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View Full Version : Any advice for an upcoming surgery???



scurve4947
04-01-2009, 01:13 PM
Hi everyone,

I am new to the forum but have been reading everyone's posts. I must say I feel a little out of place because of my age. I am only 23 so I am not qualified as a child patient but I am still a young adult so I am hoping my recovery will go quickly. It is hard to gauge what I should expect by reading all the posts. The kids go really quickly and the adults vary on recovery times. Does anyone out there have any advice for someone my age?

Also, I am wondering about my flexibility afterwards. I am worried that I will feel "crooked" once my spine is straight since I am so used to being curved . Did anyone else feel that way or can someone explain what they felt like in the weeks following surgery?

Thanks for any advice you have to give,

Allison:)

summer
04-01-2009, 06:09 PM
Hi,
It really depends how much of your spine you have to have fused & how bad your curves are. Every patient is different also.

scurve4947
04-01-2009, 11:02 PM
I'm not sure yet what I will have fused. I just went for my planning x-rays last week so I will find out a little closer to the surgery date what they will be doing. I am kind of nervous but I think things will be better than they are now. I am in constant pain and am sick of it. Anything I should be doing to prepare? Exercise? Things to buy?

rainbow2010
04-02-2009, 06:26 AM
To get ready, make sure your legs are strong and flexible. You will use them a lot to make up for your back. As for other things to get ready - do you live at home or by yourself, or are you married? You really need someone around for the first week you are home. Having short hair will help with your postop showers. You will also need a chair in the bathroom as you will probably feel like you are going to pass out after 5 minutes in the shower (for the first couple). You really need someone around while you are in the shower. We used saran wrap to cover our inscisions when we showered. On to better things! Have your favorite comfort foods in the house. If you are responsible for cooking your own meals, cook and freeze your favorite dinners (if you have room, do up to a months worth). If someone offers to clean for you or do your laundry, let them. It will take you probably a month to get your energy back to 90%. My daughter was 14 when she had her surgery and when she went back to school in the fall, she would come home and take naps. I remember when I had mine, I would tire out quickly. Good luck!:D

sarah105
04-02-2009, 04:35 PM
Hi Allison,
I don't really have any advice since I haven't had the surgery yet myself, but I figured I would check in. I am 20 and will be having surgery on June 1st. My surgeon has told me that my recovery will probably be more similar to a pediatric patient's than to an older adult's because of my age. He has also said that I should definitely be ready to go back to college in the fall. Hopefully he is right! Do you know when you are having surgery?
-Sarah

scurve4947
04-03-2009, 12:12 AM
Yes, my surgery is May 18. I was told the same thing about recovery so hopefully he is right. I am supposed to start nursing school in January so I hope that I am back to normal by then. Are you nervous? I am. I am ready to get it over with...

jesscv
04-03-2009, 12:48 PM
Allison,
I am close to your age (25) and just had the surgery on March 25. I had a posterior fusion (T2-L1) and was released from the hospital April 1. Honestly... it wasn't nearly as bad as I thought. The waiting part is sooooooooo much worse. I am not even in much pain when I'm taking my meds... just get a bit uncomfy/stiff when trying to sleep. I have a blog about my surgery, also will post pics soon. e-mail me w/ questions jesscv@gmail.com as I don't get on here often.

scurve4947
04-07-2009, 04:14 PM
Hi Jesscv,

How do I reach your blog? I'm just curious what you are writing!

Thanks!

scurve4947
04-07-2009, 10:14 PM
Jess,

You are freakin hilarious! You have certainly brightened my spirits about this whole thing. As you can understand, I am definitely nervous. Reading stuff like this makes me feel so much better!

I hope you are feeling better in your post op days.

cactigirl96
04-09-2009, 05:28 PM
im only 12, but i read in many scoliosis surgery stories in a book that the ones who exercised often had the fastest recovery. you should stay fit and healthy before your surgery

~*Hannah*~

Rodsmom
04-12-2009, 07:38 PM
Our doctor provided a video of things to prepare for at home but they have way better advice here on this site. If you live alone make sure you are stocked up on easy food, no prep necessary. We did learn that you get the bathroom in order. Do you need a lifted toilet seat, bars in and around the tub/shower, shower seat? Non slip strips on the bottom of the shower/tub. Seran and medical tape for the showering thing (was thinking that maybe a apron like they put on at the hair salon only backwards might work to keep water off - but do not know if it would work) long hair is a pain. My daughter was in no shape for the first couple of showers to tackle the shower alone. I worked fast and furious to get it done. I also had everything lined out and got her to the bed to lay down right away. We would have done better had we known how to "log roll" and sit up swinging the legs over the edge of the bed before surgery. She is a pro at it now~ hopefully this helps... :) and P.S. DO NOT OVERDO IT!

52skeedoo
04-13-2009, 10:01 AM
Allison--

I haven't had my surgery yet but I the following link looks really good to me:
http://www.scoliosislinks.com/PreparingforSurgery.htm

Jesscv --

Thanks for your blog. It's hilarious and very helpful to someone like me who is facing surgery in a couple months.


Sheri

becky331
04-20-2009, 12:52 PM
Hi Allison!!
I had my spinal fusion on March 17th...mine was from T3 to L3...went from a 73 degree curve to a 20 degree. It's not that bad..I promise! I am a HUGE wimp when it comes to pain and needles. The worst part of all of this was on Day 2 in the hospital, I was trying to be strong and not use much pain meds and they took me in the room to do xrays. It hurt terribly because they had to move me around so much to get the xrays. Just ask the nurse to give you fair warning so you can jack up the pain meds! :) I only take 3 pills a day and feel well..have done this since I got home from the hospital. As far as being at home, the worst part is that I can't put anything on my back and it's incredibly dried out...it's uncomfortable but tolerable. I did a website that we updated each day in the hospital and I continue to update that you can access..it's http://www.carepages.com/carepages/Becky_331. Just do a simple registry and you will have access. It will be useful so you can see what to expect each day in the hospital. You can email me anytime at outerbanx331@yahoo.com...I will help any way I can. I don't want you to have any fears..that's the worst thing you can do to your body before this type of surgery! Can't wait until you're finished and get to see your results!!
Becky

Jimbo
05-13-2009, 08:47 AM
I am also a nursing student facing possible surgery. There are quite a few of us, makes me feel much better :O)

asccbodypro
05-14-2009, 11:16 AM
Allison,

I am 37 years old and just had surgery 4 weeks and 3 weeks ago. They split it into 2 parts. I did feel a little crooked at first and wobbly when I walked. That is to be expected as your muscles learn their new positions. Don't forget when you have been crooked for so long it takes a while for those muscles to go back to their proper places. My spine is straighter than my Doc said it would be. I was very surprised as was my husband...it also was my very first question upon waking up "how straight am I?" Everyone laughed at me!

Given your age, I am sure you will heal much more quickly than someone at my age. I am not sure if you are experiencing pain yet but don't wait until that point. All that will do is wear your body down and make healing a little bit harder...not a medical opinion, just my own :O) I spent 5 years in lots of pain before I did this and I wish I had done it sooner. Good luck on your adventure. Go over all your questions with your doc and use this website as a resourse and I am sure you will do great! Take care of u!:)