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View Full Version : Tracking Curves Over Many Years



LindaRacine
08-07-2009, 11:37 PM
Hi...

A German scoliosis specialist is interested in studying progression of idiopathic scoliosis and adult degenerative scoliosis, over time. I've been asked if I can find individuals that fall into the following criteria:


1) Have idiopathic scoliosis or adult degenerative scoliosis
2) Have scoliosis films over at least a 20 year period
3) Films should cover time periods that would make sense in a study (e.g., every 5 years or better)
4) Never had surgery, or did not have scoliosis surgery until adulthood
5) Are willing to let us borrow the films for the purpose of copying them (and potentially publishing them).
6) Participants may be asked to answer a short questionnaire.

I feel that this is an important study. If we get enough participants to actually undertake this study, it should be quite helpful to adults in making the decision about whether or not to proceed with surgery.

We don't have the logistics worked out yet, but if you meet the criteria, please send an email to me at linda @ scoliosislinks.com (without the spaces). I'll be in touch once I know we can find enough individuals to make the study meaningful.

Thanks!

Regards,
Linda

Pooka1
08-08-2009, 07:49 AM
I agree that would be very a very valuable study!

There are plenty of folks who had scoliosis for years but may not have known (relevant to self-reported twins studies BTW) or told they didn't have to worry about it and therefore don't have radiographs over time.

But hopefully they will get a critical mass of people for this study.

LindaRacine
08-16-2009, 10:48 PM
Moving this up to be sure it's being seen by folks. I haven't heard from anyone yet. :(

--Linda

titaniumed
08-17-2009, 02:30 AM
Linda

Parting with past x-rays and sending them off to Germany with the possibility of losing them, isn't easy to do.

I'm a possible, but my Chiro has all my films back to 1987, and I still need to go see him at some point.

If I can scan them on a large scanner, I would do it. This will have to wait as I'm off to Hawaii, and wont be back till 09/15. I still need to thank Geish for the idea...... unfortunately, I wont see her out there.

Regards
Ed

LindaRacine
08-17-2009, 09:46 PM
Linda

Parting with past x-rays and sending them off to Germany with the possibility of losing them, isn't easy to do.

I'm a possible, but my Chiro has all my films back to 1987, and I still need to go see him at some point.

If I can scan them on a large scanner, I would do it. This will have to wait as I'm off to Hawaii, and wont be back till 09/15. I still need to thank Geish for the idea...... unfortunately, I wont see her out there.

Regards
Ed

Thanks Ed. For the record, the films will be copied here in SF.

Aloha!

always smilin'
08-17-2009, 10:23 PM
Sorry...I don't fit the criteria I don't believe

Susie*Bee
08-18-2009, 05:14 AM
Ditto here, Linda... I don't fit. Just letting you know it's being seen. I read it when it was first posted.

JenniferG
08-18-2009, 03:24 PM
Unfortunately my earliest films are 2008!

I hope you get some "takers". It would be a useful study.

LindaRacine
08-19-2009, 09:07 PM
Thanks for letting me know.

If anyone thinks they MIGHT qualify, but have questions, please send me an email.

--Linda

loves to skate
08-21-2009, 08:19 PM
Hi Linda,
I never knew I had a scoliosis until more than a year after disaster struck. I tried to get copies of an x-ray I had 20+ years ago and no luck, it had been destroyed. Since managed care, Doctors were discouraged to do x-rays for back pain. Even when I went to the ER by ambulance with severe pain, all I got was a shot of Demerol and a prescription for Percocet. Good luck getting enough people like myself with degenerative scoliosis.
Sally

LindaRacine
08-27-2009, 01:47 PM
Getting this up to the top again.

Where are all those folks who have huge packets of xrays?