PDA

View Full Version : 19 Year Old Male. Scoliosis Progressing.



Pages : [1] 2 3 4 5

JDM555
09-25-2009, 02:49 PM
I'm new here. I am a 19 year old male and I have scoliosis. It started back in 08, or probably way before that, but I started noticing a big dip in my left side caused from Scoliosis. I was really skinny, so it was noticeable. I told my mom and a month later, I was at a doctors office. He said I have "mild" scoliosis and he made me take X-rays. Those X-rays showed a pretty big curve, but he said that it was only 15* and that I can do sports and go to the gym because it wasn't severe. I was happy that it was minor and I could just keep playing sports and working out, but that wasn't the case. Ever since, I felt my lower right back/oblique getting thicker and more painful. I was starting to be in pain daily and even hourly. However I sat, stood, walked, etc. it would throb and be very uncomfortable. I then told my dad this is getting worse and I need to see a spine specialist. He told me first, go back to the first doctor to see if you can get another x-ray. A year after the first one in 09, 2-3 weeks ago, I went back and got an x-ray at doctor 1. The curve was definitely worse. He measured it and said 40*. I was stunned and shocked in disbelief, there is no way I curved 25* in 1 year. So I went to a spine specialist last week. He made me take X-rays and as I was waiting worried in the patients room, he comes in and tells me, " I recommend Surgery" he told me the first doctor measured wrong and my first curve in 08 was 40* and now it has progressed to 50* and it will get worse if I don't get surgery.

So now, I am worried about getting surgery. I'm 6'4 and after surgery, i'll probably be 6'5-6'6, and I don't want that for 1. Second, I won't be able to play any sports or gym, I will lose a LOT of weight sitting in bed not eating. I also can't understand a 19 year old being banned from playing sports/gym. It makes me feel horrible. Plus, my scoliosis is very low, so that means with my incredibly long legs, I won't even come close to my feet to put on socks or shoes. I was at the Stanford Spine Clinic and Ivan Cheng saw me. I have no idea how good he is, but from what I hear, he is one of the top spine surgeons in the bay area.

Sorry for the long read, it's just I don't know If I should get the surgery or not. I'm really worried and doubt I'll recover quickly.

hdugger
09-25-2009, 03:27 PM
Hi,

We're still pre-surgery so I can't give you too much good advice, but I have a son near your age with a curve in the 50s (although his is in his upper back). Right now, it's stable, but we may be looking at surgery if it progresses.

Did you dr. tell you that you wouldn't be able to play sports afterwards? I know there is some restriction on sports immediately after, but I've seen some reports on kids who played basketball after they'd recovered from their surgery. Also, people under 30 tend to recover fairly quickly - you won't be in bed for too long.

loves to skate
09-25-2009, 04:29 PM
Hi JDM555,
You most definitely will be able to play sports after your surgery. Probably not right off the bat, but after you heal. I had surgery at age 67, and nine months later was given the go ahead to go back to roller skating, quads on a wooden floor, not roller derby.:D The much younger folks on this forum will be a big help to you as to what you can and cannot do after surgery. Yes, you will be able to put your shoes and socks on by lifting your leg onto your opposite knee. Right after surgery, an Occupational Therapist will show you how to put socks on with an assistive device and you can use elastic shoe laces for awhile. Ask any and all questions here and someone will help you. By the way, I love tall men. Where were you when I was in the market?:)

It is a frightening thing to be told you need this kind of surgery. I know I was terrified, but the thoughts of not having the surgery and a future in a wheelchair is much more terrifying. We will help you on this journey. Try to get at least one more opinion, maybe two. Find an SRS surgeon on this website. http://www.srs.org/find/

Sally

Pooka1
09-25-2009, 04:53 PM
Second, I won't be able to play any sports or gym,

Do you mean you won't be able to do sports for 6-12 months?

I agree with the other comments.

Based on all reports, it would be very unusual if you were not able to resume sports given a successful surgery/fusion.

My daughter was released at 8 months to do everything except bungee jumping. Of course normal people shouldn't be doing bungee jumping so no loss there.

Good luck.

JDM555
09-25-2009, 07:22 PM
Yeah, I understand about 8-12 months after surgery I will be able to play. But I wouldn't want to risk any collision and causing damage to my spine. Also, I've worked very hard at the gym for the past year to get where I am at. I use to be 6'3 125lbs and now I'm 6'4 192lbs, I know for the first 1-2 months, I'll lose at least 25-30 lbs and for the following months not going to the gym, will get me back down to 150. That just pisses me off. I wish I just had a normal spine, I hate the pain and surgery that this scoliosis is causing me.

Jimbo
09-26-2009, 02:17 AM
I hear ya JDM555, but I suppose some of us just have to make sacrifices in life. Keep yer chin up though mate, I am sure you will have a fine life after surgery and do most things you want to.

Sounds like your fitness level is quite high, so you will probably recover nicely after surgery. Also if your scol is only located in the lumbar, it means you might only need a few levels of your spine fused.

IF you have to have surgery, sure you will be out of action for a while, but after that you can start bulking up again and training.

JDM555
09-26-2009, 03:51 AM
I hear ya JDM555, but I suppose some of us just have to make sacrifices in life. Keep yer chin up though mate, I am sure you will have a fine life after surgery and do most things you want to.

Sounds like your fitness level is quite high, so you will probably recover nicely after surgery. Also if your scol is only located in the lumbar, it means you might only need a few levels of your spine fused.

IF you have to have surgery, sure you will be out of action for a while, but after that you can start bulking up again and training.

Yes, I am very serious about the gym/fitness. I have worked very hard and it would just crush me to lose it all again and then have to start over from scratch. I'm pretty sure it is just Lumbar scoliosis, but it is very low, so I'm worried I won't be flexible at all. I already can't reach my toes, so I don't need to be another extra foot or two off my feet.

Cimbom
09-26-2009, 05:45 AM
Hi JDM555,

I'm a 24 year old female and I will be five months post-op tomorrow. I had a 46 degree curve prior to the surgery and was fused from T12-L3. I don't think I got much taller but then again I'm about 5'4" so that could be why. It would have to be less than an inch difference for me. Since your male, I'm guessing most of your height is in your legs so it probably won't make a huge difference. But then your vertebrae is wider so it's hard to say. Your surgeon should be able to give you a rough estimate though.

Everyone is different with the weight loss. I only lost 3-4kgs and put it back on before two months. I was worried about this as I have a small build (52kgs at the moment) but I had protein drinks which really helped. Since your pretty muscular, your doctor may allow you to resume exercise a bit earlier. You'll have to ask them about this. Also, regarding sports, you'll be fine to do anything you want after a year. Your spines fuses fully by this time and so short of anything catastrophic, you should be fine.

Having the surgery now will be hugely beneficial for you. You're still young so there's less risks and you'll have a much quicker recovery. I can do pretty much anything I want right now and I feel great. I even clipped my own toenails about two weeks ago. I was off pain meds in six weeks. I would really recommend that you find a surgeon you trust and go with it because it will almost certainly continue progressing and really impact your quality of life when you get older. Good luck :)

jrnyc
09-26-2009, 12:31 PM
Hi JDM 555
i dont blame you for feeling annoyed, furious, etc...i suspect there might be even some stages of grief going on...denial, anger, etc....no one could blame you for having all those feelings...but...after a while, when you've "processed" the feelings, i think you might look at it differently...unfortunately, scoli doesnt go away...most of us dearly wish it did! so...the options are ...letting the curve get worse, which it likely would, or having the surgery....it seems you have worked really hard in the gym, for months, maybe years, to change your body & make it into what you wanted it to be...you are to be congratulated for your dedication & persistence....
however...the younger you have the surgery, the quicker & better you will recover...& this time, i dont think you will have to start from scratch...i think all that work you did will pay off...your recovery will likely be quite rapid...which means you wont lose as much weight as those who take longer to recover...& you will probably be allowed back to the gym alot faster than those older & less gym experienced than you....


best of luck to you whatever you decide
jess

JDM555
09-26-2009, 03:30 PM
Hi JDM555,

I'm a 24 year old female and I will be five months post-op tomorrow. I had a 46 degree curve prior to the surgery and was fused from T12-L3. I don't think I got much taller but then again I'm about 5'4" so that could be why. It would have to be less than an inch difference for me. Since your male, I'm guessing most of your height is in your legs so it probably won't make a huge difference. But then your vertebrae is wider so it's hard to say. Your surgeon should be able to give you a rough estimate though.

Everyone is different with the weight loss. I only lost 3-4kgs and put it back on before two months. I was worried about this as I have a small build (52kgs at the moment) but I had protein drinks which really helped. Since your pretty muscular, your doctor may allow you to resume exercise a bit earlier. You'll have to ask them about this. Also, regarding sports, you'll be fine to do anything you want after a year. Your spines fuses fully by this time and so short of anything catastrophic, you should be fine.

Having the surgery now will be hugely beneficial for you. You're still young so there's less risks and you'll have a much quicker recovery. I can do pretty much anything I want right now and I feel great. I even clipped my own toenails about two weeks ago. I was off pain meds in six weeks. I would really recommend that you find a surgeon you trust and go with it because it will almost certainly continue progressing and really impact your quality of life when you get older. Good luck :)

Thanks a lot for the kind words. I guess I just have to get the surgery and hope for the best. Good thing there is muscle memory, so even if I lose some weight/muscle, I can get it back a lot quicker than when I first started. At least I won't have an uneven back and thicker oblique on my right side which makes me look like a freak. How is the scar situation? I heard something about CD Horizon where they have the cuts on your side and there like 1" long, and there are 4-5 (varies by how many need to be fused). Instead of one big scar down the middle.

Hi JDM 555
i dont blame you for feeling annoyed, furious, etc...i suspect there might be even some stages of grief going on...denial, anger, etc....no one could blame you for having all those feelings...but...after a while, when you've "processed" the feelings, i think you might look at it differently...unfortunately, scoli doesnt go away...most of us dearly wish it did! so...the options are ...letting the curve get worse, which it likely would, or having the surgery....it seems you have worked really hard in the gym, for months, maybe years, to change your body & make it into what you wanted it to be...you are to be congratulated for your dedication & persistence....
however...the younger you have the surgery, the quicker & better you will recover...& this time, i dont think you will have to start from scratch...i think all that work you did will pay off...your recovery will likely be quite rapid...which means you wont lose as much weight as those who take longer to recover...& you will probably be allowed back to the gym alot faster than those older & less gym experienced than you....


best of luck to you whatever you decide
jess

Yes, Thanks again for your kind words as well. I hope I can lift weights at the 8 month mark or something but just take it easy. I think I might heal/recover quicker, but I'm worried there might be a problem involved. I know there always has to be a complication involved with any surgery or surgery my family had. So having anything go wrong, would be something I'd never to get over.

rich1752
09-27-2009, 12:09 AM
hey, JDM555

I also lifted weights until about two months ago, when i found out that i had scoliosis. I am 38 and just figured that my back pain was normal. I lifted weights at least once a day, sometimes even twice a day. I ate great and watched everything. I was just told by my doctor last week that he recommends surgery. I am also crushed, but i am glad that it can be fixed. I predict that I will lose some of my muscle, but I am planning to resume lifting as soon as I can. I even went out and bought some weights for my home and elastic bands. I hate not working out! I actually stopped squatting a while ago, because it hurt. I didn't know why, it just did. Now I know the reason. Consider yourself lucky you are doing it early in life and can resume working out as soon as possible..

JDM555
09-27-2009, 05:19 AM
hey, JDM555

I also lifted weights until about two months ago, when i found out that i had scoliosis. I am 38 and just figured that my back pain was normal. I lifted weights at least once a day, sometimes even twice a day. I ate great and watched everything. I was just told by my doctor last week that he recommends surgery. I am also crushed, but i am glad that it can be fixed. I predict that I will lose some of my muscle, but I am planning to resume lifting as soon as I can. I even went out and bought some weights for my home and elastic bands. I hate not working out! I actually stopped squatting a while ago, because it hurt. I didn't know why, it just did. Now I know the reason. Consider yourself lucky you are doing it early in life and can resume working out as soon as possible..

Hey glad to see other people who work out daily as well. I was very serious about my diet/workouts. I stopped doing squats/deadlifts/military press because it all puts stress on the spine. I hope I can recover quick. I want to do it during winter break, it's from Dec. 14 till Jan. 22. But my brother/mom's birthday is on Dec 17/19 and I wouldn't want to ruin their bdays by worrying them in surgery. Do you think Dec. 20 till Jan. 22 is enough to recover and go to school?

debbei
09-27-2009, 07:49 AM
Being physically fit will allow you the best possible recovery. Maybe you should ask your surgeon what exercises he recommends that you avoid. Don't think that you will never be able to exercise again because you will.

As far as reaching your feet, you might be surprised. Depending on how low you are fused you might not have a problem. I am fused T3 to L3 and as of a few weeks post op, I was putting on my socks and shoes by myself. Like I said to someone else recently, everyone's recovery is different, so you have to wait to see how things are for you.

Good luck,

lapieper
09-27-2009, 08:28 AM
I'm 5'3", and didn't gain any height. Only weight... Probably due to sedentary lifestyle! But I'm back to exercising, walking, free weights. I even did a 5K yesterday! So life goes on. And, hey, I love my scar! And it goes a long way. From the base of my neck down to my, uh, well, all the way down! I've had three surgeries in the last year, hence, my sedentary ways. I kept waiting for it to heal. But this past month, I bowled, went to two Silver Stars Women's basketball games, and toured all over San Anotnio (even in the rain). Life is good. The surgery isn't easy, but it's worth every single pain, ache, and muscle spasm. I can put my shoes and socks on now, but it did take several months before I was able to accomplish that. Still taking it one day at a time!

LindaRacine
09-27-2009, 10:30 AM
Hi JDM...

I think you need to ask Dr. Cheng to give you the names and contact info for a few patients similar to yourself, who have already gone through surgery. You've made some incorrect assumptions, and these people will be able to give you a proper idea of what they went through.

Unfortunately, people with lumbar curves are usually not candidates for the minimally invasive surgery you mentioned. But, if you're interested in pursuing that, you might want to see Dr. George Picetti at Sutter in Sacramento. He's known for that type of surgery.

Regards,
Linda

JDM555
09-27-2009, 01:34 PM
Being physically fit will allow you the best possible recovery. Maybe you should ask your surgeon what exercises he recommends that you avoid. Don't think that you will never be able to exercise again because you will.

As far as reaching your feet, you might be surprised. Depending on how low you are fused you might not have a problem. I am fused T3 to L3 and as of a few weeks post op, I was putting on my socks and shoes by myself. Like I said to someone else recently, everyone's recovery is different, so you have to wait to see how things are for you.

Good luck,
Thanks a lot. Yeah, I can't wait to get back into lifting after my surgery knowing there is nothing stopping me. And the pain will be gone, I was in so much pain at the gym without doing much work.


I'm 5'3", and didn't gain any height. Only weight... Probably due to sedentary lifestyle! But I'm back to exercising, walking, free weights. I even did a 5K yesterday! So life goes on. And, hey, I love my scar! And it goes a long way. From the base of my neck down to my, uh, well, all the way down! I've had three surgeries in the last year, hence, my sedentary ways. I kept waiting for it to heal. But this past month, I bowled, went to two Silver Stars Women's basketball games, and toured all over San Anotnio (even in the rain). Life is good. The surgery isn't easy, but it's worth every single pain, ache, and muscle spasm. I can put my shoes and socks on now, but it did take several months before I was able to accomplish that. Still taking it one day at a time!
Wow, that is inspiring. I'm glad you can do everything you want after the surgery, I hope that is the same case with me.


Hi JDM...

I think you need to ask Dr. Cheng to give you the names and contact info for a few patients similar to yourself, who have already gone through surgery. You've made some incorrect assumptions, and these people will be able to give you a proper idea of what they went through.

Unfortunately, people with lumbar curves are usually not candidates for the minimally invasive surgery you mentioned. But, if you're interested in pursuing that, you might want to see Dr. George Picetti at Sutter in Sacramento. He's known for that type of surgery.

Regards,
Linda
I'll try, it is just very hard to reach this doctor and he's at Stanford, so he thinks he's like godlike. He saw my father and I for like 5-10 minutes and barely answered questions and then left. I know he's busy, but I'm going to need freakin spine surgery. He said I need an MRI, so I guess i'll have to wait. Plus Sac is near by, only 2 hours.


Are there are risks of doing the little incisions on my side Picetti's way or is it recommended to just do the regular Posterior way through the back. My skin is light tanned, so I think the scar wouldn't stand out real bad and it would heal after time.

LindaRacine
09-27-2009, 01:40 PM
Are there are risks of doing the little incisions on my side Picetti's way or is it recommended to just do the regular Posterior way through the back. My skin is light tanned, so I think the scar wouldn't stand out real bad and it would heal after time.
Hi...

There aren't really any additional risks according to published studies.

Spine 2007 Nov 15;32(24):2777-85

The use of thoracoscopy in the management of adolescent idiopathic scoliosis.
Norton RP, Patel D, Kurd MF, Picetti GD, Vaccaro AR.

Department of Orthopedics and Rehabilitation, University of Miami School of Medicine, Miami, FL, USA.

STUDY DESIGN: Retrospective case cohort series. OBJECTIVE: To analyze the outcomes of thoracoscopy in the surgical treatment of adolescent idiopathic scoliosis. SUMMARY OF BACKGROUND DATA: Traditionally, progressive idiopathic scoliosis has been treated surgically with either an open posterior, anterior, or combined surgical approach. Surgical methods are being explored to minimize the extent of soft tissue disruption such as thoracoscopy followed spinal release, bone grafting, and instrumentation. Several authors have reported good results using thoracoscopy in the treatment of spinal deformity following a requisite learning curve. METHODS: A consecutive case cohort series of 45 adolescent patients with idiopathic scoliosis evaluated and treated at a single institution. Patients with a progressive deformity underwent a thoracoscopically assisted curve correction, fusion, and instrumentation procedure. After surgery, patients were assessed at 1, 3, 6, and 12 months and then annually. RESULTS: All patients underwent successful thoracoscopic instrumentation and fusion without the need for an open conversion. The average preoperative thoracolumbar Cobb measurement of the major curve was 51.6 degrees . The thoracolumbar levels instrumented anteriorly ranged from T7 to L3 and had an average postoperative Cobb angle of 6.58 degrees , with an overall improvement of 87.3%. To date, at a mean follow up of 4.6 years, all curves have maintained correction. Sagittal balance was recreated or maintained through the application of interbody femoral ring allografts. Operative times averaged 5 hours and 46 minutes, with a range of 3 hours, 48 minutes to 6 hours, 55 minutes. Hospital stays averaged 2.9 days, with a range of 2 to 7 days. All patients were completely off pain medication before their first postoperative visit at 4 weeks. Children were back to school between 2 and 4 weeks on average. There were a total of 3 complications. One patient experienced transient chest wall numbness, which resolved by 3 months. Two patients developed postoperative mucus plugging in the ventilated lung. CONCLUSION: Endoscopic thoracoscopic spinal deformity correction, fusion, and instrumentation is a safe and feasible method of surgical management of an adolescent patient with progressive scoliosis. The key to successful fusion is a total discectomy and complete endplate removal. This method appears to be comparable to open procedures in terms of curve correction with significantly shorter hospitalization and rehabilitation due to less surgical discomfort. The thoracoscopic correction of adolescent scoliosis warrants continued development and evaluation as a surgical method of scoliosis correction.

jrnyc
09-27-2009, 03:22 PM
May i just ask a question...?

when i saw dr boachie in nyc, he said he would do side incision for me...when i discussed this with another surgeon, he said he would do front & back incisions for me, as side incision might lead to lung issues...now, i am older, so maybe for young people, side incisions are a safer procedure...??

just asking...

jess

JDM555
09-27-2009, 05:41 PM
May i just ask a question...?

when i saw dr boachie in nyc, he said he would do side incision for me...when i discussed this with another surgeon, he said he would do front & back incisions for me, as side incision might lead to lung issues...now, i am older, so maybe for young people, side incisions are a safer procedure...??

just asking...

jess


Hmm, yeah that is one of the risks I read about. They have to deflate your lungs or something like that and take out a rib to reach your spine from the side, that might lead to lung issues as you said. I mean, I'd rather have side obviously, but if it might lead to more problems, I guess i'll just get posterior, I mean it's better than having posterior scars AND anterior scars on me. But the little 1-2" scars on the side under my arm/lat area is awesome imo.

LindaRacine
09-27-2009, 05:58 PM
May i just ask a question...?

when i saw dr boachie in nyc, he said he would do side incision for me...when i discussed this with another surgeon, he said he would do front & back incisions for me, as side incision might lead to lung issues...now, i am older, so maybe for young people, side incisions are a safer procedure...??

just asking...

jess

Jess...

I think that most of the best surgeons are no longer doing big side incisions to get to the front of the spine, so I'd be surprised if that's what Dr. Boachie actually meant (unless he said it some time ago). In most cases, if anterior release and/or circumfrential fusion are required, they're done thorascopically or through small midline incisions in the abdomen.

Regards,
Linda

WNCmom
09-27-2009, 07:51 PM
JDM555:

My now 14 yo son was fused T2-L4 10+ months ago. He was tying his shoes in less than 4 weeks and back in school in a month. He is just over 6 feet tall and under 125 lb (your build sounds like his), and VERY thin. Two months ago he was carrying a 25+ lb pack on some long days over pretty dicey trails with his dad and me and he did very well. He was able to start jogging again and got the okay to lift light weights (up to 50 lbs) at six months post-op. He did lose weight because of surgery, but he gained it back by 8 weeks post.

He has a long scar down the back, and it's very thin. He also has very long legs, could not touch his toes before surgery, and can't now--but he is working on stretching his hamstrings. Football and will always be out, but just about any other non-contact sport is allowed (no parachuting, jumping on horseback, or motorcycling). Since you are in good condition and motivated, I think you'll be surprised at how quickly you heal and get back in shape.

Mary Ellen

JDM555
09-28-2009, 01:56 AM
JDM555:

My now 14 yo son was fused T2-L4 10+ months ago. He was tying his shoes in less than 4 weeks and back in school in a month. He is just over 6 feet tall and under 125 lb (your build sounds like his), and VERY thin. Two months ago he was carrying a 25+ lb pack on some long days over pretty dicey trails with his dad and me and he did very well. He was able to start jogging again and got the okay to lift light weights (up to 50 lbs) at six months post-op. He did lose weight because of surgery, but he gained it back by 8 weeks post.

He has a long scar down the back, and it's very thin. He also has very long legs, could not touch his toes before surgery, and can't now--but he is working on stretching his hamstrings. Football and will always be out, but just about any other non-contact sport is allowed (no parachuting, jumping on horseback, or motorcycling). Since you are in good condition and motivated, I think you'll be surprised at how quickly you heal and get back in shape.

Mary Ellen

Yeh, that sounds like me. 6+ft plus and 125lbs. I have a very thin bone structure and build overall. So gaining 60 lbs is something that I had to work a lot harder for than someone who can easily gain muscle. I hope I can get back to stuff like boating/jetskiing/basketball/weight lifting/cardio/etc. I don't need motorcycling, horseback, parachuting. 50 lb limit at 6 months, but what about after? At the 1 year, can he do whatever he wants, or is there still a limit.

dolores a
09-28-2009, 05:31 AM
Hi JDM, I don't have much to add to all of the very good words of encouragement except that I am in awe of how much knowledge you seem to have gained from research. This will help you as you go though this surgery and recovery in that there shouldn't be too many surprises! As far as the weight issue, you will have to be diligent in your diet, making sure it is healthy with lots of protein. My physical therapist also advised me that to put weight on to do a lot of resistance vs. aerobic exercises. Good luck to you in choosing a surgeon.

WNCmom
09-28-2009, 09:45 AM
hope I can get back to stuff like boating/jetskiing/basketball/weight lifting/cardio/etc. I don't need motorcycling, horseback, parachuting. 50 lb limit at 6 months, but what about after? At the 1 year, can he do whatever he wants, or is there still a limit.

JDM555:

Every case is different and every surgeon has slightly a different protocol.

We are not yet at the 1 year mark (that will be in November), but I think right now there are no limits on what he can lift. I don't know what your surgeon would say about jet skiing, but I do know that the jolts on a jet ski can be pounding on the lower back. As far as I can tell, basketball and cardio as much as you want. Motorcycles are forbidden because of the potential trauma to the spine in a wreck...and my son's surgeon said he had seen too many kids come in with spine injuries after snowmobiling (not an issue for us) to say that would be okay. He also wanted my son to wait a while to try wakeboarding (he had never done it and had a chance to try) I think there are a few things you might have to give up, but many of your favorite workouts will be available to you after 6 months to a year.

JDM555
09-28-2009, 11:19 AM
Hi JDM, I don't have much to add to all of the very good words of encouragement except that I am in awe of how much knowledge you seem to have gained from research. This will help you as you go though this surgery and recovery in that there shouldn't be too many surprises! As far as the weight issue, you will have to be diligent in your diet, making sure it is healthy with lots of protein. My physical therapist also advised me that to put weight on to do a lot of resistance vs. aerobic exercises. Good luck to you in choosing a surgeon.
Thank you for the kind words. I do already have a good diet with high protein. Like I said, I'm serious about working out, so I already take the multivitamins everyday, count my calories/protein/carbs/etc everyday to get a certain amount, and I work out daily. So hopefully I can get back to all this after surgery.


JDM555:

Every case is different and every surgeon has slightly a different protocol.

We are not yet at the 1 year mark (that will be in November), but I think right now there are no limits on what he can lift. I don't know what your surgeon would say about jet skiing, but I do know that the jolts on a jet ski can be pounding on the lower back. As far as I can tell, basketball and cardio as much as you want. Motorcycles are forbidden because of the potential trauma to the spine in a wreck...and my son's surgeon said he had seen too many kids come in with spine injuries after snowmobiling (not an issue for us) to say that would be okay. He also wanted my son to wait a while to try wakeboarding (he had never done it and had a chance to try) I think there are a few things you might have to give up, but many of your favorite workouts will be available to you after 6 months to a year.
Yeah, I thought about jet skiing, in a lake, it's really smooth, in an ocean is where the jet ski gets a little dangerous, if I take it easy, I bet I can still ride around without causing any jolts to my lower back. Idk if I'd want to risk that anytime soon. Snowmobiling? I'm in CA, that's not happening anytime soon lol. Wakeboarding is allowed? Awesome. And by working out, I don't mean like going to the gym and running on a treadmill or bike for 45 minutes then doing like ab's or something. I have a split workout, Mon-Chest/Tri's, Tue-Back/Bi's, Wed-Shoulder/Traps/Abs, Thur-Legs. So I use dumbells and machines, I stay away from free weights such as Deadlifts or Squats cause that puts pressure on the spine, but I do barbell bench. That's what you mean about your son working out with no limit right? Or did you mean just cardio/bike/etc.

jrnyc
09-28-2009, 11:36 AM
Linda..thanks for the info on incisions..i saw dr boachie about 3 years ago...& the other surgeon told me dr boachie was "known" for doing side incisions at that time...

jess

WNCmom
09-28-2009, 12:35 PM
So I use dumbells and machines, I stay away from free weights such as Deadlifts or Squats cause that puts pressure on the spine, but I do barbell bench. That's what you mean about your son working out with no limit right? Or did you mean just cardio/bike/etc.

What I mean is that when my husband, who supervises the weight work, asked about weight limits for lifting, he wasn't give any. My son is only 14 and his upper body is not super strong (hence the weights) so he is not lifting lots of weight, but the message we got is that he could lift as much as he wanted to. Again, your surgeon would give you the definitive answer in your case.

Vali
09-29-2009, 08:48 AM
Jess, my anterior surgery was done through a small 'caesarian like' incision, in the lower abdomen. I have met a patient who had surgery ten years earlier and she had what i call 'the shark bite' incision.

jrnyc
09-29-2009, 12:21 PM
that's cool, val...sounds like a "bikini cut"...tho i dont know anyone over the age of 25 who wears one! :)

jess

JDM555
10-22-2009, 03:20 AM
that's cool, val...sounds like a "bikini cut"...tho i dont know anyone over the age of 25 who wears one! :)

jess

Alright, I got my MRI done, and had another appointment with Ivan Cheng. We discussed options for surgery, posterior or anterior. I think I'm leaning towards posterior, I don't want to remove a rib and have an ugly scar on my side, plus run the risk of lung issues. I want to do it over winter break, from Dec. 15 to Jan. 21 should be enough time to get back to school/rest. My rib hump is getting worse and it is annoying me daily, pretty much hourly. It affects me in the gym as well and I get embarrassed if I bend over to get water and there is a big hump on my right side.

Here are some pictures. Like I said, very very low curve, Lumbar. I am worried about my flexibility, I have REALLY long legs, so it's going to be hard.

http://i30.photobucket.com/albums/c350/LilJohn148/jmimageap.jpg
http://i30.photobucket.com/albums/c350/LilJohn148/jmimagelAT.jpg

titaniumed
10-22-2009, 05:47 PM
Hi JDM

Just wondering, what levels does he want to fuse?

You have a large x-ray. At 6 foot 5 inches, you are one of the tallest scolis we have seen here.

Ed

JDM555
10-22-2009, 08:44 PM
Hi JDM

Just wondering, what levels does he want to fuse?

You have a large x-ray. At 6 foot 5 inches, you are one of the tallest scolis we have seen here.

Ed

He isn't sure yet, I need to get "bending xrays" to see how flexible I am and to see how much the curve can be fixed. All I know is my flexibility is going to suck REAL bad after this surgery because it looks like my scoliosis is as far down as it can go. If I had to guess, I would say I need to be fused from T10-L4 or L5.

Suzy
10-25-2009, 07:37 PM
Hi JDM!

I haven't been on here in awhile and just finished reading this post and looking at your x-rays, they look like mine did! I hope this helps.

I am fused from T10 to L4 I was at 49* and am now at 8*. My surgery was 2/22/06 and I was 42. I worked out before surgery and still do, just a bit differently in some ways. Muscle has awesome memory I couldn't believe how fast it came back! I did lose a lot of weight and that too unfortunately has memory, darn it! I was ready to go back to the gym and work with a PT at 3 months but waited till 4 because my Dr. wasn't too thrilled at me going back that soon. I went back to snow skiing but gave up water skiing. No biggie, I didn't go that much. I can run but it feels weird so I don't. I fast walk on the treadmill for cardio. I can lift weights so that it does not stress my lower spine. I went to see my Dr. at my 3 yr check up and he looked at my back and said "you're ripped!" LOL! I had been working with a trainer and it showed! So you will be fine in the muscle dept. Also, you have your youth working for you. I am almost as flexable as I was prior to my surgery, loose quads help and you bend at the hips more then you realise. I had no problem with shoes and socks. My quads were a bit stiff post-op so I just put my ankle on the opposite knee to apply sock/shoe, I am in Sac and we have a support/info meeting each 2ND Sat. of all the months except Summer. If you want more info e-mail me @ suzy907@hotmail.com Dr. Pichetti speaks at these meetings from time to time. I don't know who is on schedule for the Nov. meeting.
Hope to talk to you soon, Suzy

JDM555
10-27-2009, 11:33 PM
Hi JDM!

I haven't been on here in awhile and just finished reading this post and looking at your x-rays, they look like mine did! I hope this helps.

I am fused from T10 to L4 I was at 49* and am now at 8*. My surgery was 2/22/06 and I was 42. I worked out before surgery and still do, just a bit differently in some ways. Muscle has awesome memory I couldn't believe how fast it came back! I did lose a lot of weight and that too unfortunately has memory, darn it! I was ready to go back to the gym and work with a PT at 3 months but waited till 4 because my Dr. wasn't too thrilled at me going back that soon. I went back to snow skiing but gave up water skiing. No biggie, I didn't go that much. I can run but it feels weird so I don't. I fast walk on the treadmill for cardio. I can lift weights so that it does not stress my lower spine. I went to see my Dr. at my 3 yr check up and he looked at my back and said "you're ripped!" LOL! I had been working with a trainer and it showed! So you will be fine in the muscle dept. Also, you have your youth working for you. I am almost as flexable as I was prior to my surgery, loose quads help and you bend at the hips more then you realise. I had no problem with shoes and socks. My quads were a bit stiff post-op so I just put my ankle on the opposite knee to apply sock/shoe, I am in Sac and we have a support/info meeting each 2ND Sat. of all the months except Summer. If you want more info e-mail me @ suzy907@hotmail.com Dr. Pichetti speaks at these meetings from time to time. I don't know who is on schedule for the Nov. meeting.
Hope to talk to you soon, Suzy

Thanks for your post. Who was your doctor? Was it Dr. Pichetti? I'm guessing you do a posterior surgery right? Also, did you gain any height? I know it's not going to be the same for me, but just to get an idea. And what do you mean running feels different? By different, does that mean it would hurt or I can't play bball or sports anymore or what? Also, is there a "limit" to the amount of weight you can do at the gym or can you do whatever you want, just don't put pressure on the spine? I already stopped doing some workouts like Squats and Deadlifts for my spine. Anyways, thanks for your post!
John

jrnyc
10-28-2009, 09:16 AM
Hi John
it sounds like you might be angry...sad, frustrated (to say it politely :eek:), & i bet alot of the folks on this forum can empathize....most people go through all those feelings when first told surgery is needed....it is like grieving...& it takes a while...cause, in my opinion, scoli stinks (to put it politely!) it's not fair, it can be (though not always) random, & it picks it's victims without regard for anything! i have had this diagnosis for quite awhile, & i still get...well.... p_ _sed!!

actually, scoliosis goes alot lower, through the lumbar to the pelvis...sooo, i dont know that it will make you feel better right now, but..if you file this info for later...it might....& i think you will still have some flexibility, as others can tell you, since you said your fusion will go to L5, not to the pelvis....

soooo...

i so sorry for you being so young & getting this diagnosis...but as someone else said, younger people usually heal much faster than we old, um..old-er folks (:rolleyes: )...they "bounce back" better...pardon the expression!

this forum is a great place to get info & hear of others' experience...it truly is informative & the people here can be trusted!

best of luck
jess

rich1752
10-28-2009, 06:19 PM
John,

I plan on having my surgery on December 9th, 2009 and will have both anterior and posterior done. I will have my T11 to L5 fused. I recently found about my scoliosis and just found out about adult onset scoliosis. I never had a problem prior to this year, where my doctor requested x-rays. I now have a 52 degree curve. I used to workout with weights once a day, sometimes twice. That is my concern after surgery, is if I can return to lifting weights. I am 38 years old and plan to return to the gym as fast as I can!

debbei
10-28-2009, 06:33 PM
John,

I plan on having my surgery on December 9th, 2009 and will have both anterior and posterior done. I will have my T11 to L5 fused. I recently found about my scoliosis and just found out about adult onset scoliosis. I never had a problem prior to this year, where my doctor requested x-rays. I now have a 52 degree curve. I used to workout with weights once a day, sometimes twice. That is my concern after surgery, is if I can return to lifting weights. I am 38 years old and plan to return to the gym as fast as I can!

Rich,

you will be able to go back to the gym; however, you will have to listen to your body as to what is right for you. It's probably different for each of us.

For instance, I have been back to a 'regular people' exercise aerobic class since about 6 months post-op. I decided recently that I was able to do push-ups again (from the knee like a girl :) ) and I did so for a class or two. All of a sudden last time, it just felt like it was stressing my spine. I will not try again for a while. I don't want to compromise my fusion because my ego thinks I should be able to do something at a certain point, when it is really too much and too soon for my body.

JDM555
10-28-2009, 07:54 PM
John,

I plan on having my surgery on December 9th, 2009 and will have both anterior and posterior done. I will have my T11 to L5 fused. I recently found about my scoliosis and just found out about adult onset scoliosis. I never had a problem prior to this year, where my doctor requested x-rays. I now have a 52 degree curve. I used to workout with weights once a day, sometimes twice. That is my concern after surgery, is if I can return to lifting weights. I am 38 years old and plan to return to the gym as fast as I can!

I have a friend who had surgery at 15/16 and he is 17 now and he is back at the gym and bigger than he was before. I don't know about you, but I will be back in the gym by 4-5 months doing light weights and cardio to get in shape. I know I will lose a lot of body weight and muscle, but I will gain it back.

Rich,

you will be able to go back to the gym; however, you will have to listen to your body as to what is right for you. It's probably different for each of us.

For instance, I have been back to a 'regular people' exercise aerobic class since about 6 months post-op. I decided recently that I was able to do push-ups again (from the knee like a girl :) ) and I did so for a class or two. All of a sudden last time, it just felt like it was stressing my spine. I will not try again for a while. I don't want to compromise my fusion because my ego thinks I should be able to do something at a certain point, when it is really too much and too soon for my body.
So you're saying that you though doing push up's were putting stress on your spine? How is your spine getting affected in any way unless you were doing the wrong form. Push up is a very simple exercise that involves the triceps and chest, and using your knees should make it even simpler, so I'm not understanding how that put pressure on the spine. How long after the surgery did you try doing these "push ups"?

debbei
10-28-2009, 08:17 PM
I have a friend who had surgery at 15/16 and he is 17 now and he is back at the gym and bigger than he was before. I don't know about you, but I will be back in the gym by 4-5 months doing light weights and cardio to get in shape. I know I will lose a lot of body weight and muscle, but I will gain it back.

So you're saying that you though doing push up's were putting stress on your spine? How is your spine getting affected in any way unless you were doing the wrong form. Push up is a very simple exercise that involves the triceps and chest, and using your knees should make it even simpler, so I'm not understanding how that put pressure on the spine. How long after the surgery did you try doing these "push ups"?

It just felt stressful on my spine--and yes I was doing it right. My motto is, if it feels 'bad', I won't do it. I'll give it a little more time and try again. Again, I don't want to do anything to compromise my fusion. It's so easy to have big plans for 'what I'm going to do' after fusion, but you really can't say for sure until you are there. Everyone's recovery is different.

Editing to add, how could it not put stress on the spine? Holding your torso rigid like that with gravity pulling down.

JDM555
10-28-2009, 09:21 PM
Editing to add, how could it not put stress on the spine? Holding your torso rigid like that with gravity pulling down.

I'm sorry, but when I do push ups there is no pressure on the spine what so ever. Even with gravity, it wouldn't be enough to put pressure and hurt me. Maybe because I've done way harder workouts than push ups my body is acting differently than others who don't workout like me. I don't know what to say I guess. Everyone is different.

titaniumed
10-29-2009, 12:51 AM
I just got down and did a few pushups and I can feel all my back muscles tightening up. Its amazing how all the muscle systems are tied into one another. Usage of the legs especially transfers up into the muscles in the back. Different muscles in the back have different amounts of tension with each different exercise.

You guys have to realize that Debbe and I have long fusions. She is up to T4 and I'm up to T2. There is a difference in the way the muscles work and feel after being fused. The paraspinal muscles that are attached to each vertebrae feel like they don't do all that much and forces are transferred differently. Of course, we are all different, with different levels of fusion, and all our muscle systems will work differently.

Its hard to explain. If they could do an EMG on each of the muscles in my back, that would tell the true story with each different exercise.

I have no issues with pushups. I just did 16 and now I'm beat! LOL After my broken shoulder was fixed last year, in PT, I could do about 20 pull ups with no problems.

One thing I'm noticing with being fused to the pelvis is that my hips can get sore. I think this is due to the lack of flexion in my fused spine. Running can be an issue, I mean I can run, but there is no shock or flexibility in my spine. Like driving a go-cart with no suspension. It works ok, I do good in the turns, but its a tough ride. Twice around the track and I'm a little tired.

After surgery your muscles will atrophy. That's a given. The recommended exercise given to me post surgery by my Doc was walking outdoors. Not indoors, outdoors. Must have something to do with stagnant air, oxygen thing. One thing for sure is, you do not want to compromise your fusion while healing, and be surprised with a pseudoarthrosis. You will break your hardware and then you will be in a world of hurt. I basically laid low till my surgeon told me I was fused and didn't want to take any chances.

Like after cutting yourself, you don't want to reopen the cut and have it rebleed, you want to leave the band-aid on till the wound is completely healed 100% After you are fused solid, that's the time to slowly rebuild. Don't worry, you will get it back. Normal fusion takes about 12 months. BMP 6 months.

Ok, so everybody get down and give me 20! Ooh-rah
Ed

heidi
10-29-2009, 01:11 AM
I had my surgery 35 years ago and am fused T4 - L5. I run, swim (ocean and pool), road bike, mountain bike, ski (down hill and cross country), lift wgts., yoga, pilates, spin, backpack, hike. I've run a 1/2 marathon, and have done 2 triathlons. I played ice hockey till I broke my elbow and realized that was a bit too ruff. I have ridden horse back, I can stand on my head. If I didnt have my surgery at 14 after wearing a brace for 1 1/2 years and then a body cast for nine months I would probably know how to play organized sports but in the old days they excused you from gym after spinal surgey. i have little to no pain and have never had a repeat surgery because I dont stop moving. Good luck! and tall men are the best!

jrnyc
10-29-2009, 12:52 PM
Hi Heidi
i am so glad that you can do all that physical stuff! it must be a joy, especially since alot of people with old fusions seem to have trouble in later years!

i just have one question...could you do all that if fused to the pelvis..like fused to the sacrum?

Ed...what do you think?

continued good health to you heidi!

jess

tonibunny
10-29-2009, 03:13 PM
I had my surgery 35 years ago and am fused T4 - L5. I run, swim (ocean and pool), road bike, mountain bike, ski (down hill and cross country), lift wgts., yoga, pilates, spin, backpack, hike. I've run a 1/2 marathon, and have done 2 triathlons. I played ice hockey till I broke my elbow and realized that was a bit too ruff. I have ridden horse back, I can stand on my head. If I didnt have my surgery at 14 after wearing a brace for 1 1/2 years and then a body cast for nine months I would probably know how to play organized sports but in the old days they excused you from gym after spinal surgey. i have little to no pain and have never had a repeat surgery because I dont stop moving. Good luck! and tall men are the best!

Heidi I flipping love you, I had my fusion extended down to L4 (was T1-L3) back in May and I love being very active but I have been worried that, if I ever needed my fusion extended again, I would have to slow down. You do all the stuff I love doing or would like to do in future though! THANK YOU for posting :D

titaniumed
10-29-2009, 10:17 PM
Hi Heidi
Welcome to the forum. I was up at bat in 1974 and chickened out.....

Jess
What do I think? I think nobody was interested in doing any push-ups. LOL

My mobility being fused to the pelvis is pretty darned good. It sounds a lot worse than it is. You adapt.

Here is a pic of me at Park City,Utah last April. Had no problems skiing the "groomers".
Maybe tonibunny will run up to Scotland and give us a ski report.

Ed

jrnyc
10-29-2009, 11:21 PM
Cool, Ed..call me for your triathalon! :) wanna see you bike ride! :cool:


jess

Suzy
11-01-2009, 03:03 PM
Thanks for your post. Who was your doctor? Was it Dr. Pichetti? I'm guessing you do a posterior surgery right? Also, did you gain any height? I know it's not going to be the same for me, but just to get an idea. And what do you mean running feels different? By different, does that mean it would hurt or I can't play bball or sports anymore or what? Also, is there a "limit" to the amount of weight you can do at the gym or can you do whatever you want, just don't put pressure on the spine? I already stopped doing some workouts like Squats and Deadlifts for my spine. Anyways, thanks for your post!
John

Dr.Mermer @ Kaiser Roseville was my Dr. He was @ Mercy San Juan at the time of my surgery. Posterior only, yes. I got back what height I had lost about 1 1/2". Running feels like the rods are pounding into my last 2 vertebrae, uncomfortable. I also notice this feeling when I was on our boat for the first time as well as on the chairlifts when up skiing. I am fused to L4. I don't know how b-ball will feel for you, I don't play. Running on hard surfaces might just be an annoying feeling to you or uncomfortable. I just don't like the way it feels. As for the amount of weight lifting you can do at the gym I would say from my experience as long as you don't "Load" your spine (as my PT said) you will be fine. Instead of squats I do leg presses, dead lifts are BAD for your spine weither you have spine problems or not. Just FYI and everyone else out, there bending forward to put your hands on the floor puts THE MOST stress on your spine. I was shocked to find this out as I always thought it was a good stretch. Learned this from my PT as well. (He has worked with 100's of scoli pt's) Dr. Pichetti is my Daughter's Dr. (She is 14 with a 21*L curve) He and I have talked about my back and he has seen my x-ray's. He said he would have stopped @ L3 as the statistics have shown future surgery for those fused to L4 or L5. Where as my Dr. said I had about 50/50 chance of future surgery & I need to keep my core strong to help avoid this. Also, the fact that if I don't work out at least 1X per week my back tightens up a bit keeps me at the gym. I had my PT come to my gym for my last session to make sure I was doing the machines correct. I even found out I can still do situps, I just don't go up as far. I even do push ups too, guy type, sometimes with my "power pushups."

JDM555
11-06-2009, 01:47 AM
Dr.Mermer @ Kaiser Roseville was my Dr. He was @ Mercy San Juan at the time of my surgery. Posterior only, yes. I got back what height I had lost about 1 1/2". Running feels like the rods are pounding into my last 2 vertebrae, uncomfortable. I also notice this feeling when I was on our boat for the first time as well as on the chairlifts when up skiing. I am fused to L4. I don't know how b-ball will feel for you, I don't play. Running on hard surfaces might just be an annoying feeling to you or uncomfortable. I just don't like the way it feels. As for the amount of weight lifting you can do at the gym I would say from my experience as long as you don't "Load" your spine (as my PT said) you will be fine. Instead of squats I do leg presses, dead lifts are BAD for your spine weither you have spine problems or not. Just FYI and everyone else out, there bending forward to put your hands on the floor puts THE MOST stress on your spine. I was shocked to find this out as I always thought it was a good stretch. Learned this from my PT as well. (He has worked with 100's of scoli pt's) Dr. Pichetti is my Daughter's Dr. (She is 14 with a 21*L curve) He and I have talked about my back and he has seen my x-ray's. He said he would have stopped @ L3 as the statistics have shown future surgery for those fused to L4 or L5. Where as my Dr. said I had about 50/50 chance of future surgery & I need to keep my core strong to help avoid this. Also, the fact that if I don't work out at least 1X per week my back tightens up a bit keeps me at the gym. I had my PT come to my gym for my last session to make sure I was doing the machines correct. I even found out I can still do situps, I just don't go up as far. I even do push ups too, guy type, sometimes with my "power pushups."

Awesome. Thanks a lot for your post. I am trying to set a date but I doubt I can set it with only 5 weeks left. I still need bending xrays, blood samples, and many tests. I don't want to wait till summer and waste another 6 months from recovery time. I wanna get back in the gym by 6 months. So if my doctor says I need to go to L4 or L5, am I for sure going to get future surgery? I don't want to have more problems down the road. And you said "You gained back the 1 and 1/2 inch you lost", what do you mean by "you lost"? Where you like 5'7 and over the years went to 5'5.5? If so, F me because I keep getting taller lol. I don't want to be 6'5-6'7, that is way too tall.

jrnyc
11-06-2009, 01:07 PM
Hi JDM
lots of people seem to lose height as their curves worsen...the more curve, the shorter you get...but for women, some also lose height due to osteopenia/osteoporosis, & anyone can also lose height from degenerated discs....

you sound like you could sure stand to lose some height...if you care to donate it, i need some! :rolleyes: gone from 5'5" down to 5"3" due to all of the above that i listed!

take care, best of luck
jess

WNCmom
11-07-2009, 10:36 AM
if my doctor says I need to go to L4 or L5, am I for sure going to get future surgery?

FYI:

My son was fused to L4 at age 13 a year ago. When I asked about the chance of future surgery, the surgeon (at Shriners in Philadelphia) answered that he has a 15% lifetime chance of future back surgery, and that (believe it or not), a longer fusion does not increase that chance. He agreed that seems to defy logic--I would think that a longer fusion would increase the chances--but in my understanding of what he said, that's what the research shows.

Suzy
11-09-2009, 11:18 PM
I lost my height due to my curve, not degenerated discs. I shrunk from 5' 7 3/4" down 1" (I mistyped the extra 1/2") I had my husband measure me prior to my Dr. measuring me and was SHOCKED when he said 5' 6 3/4"! I told him "Measure me again" He said "I know how to use a tape measure!" LOL. Dr. verified the height loss.

As for future surgery one Dr. told me the statics show ending a fusion at L4, L5 = future surgery. I don't know if it was a sour grapes situation as he wasn't my surgeon. I never ran across this info when doing my research either. My Dr. said 50/50 chance depending on how I took care not to stress my lower back and keeping my core strong. I was back at the gym with my PT working out at 4 months. Nothing heavy but I was working out.

5 weeks to get on a surgery schedule? That is quick.

JDM555
11-24-2009, 10:54 PM
UPDATE:

Well, the pain is getting worse and I am hating my scoli more and more everyday. I told my dad to talk to my surgeon to barely "squeeze" me in during Mid December when I get winter break. I will have 5 weeks to recover before going back to school. I just got a call today that I got the surgery date and my pre-op visit is on Dec. 7th. I hope my bending x-rays show that I have a flexible spine to correct my 53* curve to something hopefully under 20. I am a little worried about all the people complaining about their pain and aches and medication and sleepless nights. I just hope everything works out for me.

BTW, my surgeons name is Ivan Cheng at Stanford Spine Center in Redwood City, is there ANY way I can find some reviews/ratings/experiences with this doctor so I can double check I'm making a right decision by having him as my surgeon?

Any tips would be very much appreciated as well.

Also, If I have surgery on the 16th, is it possible to go to a Christmas party that is 1-1.5 hours away? I will be on medication, lying down with plenty of pillows in the car. That is 9 days after my surgery. I would hate to force my parents to stay because they wouldn't celebrate Christmas while leaving me home alone. So is it possible?


ALSO! I just read something about XLIF which goes through the side for Lumbar scoliosis and my surgeon actually does these types of surgeries. Do you think it is a possibility to get it done this way or would he still have to do the posterior 10" ugly scar and destroy my back muscles to get to the spine? He said he will use artificial bone graft as well.

Job
11-24-2009, 11:57 PM
Sorry that this post is kinda late and may be somewhat irrelevant in the conversation on here but I dont sign on that often. JD I was in the exact same situation as you. I am 6'4" after the surgery and I had it the summer before I turned 20. I was playing competitive basketball pre-op so I can relate to the desire to stay in shape. In terms of getting the surgery, DO IT, and dont look back. Ya the first six months were not fun at all, I couldn't put my own socks on and I lost about 20 pounds from the op. However, after 7-8 months I was back to playing contact bball at a competitive level although I could not move quite right yet. After a year I was back in the gym lifting and playing hoops again just as well as I did before the surgery. You wont regret the op in the long run. Now that I am about 16 months post-op, life is back to being as normal as it can be.

I know this is very rambly, but oh well. If you have any questions for someone with a similar story as you, feel free to ask. Either send me a private message or post it to this thread and I will try and check it regularly. When life gives you lemons, make lemonade.

-Job

JDM555
11-25-2009, 12:32 AM
Sorry that this post is kinda late and may be somewhat irrelevant in the conversation on here but I dont sign on that often. JD I was in the exact same situation as you. I am 6'4" after the surgery and I had it the summer before I turned 20. I was playing competitive basketball pre-op so I can relate to the desire to stay in shape. In terms of getting the surgery, DO IT, and dont look back. Ya the first six months were not fun at all, I couldn't put my own socks on and I lost about 20 pounds from the op. However, after 7-8 months I was back to playing contact bball at a competitive level although I could not move quite right yet. After a year I was back in the gym lifting and playing hoops again just as well as I did before the surgery. You wont regret the op in the long run. Now that I am about 16 months post-op, life is back to being as normal as it can be.

I know this is very rambly, but oh well. If you have any questions for someone with a similar story as you, feel free to ask. Either send me a private message or post it to this thread and I will try and check it regularly. When life gives you lemons, make lemonade.

-Job

You don't understand how relieved I was after reading this. Thanks a lot for sharing your experience. I do have questions since this is very rare for another 19-20 y/o male who is tall/athletic to have scoliosis like me. I will send you a PM. BTW, earlier in this thread, someone said when they would play bball, she felt the rods pounding against her spine or something like that? When you run, does it feel like you were before or different in a good/bad way? I'll ask some more relating gym in the pm, again thanks a lot job.

jrnyc
11-25-2009, 01:26 AM
Hi Job
can you say where you were operated to...what levels...did it go to L5 or below?

glad you are feeling better& getting back to doing stuff you love....

jess

Suzy
11-25-2009, 01:44 AM
Hey JDM,

It was me who said it feels like the rods are pounding my last 2 vertebrae. You need to know how low Job's fusion is to gauge accurately his running comfort/ability. I am betting it is higher then mine or yours will be. Not trying to be sour grapes, just VERY realistic.

As for the "10 inch ugly scar" and "destroying your back muscles." My scar is 13" and I am very proud of it, I earned it. I am a pretty vain female and this is of no concern to me. My back muscles look better then ever, I am symmetrical and very toned. These are just some of the issues you will look back on and chuckle about, because of the concern you had about them pre op, as we all have.

JDM555
11-25-2009, 02:04 AM
Hey JDM,

It was me who said it feels like the rods are pounding my last 2 vertebrae. You need to know how low Job's fusion is to gauge accurately his running comfort/ability. I am betting it is higher then mine or yours will be. Not trying to be sour grapes, just VERY realistic.

As for the "10 inch ugly scar" and "destroying your back muscles." My scar is 13" and I am very proud of it, I earned it. I am a pretty vain female and this is of no concern to me. My back muscles look better then ever, I am symmetrical and very toned. These are just some of the issues you will look back on and chuckle about, because of the concern you had about them pre op, as we all have.

Yes, I did notice his fusion might be higher than mine most likely, I asked him in a PM he has yet to respond to. But I'm not going to complain about my scar, but I would rather not have one. It won't even be noticeable on my skin tone I bet. And what I meant was, they won't "destroy your back muscles" as in they will rip apart your back and just start cutting everything, It's just to get to the spine, there is a lot of healthy muscle tissue in the way, so there is some damage done. Nothing major though I understand. I got your pm and responded. Thanks suzy.

spinalfusion09
11-30-2009, 02:42 PM
hey there! I'm 18 and I'm 2 months post-opp today. I was fused from T4-L3 and my thoracic curve was at 60 degrees. I thought I'd reply because I totally know how you feel about not working out and being active and stuff. Before surgery I did yoga, turbo kickboxing, tap dance, ballet, and I did 40 minutes of cardio then weights 5 days a week. I never in my life thought I'd need surgery for my scoliosis but it wouldn't stop pregressing. If it had gone further, for me, it would have collapsed my left lung and do God knows what else. I was not in any pain other than aches on my right side but the x rays were not pretty. Not to mention if I planned on having kids in the next ten years the weight of a baby would have made it worse and more strenuous on my back. I do not regret having surgery at all. I know you're already tall but no matter how hard I tried I could never be 100% straight when sitting or standing. I also feel like I breathe more easily because my ribs are now even (they definitely were not before). I love dancing! Of course there will some things I can't do like certain dance moves in ballet due to loss of some flexibility. Compared to what I gained from the surgery, thats a very small price. Its a hard recovery for your body but its amazing how much your body can take and still come out victorious :} The 6 week post opp for me was the magic week when everything turned around for me. I'm walking and jogging lightly now. I can start strengthening excercises at 3 weeks to get stronger again and so I can get back to my gym routine. I hope all works out well for you and if you end up having surgery good luck + if you have any questions don't hesitate to ask :}
Maliha
Spinal Fusion September 2009

JDM555
11-30-2009, 09:55 PM
hey there! I'm 18 and I'm 2 months post-opp today. I was fused from T4-L3 and my thoracic curve was at 60 degrees. I thought I'd reply because I totally know how you feel about not working out and being active and stuff. Before surgery I did yoga, turbo kickboxing, tap dance, ballet, and I did 40 minutes of cardio then weights 5 days a week. I never in my life thought I'd need surgery for my scoliosis but it wouldn't stop pregressing. If it had gone further, for me, it would have collapsed my left lung and do God knows what else. I was not in any pain other than aches on my right side but the x rays were not pretty. Not to mention if I planned on having kids in the next ten years the weight of a baby would have made it worse and more strenuous on my back. I do not regret having surgery at all. I know you're already tall but no matter how hard I tried I could never be 100% straight when sitting or standing. I also feel like I breathe more easily because my ribs are now even (they definitely were not before). I love dancing! Of course there will some things I can't do like certain dance moves in ballet due to loss of some flexibility. Compared to what I gained from the surgery, thats a very small price. Its a hard recovery for your body but its amazing how much your body can take and still come out victorious :} The 6 week post opp for me was the magic week when everything turned around for me. I'm walking and jogging lightly now. I can start strengthening excercises at 3 weeks to get stronger again and so I can get back to my gym routine. I hope all works out well for you and if you end up having surgery good luck + if you have any questions don't hesitate to ask :}
Maliha
Spinal Fusion September 2009

Awesome, Thanks a lot for this. It makes me feel a lot better about my surgery. My surgery is Dec. 16, ehhh 2 more weeks and I'll be getting cut open like a piece of steak lol. The thing I'm worried about is getting fused to L4 or L5, I already have extremely long legs and I'm not that flexible when it comes to bending, so if I get fused, ehh. I can't seem to have good posture no matter how much I try either, so I know what you mean. As far as breathing, I am always out of breath at the gym and it takes me a long time to recover/catch my breath. My rib cage is very uneven and is rotated. I think that might be why it's a little harder to breath. As far as being back in the gym at 3 months post-op? How is that possible? I thought it was 6 months when you can get back and light weights at that if your surgeon approved, but some surgeons don't even let you touch weights until 1 year. 3 Months sounds really quick. Anyways, thanks again and wish me luck on my surgery in 2 weeks.

spinalfusion09
12-01-2009, 02:27 PM
I totally know hwo you feel about feeling like a piecesteak haha. Don't worry too much about flexibility because you don't wanna let it bug you. And you're not alone after. My physical therapist helped me so much! And you'll learn to move your body and they make sure of that. I bend using my hips and knees now (I probably should have been bending like that before surgery considering the main curve in my back was in the thoracic region haha) I'm sure you'll be great! Thats interesting that you can tell its harder to breathe. I never felt like I had shortness of breath but then again my back was not straight all my life. Now it feels like I have more "room" for air :} I haven't been to the gym in a while but I've been walking everyday and it feels great on my back. My doc said I'm in the clear to try elipticals at the gym. He said treadmills arn't good because of how they're cushioned and how they distribute weight so I walk outside and on trails and stuff. But elipticals take stress off of your spine. My doc really excourages elipticals :} I still can't do light weights for a couple more weeks but it makes sense because your muscles have been cute and are healing. He also said it was great that I was healthy and in shape because you'll recover a lot faster. Not to mention you're young and thats definitely an advatange for a procedure like this. I was scared not gonna lie but came out victorious like many other people who go through this :} Keep us posted and I hope you have a Merry Christmas + happy new year!!
Maliha

JDM555
12-01-2009, 05:58 PM
I totally know hwo you feel about feeling like a piecesteak haha. Don't worry too much about flexibility because you don't wanna let it bug you. And you're not alone after. My physical therapist helped me so much! And you'll learn to move your body and they make sure of that. I bend using my hips and knees now (I probably should have been bending like that before surgery considering the main curve in my back was in the thoracic region haha) I'm sure you'll be great! Thats interesting that you can tell its harder to breathe. I never felt like I had shortness of breath but then again my back was not straight all my life. Now it feels like I have more "room" for air :} I haven't been to the gym in a while but I've been walking everyday and it feels great on my back. My doc said I'm in the clear to try elipticals at the gym. He said treadmills arn't good because of how they're cushioned and how they distribute weight so I walk outside and on trails and stuff. But elipticals take stress off of your spine. My doc really excourages elipticals :} I still can't do light weights for a couple more weeks but it makes sense because your muscles have been cute and are healing. He also said it was great that I was healthy and in shape because you'll recover a lot faster. Not to mention you're young and thats definitely an advatange for a procedure like this. I was scared not gonna lie but came out victorious like many other people who go through this :} Keep us posted and I hope you have a Merry Christmas + happy new year!!
Maliha

Thanks, I will definitely walk daily when I can because it's better than sitting in a bed eating a hamburger all day lol. I just can't wait to see how much my back improves in the appearance (rib hump and unevenness) and in the pain department because just walking hurts my lower right back, it throbs and it hurts from that damn rib hump. I will probably stand taller/have better posture, I just hope I end up healthy and in shape and no complications go. I will have my pre-op visit next monday on the 7th and I will take bending xrays and I hope they can tell me good news saying it might bring the 53 degree curve to under 20.
John

rich1752
12-01-2009, 06:12 PM
John, I have my lumbar surgery on December 9th at Cedars Sinai in Los Angeles. I also need disc repaired in the lumbar area. keep in touch with your process

rich

txmarinemom
12-01-2009, 06:30 PM
Yeah, I understand about 8-12 months after surgery I will be able to play. But I wouldn't want to risk any collision and causing damage to my spine. Also, I've worked very hard at the gym for the past year to get where I am at.

JDM,

If you *want* to play badly enough, under typical circumstances, you can. If you choose not to play because of worry about "collision and causing damage", that's your choice. And it is a choice. We all make them.

Like Sally, I refused to give up what I loved before surgery (for 33 years prior to surgery, actually) - and that love was softball. I had surgery (T4-L1), recovered solo and fairly quickly, and was chomping at the bit - literally counting the days - until I could go back.

At 7 months post-op, my surgeon finally let me off that last restriction. I played a double header that day and hit the ground sliding 4 times.

Am I saying this is for everyone? No. But surgery is only an excuse to give up (especially at your age) if you let it be. Don't throw in the towel before you've even met your opponent, kiddo. :)

There's a LOT more hope for you than that.

Hang in there.

Pam

spinalfusion09
12-01-2009, 06:57 PM
I hope all goes well with your xrays! If its any consolation my thoracic curve was at 60 degrees and barely flexible but my doc got more correction than he anticipated. All I can say with me, and it might be different for you because every case + person is different, is let your body heal and it will take a few weeks. My physical therapist said is you have to listen to your body and if it hurts don't do it. The first few weeks were hard for me because of the drugs and my body not wanting to do a lot. But then the 5-6 week came and I felt like a different person. I have never felt better about myself physically and my back supports me now rather than hindering me :}

txmarinemom
12-01-2009, 07:07 PM
Also, If I have surgery on the 16th, is it possible to go to a Christmas party that is 1-1.5 hours away? I will be on medication, lying down with plenty of pillows in the car. That is 9 days after my surgery. I would hate to force my parents to stay because they wouldn't celebrate Christmas while leaving me home alone. So is it possible?

9 days after surgery, a 1-1/2 hour car ride (and hanging out at a party?) probably won't be high on your to-do list. Just my guess.


ALSO! I just read something about XLIF which goes through the side for Lumbar scoliosis and my surgeon actually does these types of surgeries. Do you think it is a possibility to get it done this way or would he still have to do the posterior 10" ugly scar and destroy my back muscles to get to the spine?

The only XLIF I'm aware of just substitutes that approach for an anterior approach - and still utilizes the posterior entry for rod placement.

I'll echo what someone else said about the value of walking (I did a 5K AIDS Walk at 33 days post-op); it makes a huge difference, I think.

BTW, my scar was white by the summer after my surgery (in Feb.), and I don't feel my back muscles were "destroyed" at all. Temporarily shocked? Yeah. Not permanently.

spinalfusion09
12-01-2009, 07:42 PM
I have to agree with txmarinemom about the car ride. Couldn't you have people come over to your house? My mom drove me for my 2 week post op appointment to get 9 staples on lower back hip area removed and it was the worst day of my recovery. I have a very high pain tolerance and I was crying. The muscles in my back started to spasm non stop and the physical therapist told it was because of the car vibrations on a wounded back. If you're feeling up for it try it but drive slow. I definitely did not feel up for a car ride for a good 3-4 weeks after surgery. It sucks I know but its part of the healing process.

JDM555
12-03-2009, 01:52 AM
I hope all goes well with your xrays! If its any consolation my thoracic curve was at 60 degrees and barely flexible but my doc got more correction than he anticipated. All I can say with me, and it might be different for you because every case + person is different, is let your body heal and it will take a few weeks. My physical therapist said is you have to listen to your body and if it hurts don't do it. The first few weeks were hard for me because of the drugs and my body not wanting to do a lot. But then the 5-6 week came and I felt like a different person. I have never felt better about myself physically and my back supports me now rather than hindering me :}
Awesome. I can't wait to have that same feeling in 5-6 weeks after surgery.



9 days after surgery, a 1-1/2 hour car ride (and hanging out at a party?) probably won't be high on your to-do list. Just my guess.



The only XLIF I'm aware of just substitutes that approach for an anterior approach - and still utilizes the posterior entry for rod placement.

I'll echo what someone else said about the value of walking (I did a 5K AIDS Walk at 33 days post-op); it makes a huge difference, I think.

BTW, my scar was white by the summer after my surgery (in Feb.), and I don't feel my back muscles were "destroyed" at all. Temporarily shocked? Yeah. Not permanently.
Awesome, I don't care if the ride will hurt me, I'm guessing I won't be all happy and giddy about christmas dinner with friends 1.5 hours away, but I would HATE to ruin christmas for my family by keeping them home. I will know by the car ride home from the hospital (30 mins) if I can last 2-3 times that distance again in a couple of days. Hopefully I recover quick or the pain meds are strong lol.


I have to agree with txmarinemom about the car ride. Couldn't you have people come over to your house? My mom drove me for my 2 week post op appointment to get 9 staples on lower back hip area removed and it was the worst day of my recovery. I have a very high pain tolerance and I was crying. The muscles in my back started to spasm non stop and the physical therapist told it was because of the car vibrations on a wounded back. If you're feeling up for it try it but drive slow. I definitely did not feel up for a car ride for a good 3-4 weeks after surgery. It sucks I know but its part of the healing process.
We can't really have people, everyone is already invited at this place 1-1.5 hour away and we can't really have everyone just cancel and come to our house. I feel bad about this because I know my mom wouldn't leave me on christmas at home all alone, so if my mom won't go, no one else is going. I would hate that.



UPDATE:

I got an envelope in the mail by my surgeon and it says I will need to be fused from T4-L2....I don't know why, but I think that is incorrect. T4 seems way too high up and L2 is not low enough, by looking at my spine, I would guess T8 or even T9-L3 or L4. Or am I going crazy?

txmarinemom
12-03-2009, 09:57 AM
Awesome, I don't care if the ride will hurt me, I'm guessing I won't be all happy and giddy about christmas dinner with friends 1.5 hours away, but I would HATE to ruin christmas for my family by keeping them home.

It's obvious how badly you want to make this trip for your parents, and the only things I can tell you with any certainty are:


Your body run the show after surgery, and it will CLEARLY tell you what it can (and can't) do. I hope it cooperates with your plans. You'll know, without a doubt, what it's decided when the time comes.

Your mother couldn't *possibly* have her Christmas ruined by staying home with the kind of 19 year old who worries it would ruin her Christmas. I know you can't fully understand what that means, but I hope someday you will. :)



UPDATE:

I got an envelope in the mail by my surgeon and it says I will need to be fused from T4-L2....I don't know why, but I think that is incorrect. T4 seems way too high up and L2 is not low enough, by looking at my spine, I would guess T8 or even T9-L3 or L4. Or am I going crazy?

Bear in mind that what you're seeing on the x-ray very likely involves compensatory curvature in addition to structural curvature. If you're not familiar with this, compensatory curves only exist to balance out structural curves. Your body will always fight to keep your head centered over your pelvis, and compensatory curves are one way it tries to achieve that. Compensatory curves have a very good chance of straightening (partially or completely) when the structural curve(s) are addressed.

While it may look like you're curving severely in the lumbar area, your surgeon has apparently decided some of this this curvature is compensatory - and doesn't need fusion.

In looking at your A/P x-ray, it does seem you have some curvature in the thoracic area (notice how it curves right and then goes back left?) with an apex (the point furthest away from the midline) at or above T9. That would explain a decision to fuse to T4. The apex is never the last involved vertebra, and failing to fuse all involved vertebrae can allow the fused vertebrae (above and/or below the fusion) to continue curving. There's a method to (what seems like) your surgeon's madness.

T4-L2 isn't going to be a big deal once you're healed. Your flexibility will barely be limited - if at all. Fusion through the thoracic area affects very little because very little bending is done in that region to begin with (because of the ribs).

I've remained extremely flexible after a T4-L1 fusion. I do yoga, and in addition to having NO problem with any of the poses, I'm probably more limber than most classmates.

I can still lie on my back, bring my legs up over my head, and not only touch my toes to the floor - I can place my *shins* on the floor. I can do a backbend again, although that took time (everything else had tightened up after surgery ... chest wall, abs, quads).

There actually isn't anything I've found that I can't do because of my fusion. Fusion to L2 will limit you a little more, but unless flipping your legs over your head and/or doing a backbend are important to you, I think you'll be okay. :)

You probably won't notice any range of motion loss with fusion up to T4. I can turn my head around without difficulty.

Plenty of people on this forum have managed very, very well with higher and lower fusions, but I'm glad to hear your surgeon has limited yours to the mid-range.

Although it's scary to you right now, I understand why: You can read a million stories, but it's still a huge unknown until you have your own experiences for reference. I know you don't want to put your life on hold, but I promise it'll be right there waiting for you ... minus a lot of heartbreak and pain an unfused spine can cause as you age.

Again, hang in there! You're going to do just fine. :)

Best regards,
Pam

JDM555
12-03-2009, 10:32 PM
It's obvious how badly you want to make this trip for your parents, and the only things I can tell you with any certainty are:


Your body run the show after surgery, and it will CLEARLY tell you what it can (and can't) do. I hope it cooperates with your plans. You'll know, without a doubt, what it's decided when the time comes.

Your mother couldn't *possibly* have her Christmas ruined by staying home with the kind of 19 year old who worries it would ruin her Christmas. I know you can't fully understand what that means, but I hope someday you will. :)




Bear in mind that what you're seeing on the x-ray very likely involves compensatory curvature in addition to structural curvature. If you're not familiar with this, compensatory curves only exist to balance out structural curves. Your body will always fight to keep your head centered over your pelvis, and compensatory curves are one way it tries to achieve that. Compensatory curves have a very good chance of straightening (partially or completely) when the structural curve(s) are addressed.

While it may look like you're curving severely in the lumbar area, your surgeon has apparently decided some of this this curvature is compensatory - and doesn't need fusion.

In looking at your A/P x-ray, it does seem you have some curvature in the thoracic area (notice how it curves right and then goes back left?) with an apex (the point furthest away from the midline) at or above T9. That would explain a decision to fuse to T4. The apex is never the last involved vertebra, and failing to fuse all involved vertebrae can allow the fused vertebrae (above and/or below the fusion) to continue curving. There's a method to (what seems like) your surgeon's madness.

T4-L2 isn't going to be a big deal once you're healed. Your flexibility will barely be limited - if at all. Fusion through the thoracic area affects very little because very little bending is done in that region to begin with (because of the ribs).

I've remained extremely flexible after a T4-L1 fusion. I do yoga, and in addition to having NO problem with any of the poses, I'm probably more limber than most classmates.

I can still lie on my back, bring my legs up over my head, and not only touch my toes to the floor - I can place my *shins* on the floor. I can do a backbend again, although that took time (everything else had tightened up after surgery ... chest wall, abs, quads).

There actually isn't anything I've found that I can't do because of my fusion. Fusion to L2 will limit you a little more, but unless flipping your legs over your head and/or doing a backbend are important to you, I think you'll be okay. :)

You probably won't notice any range of motion loss with fusion up to T4. I can turn my head around without difficulty.

Plenty of people on this forum have managed very, very well with higher and lower fusions, but I'm glad to hear your surgeon has limited yours to the mid-range.

Although it's scary to you right now, I understand why: You can read a million stories, but it's still a huge unknown until you have your own experiences for reference. I know you don't want to put your life on hold, but I promise it'll be right there waiting for you ... minus a lot of heartbreak and pain an unfused spine can cause as you age.

Again, hang in there! You're going to do just fine. :)

Best regards,
Pam

Thanks a lot for your post, I really appreciate everything you did. I will ask him more into detail why he chose to do the fusion from T4-L2. It would be awesome if it straightened out my lumbar curve and I was still able to keep my flexibility. He will probably have a more accurate opinion when he sees the bending xrays I will take next monday. I will update everyone what happens on next monday and as it gets closer to my surgery day.

13 days to go.

JDM555
12-06-2009, 12:11 PM
My father scheduled this surgery pretty short notice. And when we asked if I needed to donate blood, the surgeon said that it wasn't necessary because they didn't want my blood count to drop. Does this mean they will most likely use Cell Saver or have me use donated blood/transfusion, because my mom doesn't want me to have a transfusion and says you never know what that blood might have, even though it's really rare, but she doesn't want me to take any chances. Most likely it is cell saver correct? I will ask again tomorrow at my Pre-Op.

LindaRacine
12-06-2009, 12:39 PM
Hi...

Yes, I think scoliosis surgery is always performed with Cellsaver, at least here in the U.S. There's no guarantee that you won't need additional blood, but it's really very low risk. The risk of complications if you don't have enough blood volume is probably much greater.

Regards,
Linda

spinalfusion09
12-06-2009, 01:59 PM
I was just reading and thought I'd tell you something in case you were wondering. I donated 2 units of my own blood which they used during my surgery (which was about four hours long). On my third or fourth day in the hospital, my blood count dropped from 12 to 8. So I received an additional 2 units of donated blood. I was hoping that I wouldn't need to receive donated blood but after a 4 hour surgery of having your back worked on, then 4 days in the hospital not eating anything and barely drinking, and having blood taken by the hospital every morning for tests...I needed some blood. Everyone's case is different though. They're extremely careful when it comes to donated blood. I've been a donor and receiver so there ya go. Hope that helps

rich1752
12-06-2009, 02:45 PM
my doctor said that he would rather have extra on had just in case. He wanted 6 units available. He said that the blood bank runs low during this time of the season, so I donated 2 myself and family members donated, so actually have 8 in storage. He did say that they use the machine to clean my own blood and recycle it, but he wanted to be prepared.

Linda, sorry to bother you again, but my doctor wants to go down to S-1. My concern is that once you fuse that area, there is no going back. I feel with medical progress now a days, what happens if they can fix the area without fusing in the future. He did say that I have some DDD in the L5 area, but was going to look at my MRI and xrays one more time, to see if he can skip the S-1. Have you heard about doctors forgoing the S-1 in order to give the patient flexibility?

thank you for all your knowledge

rich

jrnyc
12-06-2009, 06:45 PM
Dear Rich
just a note...i was told by 2 surgeons in nyc that i had to be fused to S1 because of the disc damage that i had..that i would end up right back in surgery within a couple of years if i didnt go to S1 for first surgery...cause believe me, i dont want to be fused to the pelvis, despite some on forum telling me it is not as bad as i think...they both said that they do not advise their patients with disc damage in lower area to do otherwise, as it just leads patients to problems & more surgery....

best regards
jess

JDM555
12-06-2009, 11:33 PM
Alrighty, Tomorrow is my pre-op appt and I wrote out a list of questions that I will ask tomorrow. I will take some before shorts of my back/rib hump/etc. and some after shots after surgery and compare the two. Hopefully everything will work out.
John

Only 10 days to go.

txmarinemom
12-06-2009, 11:42 PM
Alrighty, Tomorrow is my pre-op appt and I wrote out a list of questions that I will ask tomorrow.

Suggestion #1 ... have them tell your mother banked blood is an minuscule risk, and as an adult, make YOUR wishes known in your pre-op.

Cellsaver won't always do the trick, and you've been told not to donate: While you probably won't need blood, don't leave that choice (to receive banked blood or not based on (sorry) ignorance) to anyone else.

Pam

JDM555
12-07-2009, 03:22 AM
Here are some pictures.

http://i30.photobucket.com/albums/c350/LilJohn148/7-7.jpg
http://i30.photobucket.com/albums/c350/LilJohn148/5-7.jpg
http://i30.photobucket.com/albums/c350/LilJohn148/3-10.jpg
http://i30.photobucket.com/albums/c350/LilJohn148/1-9.jpg
http://i30.photobucket.com/albums/c350/LilJohn148/4-10.jpg

Vali
12-07-2009, 05:20 AM
My surgeon uses Cellsaver for all his patients. After surgery he told me that i had lost about a litre and with cellsaver, they returned about 300ml. I had donated 2 units of my own blood before the surgery. My surgeon asked for three, but my blood count dropped below the benchmark, and i couldn't give the last one. They cross matched 1 unit for me. I didn't need a transfusion after surgery, but they returned my 2 units to me over the next 24 hours and then had my blood tested on day 3 post-op.
As for the car ride - my surgeon said 'not unless its absolutely necessary, and if you have to, make sure you stop and get out every 20 minutes' (for long rides). Short rides - no problem - only if their 5-10 minutes duration.
Good luck.

jrnyc
12-07-2009, 07:24 AM
Dear JDM
interesting pix...
my waist looks the exact opposite of yours....

i know you will do fine...lots of thoughts & prayers will come your way for a smooth surgery & strong & fast healing...2010 is your year to get back to the things you love to do!

best of luck
jess

spinalfusion09
12-07-2009, 07:11 PM
Nice pics. I had the rib hump on my right side too...not anymore :} I was looking @ your post....don't be self conscious about being taller. I'm like 5'6'' now so not nearly as tall as you haha. But girls like tall guys (my bf is 6'4''). So enjoy your height I'm sure a lot of guys would be jealous ;)
Maliha

JDM555
12-08-2009, 12:36 PM
Thanks for everything guys. I am not mad about being tall, I like being 6'4. But that is the limit, 6'2-6'3 would be max, now 6'5-6'6 is a possibility and that is just too tall.

I had my pre-op yesterday and drew blood and talked to the head nurse and my doctor answered all my questions and gave me the number of another girl who had similar surgery with the same surgeon and I will give her a call soon. Hopefully everything goes according to plan and I will be in the OR on Wednesday morning at 7:30. I am a little nervous, but I hear nothing but good reviews from my surgeon, so hopefully I will have a good recovery. Everyone wish me luck.


I also got the bending xrays, look wicked. Here are some pics.
John

BTW, I was too tall to bend all the way and stand straight up, I had to squat down 3 inches and bend to my side like half way and at that, they barely got the spine lol.


http://i50.tinypic.com/1o6a21.jpg
http://i49.tinypic.com/r8rq5c.jpg

titaniumed
12-09-2009, 12:42 PM
John

Nice pics! Good thing I have a large monitor.

After you are fused, if for some reason you have an x-ray done, you will get compliments from non-scoli Docs like "nice rack". Its kinda freaky hearing that as a male. Just a simple "thank you" with a little smile, should be your response. LOL

Just wondering if they will use "larger" hardware rather than the standard "male" sized hardware? Your vert are large, wonder if they have longer screws and also larger dia rods? They used 6mm dia (.236) rods for me, it would seem that with your size that a larger rod would also be used?

Good question for your Doc. Any idea which system he will use? Mine was Synthes "Pangea" system.
Ed

JDM555
12-09-2009, 12:58 PM
John

Nice pics! Good thing I have a large monitor.

After you are fused, if for some reason you have an x-ray done, you will get compliments from non-scoli Docs like "nice rack". Its kinda freaky hearing that as a male. Just a simple "thank you" with a little smile, should be your response. LOL

Just wondering if they will use "larger" hardware rather than the standard "male" sized hardware? Your vert are large, wonder if they have longer screws and also larger dia rods? They used 6mm dia (.236) rods for me, it would seem that with your size that a larger rod would also be used?

Good question for your Doc. Any idea which system he will use? Mine was Synthes "Pangea" system.
Ed
Nice Rack huh? Lol sounds fun. He didn't say about "larger" hardware, I think the same hardware for most average patients will be used for me. I do understand what you mean about my vert being large, so maybe they might use a longer screw I guess? My surgeon definitely knows what he is doing, so I will leave it up to him. About the rod, I'm not sure either, why would they need a thicker rod? Is it because I am bigger, so it would need more support or something to keep my spine straight?

And for system, ehhh no idea. I didn't really ask him. Just the typical posterior fusion lol.

JDM555
12-11-2009, 02:59 AM
Ehhhh....having a little trouble with insurance. My dad talked to them and they said with a surgery this big, costing over 100,000, the co-pay would be 50-50, but there is a limit to the co-pay. The limit is 7,000, does that sound about right? I hear people paying 500 or 3000, I guess this type of surgery in CA cost a lot?



5 days left.......I am actually excited to be in the hospital and recover, I can't wait till my spine is straight, I stand tall, and I am not embarrassed of my physique anymore. Wish me luck, and thanks for all the help! :)

debbei
12-11-2009, 05:36 AM
Ehhhh....having a little trouble with insurance. My dad talked to them and they said with a surgery this big, costing over 100,000, the co-pay would be 50-50, but there is a limit to the co-pay. The limit is 7,000, does that sound about right? I hear people paying 500 or 3000, I guess this type of surgery in CA cost a lot?



5 days left.......I am actually excited to be in the hospital and recover, I can't wait till my spine is straight, I stand tall, and I am not embarrassed of my physique anymore. Wish me luck, and thanks for all the help! :)

This surgery is expensive. My total bill (billed to insurance, not paid) for hospital & all doctors was over $250,000. Last year I had a better insurance plan than we do now, and my out-of-pocket maximum was $750. I had partially met it earlier in the year, so all I had left was 500.

It sounds like your plan has the out-of-pocked maximum at $7000, which for this surgery isn't bad. Most hospitals will let you pay over time without charging interest; you just have to ask for it.

Due to my insurance, the hard part for my family wasn't the expense of surgery, but the expense of me not working for 7 months, but we managed.

Good luck figuring out your insurance.

spinalfusion09
12-11-2009, 12:37 PM
sorry insurance is kind of a hastle. I have an HMO under my mom and got approved. Before all this I had no idea how expensive it was. The intrumentation was something like 140,00 alone :eek: and my stay in the hospital was another big chunk of moolah. I hope it goes well + that insurance figures stuff out.
Maliha

JDM555
12-13-2009, 03:48 PM
This surgery is expensive. My total bill (billed to insurance, not paid) for hospital & all doctors was over $250,000. Last year I had a better insurance plan than we do now, and my out-of-pocket maximum was $750. I had partially met it earlier in the year, so all I had left was 500.

It sounds like your plan has the out-of-pocked maximum at $7000, which for this surgery isn't bad. Most hospitals will let you pay over time without charging interest; you just have to ask for it.

Due to my insurance, the hard part for my family wasn't the expense of surgery, but the expense of me not working for 7 months, but we managed.

Good luck figuring out your insurance.
Wow, $750? I wish that was our maximum, insurance is extremely expensive. I will remind my dad to ask about paying over time without charging interest.


sorry insurance is kind of a hastle. I have an HMO under my mom and got approved. Before all this I had no idea how expensive it was. The intrumentation was something like 140,00 alone :eek: and my stay in the hospital was another big chunk of moolah. I hope it goes well + that insurance figures stuff out.
Maliha
Yes,insurance it is a hassle, especially when it's such an expensive surgery. Yeah, I know this type of surgery is easily 100000+. Let alone the stay at the hospital and all that good stuff. I just want my back to be fixed and insurance to cover all of it except for our out of pocket 7000.

3 more days.....Ehhh getting a tad nervous.

debbei
12-13-2009, 05:03 PM
Wow, $750? I wish that was our maximum, insurance is extremely expensive. I will remind my dad to ask about paying over time without charging interest.



Actually, after I posted I remembered that we had other expenses that were not covered at all, for the private room & private nurse. So between the 2 of those things I think we also paid about $3000 out of pocket.

3 days to go I was more than a TAD nervous. I think you're doing great. Good luck.

JDM555
12-13-2009, 06:58 PM
Actually, after I posted I remembered that we had other expenses that were not covered at all, for the private room & private nurse. So between the 2 of those things I think we also paid about $3000 out of pocket.

3 days to go I was more than a TAD nervous. I think you're doing great. Good luck.

Oh, 3000 is still a really good price for this surgery. I guess 7000 isn't bad, but like I said, I hope insurance doesn't be flaky and try to get out of paying since it's an expensive surgery.

And in all reality, I'm not that nervous. I actually....want it....to be tuesday night so I can get the surgery. I am actually excited to have the surgery, I hope the recovery goes smooth though.

JDM555
12-14-2009, 06:53 PM
Awesome, just got a call saying that the date of my surgery was cancelled because they needed that date for transplant patients and I would have to set up another date. How shitty is that?

loves to skate
12-14-2009, 07:04 PM
That's terrible, at least for you. I'm so sorry this happened to you. It's such a mental roller coaster as it is without this being added. I hope they can reschedule you soon. Hang in there!
Sally

JDM555
12-14-2009, 07:10 PM
That's terrible, at least for you. I'm so sorry this happened to you. It's such a mental roller coaster as it is without this being added. I hope they can reschedule you soon. Hang in there!
Sally

It was the only time I can have it too. My dad had to fight and call at least 20x to get that spot in short notice. And I moved all my finals and cleared up all my schedule and everything was perfect, then I get this call 2 days before surgery. I hate this crap, I just want to get this damn surgery over with.

jrnyc
12-14-2009, 09:42 PM
Dont blame you for being angry..especially after rearranging everything...that would tick anybody off!

am wondering if you can re-plan...for a different school break...spring break.... would that be enuf time? or are you rethinking summer?

i know you will work it out.....once the anger subsides, you will think clearly about it!

best regards
jess

JDM555
12-14-2009, 11:16 PM
Dont blame you for being angry..especially after rearranging everything...that would tick anybody off!

am wondering if you can re-plan...for a different school break...spring break.... would that be enuf time? or are you rethinking summer?

i know you will work it out.....once the anger subsides, you will think clearly about it!

best regards
jess

AIWHRJOAWHR I HATE THIS! My dad tried calling them to see if there is any spots with either stanford spine surgeons or any other day before christmas. And they said uhh, we will have to check, but your best bet is fridays since your surgeon is free. So my dad is like ok, what about this friday, nope, it's full. Next friday, nope it's Christmas, okay the friday after that, nope it's new years, FINE the friday after THAT, nope the surgeon is out of town. I swear I can't believe the shit luck I'm having, I NEED to get this done over winter break, I don't want to wait till summer and have it ruin my whole entire summer, I want to recover for 6 months now, and then start gym and enjoying my summer vacation, I just hope something works out.

LindaRacine
12-14-2009, 11:26 PM
If you're interested, I can find out if any of the UCSF spine surgeons has an opening before Christmas. I volunteer there (am about to be employed there as well).

JenniferG
12-14-2009, 11:57 PM
Oh nooooooooo. I'm so sorry this has happened. Sheesh! It's a bit cruel, I think. I hope your Dad or Linda can organise something for you.

JDM555
12-15-2009, 12:48 AM
If you're interested, I can find out if any of the UCSF spine surgeons has an opening before Christmas. I volunteer there (am about to be employed there as well).

Oh wow, that would be amazing. I will send you a PM.
John

debbei
12-15-2009, 05:13 AM
Oh my; how terrible. Especially since you had it scheduled over your break, not to mention having yourself mentally prepared, and now this.

spinalfusion09
12-15-2009, 11:18 AM
OMG! That sucks!!!! I'm so sorry! you've thought about it so much and then they do that to you :{ personal update that I thought you'd like to know I've been going to the gym :} No weights except the 5 pound dumbbells in my room. But I have been doing half hour on the eliptical everyday (with a break day). Have my 12 week post opp with the doc next week. My legs are getting stronger and it didn't take long for my body to get back into doing cardio work. So even if you did get the surgery a little later I'm sure you'll be healing faster than 6 months. I'm barely at my third month post opp and still working out. Technically I probably won't need outpatient physical therapy but I want to start kickboxing and pilates so I might go to physical therapy to help me get stronger. I walked a lot before I went to the gym so I'm sure that helped. Keep us posted and I'm so sorry they did that to you!

JDM555
12-15-2009, 11:57 AM
Oh my; how terrible. Especially since you had it scheduled over your break, not to mention having yourself mentally prepared, and now this.

Yeah , I was so ready for the surgery for tomorrow. I really wished it would work out. I hope I can find a day later this week or even early next week, but I don't want to stay in the hospital on Christmas.


OMG! That sucks!!!! I'm so sorry! you've thought about it so much and then they do that to you :{ personal update that I thought you'd like to know I've been going to the gym :} No weights except the 5 pound dumbbells in my room. But I have been doing half hour on the eliptical everyday (with a break day). Have my 12 week post opp with the doc next week. My legs are getting stronger and it didn't take long for my body to get back into doing cardio work. So even if you did get the surgery a little later I'm sure you'll be healing faster than 6 months. I'm barely at my third month post opp and still working out. Technically I probably won't need outpatient physical therapy but I want to start kickboxing and pilates so I might go to physical therapy to help me get stronger. I walked a lot before I went to the gym so I'm sure that helped. Keep us posted and I'm so sorry they did that to you!
Wow, good for you. You're only at 3 months and you're in the gym? Very good. I hope to recover as nicely as you, if I get the darn surgery.

titaniumed
12-15-2009, 12:20 PM
John
What a letdown. Good surgeons are usually very busy people.

Eventually, it will get all sorted out.
Ed

JDM555
12-15-2009, 03:46 PM
John
What a letdown. Good surgeons are usually very busy people.

Eventually, it will get all sorted out.
Ed

I hope it will all work out somehow. ATM I am calling back and forth between MRI place, Stanford clinic, and Linda trying to help me with doing my surgery at ucsf. I hope something works out I really want to do this and it has put me in such a bad mood to start my winter break. If I get surgery within the next week that will be a miracle. I have horrible luck when it comes to this stuff. I'll keep you guys updated as time goes by. Wish me luck to knock this surgery down over winter break.

JDM555
12-15-2009, 07:34 PM
Update: My new surgery date is 12/28. I just lost 12 days of recovery.

Hannamom
12-15-2009, 08:26 PM
JDM555

I know it was a disappointment to have your surgery put off...I'm sorry that happened to you. You are in my thoughts and prayers and will be on the other side of this soon. Ann

Hannamom

LindaRacine
12-15-2009, 08:55 PM
John...

Do you know who the new surgeon is?

--Linda

JDM555
12-15-2009, 09:41 PM
JDM555

I know it was a disappointment to have your surgery put off...I'm sorry that happened to you. You are in my thoughts and prayers and will be on the other side of this soon. Ann

Hannamom
Thanks a lot. I appreciate the kind words.


John...

Do you know who the new surgeon is?

--Linda

It's still Ivan Cheng at Stanford. It's in a guarantees orthopedic OR and there is no cancellation this time. I guess the good news is I will be able to celebrate my brothers bday,my moms bday, and Christmas. An I'll have 10 day break from school to relax before school.
John

LindaRacine
12-15-2009, 09:48 PM
Well, that's good news. It would have been nice if they'd offered you the second date before you practically had heart failure. ;-) Ten days is definitely very little time for recovery. I hope that you have an easy time of it!

--Linda

JDM555
12-15-2009, 10:06 PM
Well, that's good news. It would have been nice if they'd offered you the second date before you practically had heart failure. ;-) Ten days is definitely very little time for recovery. I hope that you have an easy time of it!

--Linda

Lol tell me about it I was about to go in the OR for a heart failure. I should of stuck a note saying while I'm in here please do a spinal fusion LOL. But it's ten days to rest before surgery not to recover after surgery. I will have about four weeks till part time school and full time will be after five weeks. I hope that is enough. If not I will ask the school to keep me enrolled while I rest a week or two extra.

debbei
12-16-2009, 07:16 AM
Good for you. Enjoy the holidays to the fullest!

JDM555
12-16-2009, 02:30 PM
Good for you. Enjoy the holidays to the fullest!

Yup Yup Yup! Thanks.

jrnyc
12-17-2009, 09:15 AM
Hey John
that is great that you will not have to wait til spring break or the summer! i hope you can get enuf rest & recuperation time!
sounds like 2010 will be your year! best wishes to you for a smooth procedure & a speedy return to health, a new & improved you!

jess

JDM555
12-17-2009, 02:30 PM
Hey John
that is great that you will not have to wait til spring break or the summer! i hope you can get enuf rest & recuperation time!
sounds like 2010 will be your year! best wishes to you for a smooth procedure & a speedy return to health, a new & improved you!

jess

Thanks a lot Jess, I really appreciate the kind words. The weather isn't helping the past few days over here and I hope I'm not getting sick. I have been sore from the gym, I need to ease up on that before surgery so I don't go in tired as well. I'm just glad I can do it now and it get it over with, another bad thing is I'll spend new years in the hospital. And even worse than that, On Jan 28, which is part of my "part time" schedule, I have a class at 8AM, which means I have to wake up at 6:45-7AM which will be brutal especially when it's freezing out and I'm trying to recover. Oh well.

jrnyc
12-17-2009, 06:04 PM
Are you not in CA...cause freezing is new england right now...believe me!

jess

JDM555
12-17-2009, 06:57 PM
Are you not in CA...cause freezing is new england right now...believe me!

jess

I bet, but we aren't use to this weather. It is like mid-high 30's, sometimes 40 with a lot of wind and rain. That is like summer to you in England, but here it's usually 60's that's cold and most of the time 70 degrees. So when it drops that low, it's a lot colder than what we normally expect lol.

jrnyc
12-17-2009, 10:52 PM
i know you guys arent used to it...you are in malibu, no? or is it northern CA...?

it is 14 degrees right now at 11:47 p.m. in northern Connecticut...charming New England weather!! and that's without the "wind chill," which makes it even colder! not fit out there for man nor beast!! & my little maltese doesnt like it, either!! :)

jess

JDM555
12-18-2009, 04:53 PM
i know you guys arent used to it...you are in malibu, no? or is it northern CA...?

it is 14 degrees right now at 11:47 p.m. in northern Connecticut...charming New England weather!! and that's without the "wind chill," which makes it even colder! not fit out there for man nor beast!! & my little maltese doesnt like it, either!! :)

jess

I am in Norcal Bay Area. the weather isn't as nice as down in socal, but it's nice. 14? Damn, I couldn't handle that.

Update: I was wondering how someone would get a Handicap parking sign? Do I talk to the hospital or do I have to go to the DMV and show proof I had surgery? What should I do? How long is the handicap sign going to last btw? couple of months or a year?

txmarinemom
12-18-2009, 05:48 PM
I was wondering how someone would get a Handicap parking sign? Do I talk to the hospital or do I have to go to the DMV and show proof I had surgery? What should I do? How long is the handicap sign going to last btw? couple of months or a year?

JDM,

All I had to do was have my doctor to write a prescription for a handicap placard (he did this pre-op), download the proper DMV form, and take it all to the local DMV office. I walked out with my 6 month windshield hanger.

Easy.

debbei
12-18-2009, 06:57 PM
I am in Norcal Bay Area. the weather isn't as nice as down in socal, but it's nice. 14? Damn, I couldn't handle that.

Update: I was wondering how someone would get a Handicap parking sign? Do I talk to the hospital or do I have to go to the DMV and show proof I had surgery? What should I do? How long is the handicap sign going to last btw? couple of months or a year?


My doctor didn't want me to get the one from DMV (which I think was for 3 years). So instead, I got the temp 6 month one from my township police department. It was exactly what I needed, and it got me through the slippery winter with icy parking lots.

JDM555
12-18-2009, 06:59 PM
JDM,

All I had to do was have my doctor to write a prescription for a handicap placard (he did this pre-op), download the proper DMV form, and take it all to the local DMV office. I walked out with my 6 month windshield hanger.

Easy.

Ok, I went online to the DMV website and went to CA and it gave me a form. I filled out this form, but I need my doctor to fill out 2 parts and sign it. But the thing is, I don't meet with him till the 28th. I would like to have it before surgery so when I get out, I don't have to worry about it. I guess the only way off the top of my head is printing it out, and taking it to him the morning of my surgery day and telling him to fill it out and then give it to my parents to go get the Handicap permit at any DMV and just keep it with them until I get out of the hospital. The thing is, I read you need to make "an appointment" for it, and the DMV's here are incredibly busy. Hmm, is there anyway I can fax the form to the doctor, then have him fax it out and print it then just take it myself? Or would that not work?
John

jrnyc
12-18-2009, 07:07 PM
in CT, i just got the form, doctor signed it, & i got a permanent handicapped parking thing...no appt needed..i am surprised CA has the time for appts!!!

jess

JDM555
12-18-2009, 09:48 PM
Weird, from your police department? I've never heard of people getting it from there. I will just print out the sheet and have the doctor fill it out and have one of my parents drop by and get the temp. parking permit. It's like $6 too lol. I talked to a receptionist and she left a message for the doctor that I wanted to know what I needed to do to get one, he should call me back on Monday and tell me exactly what I need. 6 months is plenty, I'll be able to drive probably 2.5-3 months after surgery right? It just depends on how long I'm on the medication? I hear teens getting off medication in like 3-4 weeks and go back to school full time. I hope I can manage the first 4-5 weeks to get back to school. My classes are all spread out, but they are long. Every day I have a 3 hour class. So I might need a pillow for those hard ass desks.

jrnyc
12-18-2009, 10:31 PM
DMV's usually are so busy, they issue things without too much question...CT's did!

i dont know if you want to deal with the disabilities act...do you attend a public or private college? even without invoking the IDEA, your professors would probably understand taking walking breaks, doing some stuff from home..can you have anybody tape record any classes for you?
do you have a disabilities office at the college...?

i am not suggesting calling attention to it, but IF you need some accommodations, that was one of the things the legislation was created for (can you tell i was a special ed teacher & then a social worker?!)

take care...may santa bring you solid (:)) healing for the holidays!

jess

sarah105
12-18-2009, 11:24 PM
Hi
I had my surgery this summer. I am a student as well. I was home all summer but did take a class for 2.5 hours three days a week. I started that at about 4 weeks post op without a problem. I didn't need a pillow for the classes but did use one in the car for the first month or so. At that point I was pretty much off meds but was taking them occasionally if I was feeling especially sore. To be safe I took meds the first week of class and had someone drive me. I started driving about 3 weeks post op since that is about the time I stopped taking meds regularly. I registered with the disability services at my college this fall (3months post op) just to be on the safe side. I got letters written to give to my professors saying that I had the surgery and might need to take short breaks, but I didn't even hand most of them out because I didn't need them. However, I would recommend registering if you have a similar disabiilty program at your school. The process of getting registered was pretty annoying so it would be best to get it out of the way just in case you have a problem and need any accomodations. I didnt even think about a handicapped card for the car and, honestly dont think my surgeon would have signed off for one. He wanted me walking as much as possible and was even hesitant to sign the forms for the disability services as he really didn't think I would need it. (he was right, but I just wanted to make sure I was covered since I was so far from home).
Feel free to ask me if you have any questions. Good luck with your surgery! If it makes you feel any better, it ended up not being nearly as bad as I expected!

txmarinemom
12-18-2009, 11:29 PM
Ok, I went online to the DMV website and went to CA and it gave me a form. I filled out this form, but I need my doctor to fill out 2 parts and sign it. But the thing is, I don't meet with him till the 28th. I would like to have it before surgery so when I get out, I don't have to worry about it. I guess the only way off the top of my head is printing it out, and taking it to him the morning of my surgery day and telling him to fill it out and then give it to my parents to go get the Handicap permit at any DMV and just keep it with them until I get out of the hospital. The thing is, I read you need to make "an appointment" for it, and the DMV's here are incredibly busy. Hmm, is there anyway I can fax the form to the doctor, then have him fax it out and print it then just take it myself? Or would that not work?
John

JDM, DMVs in TX are busy too ... and they don't take appointments.

You can probably fax your doctor the blank form, but I seriously doubt your DMV will accept a completed form that's been faxed. Have faith this isn't the first time your doctor's been in this situation. I suspect he knows how to handle it.

For the record, I never even used mine.

Furthermore, it was just one of about 140 items on my pre-op list must do! 150 items list that just wasn't as pertinent as I'd imagined.

Pam

JDM555
12-19-2009, 03:03 AM
DMV's usually are so busy, they issue things without too much question...CT's did!

i dont know if you want to deal with the disabilities act...do you attend a public or private college? even without invoking the IDEA, your professors would probably understand taking walking breaks, doing some stuff from home..can you have anybody tape record any classes for you?
do you have a disabilities office at the college...?

i am not suggesting calling attention to it, but IF you need some accommodations, that was one of the things the legislation was created for (can you tell i was a special ed teacher & then a social worker?!)

take care...may santa bring you solid (:)) healing for the holidays!

jess
Thank you so much Jess. I really appreciate the support on this forum, I can't believe all these kind people. I attend a public state university. I'm sure they have disability programs, but I don't think I need to sign up for those. Depending on how I recover, but I think I'll do fine and I would just rather walk less in the cold/rain this winter with my handicap parking permit. It will help a lot.
John

Hi
I had my surgery this summer. I am a student as well. I was home all summer but did take a class for 2.5 hours three days a week. I started that at about 4 weeks post op without a problem. I didn't need a pillow for the classes but did use one in the car for the first month or so. At that point I was pretty much off meds but was taking them occasionally if I was feeling especially sore. To be safe I took meds the first week of class and had someone drive me. I started driving about 3 weeks post op since that is about the time I stopped taking meds regularly. I registered with the disability services at my college this fall (3months post op) just to be on the safe side. I got letters written to give to my professors saying that I had the surgery and might need to take short breaks, but I didn't even hand most of them out because I didn't need them. However, I would recommend registering if you have a similar disabiilty program at your school. The process of getting registered was pretty annoying so it would be best to get it out of the way just in case you have a problem and need any accomodations. I didnt even think about a handicapped card for the car and, honestly dont think my surgeon would have signed off for one. He wanted me walking as much as possible and was even hesitant to sign the forms for the disability services as he really didn't think I would need it. (he was right, but I just wanted to make sure I was covered since I was so far from home).
Feel free to ask me if you have any questions. Good luck with your surgery! If it makes you feel any better, it ended up not being nearly as bad as I expected!
Great to hear your story about how you got back to school so soon. I hope it works out like that for me. I have 4 weeks until part time MTW, then the following week is when I start full time at both colleges (taking classes at two colleges at once) and those are M-F, but shouldn't be too bad, just a little long, I would get up and walk around a bit for fresh air though.
John

JDM, DMVs in TX are busy too ... and they don't take appointments.

You can probably fax your doctor the blank form, but I seriously doubt your DMV will accept a completed form that's been faxed. Have faith this isn't the first time your doctor's been in this situation. I suspect he knows how to handle it.

For the record, I never even used mine.

Furthermore, it was just one of about 140 items on my pre-op list must do! 150 items list that just wasn't as pertinent as I'd imagined.

Pam
Yeah, I don't think DMV will accept that, I will just have my doctor sign it and just have my parents take it in, I think if you drop it off at any DMV they will just give you the handicap permit during the same visit. I don't see why not.
I'll let you know how it goes.
John

jrnyc
12-19-2009, 05:43 AM
mine was thru the mail....i dropped it off at DMV, & they mailed me the permit...fairly fast for a govt agency..about 2 weeks...


the disability thing...just the protection of the law may help...if you make yourself known to the disability office, or just call & find out what accommodations your colleges are used to making for people, it could be useful to you....for ex., people on crutches often leave class early to avoid the rush...folks with hand or arm disabilities can respond on tests differently (orally, having someone record answers for them, etc.)...there are all kinds of modifications that can be made, IF needed....

just sayin'.......

feel better
jess

loves to skate
12-19-2009, 11:34 AM
Yeah, I don't think DMV will accept that, I will just have my doctor sign it and just have my parents take it in, I think if you drop it off at any DMV they will just give you the handicap permit during the same visit. I don't see why not.
I'll let you know how it goes.
John

John,
Apparently each state is different. I needed a parking permit before surgery more than I needed one after, except for the ice and snow in winter. I took my signed form to the DMV locally in June and from there it went to the main office in Boston. When I didn't hear anything by August, because they said it could take up to 6 weeks, I called them and asked them to track it down. My luck, it got lost, so I was able to have my PCP fax another copy to the DMV and finally received my tag in September prior to my surgery in December. It was only good for 6 months. I hope yours doesn't take so long.
Sally

JDM555
12-19-2009, 01:24 PM
mine was thru the mail....i dropped it off at DMV, & they mailed me the permit...fairly fast for a govt agency..about 2 weeks...


the disability thing...just the protection of the law may help...if you make yourself known to the disability office, or just call & find out what accommodations your colleges are used to making for people, it could be useful to you....for ex., people on crutches often leave class early to avoid the rush...folks with hand or arm disabilities can respond on tests differently (orally, having someone record answers for them, etc.)...there are all kinds of modifications that can be made, IF needed....

just sayin'.......

feel better
jess
Yeah, they say to mail it the main office in Sacramento, and you will receive it in 2 weeks. The thing is, I will probably need it the most that week after surgery to get out of the car or whatever. I guess it's not big deal because it's not like we will be going Christmas shopping on the day I get discharged lol. But If I'm not mistaken, my friend had a temp. handicap and she just turned in the form by hand and got the temp. handicap in her within minutes and just left. No waiting for 2 weeks or w/e.
John


John,
Apparently each state is different. I needed a parking permit before surgery more than I needed one after, except for the ice and snow in winter. I took my signed form to the DMV locally in June and from there it went to the main office in Boston. When I didn't hear anything by August, because they said it could take up to 6 weeks, I called them and asked them to track it down. My luck, it got lost, so I was able to have my PCP fax another copy to the DMV and finally received my tag in September prior to my surgery in December. It was only good for 6 months. I hope yours doesn't take so long.
Sally
6 weeks!? I hope it doesn't take that long. I heard just 2 weeks by mail, but since it is the holidays I bet it will take me more than that. I really would rather just turn it in and call it a day at a local DMV, I'm positive they should accept the form and just give me the handicap permit. I will call them to see or try to ask people who got it.
John

JDM555
12-19-2009, 06:08 PM
Another thing that came to mind.

Currently, even though I am 19, gym daily, and eat pretty healthy, I am ALWAYS tired, ALWAYS. Morning/Afternoon/Nights, I never have any energy. I feel like I have been up for 3 days and I can't do anything. At the gym I yawn a lot and am too tired/lazy to work out to my full potential.

Is the pain from the scoliosis causing this? I heard that because of scoliosis, as the spine curves more and more, it puts more pressure on my body and that leads to me feeling tired.I think it's true because over the last couple of months from 08 to 09, the worse this got, the worse I am doing in gym or at school in the energy levels. Idk what it is. Is that true or is that completely untrue? I just hope after surgery, I don't even feel more tired, because that would me I would do nothing, at all. I can't see my self getting even more tired, but this is ridiculous.

After surgery, should I have more energy and be healthier, or no?

loves to skate
12-19-2009, 06:37 PM
Hi John,
I personally believe that pain can sap your energy. I know that when I am in pain, I kind of curl up and don't want to do anything. When you go to the gym, do you alternate your workout so that you aren't working the same muscles every day? Do you drink enough water? When I am feeling tired, I try to drink a glass of water and usually feel better afterward. Do you have sleep apnea? Probably not because you are young, but if you do, you would certainly feel tired all of the time.

After surgery, you probably will feel more tired for awhile, but you should slowly be able to increase your stamina and hopefully start to feel better and better.

Try not to worry because that can make you tired also.:)

Sally

jrnyc
12-19-2009, 06:41 PM
i think any pain makes you tired...it just wears you out...especially back pain, cause it effects your whole body!
it cant be isolated, like pain in the hand or in a finger! & chronic pain just grinds you down!

have you had your thyroid checked...? low thyroid causes fatigue...also human growth factor...just found out that mine is low (a hormone specialist checked it)...she wants me to take some over the counter stuff...i also take DHEA, which is supposed to help, too...and vitamin D (we dont get enuf sun exposure in northeast)

a thorough blood testing would tell a doctor alot...especially a specialist, like endocronologist..cause i found out the hard way that if a doctor doesnt test specifically for something, it wont show up! no one ever tested my human growth factor before, or DHEA for me...an example of what can happen was with lyme disease..it requires a specific test..so for a year & a half, i got more & more tired...doctors (mostly male..sorry) told me i was "crazy," "a hypochondriac," "neurotic," etc...i said maybe so, but i am also SICK!! finally, when a doctor thought to check for lyme, it came up off the charts positive!!! by then, i was in a wheelchair!! so really, if a doctor doesnt know what to look for, they wont find it!!! :rolleyes:

all this to say a good doctor. a good specialist, is worth a million!! do you have one??

jess

JDM555
12-19-2009, 06:43 PM
Hi John,
I personally believe that pain can sap your energy. I know that when I am in pain, I kind of curl up and don't want to do anything. When you go to the gym, do you alternate your workout so that you aren't working the same muscles every day? Do you drink enough water? When I am feeling tired, I try to drink a glass of water and usually feel better afterward. Do you have sleep apnea? Probably not because you are young, but if you do, you would certainly feel tired all of the time.

After surgery, you probably will feel more tired for awhile, but you should slowly be able to increase your stamina and hopefully start to feel better and better.

Try not to worry because that can make you tired also.:)

Sally

I worry, have stress from school, and all that, but that is normal, I wasn't always super tired. I doubt I have sleep apnea, but I go to the gym and have split workouts, monday is chest/tri's, tuesday is back/bi's, wed is shoulders/abs, and thurs is legs, and rest for a few. I don't drink too much water, rarely do. But I drink a LOT of milk. Funny thing is, I haven't been always drinking milk, only for the past year when I wanted to gain weight, which is when I started always feeling tired...Hmmmm....

JDM555
12-19-2009, 06:47 PM
i think any pain makes you tired...it just wears you out...especially back pain, cause it effects your whole body!
it cant be isolated, like pain in the hand or in a finger! & chronic pain just grinds you down!

have you had your thyroid checked...? low thyroid causes fatigue...also human growth factor...just found out that mine is low (a hormone specialist checked it)...she wants me to take some over the counter stuff...i also take DHEA, which is supposed to help, too...and vitamin D (we dont get enuf sun exposure in northeast)

a thorough blood testing would tell a doctor alot...especially a specialist, like endocronologist..cause i found out the hard way that if a doctor doesnt test specifically for something, it wont show up! no one ever tested my human growth factor before, or DHEA for me...an example of what can happen was with lyme disease..it requires a specific test..so for a year & a half, i got more & more tired...doctors (mostly male..sorry) told me i was "crazy," "a hypochondriac," "neurotic," etc...i said maybe so, but i am also SICK!! finally, when a doctor thought to check for lyme, it came up off the charts positive!!! by then, i was in a wheelchair!! so really, if a doctor doesnt know what to look for, they wont find it!!! :rolleyes:

all this to say a good doctor. a good specialist, is worth a million!! do you have one??

jess

Funny you should talk about Thyroid problems, my general doctor was about to have me try taking some thyroid medication, but he said first he wanted to check my heart because I said something like "Even when I play bball, I am so out of breath and tired just by running up/down the court", so he was like hmm, maybe you have a heart problem. So sent me to a heart doctor to get checked, and he did an EKG and it was fine. He was about to do more tests, but our insurance didn't cover anything and it was a big price, so I guess it got forgotten, but I doubt it is my heart. I don't know what it is, but I'm so sick of feeling tired all the time, all my friends always say "Oh, still tired today?" when they see me because whenever someone asks "Hey, whats up man, how are you" I say...I'm so tired. EVERYTIME.

jrnyc
12-19-2009, 09:42 PM
do you think you could squeeze in a thyroid blood test before the surgery?...tired doesnt help healing! PLEASE mention it to the surgeon...that you need your thyroid checked..low thyroid slows things down...i used to get cold all the time...used to gain weight looking at food! not since thyroid pills...been on them over 20 years! i get blood checked at least 3 times a year...

maybe it is something else...you are not anemic, are you? & other things..that a layman wouldnt suspect...should be checked out!

have you had your pre-op blood work done yet?

see...now we will worry about you....please take care...

jess

rich1752
12-19-2009, 09:59 PM
your right Jess, the pre-op blood workup will locate any dificencies. Working out will certainly help out during recovery. I worked out pretty religiously prior to having my surgery. Today is 10 days since surgery and I feel a lot better. I'm starting to take 4 walks a day. Sleep is getting better, last night I was able to sleep 5 hours. I am also going to try to get off the oxycotin, since it is so addicting. I am using 2 a day and will drop to one and by next week down to zero.

JDM555, you will do fine! It gets easier each day.

rich

JDM555
12-19-2009, 10:04 PM
do you think you could squeeze in a thyroid blood test before the surgery?...tired doesnt help healing! PLEASE mention it to the surgeon...that you need your thyroid checked..low thyroid slows things down...i used to get cold all the time...used to gain weight looking at food! not since thyroid pills...been on them over 20 years! i get blood checked at least 3 times a year...

maybe it is something else...you are not anemic, are you? & other things..that a layman wouldnt suspect...should be checked out!

have you had your pre-op blood work done yet?

see...now we will worry about you....please take care...

jess
Yes I had the pre op and blood test and I guess everything is fine because they ddnt say anything about it. I had a couple of tests and everything was fine even the doctor said that everything is fine but I can try thyroid meds. So that means the tests came back fine or else he would of told me. You said you can just look at food and gain weight easily? It's impossible for me to gain weight. I need over 4000 calories and gym daily to gain. So idk. I seriously think this curve and the pain is causing my tiredness. I will be fine I guess. I'll ask him Monday if anything came back from the tests. I can't get a blood test within the next week. I don't want to risk it.

jrnyc
12-19-2009, 11:24 PM
you may very well be right...pain in the back exhausts the whole body...& to function with the pain, you are always kind of fighting against it! when i worked 2 jobs in nyc & had all that pain, i could ignore the pain for awhile when i got really busy, but as soon as i took a break around 12 o'clock or so, it would hit me like a mack truck!! then i would take the pain pills & pray for them to kick in fast...back then it was only a lower dose of hydrocodone...but it took the edge off so i could stop grinding my teeth from the pain...

i also used to go to the gym 4 times a week! before the pain got so very bad that even with stronger pain meds, i could no longer do it! that is when i took early retirement!

so...i dont know how you do that gym thing that you do...how do you deal with the pain? with the lumbar pain, it weakened my whole body..i think the lumbar causes weakness from lack of support in the back..it was hard to even do the elliptical machine for cardio, let alone lift any weight!! ..whereas i think thoracic is more dangerous for the lung & heart problems!!

wishing you best of luck..it's the 28th, right?

jess

JDM555
12-20-2009, 03:06 AM
you may very well be right...pain in the back exhausts the whole body...& to function with the pain, you are always kind of fighting against it! when i worked 2 jobs in nyc & had all that pain, i could ignore the pain for awhile when i got really busy, but as soon as i took a break around 12 o'clock or so, it would hit me like a mack truck!! then i would take the pain pills & pray for them to kick in fast...back then it was only a lower dose of hydrocodone...but it took the edge off so i could stop grinding my teeth from the pain...

i also used to go to the gym 4 times a week! before the pain got so very bad that even with stronger pain meds, i could no longer do it! that is when i took early retirement!

so...i dont know how you do that gym thing that you do...how do you deal with the pain? with the lumbar pain, it weakened my whole body..i think the lumbar causes weakness from lack of support in the back..it was hard to even do the elliptical machine for cardio, let alone lift any weight!! ..whereas i think thoracic is more dangerous for the lung & heart problems!!

wishing you best of luck..it's the 28th, right?

jess
Yes, I really think this is the problem. The more pain I am, the more exhausted/tired I am. I feel sooooo dead, like my whole body is DRAINED, to zero. I can't even stand up straight, I walk lanky/tired as if I'm a zombie. My mouth sometimes hangs open and I don't even notice, or my eyes are open halfway as if I didn't sleep for 3 days. I don't know, I know I wasn't always like this, as a kid I was hyper and was crazy. But after that growth spurt, I started feeling extremely tired and lazy. Even in the pictures I took, I looked dead and so unhealthy. Now that I gained weight and got in shape, it helps, but my back got worse now and it hurts even more.

I feel like my back isn't supporting my body, It can't handle it I guess. I don't know how to describe it, but my lower back is like killing me. Gym, oh my, I am in PAIN! it is throbbing and I have points where I can't really do anything, so I kind of stretch, but it hurts really bad, no matter what exercise I do, my lower back muscles get pumped and tighten up, and it causes me to be in pain. The rib hump gets worse, since there is a big amount of muscle I developed on the right side of my back/oblique, that muscle somewhat hides in the cold, and when it's warm and I work out, it gets pumped and it hurts even more. I have been eating horrible and working out less and less efficiently/heavy the past few weeks/months, and that is cause this keeps getting worse, stress from school and finals, and the list goes on. I just can't wait to get fixed, then to recover, and get on with my life without pain and be energetic as a 19 year old should be.


YES, It is the 28th. Please pray for me and wish me luck to recover in the short 4 weeks I have left.

jrnyc
12-20-2009, 12:34 PM
that pain & exhaustion is your lumbar area not able to support you the way normal spines do...i admire your persistence in the gym, though i think you should ease up a little now that surgery is approaching...

i have trouble walking from just that same lack of support from my lumbar curve....it is a deep ache & pain...the thing for you to remember is that chronic pain wears you down...because it just doesnt let go, it doesnt quit..it is there all the time, & that is exhausting to deal with!

yes, thoughts & prayers to you on the 28th & beyond for smooth healing....afterwards, you will build back up to a new & improved you...think of all you can do in your life without that constant pain!!

best regards
jess

txmarinemom
12-20-2009, 01:31 PM
that pain & exhaustion is your lumbar area not able to support you the way normal spines do...i admire your persistence in the gym, though i think you should ease up a little now that surgery is approaching...

John,

Jess brings up a good point: You should definitely stop anything you might currently be doing that build back muscles. It only creates more mass to cut through, and it doesn't offer an advantage in recovery.

The main thing to focus on right now is leg, arm and core strength. You're going to use your arms - and particularly your legs - as long as you're on bending/lifting restrictions.

Also, STRETCH ... the more limber you are, especially through the hamstrings and the psoas, the more comfortable you're likely to be.

Regards,
Pam

JDM555
12-20-2009, 06:00 PM
that pain & exhaustion is your lumbar area not able to support you the way normal spines do...i admire your persistence in the gym, though i think you should ease up a little now that surgery is approaching...

i have trouble walking from just that same lack of support from my lumbar curve....it is a deep ache & pain...the thing for you to remember is that chronic pain wears you down...because it just doesnt let go, it doesnt quit..it is there all the time, & that is exhausting to deal with!

yes, thoughts & prayers to you on the 28th & beyond for smooth healing....afterwards, you will build back up to a new & improved you...think of all you can do in your life without that constant pain!!

best regards
jess
Oh don't worry, I already was cutting back compared to what I did a couple months back because of my eating style. I eat a lot less and was less energetic/busy with school, so the gym was cut. Then for the past 2-3 weeks, I go for 40 minutes and do very light sets, so it's somewhat cardio. Then 10 minutes on the bike just to get a little in shape. I don't lift hard that much anymore because of my back. I just want to be in shape for the surgery. I hope that after surgery, I will be at 110/100 and can go back in the gym to get over 215lbs.


John,

Jess brings up a good point: You should definitely stop anything you might currently be doing that build back muscles. It only creates more mass to cut through, and it doesn't offer an advantage in recovery.

The main thing to focus on right now is leg, arm and core strength. You're going to use your arms - and particularly your legs - as long as you're on bending/lifting restrictions.

Also, STRETCH ... the more limber you are, especially through the hamstrings and the psoas, the more comfortable you're likely to be.

Regards,
Pam
Yes, like I said I barely workout as hard as I did before. Plus, my diet isn't that great, so there isn't much muscle building going on. I rarely do back exercises now because of my back pain and if I do, it's just 1-2 sets and it's light. I focus on arms/legs as well. I keep getting headaches and I feel so sleepy today. I am trying to eat whatever I can in the next 8 days so I can gain some weight or be healthy enough so when I get the surgery and don't eat for a couple of days, I don't starve to death.
John

rich1752
12-20-2009, 07:46 PM
John, you will be in my prayers on your surgery date. I also used to work out pretty hard. My back muscles have been weak for the last three years, but didn't think anything about it. I would get emberassed when I would do sitting rowes, if I wore a tank top, because my hump would show. I never knew it was scoliosis. My old doctors would tell me that it was a muscle knot and nothing else. Your one of the lucky ones who can't gain weight. I'm on the other end, where I just look at food and gain weight. I would do an hour of cardio and hour of weights everyday. You will be surprise how fast you recover, because of your current body dynamics. I can't wait to return to the gym, but will take it slow.

rich

jrnyc
12-20-2009, 11:08 PM
Hi Rich
just a thought..before i was put on thyroid pills, i gained weight whenever i stared at food...i swear! i have been on the pills for over 20 years, & get my blood drawn at least 3 times a year to check the levels..

did you ever get thyroid checked?

hope you are feeling better
jess

JDM555
12-20-2009, 11:32 PM
John, you will be in my prayers on your surgery date. I also used to work out pretty hard. My back muscles have been weak for the last three years, but didn't think anything about it. I would get emberassed when I would do sitting rowes, if I wore a tank top, because my hump would show. I never knew it was scoliosis. My old doctors would tell me that it was a muscle knot and nothing else. Your one of the lucky ones who can't gain weight. I'm on the other end, where I just look at food and gain weight. I would do an hour of cardio and hour of weights everyday. You will be surprise how fast you recover, because of your current body dynamics. I can't wait to return to the gym, but will take it slow.

rich

Thanks, I appreciate it Rich. I get embarrassed of my rib hump too, my is horrible and at the gym since I'm pumped, it looks even worse. Even in a shirt I have to bend a certain way when I get water for it to not show. It hurts so much and I'm in pain daily. I wouldn't say I'm "lucky" to stay skinny, I look nasty skinny, very very small bone structure, narrow shoulders, tiny wrists, tiny rib cage, after putting on 60lbs, I still look skinny. And after what I had to go through to put those 60, I would rather do cardio and barely eat ANY day of the week. Stuffing your face with food (not the best food that comes to mind), most of it was stuff I didn't enjoy, and I had to eat till the point where I was about to blow. And I took protein and weight gainer shakes and that made me gag everytime. Workout 2 hours a day, it was hard. I would EASILY rather pick 3-4 high protein, low calorie meals and do cardio each day.

Anyways, how is your rib hump now after surgery? Is it still prominent or is it pretty much gone? I hope my disappears or significantly decreases. I hope I recover quickly. When can you return to the gym? I was told at 6 months, I can do light weights and ease in everything. I will do that, bike/walk for a bit, then do light weights.
John

JDM555
12-21-2009, 01:45 PM
Got a call today saying "My doctor wants me to walk and doesn't want to give me a Handicap Placard"

Load of BULL!!!! It's raining over here, my campus is already big enough that I will easily walk a mile a day just on campus. 4 weeks after surgery and walking 1 mile is already going to be a hassle, I know he wants me to walk, I understand that perfectly, but for both the campuses I'm registered at, there is a LOT of walking involved either way. My state college, I take a light rail, and from the light rail, I walk at least 3-4 blocks before I get to campus, so that is going to be hard. Second campus, which is a community college, has a HUGE parking lot, I really don't want to be exhausted just walking to class. I just want it "IN CASE" it's pouring and I'm tired and can't complete the walk all the way, I won't be relying on it everyday.

I told him I want to talk to him, so hopefully he will understand what I mean.

spinalfusion09
12-21-2009, 02:23 PM
Hey John! I'm sorry about what the doc told you about walking and stuff. You're up in NorCal right? I went to UC Santa Cruz for a year and it was a lot of walking. I'm back down south now. There's no way I would have been able to walk those hills 4 weeks after surgery! Let alone walking that far. I walked extremely small distances up until the 5th week. Then I slowly was able to walk more and more without main or exhaustion. I totally think its ligitimate for you to get a handicap placecard. I had to take this semester off because of surgery; I would have missed way too much school. I did take classes online though. I hope it works out!
Maliha

JDM555
12-21-2009, 02:30 PM
Hey John! I'm sorry about what the doc told you about walking and stuff. You're up in NorCal right? I went to UC Santa Cruz for a year and it was a lot of walking. I'm back down south now. There's no way I would have been able to walk those hills 4 weeks after surgery! Let alone walking that far. I walked extremely small distances up until the 5th week. Then I slowly was able to walk more and more without main or exhaustion. I totally think its ligitimate for you to get a handicap placecard. I had to take this semester off because of surgery; I would have missed way too much school. I did take classes online though. I hope it works out!
Maliha

Yeah, I keep getting more and more worried about school. 4 weeks isn't enough for some people to even shower or have a car ride without being in a lot of pain, let alone be walking close to a mile in the rain for school. I'm waiting the doctors phone call and if he is stubborn, I'm going to argue with him. This is ridiculous. 4 weeks and going back to school is already going to be extremely hard, I don't need to walk a mile a day on top of that. What if I fall from the rain or if it's pouring, I'll be drenched by the time I get to class and late. I hope he understands and lets me get it.

Suzy
12-21-2009, 03:25 PM
Hey John,

I think you need to point out to your Dr. It is they, not you, who pushed back your surgery date and you will have less time to recover before going back to school!! Tell them you MUST have the handicap placard. I had an awesome recovery and in no way would have been ready at 4 weeks to do all that walking. Be forceful with this point and I don't see how they can say no. You might offer him a compromise, have him put a limit on how long the placard is good for so he knows it won't be a crutch for you.

JDM555
12-21-2009, 04:31 PM
Hey John,

I think you need to point out to your Dr. It is they, not you, who pushed back your surgery date and you will have less time to recover before going back to school!! Tell them you MUST have the handicap placard. I had an awesome recovery and in no way would have been ready at 4 weeks to do all that walking. Be forceful with this point and I don't see how they can say no. You might offer him a compromise, have him put a limit on how long the placard is good for so he knows it won't be a crutch for you.

Yeah, after I complained to his "assistant", she talked to him about my situation, and he FINALLY agreed to do the handicap placard. I get a call back saying if I would like to pick it up or have it mailed to me (the form) and I say before you do that, when does it expire? She told me February 1, 2010. What kind of BS is that? It expires in 4 weeks after surgery? Really now? I won't be going anywhere in the first 4, why would I need it then, I called back and started yelling now telling her wtf is this, I don't even need it then, it's going to rain and it will be slippery and I will have to walk at least a mile a day for school and I really don't need to be "forced" to walk. I need to have it just in case. She's like fine, let me talk to him again. He pushed it to the end of February, I have no idea why he is so stingy. I know he wants me to walk, and I will walk daily on my own, it's just I don't want to be forced to walk from the parking lot to class which is a good 15 minute walk, especially when I'm freezing, it's 7:00 AM, it's raining, and while I'm on pain meds. I guess it's better than nothing, but I don't see what the big problem with leaving it for 6 months is? I really don't know why he is forcing me to walk even after only 8 weeks. I hear stories about people not able to even go to school part time at 3 months and he expects me to walk over a mile a day with doing 16 units of school full time everyday of the week 5 weeks after surgery.

jrnyc
12-21-2009, 04:55 PM
i dont get it??!!! i got a "lifetime" one with my G.P/rheumatologist's signature...cause i dont know if i'm having surgery, & there are days i can barely walk due to severe lumbar pain/weakness...so it was just easier for him to fill it out for lifetime (he just checked off that box on the form) ...he filled out the DMV form, no questions asked by motor vehicle..they issued it in 2 weeks without problem...

i think your doctor is making it too complicated...does he not know you well, that you are the kind of guy who will walk for your own health, but not necessarily at 7 a.m. or on the way to a class...?? better to walk when there is no hurry or rush! maybe you just need to tell him in person..which i guess is tough...we usually deal with doctors thru their nurses or receptionists!

i feel bad for the petty annoyances you are dealing with right now..the last thing you need! any chance anyone could give you a ride to school the first few weeks?

best of luck
jess

loves to skate
12-21-2009, 06:39 PM
Why don't you try your primary care physician? I bet you would have better luck. You probably will be walking at least a mile a day at four weeks post op, but climbing hills in the rain doesn't sound like too good of an idea to me. Good luck. Sally

titaniumed
12-21-2009, 06:56 PM
Hi John

I had the same thing happen to me. I figured that it would be an easy thing getting a placard, boy did I crash and burn! My surgeon told me to park in the back of all parking lots, and walk on in from now on.

I think he wanted me walking.......

Also, he wanted me walking outside.... No tredmills. Guess it has to do with the fresh air.

These surgeons are right, you need to be active and get things like oxygen circulating after surgery. He didn't want me sleeping all the time. I too, was a little surprised, but not agitated about it. There is a reason for this.

Heck, your 19 years old, your going to sail through this......

Remember that "adaptability" is needed here.

I think that the big issue here is carrying your books. You might get an umbrella and a laptop carrier with wheels. I use one when I fly and its great. With these 2 items and a little head start, you will be fine.

Ed

JDM555
12-21-2009, 07:33 PM
i dont get it??!!! i got a "lifetime" one with my G.P/rheumatologist's signature...cause i dont know if i'm having surgery, & there are days i can barely walk due to severe lumbar pain/weakness...so it was just easier for him to fill it out for lifetime (he just checked off that box on the form) ...he filled out the DMV form, no questions asked by motor vehicle..they issued it in 2 weeks without problem...

i think your doctor is making it too complicated...does he not know you well, that you are the kind of guy who will walk for your own health, but not necessarily at 7 a.m. or on the way to a class...?? better to walk when there is no hurry or rush! maybe you just need to tell him in person..which i guess is tough...we usually deal with doctors thru their nurses or receptionists!

i feel bad for the petty annoyances you are dealing with right now..the last thing you need! any chance anyone could give you a ride to school the first few weeks?

best of luck
jess

Yeah, I don't get why he is making a big deal either. I knew people who had a knee problem (but walk 100% fine) and were suppose to have surgery, but ended up not getting surgery and STILL getting the handicap and STILL also renewing it again and again. And I'm over here, going to walk close to a mile everyday and it's winter so it's going to rain and I might have pain anytime AFTER 2 months, something can happen and you never know, I might need it for the remaining 4 months (Suppose to be 6 months) but I guess he doesn't want that. I will also be taking night classes (M,T,Th) and I don't want to get in the dark to my car and trip over something (Not many lights in the parking lot). I guess he is insisting since I am in shape and 19 and by my x-rays, I have a lot of flexibility/mobility and no health problems, that I will recover nicely and won't need any help with my walking. I hope he's right, because if at 5 weeks I go to school and it is horrible, I'm calling him and telling, not asking, TELLING him to renew my handicap because I can't walk long distances yet. I really don't know why he would do all this, is it to make sure I walk? I know walking will help me out, and that is why I will do it daily down the street or on a treadmill when I WANT to, not when I am forced to in the morning on the way to school.

As far as getting a ride, my parents offered to help me out. Depending on how I feel, my dad can drop me off in the morning on the way to work and my mom can pick me up in the afternoon.

This is so stupid, just thinking of my past semester, my classes were back to back, 10 minutes apart, and on opposite sides of the campus, I would be late because the walk was over 10 minutes, that is power walking too which caused me a GREAT deal of pain in the Lumbar area. Now with this, I'm sure I won't be there before 15 minutes. More like 20. I hope I recover so he proves me wrong, but I bet I'm going to have trouble with the first couple of weeks at school and I will tell him to renew it for another couple of months. I will talk to him about it on the day of surgery as well (28). Well, 1 more week.

Countdown begins. 7 Days

JDM555
12-21-2009, 07:38 PM
Why don't you try your primary care physician? I bet you would have better luck. You probably will be walking at least a mile a day at four weeks post op, but climbing hills in the rain doesn't sound like too good of an idea to me. Good luck. Sally

I might do that, but I will just keep it for 2 months depending on the weather/how I am recovering. If I feel like I can't keep doing that, I will tell him to let me renew it for a couple more weeks/months.
John

Hi John

I had the same thing happen to me. I figured that it would be an easy thing getting a placard, boy did I crash and burn! My surgeon told me to park in the back of all parking lots, and walk on in from now on.

I think he wanted me walking.......

Also, he wanted me walking outside.... No tredmills. Guess it has to do with the fresh air.

These surgeons are right, you need to be active and get things like oxygen circulating after surgery. He didn't want me sleeping all the time. I too, was a little surprised, but not agitated about it. There is a reason for this.

Heck, your 19 years old, your going to sail through this......

Remember that "adaptability" is needed here.

I think that the big issue here is carrying your books. You might get an umbrella and a laptop carrier with wheels. I use one when I fly and its great. With these 2 items and a little head start, you will be fine.

Ed
Yes, I agree with you, it is a good idea to walk and be active. Like I said, walking on the campus is already enough for me (BEFORE surgery) I get tired from walking from one end to the other. The campus is pretty big. The other problem is the second campus' parking lot is GIANT, and it's always packed, it's not a garage, so it's spread out. Just the walk to get from my car to the class is a workout. This is my experience BEFORE surgery, I don't even want to know what will happen after surgery, with ONLY 4 weeks of recovery time. I hope I can even get out of bed, dress myself, stand the car ride to school, sit in class for 3 hours, and go back home.

I agree I have to walk, I'd love to get some rest/sleep after class, then in the afternoon take a nice walk with my iPod and just enjoy the weather, but I guess that isn't enough and I need to walk an additional mile at school.

LindaRacine
12-21-2009, 08:07 PM
Hi John...

I was a LOT older than you when I had my surgery, and while I didn't have to walk 1-2 miles a day to get to/from work/school, I pretty much did those distances anyway. It's relatively rare for scoliosis surgery patients to need placards, so I think you'll be fine with one that expires in February. Believe me, I think you'll find sitting for the necessary period of time a lot tougher than walking a measly mile or two.

I'd like to encourage you to not think of yourself as disabled. I think that often becomes a self fulfilling prophecy.

Regards,
Linda

JDM555
12-21-2009, 09:36 PM
Hi John...

I was a LOT older than you when I had my surgery, and while I didn't have to walk 1-2 miles a day to get to/from work/school, I pretty much did those distances anyway. It's relatively rare for scoliosis surgery patients to need placards, so I think you'll be fine with one that expires in February. Believe me, I think you'll find sitting for the necessary period of time a lot tougher than walking a measly mile or two.

I'd like to encourage you to not think of yourself as disabled. I think that often becomes a self fulfilling prophecy.

Regards,
Linda

Yes, I understand, but just for the record, I don't intend to use this handicap placard everyday just because I am lazy. I would only use it if I "needed" to use it because of certain circumstances, if I'm not in pain, of course I will walk because that will help me recover, but if I am, I don't want to force myself you know? Hopefully everything will work out and I will be off pain meds and back to school in this next month. Wish me luck, surgery is exactly 1 week from now.
John

LindaRacine
12-21-2009, 09:46 PM
Yes, I understand, but just for the record, I don't intend to use this handicap placard everyday just because I am lazy. I would only use it if I "needed" to use it because of certain circumstances, if I'm not in pain, of course I will walk because that will help me recover, but if I am, I don't want to force myself you know? Hopefully everything will work out and I will be off pain meds and back to school in this next month. Wish me luck, surgery is exactly 1 week from now.
John

John...

I hate to be the bearer of bad news, but there's a very good chance that you will be in pain. But, you're going to have to push yourself to get out and walk despite the pain, because if you don't, recovery is probably going to be a lot tougher. There's a reason why Dr. Cheng was reluctant to give you the placard.

--Linda

JDM555
12-21-2009, 09:59 PM
John...

I hate to be the bearer of bad news, but there's a very good chance that you will be in pain. But, you're going to have to push yourself to get out and walk despite the pain, because if you don't, recovery is probably going to be a lot tougher. There's a reason why Dr. Cheng was reluctant to give you the placard.

--Linda

I guess. I will just wait and see how it goes. I want this week to be over with already, if I had it on the 16th, I would of been discharged today or tomorrow. I want to finish and get into recovery.
John

spinalfusion09
12-22-2009, 04:21 PM
Seriously! I don't get why he wouldn't. I wasn't at school but it wasn't easy going outside. I can't possibly imagine rain on top of all that. Mot to mention it pours in NorCal :{

spinalfusion09
12-22-2009, 04:24 PM
Oh and my mom got me shoes with rubber on the soles like hiking shoes for the shower because both my doc and PT said if I fell badly within the first couple weeks it could ruin everything. It wasn't even raining by be but I had to be really careful when I took a shower.

JDM555
12-22-2009, 04:30 PM
Seriously! I don't get why he wouldn't. I wasn't at school but it wasn't easy going outside. I can't possibly imagine rain on top of all that. Mot to mention it pours in NorCal :{
W/E, I'll just live with the pain. I can handle it. I will try my best and I hope it all just all works out. I will walk daily as much as I could. I will take walks down the street with an iPod with my mom or go to a park and something. If I have too much trouble dealing with handicap/walking at school, I will tell him to postpone the expiration date till end of March or something.
John

Oh and my mom got me shoes with rubber on the soles like hiking shoes for the shower because both my doc and PT said if I fell badly within the first couple weeks it could ruin everything. It wasn't even raining by be but I had to be really careful when I took a shower.
Ehhh.....hmmm, I will prolly sit down in my boxers and get someone to help me shower a little. I doubt I will be able to shower myself a couple of weeks after surgery. I definitely wouldn't want to stand, cause if I slip or fall, that's like 5-6 ft drop lol.

spinalfusion09
12-22-2009, 05:20 PM
haha true that is a lot of dude. You just have to be really careful thats all. To be honest I really don't remember a lot of the first few weeks. The drugs they had me on hit me pretty hard haha

spinalfusion09
12-22-2009, 05:23 PM
and about standing 4 like showers and stuff you're body will definitely tell you when enough is enough. I could stand but it wasn't in any way comfortable. But you get past that and everything gets easier.

jrnyc
12-22-2009, 07:23 PM
hmmmmm....there's always sponge baths & alcohol rubs...temporarily, that is....:)

dec 28 is etched in my mind now..i will be praying all day...cause it is your date & i know that with all the prayers from everybody, nothing can go wrong...your job is just to relax, rest & heal...

jess

LindaRacine
12-22-2009, 07:38 PM
Ehhh.....hmmm, I will prolly sit down in my boxers and get someone to help me shower a little. I doubt I will be able to shower myself a couple of weeks after surgery. I definitely wouldn't want to stand, cause if I slip or fall, that's like 5-6 ft drop lol.

John...

I really want you to stop thinking that you're going to be disabled. If you think you'll be disabled, you probably will be. This is a big surgery, but there are hundreds of us here who have gone through it, and few are anywhere near as disabled as you think you might be.

You will almost certainly be able to shower yourself. I showered by myself on day 13. I agree that it's a good idea to get some shower shoes to be certain that you're not going to slip accidentally. You might also want to get a shower chair or bench, although you should check with Dr. Cheng about any of this stuff. I have some helpful hints for post-op on my website:

http://www.scoliosislinks.com/PreparingforSurgery.htm

And, another page on resuming activities:

http://www.scoliosislinks.com/PostSurgActivities.htm

Note that this is a page that is slightly outdated, as many surgeons no longer use post operative braces.

--Linda

JDM555
12-22-2009, 07:54 PM
haha true that is a lot of dude. You just have to be really careful thats all. To be honest I really don't remember a lot of the first few weeks. The drugs they had me on hit me pretty hard haha
Yeah, I bet I will forgot who came to visit me and a lot of the days at home. This is going to be an interesting couple of weeks coming up lol.
John

and about standing 4 like showers and stuff you're body will definitely tell you when enough is enough. I could stand but it wasn't in any way comfortable. But you get past that and everything gets easier.
Yeah, I think I would have to sit on something, I have a tub, I can just turn on the water and side on the side and just watch my self and then water myself down because I don't want to slip, unless I get "shower shoes" that is lol. I will try to find a shower mat so I don't run the risk of slipping.
John


hmmmmm....there's always sponge baths & alcohol rubs...temporarily, that is....:)

dec 28 is etched in my mind now..i will be praying all day...cause it is your date & i know that with all the prayers from everybody, nothing can go wrong...your job is just to relax, rest & heal...

jess
Thanks a lot Jess, Like I said before, I really appreciate all your prayers and luck. I really do. I will have a computer/iPhone with me, so I will post to let everyone know how it goes and take pictures as soon as I can.

John...

I really want you to stop thinking that you're going to be disabled. If you think you'll be disabled, you probably will be. This is a big surgery, but there are hundreds of us here who have gone through it, and few are anywhere near as disabled as you think you might be.

You will almost certainly be able to shower yourself. I showered by myself on day 13. I agree that it's a good idea to get some shower shoes to be certain that you're not going to slip accidentally. You might also want to get a shower chair or bench, although you should check with Dr. Cheng about any of this stuff. I have some helpful hints for post-op on my website:

http://www.scoliosislinks.com/PreparingforSurgery.htm

And, another page on resuming activities:

http://www.scoliosislinks.com/PostSurgActivities.htm

Note that this is a page that is slightly outdated, as many surgeons no longer use post operative braces.

--Linda
Hi Linda, I don't think of myself as Disabled, I just don't want to shower when I'm not ready and risk falling. Or I don't want to walk when I am in a lot of pain on the way to school because I don't have the option of using a Handicap Placard. I understand this is a big surgery, but I am not worried at all because I know I will recover nicely. I am young, in shape, and gym almost daily. So I'm pretty sure I will recover nicely, but I really am worried about falling or making mistakes, thats all. Thanks for the websites, they both really helped. Thanks for everything Linda.
John

LindaRacine
12-22-2009, 08:29 PM
but I really am worried about falling or making mistakes, thats all.

Join the club. I think we all worry about stuff like that, even when we haven't just had surgery. It's really not all that uncommon for someone who has had recent surgery to slip and fall. I did it twice. Within the first six months of my surgery, I fell down a flight of stairs... on my back, and slipped and fell while trying to clean my hot tub. In both cases, I was sore but fine. The implants that will be used for your surgery are pretty tough, and it would take a huge amount of force to dislodge them. You may feel fragile, but you actually won't be.

--Linda

rich1752
12-22-2009, 09:46 PM
John, showering isn't that bad. I was told by my doctor to use "press and seal" plastic to cover my incisions. It felt good after my first shower and shave. I was nervous, but it felt good, just worried about getting my dressings wet, but the "press and seal" took care of it.

rich

JDM555
12-23-2009, 02:17 AM
Join the club. I think we all worry about stuff like that, even when we haven't just had surgery. It's really not all that uncommon for someone who has had recent surgery to slip and fall. I did it twice. Within the first six months of my surgery, I fell down a flight of stairs... on my back, and slipped and fell while trying to clean my hot tub. In both cases, I was sore but fine. The implants that will be used for your surgery are pretty tough, and it would take a huge amount of force to dislodge them. You may feel fragile, but you actually won't be.

--Linda
Alright. I'll keep that in mind, but hopefully I won't slip and fall.
John


John, showering isn't that bad. I was told by my doctor to use "press and seal" plastic to cover my incisions. It felt good after my first shower and shave. I was nervous, but it felt good, just worried about getting my dressings wet, but the "press and seal" took care of it.

rich
Ok. I'm sure my doctor will tell me what I have to do to shower a couple of days/weeks after surgery. I bet it would feel great to start showering after 2 weeks in bed lol.
When does the scar start to look better? For the first couple of days or weeks, isn't it all big, little blood, and ugly? When does it start to heal? A couple of months? And I guess I can't be in the sun directly, so does that mean I can't go to the beach or pool this summer? Would that affect the healing?
John

JenniferG
12-23-2009, 02:24 AM
I can answer that last bit about the sun. At six months my surgeon said I could expose my scar to the sun but not let it get burnt.

JDM555
12-23-2009, 03:15 AM
I can answer that last bit about the sun. At six months my surgeon said I could expose my scar to the sun but not let it get burnt.

6 Months....hmmmmm....By Mid May, we are going to Bahamas for a wedding, I hope that doesn't mean I have to stay in a shirt under an Umbrella and can't go swimming does it?

sarah105
12-23-2009, 07:51 AM
My scar took longer than usual to heal up because I had a problem with the internal stitches but it was still closed up by 4.5-5 weeks. I had surgery in the summer so I did spend time at the beach. I kept it covered until it was completely closed and wasn't allowed to swim until it was closed. Once everything was closed up though, my doctor didn't have a problem with me going to the beach, swimming, etc. I bought some good sunscreen and put it on religiously. I also kept a shirt over my bathing suit at least some of the time so it wasn't getting too much sun. I asked about the beach/going in the water at my 3 week appointment and he said it would have been ok if the incision were closed but since it wasn't I would have to wait. I'm sure it won't be an issue by 6 months. You just have to remember to use a lot of good sunscreen because the skin on your scar will be very sensitive.

Also, I was able to shower the day I got home from the hospital (so like a week after surgery). I bought a shower chair to use but I really didnt like showering sitting down so I ended up not using it except when I had to shave my legs. I just made sure I told someone if I was getting in the shower the first few times in case I had to call for help. If you are concerned about slipping you could get one of those rubber bath mats for inside the tub.

JDM555
12-23-2009, 04:07 PM
My scar took longer than usual to heal up because I had a problem with the internal stitches but it was still closed up by 4.5-5 weeks. I had surgery in the summer so I did spend time at the beach. I kept it covered until it was completely closed and wasn't allowed to swim until it was closed. Once everything was closed up though, my doctor didn't have a problem with me going to the beach, swimming, etc. I bought some good sunscreen and put it on religiously. I also kept a shirt over my bathing suit at least some of the time so it wasn't getting too much sun. I asked about the beach/going in the water at my 3 week appointment and he said it would have been ok if the incision were closed but since it wasn't I would have to wait. I'm sure it won't be an issue by 6 months. You just have to remember to use a lot of good sunscreen because the skin on your scar will be very sensitive.

Also, I was able to shower the day I got home from the hospital (so like a week after surgery). I bought a shower chair to use but I really didnt like showering sitting down so I ended up not using it except when I had to shave my legs. I just made sure I told someone if I was getting in the shower the first few times in case I had to call for help. If you are concerned about slipping you could get one of those rubber bath mats for inside the tub.

Thanks for your response, that helped. I will wear a shirt as much as I can and maybe go swimming when the sun starts to set (5-7PM instead of at 12) and I will use a lot of sunscreen.

And that's amazing you were able to shower the day you got home. I will try to shower 1-2 weeks after surgery depending on how I can stand/walk/move/etc. Hopefully I'll be stiff and sore, but able to move on my own. I'm just worried about returning to full time school in a month after surgery.
John

loves to skate
12-23-2009, 04:30 PM
6 Months....hmmmmm....By Mid May, we are going to Bahamas for a wedding, I hope that doesn't mean I have to stay in a shirt under an Umbrella and can't go swimming does it?

John, you really are a worry wart. Do you want some cheese with that whine? You worry about being too tall after surgery, walking, scars and falling and whether you will have to wear a shirt in the sun. Come on man, try to relax and stop worrying. Try to think about others at this time of year rather than dwell on so much negative stuff. Live is way too short and if this surgery is the worst thing you ever have to deal with, you will be one lucky man. Just some common sense advice from an old lady.

I hope this doesn't sound too mean, it isn't meant that way. Things have a way of working out without the worry. Many of us will be praying for you.

Sally

JDM555
12-23-2009, 06:18 PM
John, you really are a worry wart. Do you want some cheese with that whine? You worry about being too tall after surgery, walking, scars and falling and whether you will have to wear a shirt in the sun. Come on man, try to relax and stop worrying. Try to think about others at this time of year rather than dwell on so much negative stuff. Live is way too short and if this surgery is the worst thing you ever have to deal with, you will be one lucky man. Just some common sense advice from an old lady.

I hope this doesn't sound too mean, it isn't meant that way. Things have a way of working out without the worry. Many of us will be praying for you.

Sally

I know what you mean, but this isn't the only health problem I have, I have a bunch of things wrong with me. And just knowing I have all this crap pisses me off, so now when I have even more restrictions for this surgery, it's just even worse. I wouldn't say I'm worrying or whining, there are plenty of other people who would shit their pants just thinking about having the surgery, I don't even give a damn, I just want to make sure I don't do anything wrong, so I have a lot of questions, is it wrong to ask or is there a certain limit to how many I can ask?

And are you saying worrying about surgery is no big deal? I'm going to have a spine surgery at 19, that sure sounds like a fun procedure doesn't it? And scars, I don't care about scars, I just have questions about the healing process of it. Falling after surgery, come on, who isn't worried about that, that's definitely on my things NOT to do list. And lastly, I'm 6'4, I already get made fun of/teased being this tall, I really don't need another 2 inches. That's my opinion if I worry about my personal appearance, not yours.

hdugger
12-23-2009, 06:29 PM
I have a 21-year old son (also with scoliosis), and I think you're doing great. The countdown to the surgery is nerve-racking, from everything I've seen here. If it helps you to work through that nervousness by thinking ahead about what you need to do, I say go for it.

Best of luck on your surgery. I'm sure you'll do fine, but I absolutely understand worrying!

JDM555
12-23-2009, 06:38 PM
I have a 21-year old son (also with scoliosis), and I think you're doing great. The countdown to the surgery is nerve-racking, from everything I've seen here. If it helps you to work through that nervousness by thinking ahead about what you need to do, I say go for it.

Best of luck on your surgery. I'm sure you'll do fine, but I absolutely understand worrying!

Thank you! Just for the record, I'm not worried about surgery. I really don't mind it. It was suppose to be on the 16th, and all the way till the 14th, I was living a normal life. But it got postponed and I got mad, because I actually WANTED to have the surgery. I'm looking forward to it, it won't be fun, but long term I won't have the lower back pain I have daily now.

5 Days left for the Big Day! I wish it was tomorrow morning lol.


Update: Darn assistant said she mailed the Placard from Stanford MONDAY @ 2PM. Even if it didn't go out, it would go out tomorrow morning (Tuesday) and should of arrived by 1-2PM since it's only a 30 minute drive. It didn't come yesterday. Today, it didn't come either, there is no way an envelope takes over 2 days to come from 30 minutes away. I'll give her a call and see if she mailed it.

If I don't get it tomorrow morning and do it at the DMV, I will not be able to do it Friday, closed for Christmas. Sat/Sun they are also closed, MONDAY is the big day. I have to renew my license as well! I want to have the picture when I'm not drugged up on morphine LOL.

debbei
12-23-2009, 06:41 PM
Thank you! Just for the record, I'm not worried about surgery. I really don't mind it. It was suppose to be on the 16th, and all the way till the 14th, I was living a normal life. But it got postponed and I got mad, because I actually WANTED to have the surgery. I'm looking forward to it, it won't be fun, but long term I won't have the lower back pain I have daily now.

5 Days left for the Big Day! I wish it was tomorrow morning lol.

John,
this is the toughest part. And you have to go thru Christmas through this tough part, which probably only makes it worse. Advice from a fellow worry-wort: try not to dwell on it and make yourself crazy. It will be here before you know it and then you'll start your recovery.

JDM555
12-23-2009, 06:58 PM
John,
this is the toughest part. And you have to go thru Christmas through this tough part, which probably only makes it worse. Advice from a fellow worry-wort: try not to dwell on it and make yourself crazy. It will be here before you know it and then you'll start your recovery.

You know, I think it got pushed back for a great reason. Like it was a sign or something, I got to celebrate my brothers bday by going out to a sushi bar (Need to be over 21) and I got in no sweat (never happens) and we even went to another bar after (also, over 21) but it NEVER happens, I have the worst luck, but I guess the surgery being pushed back, and able to spend with my family/friends on their birthdays is a great sign.

Also, my mothers bday and dinner. I will also get to enjoy Christmas Eve AND Christmas and of course opening/giving of presents. So I really like the idea of 28, but I don't like how it took off 1.5 weeks from my recovery. New Years I'll be in the hospital probably sleeping lol.
John

titaniumed
12-23-2009, 07:06 PM
John,

Getting that pic shot slammed on opiates sounds like a great idea! If you were having a bad day and got pulled over, the officer would never suspect anything. LOL

Here in Nevada, you do not get your new license after the photo. They mail it to you. That's a way to make sure you have an address.

Anyway, its Christmas. No sense worrying about things. Its time for hot toddies, eggnog, Santa suits, (if that's your thing) LOL and presents! And of course, remembering how lucky and blessed we truly are.

Merry Christmas
Ed

JDM555
12-23-2009, 07:32 PM
John,

Getting that pic shot slammed on opiates sounds like a great idea! If you were having a bad day and got pulled over, the officer would never suspect anything. LOL

Here in Nevada, you do not get your new license after the photo. They mail it to you. That's a way to make sure you have an address.

Anyway, its Christmas. No sense worrying about things. Its time for hot toddies, eggnog, Santa suits, (if that's your thing) LOL and presents! And of course, remembering how lucky and blessed we truly are.

Merry Christmas
Ed
Haha seriously. I just cut my hair and I shaved, I want to take the picture tomorrow, but I guess you need an "appointment" I tried going online, says January 18, 2010 is the FIRST date lol. It's at 8 AM too. I will hopefully get my handicap placard tomorrow and try to do the License picture to knock two birds with one stone. I don't mind waiting for the license in the mail, I can use the current one if I do end up driving before the new one comes, I just really want to change the photo since on the license, it says my weight and height are....hold it.....wait for it.....waittt....



....wait...




...I said wait....



5'7 and 90lbs. Plus, I look like I am 11 years old, TOPS.

LOL So if an officer looks at it and tells me to step out and I'm 6'4 190 lbs, he'll be like...damn one HELL of a growth spurt. LOL

jrnyc
12-23-2009, 08:30 PM
Hi John
i WISH i had some of your tall..i was 5 ft 5 & a quarter...i never left out the quarter..but am now down to 5 ft 3...shrinking from curves.....& i always wanted to be tall! i know you think that you are too tall...but be grateful...think of all the things you can see over that i cant see...REALLY..i am super jealous!!! my nephew hit 6 ft 3 when he was only 16, & i am so happy for him! he is 23 now, & i always told him, there is a reason America rarely votes for short guys for president!!

i dont blame you for worrying..i would too...but just know that it will all work out...when surgery happens, you will have to surrender control to some very excellent medical staff...& just let go! you wont be incapacitated to the point of not being able to get things done...a few weeks after surgery they will probably have to tie you down to keep you from doing too much!

try to rest...worrying is exhausting!

jess

JDM555
12-24-2009, 12:29 AM
Hi John
i WISH i had some of your tall..i was 5 ft 5 & a quarter...i never left out the quarter..but am now down to 5 ft 3...shrinking from curves.....& i always wanted to be tall! i know you think that you are too tall...but be grateful...think of all the things you can see over that i cant see...REALLY..i am super jealous!!! my nephew hit 6 ft 3 when he was only 16, & i am so happy for him! he is 23 now, & i always told him, there is a reason America rarely votes for short guys for president!!

i dont blame you for worrying..i would too...but just know that it will all work out...when surgery happens, you will have to surrender control to some very excellent medical staff...& just let go! you wont be incapacitated to the point of not being able to get things done...a few weeks after surgery they will probably have to tie you down to keep you from doing too much!

try to rest...worrying is exhausting!

jess

Awesome, I hope you're right about having to tie me down. I am looking forward to spending the holidays and then having the surgery monday morning. I'll keep people updated with the Placard and after surgery. Thanks everyone.

JDM555
12-24-2009, 03:07 PM
Update:

I got my handicap placard form in the mail today from Stanford. I took it to the DMV, got the card AND renewed my license ;)

So, everything looks good. I want to wish EVERYONE a Merry Christmas Eve tonight and a Merry Christmas Tomorrow. Happy Holidays everyone!
John

jrnyc
12-24-2009, 06:54 PM
aha....no "i told you it would work out" 's from anyone....:)

ditto to you for the holidays...& to all who are praying for you...

merry merry happy happy...

jess

fierceliketiger
12-24-2009, 11:30 PM
John,
I am late getting to this topic. But, I also had my surgery young (I was 23)...my scoliosis was also REALLY low, so low that it involved reshaping my pelvis. I can attest that you should be able to walk a mile after 4 weeks, no matter if its raining or not. It sucks, its going to hurt. In fact, my surgeon's secretary summed it up for me before my surgery:
Secretary: "If you come in anytime from the time you have your surgery until the 6 week mark you will tell me to go *&@$ myself just for scheduling it. After the 6 week mark you might decide to bring me cookies."

And truthfully, until the 6 week mark, it SUCKED. After that it slowly got better until I was hiking and biking all over the place 5 months out. (yes, I had a broken rod, it was caused by a non-union, not because of activities, and because I tend to win the medical lottery, lol). I fell a few times, in fact most everyone here has a "first fall after the surgery" story, and they hurt, it jars your back...but most often it doesn't break anything, just hurts your pride. The rods that you are getting are STRONG.

My first thought when you mentioned walking to class was "How is he going to sit in class?", not "what if its too far of a walk?". I would make sure your teachers all know of your surgery (just tell them before the first class)and maybe you can get a place in the back or side of the class so you can stand when you need to.

I hope that you have a really good few days before surgery and then that you have a speedy recovery. I will be sending all my good healing vibes to you. Remember when you are going through the worst of it that this is only temporary, and you'll return to your "real" life soon enough, even if it takes 6 months or a year. Its a short period of time to make the rest of your years less painful.

titaniumed
12-25-2009, 01:26 AM
Hi Fierce,

I will agree on that 6 week mark, however we had anteriors......

John will have it much easier than us.

Good idea on sitting in the back of class with the sitting issues.

Hope things are well.

Merry Christmas
Ed

JenniferG
12-25-2009, 02:08 AM
Yes, it's the sitting, not the walking, that's hard in those early weeks. But you are young John and you will recover well and life goes on.

JDM555
12-25-2009, 02:22 AM
John,
I am late getting to this topic. But, I also had my surgery young (I was 23)...my scoliosis was also REALLY low, so low that it involved reshaping my pelvis. I can attest that you should be able to walk a mile after 4 weeks, no matter if its raining or not. It sucks, its going to hurt. In fact, my surgeon's secretary summed it up for me before my surgery:
Secretary: "If you come in anytime from the time you have your surgery until the 6 week mark you will tell me to go *&@$ myself just for scheduling it. After the 6 week mark you might decide to bring me cookies."

And truthfully, until the 6 week mark, it SUCKED. After that it slowly got better until I was hiking and biking all over the place 5 months out. (yes, I had a broken rod, it was caused by a non-union, not because of activities, and because I tend to win the medical lottery, lol). I fell a few times, in fact most everyone here has a "first fall after the surgery" story, and they hurt, it jars your back...but most often it doesn't break anything, just hurts your pride. The rods that you are getting are STRONG.

My first thought when you mentioned walking to class was "How is he going to sit in class?", not "what if its too far of a walk?". I would make sure your teachers all know of your surgery (just tell them before the first class)and maybe you can get a place in the back or side of the class so you can stand when you need to.

I hope that you have a really good few days before surgery and then that you have a speedy recovery. I will be sending all my good healing vibes to you. Remember when you are going through the worst of it that this is only temporary, and you'll return to your "real" life soon enough, even if it takes 6 months or a year. Its a short period of time to make the rest of your years less painful.

Thanks a lot for that, that helped. I hope I can last 2-3 hours in the classes I have registered for, I will keep a pillow with my so I can sit against the chairs. I will also email every teacher and talk to them face to face to let them know what happened and if they don't mind me coming to class a few minutes late or leaving a few minutes early.

The problem is on Wednesdays, I have lecture at 8:00-8:50AM and lab from 1:30-4:15PM, I don't know how I'm going to last staying on campus from 8-4:15. I guess I can go home and then return back later, but I don't want my mom or dad to go and come back, and then go and comeback 4 times a day. If I'm driving, I wouldn't want that either. So IDK what I'm going to do, I might talk to the professor and tell him that if I can get the PPT's and just do the homework from school and turn it in the morning, that would be better.
John

Hi Fierce,

I will agree on that 6 week mark, however we had anteriors......

John will have it much easier than us.

Good idea on sitting in the back of class with the sitting issues.

Hope things are well.

Merry Christmas
Ed
Yeah, Posterior would have an easier recovery. I will make sure to talk to all my professors and I'm sure they will all understand.
John

Thanks guys, and Merry Christmas!

jrnyc
12-25-2009, 06:18 AM
Is there anywhere you could rest in between...a nurse's station? i do think it would be better if you work out an arrangement with the professor....so that you dont have to hang around campus all those hours! especially in the beginning of the semester, or quarter....

hope you just relax now...this weekend is time to do just that! many people will be thinking of you on monday!

merry xmas...
jess

JDM555
12-25-2009, 05:51 PM
Is there anywhere you could rest in between...a nurse's station? i do think it would be better if you work out an arrangement with the professor....so that you dont have to hang around campus all those hours! especially in the beginning of the semester, or quarter....

hope you just relax now...this weekend is time to do just that! many people will be thinking of you on monday!

merry xmas...
jess

Hmm, nurse's station? Not sure. I have a couple of friends who have apartments near by, I want hang out there or rest/sleep/eat or something. The only problem is Wednesday, that 8-4:15 is ridiculous. It's a computer programming class, I will ask my professor if I can download the program and do the work from home because I can't last 8-4:15 in one day with my back when I need to rest. I'm relaxing nicely, had a nice time last night, so far today is good, enjoyed some really nice times with my family and awesome presents. I'm very thankful for everything. It seems so close, I feel a little nervous cause I know this time, it is 100% set for me to have surgery on Monday. Wooooh, this is going to be an interesting ride! Thanks guys
John

kt2009
12-26-2009, 01:00 PM
When I was working on my Masters I would go to the student union and just lie down on a bench. I wasn't too self conscious...most teens do it anyway! I did look a little silly log-rolling to sit up! Just twenty minutes on your back can refresh you. Even now, while I am teaching, I will occasionally go to the clinic and lie down on the bed for 15 minutes!

JDM555
12-26-2009, 01:30 PM
When I was working on my Masters I would go to the student union and just lie down on a bench. I wasn't too self conscious...most teens do it anyway! I did look a little silly log-rolling to sit up! Just twenty minutes on your back can refresh you. Even now, while I am teaching, I will occasionally go to the clinic and lie down on the bed for 15 minutes!

Ok, I'll keep that in mind. The thing is I have long classes, 3 hours or 4 hours. So if anything, I want to go lie down in the middle of class lol. I'm sure all my teachers will understand that I just had major spinal surgery and need to take breaks. But I have no idea where the nursing station is at my community college classes that I'll be taking at night (6-9) and (6-8:30), so I'm not sure. I might stay for 1-2 hours and then do the hw at home or something.

I'll find something out. Thanks though.


Update: I was suppose to get a call from the surgery admissions unit friday to confirm my date/time of my surgery, but it was Christmas, so I didn't hear anything. I guess they were closed? I tried calling many times and no one answered. I ended up calling the outpatient stanford center and talked to them to transfer me to someone to help me out. I finally got through and she said my surgery is on the 28th at 8:00 AM, so that means I have to check-in at around 6-6:15 AM monday morning. I will shower with the antibacterial scrubs the night before and the morning of. I will bring my insurance card, my ID, and enter the surgical admission unit which is on the second floor.

Any more tips? I know no eating and all that good stuff.

What about clothes, something comfortable. Like some stretchy shorts/sweats and a t-shirt or something? I'll get slippers as well. I'll wear long socks to keep my feet warm. Anything else?

rich1752
12-26-2009, 03:03 PM
take something that is easy to take off. I was taken back to the pre-op room along with 8 others. I was given a gown and booties and told to take everything off. My surgery was scheduled for 8am, so had to be there at 6:15am. They give you a warm blanket to put you at ease. They will hook you up with all these electrodes to monitor all your senses during the surgery and hook up the IV. They will explain the procedure and have you sign the permission slip. About an hour later they rolled me into the operating room. I don't remember anything after about 10 minutes at arriving at the operating room. It was lights out! Next thing I remember was waking up in post -op. It happened so fast. Mine was 12 hours long.

rich

jrnyc
12-26-2009, 03:12 PM
How close are your friends' apartments? cause that sounds as if they could be there for you, day or nite....whereas you dont know if the nurse's station is open at nite...

any kind of surgery, you need easy on & off clothes...zippers in the front are good, cause you dont know if you'll be able to raise your arms easily....loose clothing, the looser the better...easy on slippers or shoes, even if there is someone there to help put them on for you....are you bringing a warm robe for your days in the hospital?

tomorrow nite is time to relax...all you could do will be done!
prayers are going out for you for your surgery & healing....it is time to let the medical people take over...trust them, trust your surgeon, & have faith that all will be OK..the rest of your life is waiting for you to be healthy & happy....

blessings to you, john, & best of luck
jess

JDM555
12-26-2009, 04:17 PM
take something that is easy to take off. I was taken back to the pre-op room along with 8 others. I was given a gown and booties and told to take everything off. My surgery was scheduled for 8am, so had to be there at 6:15am. They give you a warm blanket to put you at ease. They will hook you up with all these electrodes to monitor all your senses during the surgery and hook up the IV. They will explain the procedure and have you sign the permission slip. About an hour later they rolled me into the operating room. I don't remember anything after about 10 minutes at arriving at the operating room. It was lights out! Next thing I remember was waking up in post -op. It happened so fast. Mine was 12 hours long.

rich
Hey Rich, I will take some shorts and sweats that are easy to take off/get in. I'll also take a large sweater with a zipper. I also have slippers to wear and long socks to keep my feet warm. I'll be there at 6-6:10 AM since mine is also 8AM. I might be really nervous while I'm waiting there and about to go in, I hear they give you something through the IV if i'm nervous to calm me down. I don't think I will panic though lol. I remember I had to go under for a nose surgery when I was younger, and I go in, counted to 10 and before I knew it, it was like 6 hours later at night and I was back in the room recovering, crazy!
John


How close are your friends' apartments? cause that sounds as if they could be there for you, day or nite....whereas you dont know if the nurse's station is open at nite...

any kind of surgery, you need easy on & off clothes...zippers in the front are good, cause you dont know if you'll be able to raise your arms easily....loose clothing, the looser the better...easy on slippers or shoes, even if there is someone there to help put them on for you....are you bringing a warm robe for your days in the hospital?

tomorrow nite is time to relax...all you could do will be done!
prayers are going out for you for your surgery & healing....it is time to let the medical people take over...trust them, trust your surgeon, & have faith that all will be OK..the rest of your life is waiting for you to be healthy & happy....

blessings to you, john, & best of luck
jess
Well, my campus is pretty big, it's spread out. My friends are across the street, so if I need to take a break, I can go hang out there for a little bit. It's not too far of a walk, after all, walking is good for my recovery so I'll take my time getting there. If I have a break, it's a couple of hours so I'm in no rush. That is for morning/afternoon classes, I'm also taking 2 night classes during the week at a Community college. I will probably get dropped off the first two weeks or three since I don't want to walk too much in the dark. It's 6-9 and 6-8:30, I doubt there is a nursing station at that time, I will have a pillow, and pain meds in case I am in trouble. If I can't handle the pain, I will go home, one class is a GE and one is a Calculus class I already took before, hopefully not much HW is assigned.

As far as clothes, I'm bringing a couple of things. Slippers, sweater, sweats, shorts, long socks, and MAYBE a robe.

I will for sure relax tonight, having some friends coming over to hang out. Tomorrow I will go to church nice and early and take communion, and say a prayer to help me with surgery on monday. And monday morning at 6, I'll be checking in. I have a good feeling about this, thanks for the prayers!
John



OH MY GODDD!!! MY SURGERY IS IN 2 DAYS@!!! I'M PANICKING!!!! J/k lol

sarah105
12-26-2009, 10:44 PM
Good luck with your surgery. In my opinion, the slippers and robe were the most helpful for me. I brought a few pairs of pj/sweat pants and t-shirts but I didn't wear any of them until my last day in the hospital. It was uncomfortable for me to have anything under my back like a wrinkle in the shirt or the band of the pants so I just wore the hospital gown. Also, between the IVs, the catheter, the drain, and whatever other wires were attatched to me, it would have been nearly impossible to wear anything but the gown for the first few days at least. The robe and slippers were good for when I took walks. I also brought a soft throw blanket from home which was great because it was soft and much more comfortable than the hosptal blankets. My ipod was also nice to have. I couldn't really focus on much but the music was nice when I was resting since hospitals never get especially quiet.

If possible, I would also suggest having someone there with you most of the time. You will be pretty out of it so it is important to have someone there to communicate with the Drs and nurses and to make sure you are getting the meds you need at the right times.

Good luck preparing. It sounds like you will be pretty busy so thats good. I was suprisingly calm the morning of the surgery. I think I was just ready to get it over with!

JDM555
12-27-2009, 04:38 PM
Good luck with your surgery. In my opinion, the slippers and robe were the most helpful for me. I brought a few pairs of pj/sweat pants and t-shirts but I didn't wear any of them until my last day in the hospital. It was uncomfortable for me to have anything under my back like a wrinkle in the shirt or the band of the pants so I just wore the hospital gown. Also, between the IVs, the catheter, the drain, and whatever other wires were attatched to me, it would have been nearly impossible to wear anything but the gown for the first few days at least. The robe and slippers were good for when I took walks. I also brought a soft throw blanket from home which was great because it was soft and much more comfortable than the hosptal blankets. My ipod was also nice to have. I couldn't really focus on much but the music was nice when I was resting since hospitals never get especially quiet.

If possible, I would also suggest having someone there with you most of the time. You will be pretty out of it so it is important to have someone there to communicate with the Drs and nurses and to make sure you are getting the meds you need at the right times.

Good luck preparing. It sounds like you will be pretty busy so thats good. I was suprisingly calm the morning of the surgery. I think I was just ready to get it over with!

Thanks, I'll try to take someone else's robe because I don't have one. the thing that sucks is, I woke up this morning with a sore throat :(. That is not a good sign. I don't have sneezing/running nose/throwing up/etc. So I don't think it's a cold/flu or something serious. Should I tell the surgeon tomorrow? I don't want to run the risk of having the surgery cancelled.

I ate some chewable Vitamin C and took a multivitamin. I asked the head nurse and she said Vitamin E is excluded the week of surgery if it's a lot. It was like 400 (forgot the units) and my multi is 200, so she said it was fine. I got some theraflu/daily so it's not drowsy so it wouldn't knock me out for 12 hours lol. Is it ok to drink theraflu now or should I not risk it? What about taking Zinc tablets? 50mg?
John

LindaRacine
12-27-2009, 04:50 PM
Thanks, I'll try to take someone else's robe because I don't have one. the thing that sucks is, I woke up this morning with a sore throat :(. That is not a good sign. I don't have sneezing/running nose/throwing up/etc. So I don't think it's a cold/flu or something serious. Should I tell the surgeon tomorrow? I don't want to run the risk of having the surgery cancelled.

I ate some chewable Vitamin C and took a multivitamin. I asked the head nurse and she said Vitamin E is excluded the week of surgery if it's a lot. It was like 400 (forgot the units) and my multi is 200, so she said it was fine. I got some theraflu/daily so it's not drowsy so it wouldn't knock me out for 12 hours lol. Is it ok to drink theraflu now or should I not risk it? What about taking Zinc tablets? 50mg?
John
I doubt there's any problem with taking Theraflu or zinc (as long as you don't take anything after midnight), but you're definitely going to need to tell the medical staff if your throat is still sore tomorrow. It would be awful to have your surgery postponed after everything, but you don't want to take a risk of complications. If you're running a fever, or if your throat is sore, the anesthesia staff will be able to detect it anyway.

--Linda

JDM555
12-27-2009, 05:56 PM
I doubt there's any problem with taking Theraflu or zinc (as long as you don't take anything after midnight), but you're definitely going to need to tell the medical staff if your throat is still sore tomorrow. It would be awful to have your surgery postponed after everything, but you don't want to take a risk of complications. If you're running a fever, or if your throat is sore, the anesthesia staff will be able to detect it anyway.

--Linda

Ok, I took 30mL (Serving) of Theraflu. I asked the assistant cause I had a sore throat a couple of days before the Dec. 16 appt, and she said theraflu or other medication for flu/cold is fine. Zinc, I didn't see it as one of the "stay away from" ingredients on the sheet. I am drinking a lot of lemon juice and eating vitamin C. I really hope I wake up better than today. If I do have a sore throat, do you think they would cancel surgery just over that? I have no watery eyes, running nose, coughing, red eyes, etc. I feel 100% fine, it's just the sore throat, I would hate to have it cancelled.

jrnyc
12-27-2009, 06:06 PM
have you tried gargling with salt water? do you have cepacol lozenges? sometimes a sore throat is just a sore throat, & nothing else..

i am praying that this disappears overnite & that you are fine in the morning...early, early... as i know you have to be there at the crack of dawn!...worrying about it is not going to help, but i bet you cant help it! please try to let go...it is really out of your hands now...you have done everything you can for your throat...try to get some rest...go to bed..if you have everything packed for tomorrow, there is nothing left but prayer...& i know i am not the only one saying prayers for you now...

best of luck for the go ahead for surgery tomorrow...& best of luck on a successful outcome...

peaceful dreams...
jess

LindaRacine
12-27-2009, 06:06 PM
Ok, I took 30mL (Serving) of Theraflu. I asked the assistant cause I had a sore throat a couple of days before the Dec. 16 appt, and she said theraflu or other medication for flu/cold is fine. Zinc, I didn't see it as one of the "stay away from" ingredients on the sheet. I am drinking a lot of lemon juice and eating vitamin C. I really hope I wake up better than today. If I do have a sore throat, do you think they would cancel surgery just over that? I have no watery eyes, running nose, coughing, red eyes, etc. I feel 100% fine, it's just the sore throat, I would hate to have it cancelled.

If you don't have a fever, I'm guessing they'll go ahead with the surgery.

--Linda

spinalfusion09
12-27-2009, 06:40 PM
Hi John! Just wanted to wish you all the best for you tomorrow and you'll be in my prayers! I know that it's probably feeling really weird that it's already here. It was really super surreal for me when my surgery date came. But you're gonna do great!!!!! Keep us posted once you're feeling up for it :} And what a way to ring in the new year with a new back :}
Sincerely,
Maliha

JDM555
12-27-2009, 06:41 PM
have you tried gargling with salt water? do you have cepacol lozenges? sometimes a sore throat is just a sore throat, & nothing else..

i am praying that this disappears overnite & that you are fine in the morning...early, early... as i know you have to be there at the crack of dawn!...worrying about it is not going to help, but i bet you cant help it! please try to let go...it is really out of your hands now...you have done everything you can for your throat...try to get some rest...go to bed..if you have everything packed for tomorrow, there is nothing left but prayer...& i know i am not the only one saying prayers for you now...

best of luck for the go ahead for surgery tomorrow...& best of luck on a successful outcome...

peaceful dreams...
jess

Good Idea! I will gargle with salt water right now and before I sleep. I took 1 500mg tablet just now after my meal, I will take another one after dinner (8 or 9) and then right before I sleep (10ish) I will take another 25-30ml of theraflu or drink the lemon packet theraflu, either one. I hope it all works out. It's just the flu, no nose problems, eye problems, coughing problems. I hate this surgery, planning it is harder than the damn recovery lol.

And everything packed for tomorrow, should I have my parents hold a little bag with all my stuff or will they keep everything in the room I am in when they hook up all the wires for me and such.

So far, I have sweats, cotton shorts, a large t-shirt, zip up sweater, sandals, iphone/laptop/charger/earphones, and I'll try to get a robe.

Sound good? Am I missing anything?


If you don't have a fever, I'm guessing they'll go ahead with the surgery.

--Linda
I hope, I had a slight headache this morning and after taking the theraflu, I think it made me a little dizzy/light headed ( I was already tired this morning, not a good night for sleep last night) and this thing has 10% alcohol with all the ingredients, I think it made me a little more....exhausted. I will definitely sleep at like 9-10 tonight cause I'm dying of sleep right now.
John

JDM555
12-27-2009, 06:43 PM
Hi John! Just wanted to wish you all the best for you tomorrow and you'll be in my prayers! I know that it's probably feeling really weird that it's already here. It was really super surreal for me when my surgery date came. But you're gonna do great!!!!! Keep us posted once you're feeling up for it :} And what a way to ring in the new year with a new back :}
Sincerely,
Maliha

Thanks a lot Maliha! I appreciate the kind words. It does feel weird, I remember I have a big day tomorrow, but then it just goes back to being a regular boring day, then sometimes I stop and think, oh crap, I'm going to get my back cut open tomorrow! Lol. I just hope no problems with insurance/sore throat/etc. cause me to postpone the surgery, I already waited the extra 12, I don't want to wait an additional 5-6 months for summer. I want to get this over with!
John

fierceliketiger
12-27-2009, 11:20 PM
John-
Good luck tomorrow! I know you will do great. I am sure you probably won't read this until after you have joined us in the metal back club, but I will be thinking of you tomorrow. Work hard in PT, and just do your best. You'll be fine.

Titaniumed-
You are right. I had thought I had skimmed this post pretty well, but I missed that. Also, I had the osteotomy and the rebuilding of the sacrum...
I'm glad he doesn't have all that stuff to deal with!

JDM555
12-28-2009, 01:04 AM
John-
Good luck tomorrow! I know you will do great. I am sure you probably won't read this until after you have joined us in the metal back club, but I will be thinking of you tomorrow. Work hard in PT, and just do your best. You'll be fine.

Titaniumed-
You are right. I had thought I had skimmed this post pretty well, but I missed that. Also, I had the osteotomy and the rebuilding of the sacrum...
I'm glad he doesn't have all that stuff to deal with!

Hey, I got it. I'm about to go to sleep now, thanks for everything guys. I just hope I will end up getting the surgery even with my sore throat, but it doesn't look too good, it's hurting a lot now.
John

JenniferG
12-28-2009, 02:25 AM
I hope I'm not too late with this. Perhaps you will come online before you leave in the morning? Anyway, I just wanted to wish you the best tomorrow. You are nearly over the worst part - the waiting! I hope you are thrilled with your new back and have an easy recovery. Good luck John!

JDM555
12-28-2009, 05:43 AM
Oh man this sucks. I woke up at 3:15am cause of the sore throat. I've never had a sore throat this bad or painful in my LIFE. Why does this happen to me?doesn't look like surgery is going to happen now, worst luck EVER! I already had it postponed once, and now it looks like it's going to happen again. Looks like I'll have to reschedule in may or something. Darn this sucks.

sillycoffeegirl
12-28-2009, 09:15 AM
drink some emergenC. That might help you. Im sorry man. I am also trying to stay healthy, during this season it is hard.

52skeedoo
12-28-2009, 01:47 PM
I just got on the forum after a week or so of vacation and realized that today is the day for your surgery. Since your last post about waking with a terribly sor throat was very early this AM and it is now mid-afternoon, I'm hoping that you are having your surgery right now and all is going perfectly.

Sheri

Doodles
12-28-2009, 01:51 PM
John,
Since we haven't heard more from you, I hope they went ahead with surgery and you're on your way to a better back. Best of luck to you! Janet

scoliosisdoctor
12-28-2009, 03:43 PM
Hello, I can understand your concerns about having spine surgery and I'll be happy to address them.
I consider Minimally Invasive Spine Surgery techniques to be the answer. Smaller incisions, less blood loss, less risk, quick recovery, minimall discomfort - patients usually only taking Tylenol after the first week or so, No ICU - Intensive Care Unit post surgery, and you will be standing up straight.
I also do second opinions using phone, internet and reviewing x rays, there is a lot of information about minimally invasive techniques and information about second opinions.
A minimally invasive procedure can straighten out your spine and eliminate your pain.
http://tinyurl.com/getasecondopinion

hdugger
12-28-2009, 03:53 PM
I'm deeply suspicious of any surgeon claiming to be able to eliminate pain. There is just no way to guarantee that result.

Pooka1
12-28-2009, 04:10 PM
He's saying it can eliminate pain and that is certainly true. I don't think he is saying he is guaranteeing it.

You're right that no surgery is guaranteed to eliminate pain, not even the "nervectomy" cases in horses and such where the purpose is to severe the nerve to prevent pain. I am told the nerve almost always grows back and the operation needs to be redone. Nerves are amazing.

JenniferG
12-28-2009, 04:17 PM
I hope your surgery went ahead John and by now is probably nearly done and dusted. No news is good news right now, I guess.

hdugger
12-28-2009, 04:21 PM
"Eliminate" is a very strong word - somewhat akin to "cure." "Straighten" is a good qualified word. I'd feel more comfortable with an equally qualified word for the expected effect on pain - relieve? reduce?

Pooka1
12-28-2009, 04:26 PM
He said surgery "can" eliminate pain.

That is a true statement.

Is it guaranteed to do so? No.

hdugger
12-28-2009, 04:33 PM
He said surgery "can" eliminate pain.

That is a true statement.

Is it guaranteed to do so? No.

I understand the nuance, but I would still be more comfortable with someone stating the likely outcome of surgery, and not simply a possible outcome. I suppose I like conservative surgeons.

Sorry, John, returning you to your thread. Best of luck!

Vali
12-28-2009, 06:32 PM
Hope your sore throat was nothing major and that your surgery went as scheduled. Best wishes of a good correction and speedy uncomplicated recovery.

LindaRacine
12-28-2009, 08:14 PM
I'm deeply suspicious of any surgeon claiming to be able to eliminate pain. There is just no way to guarantee that result.

This is similar to this post:

http://www.scoliosis.org/forum/showpost.php?p=87819&postcount=3


But, anecdotal is good enough for a disorder which never reverses on its own. It is proof that scoliosis *can* be reversed through non-surgical means, even though there is not enough information yet to show exactly how it was reversed.

As far as I know, no adult has completely reversed their scoliosis curves. In fact, it's rare that anyone gets even a 50% improvement, even in the short-term.

--Linda

Radiogirl
12-28-2009, 08:33 PM
John,

My prayers and thoughts are with you!!! I hope all went well today and you are resting and preparing for your new job of healing!!!

Laura

JDM555
12-28-2009, 08:49 PM
Ohhhh man what a day. I'm in recovery right now. Surgery went fine and they said the fifty three curve is down to around fifteen degrees. My back feels really sore and achy. But I'm thankful for the surgery to be successful. I'm so tired n I'll keep you guys updated thanks guys.
John

LindaRacine
12-28-2009, 08:51 PM
Ohhhh man what a day. I'm in recovery right now. Surgery went fine and they said the fifty three curve is down to around fifteen degrees. My back feels really sore and achy. But I'm thankful for the surgery to be successful. I'm so tired n I'll keep you guys updated thanks guys.
John

This has to be a record. I've never seen anyone post anywhere nearly this early postop. Congratulations!

mbeckoff
12-28-2009, 09:11 PM
You must be so happy to have the surgery over and getting ready to start on the next part of your recuperation

Way to go!

Melissa

hdugger
12-28-2009, 09:15 PM
The difference is:

* between "it's possible" (what I was saying) and "it's likely" (what Dr. Anand seemed to be suggesting)
* between a forum participant gathering data points and a practitioner explaining results people might expect.


This is similar to this post:

http://www.scoliosis.org/forum/showpost.php?p=87819&postcount=3


But, anecdotal is good enough for a disorder which never reverses on its own. It is proof that scoliosis *can* be reversed through non-surgical means, even though there is not enough information yet to show exactly how it was reversed.

As far as I know, no adult has completely reversed their scoliosis curves. In fact, it's rare that anyone gets even a 50% improvement, even in the short-term.

--Linda

Doodles
12-28-2009, 09:48 PM
You're kidding! Wow, I agree with Linda--that's a big-time record. I couldn't even sit to do computer for weeks, let alone to have a non-fuzzed brain that could barely read! Ahhh--to be young! Wonderful news. Janet

titaniumed
12-28-2009, 09:56 PM
I agree, this has to be a record!

Hang in there John. Congrats!

I'm still waiting for someone to text the forum during surgery. I guess the only possible way that would happen would be using acupuncture, in China.

Ed

sheri66
12-28-2009, 10:20 PM
What can I say other than wow.....I was in ICU for the first day, I don't really remember much for a couple days.And I did not want nothing to do with a computer for about 2 months.I guess you recover quick when your young.I hope your recovery remains speedy.Best of luck to you.

JenniferG
12-28-2009, 11:33 PM
Good grief, is that really you John?

I couldn't even open my eyes for the first 12 hours. They were swollen shut so even if I wanted to get online, which I didn't, I wouldn't have been able to.

I'm amazed. John, rest!

spinalfusion09
12-29-2009, 12:14 AM
Wow John!!!!1 Get some rest!!!! All I did on my computer at the hospital was watch movies and fall asleep! Such a trooper! God Bless you and I'm glad you're doing well :} And the soreness will go away eventually :}
Maliha

Vali
12-29-2009, 12:41 AM
Crikey! feels like i just posted you 'best wishes' for your op. That was fast....
Take it easy. Must be some juice they gave you!

jrnyc
12-29-2009, 01:57 AM
Hi John
wow..congratulations...santa gave you your wish..you had your surgery!

rest, heal, feel better day by day...& dont do too much too soon!

happy for you..
jess

JDM555
12-29-2009, 12:57 PM
Haha hey guys. Yeh I woke up about an hour after surgery. I had plenty of guestsso that helped. I am using iPhone not the laptop right now. My back is soo sore but as much pain I was in before surgery this isn't too bad. The doctor said the surgery went pretty much perfect. I needed fusion from t9-l3 so I saved l4-5. I want to go home soo bad this bed sucks. And I have a bad headache and i need to eat. I'll keel you guys updated. Thanks for everything guys.

spinalfusion09
12-29-2009, 02:32 PM
Thats so cool that you can use your phone! That'll help a lot! And the worst part of the hospital for me was when they sat me up the first time because my blood pressure went up really fast and then I got super dizzy so once that is over its all good. It might be better for you though everyone's different. :} Sleep well!!!!!
Maliha

JenniferG
12-29-2009, 02:37 PM
You seem to be doing wonderfully well, John. I bet you're glad that surgery went ahead and now it's over. All you have to do now is rest and recuperate.

I too was hungry from Day 2. My surgeon was surprised but said if I'm hungry, I can eat...a full diet. Big mistake in my view. I questioned it at the time but was given the go-ahead. I thought, "Dr. knows best!" LOL. Big mistake. I should have started off on liquids, clear soups and jellies. I blame my horrible constipation for 9 days and bad tummy pains (plus very painful indigestion, which I'd never experienced before in my life) on going straight onto a full diet.

Just a friendly warning!

Now, please rest!

debbei
12-29-2009, 04:34 PM
Haha hey guys. Yeh I woke up about an hour after surgery. I had plenty of guestsso that helped. I am using iPhone not the laptop right now. My back is soo sore but as much pain I was in before surgery this isn't too bad. The doctor said the surgery went pretty much perfect. I needed fusion from t9-l3 so I saved l4-5. I want to go home soo bad this bed sucks. And I have a bad headache and i need to eat. I'll keel you guys updated. Thanks for everything guys.

Good Lord--I don't think I would have been able to SEE the iPhone when I was in the recovery room! It's your young blood :) Hope you feel better soon.

Suzy
12-29-2009, 05:08 PM
Heh Heh, I TOLD you you were going to do well!!! I just know the rest of your recovery is going to go smooth. Keep on breaking all the time lines on each milestone and you will be better then your old self sooner then you think! Big hugs to you John, sending good thoughts your way. Suzy

mixasu
12-29-2009, 05:15 PM
Seeing you respond so quickly makes me feel a little better about my surgery on Monday. Glad to see that you're doing well !!

JDM555
12-29-2009, 05:39 PM
Ooh thanks guys. They had the PT come like thirty minutes ago and that wasnt fun. I definitely got taller so I'm About 6'5 :(. The bad thing is my heartrate was way to high. Just resting in bed I'm at 120 and when I got out of bed it jumped to 140-150. So I'm a little worried about that. Is there anything to do now besides rest? I was a little lightheaded when I got up.
John

JenniferG
12-29-2009, 05:50 PM
"Is there anything to do now besides rest?" You could sleep! That's about it for a few days, which is obviously going to be a little frustrating for you, haha! Aren't the drugs making you drowsy? Is your family there to keep you company while you try not to jump out of your skin?

You've certainly taken this surgery in your stride, I'm amazed. The heart rate should settle and they will keep an eye on it, so try not to worry. I am quite sure you're in good hands.

rich1752
12-29-2009, 07:38 PM
John, I had the same problem with my heart rate. They ended up giving me two units of blood. I jumped to 160 also. Pain also maks it jump up. It settled down after a while, but I was worried about it also. I wanted to come home, but was scared they wanted to keep me there to monitor my heart rate.

rich

jrnyc
12-29-2009, 07:41 PM
ummm hummmph! didnt i tell you they would have to tie you down to stop you from doing too much...

rest, rest & more rest...the body uses energy to heal! and you have lots of healing to do! can you get a portable dvd player? watch some movies...listen to a book on tape...talk on the phone? seriously, sounds like you are hyper & feel like the equivalent of cabin fever! i know that feeling...the feeling that you need to do something but there is nothing you really need to do? hmmm..now might be a good time to take up meditation!!

hope you can get some sleep & save your energy for healing!

jess

naptown78
12-29-2009, 08:00 PM
I'm so jealous! When I was in the hospital all I wanted to do was push the pain button and SLEEP!!! Even when I got back home, when I got on my blackberry to email I wasn't making much sense due to the pain meds.....I guess that's what 30 years will do for ya :-)

LindaRacine
12-29-2009, 08:21 PM
I wonder if John has an epidural catheter. My pain control wasn't anywhere near enough for me to feel like typing (or anything else).

--Linda

fierceliketiger
12-30-2009, 09:45 AM
Wow John, you are doing great! I wouldn't worry too much about the heartrate thing. Mine went up too, but it topped out at 190...and though I am a little overweight, I have a really good resting, and actually, really great active heartrate as well.
PT does suck, but it helps everything in the long run. I know you feel like you should be doing something. Sleeping is good, I taught myself to crotchet just before the surgery, and after I got home to keep at least my hands busy (and my mind when I was just starting). I know most guys aren't really into crotcheting, but maybe there is another craft you can try. The library at my hospital also had a bunch of crafts and movies they could bring to me (let alone books). Maybe send a scout (ie. family) up there to check it out?

lapieper
12-30-2009, 12:13 PM
Way to go, John! Keep up the good work. And know there will good and bad days. You only have to take it one day at a time. My blood pressure was low, very low. I passed out on the day before I was scheduled to go home. Didn't change a thing. Went home as planned. Just didn't do anything too fast, didn't want to pass out again!

Sleep and rest lots. That's when you heal. And you have a lot of healing ahead of you!

mbeckoff
12-30-2009, 12:28 PM
John,

I really don't know you but you are an inspiration to me .

I am having surgery at the end of Feb/middle of March and I am so glad that I found this Forum.

People have been wonderful to me in answering my questions and all.

continue to get better and REST !!!

Melissa

JDM555
12-30-2009, 01:42 PM
Ehhh I don't feel that great. Heart rate is over 115 resting. My pain is starting to get out of control. I got the iv taken out and ok om percocets which aren't making mr that comfortable. I am very lightheaded I can barely sleep on my back so I have to sleep on my side and both hips are killing me. Food is horrible and I feel like crap. Uhdjjjjdjjj I hate hospitals.

titaniumed
12-30-2009, 02:04 PM
John

There is a BIG difference between the injectables/iv and Percocet which you are seeing right now. I did the switch at home, and that was tough.The first day was hell. Its a good idea that they did that at the hospital with you.

Try to hang, its something that you will get through and believe that it will get better every day. Your body is going through major changes right now. Rapid healing takes energy, so keep eating, and try to sleep.

I feel that this stage is the hardest part of scoli recovery.

Are you completely hose free? Any drains?

Ed