I haven't updated in away..I got a couple of emails from you and thought I would hurry and update..Thank you for all your prayers and concerns =) It really means a lot to me to know I have friends out there pulling for me.
Thanks,
Meghan.
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