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Pooka1
10-05-2009, 04:55 PM
Surgery tomorrow. Did the pre-op today. Same deal as for the other kid... a radiograph, some explaining, and some paperwork signing. Willow was asked to sign the papers also which I thought was a great touch!

The curve did not move measurably in the last month. That said, it was moving about 4-5 degrees a month over the previous six months so it could have moved that much and still be in the measurement noise.

Bending over like crazy she just about levels L2. So he will decide on the table whether to stop at L1 or L2.

I asked if he is sticking with the original diagnosis of AIS given we have a diagnosis of hypermobility which may or may not be a placeholder for Marfans. He didn't answer directly and only responded that the treatment is the same (which I knew). He had previously told me he doesn't think my kids have Marfan's and may continue to think so. In that case, it has to be AIS officially I guess. On the paperwork for school, he just wrote "scoliosis." If I had to bet my house I would say they do not have AIS but rather scoliosis related to a connective tissue disorder. Of course he's the surgeon and I am not!

The school asked me to fill out the homebound paperwork despite the fact that she will likely return before the 4-week trigger time. I never did this paperwork with the other kid because the written material I was given said most kids return before the 4-weeks. And indeed my kid did return before that time.

On this paperwork, he indicated an anticipated convalescence period of 6 weeks not because she will likely need 6 weeks but just so homebound can kick in if she does need it past 4 weeks.

He also wrote 10/12/09 as the recommended start date for return to school. That is only 6 days from her surgery and she will NOT be back at school by then. I think he indicated that so the school will allow her back as early as she is ready to go back. Or he may mean it is okay for tutoring to start then. Not sure.

Willow is looking forward to getting this behind her as are we all. As I mentioned before, I am way more off the ledge compared to last time after seeing the other kid recover and her results. She looks and feels normal. That is a far cry from her condition going into surgery, believe you me. My confidence in the surgeon at this point is off the top end of the scale. He will be assisted by a fourth year resident. Willow feels ready and I feel ready... a very good way to proceed I think. :)

debbei
10-05-2009, 05:25 PM
Good luck tomorrow Sharon. I hope that everything goes perfectly. Keep us posted.

mamandcrm
10-05-2009, 05:26 PM
Good luck tomorrow. Hope all goes smoothly for everyone.

valleygirl
10-05-2009, 06:13 PM
Wishing you and Willow all the best for surgery tomorrow and for a comfortable, easy, and pain free (as much as possible) recovery.

Will be keeping you both in my prayers!

Pooka1
10-05-2009, 06:26 PM
Debbei, mamandcrm, and valleygirl,

Thanks so much for the kind thoughts. I appreciate them.

Willow is going in with a 57* curve. Savannah went in with a 58* and came out with a 5* curve and stands about 5' 9" or maybe a bit more. If Willow comes out with a 5* or close, I expect she will be about 5' 11". I'm not sure she realizes that might be the case yet. Her good friend had fusion and is about 6'. Between that kid and her sister and many of the boys, I don't think she will feel so tall.

Thanks again,

sharon

Scolimomof1
10-05-2009, 08:45 PM
I wish you both well and you are in my prayers. Sharon, I guess where this is your second time around with your girls, that you may know what to expect? You are a strong, wonderful mother who will get the job done!! Stay strong...
All my best,
Betty JO

leahdragonfly
10-05-2009, 09:02 PM
Hello Sharon,

Willow and you will be in my thoughts tomorrow. Best of luck, and I will look forward to hearing that all went well.

Don't forget to take care of yourself, try to eat regularly, and try to rest when she does. I know you both will do great.

Best regards,

Pooka1
10-05-2009, 09:12 PM
I wish you both well and you are in my prayers. Sharon, I guess where this is your second time around with your girls, that you may know what to expect? You are a strong, wonderful mother who will get the job done!! Stay strong...
All my best,
Betty JO

Betty Jo,

Thanks for the kind words. I am not so strong. I simply have the benefit of seeing one kid come through this. That would make anyone a lot more ready for the next time around.

Thanks again.

sharon

Pooka1
10-05-2009, 09:18 PM
Hello Sharon,

Willow and you will be in my thoughts tomorrow. Best of luck, and I will look forward to hearing that all went well.

Don't forget to take care of yourself, try to eat regularly, and try to rest when she does. I know you both will do great.

Best regards,


Thanks so much, Gayle. I appreciate your post.

I am determined to take better care of myself for Willow's sake. As a start, I will replace at least half the 10+ coffees I would usually be drinking at the hospital with water. I was dehydrated the last time. My gut was in a permanent knot. I'm going to eat better. The food at the hospital cafeteria is actually very good.

But most of all I think I will be able to sleep when she does. I was too worried with the last kid to sleep enough even when she slept.

Thanks again.

sharon

swimmergirlsmom
10-05-2009, 11:04 PM
You and Willow will be in my thoughts tomorrow, for her to have a successful surgery and speedy recovery.

titaniumed
10-06-2009, 01:09 AM
Sharon

All the best for today. Keep us posted.

Things will go much smoother this time around. .

Ed

laurieg6
10-06-2009, 01:21 AM
Hi Sharon,

I somehow missed the fact that Willow's surgery was today. By now it must be over and hopefully she is sleeping and you are at least resting. I'm sure it went really well and I will be looking for your post describing it.

You have been so kind and helpful and encouraging to me and I really wish you and Willow and your whole family all the best.

JenniferG
10-06-2009, 02:28 AM
Wishing you and Willow a 100% successful surgery and a smooth recovery. It's great that you're so confident and knowledgeable having been through it all before.

Pooka1
10-06-2009, 06:31 AM
swimmergirlsmom, Ti Ed, laurie, and Jennifer,

Thanks for the good wishes! I'll carry them with me.

She will go in around late morning and I expect it's going to be about 5 hours. We will see.

sharon

CAmomof2
10-06-2009, 07:02 AM
Wishing you and your family all the best today - you'll be in our thoughts. :)

WNCmom
10-06-2009, 07:25 AM
Sharon--

I'll be thinking of you all today, and know, as you do, that Willow is in excellent hands. Most likely by the time you read this it will be all over and the recovery will be under way--no doubt it will be as positive and uneventful as Savannah's. Please keep us posted, and take care of yourself, too.

Mary Ellen

pmsmom
10-06-2009, 08:57 AM
Thinking of you all, Sharon! Keep us posted.

God bless you! There was a mom and dad in the hospital whom I met who were there for their younger son who was having surgery. They had gone through the same surgery 3 years prior with their older son.

Your strength is an inspiration!

concerned dad
10-06-2009, 09:34 AM
Sharon,
I've been "in the field" and just returned to my office. I didnt realize her surgery was so soon. I'm thinking of you and your daughter today and wish the best for both of you.
Best Regards
John

jillw
10-06-2009, 07:32 PM
Sharon, Hope all is going wonderfully...

Pooka1
10-06-2009, 09:34 PM
CAmomof2, Mary Ellen, pmsmom, John and Jill,

Thanks so much for your thoughts. They worked. I'll start a new thread.

sharon