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Adult Scoliosis Surgeons in the VA/DC/MD area?

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  • Adult Scoliosis Surgeons in the VA/DC/MD area?

    After browsing the forum for a while, I decided to venture in. You are all very inspirational people. Here it goes: I have had scoliosis since age 9, wore the Boston brace for several years during my infancy/teen years. The S curve progressed slowly during those years and other than the cosmetic discomfort, I am one very lucky individual because I have never had back pain. Doctors did not suggest surgery during my younger years given the lack of pain and slow progression rate.

    At 36 (after having three kids), I still don't have back pain but the curves have increased a lot (I'll include measures in the next post - they are bad!) and they continue to progress. I want to get several medical opinions and wonder if anyone could recommend doctors in the VA/DC/MD area. I am afraid of the consequences down the road if I don’t get surgery while still young and in good health. Any thoughts? Thanks.
    _____________________________

    Diagnosed at 9, Boston brace during teenage years
    56* left thoracolumbar curve, slight rib hump
    Deciding on timing for surgery

  • #2
    Welcome Mauxi! It seems we are getting a lot of new people lately. I wish it was for a happier reason. You were lucky to not experience the pain but sorry your curves have worsened. I'm in the Midwest so can't help you out there; just wanted to welcome you to the forum. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

    Comment


    • #3
      Welcome Mauxi! If it's answers you're looking for you've come to the right place!

      I live in northern Virginia and had surgery March 16th at Johns Hopkins in Baltimore. My surgeon is Dr. Kahled Kabaish but there are a few other spine guys at JH. Dr. Kabaish's specialties were more in line with my needs. the whole surgical team was just top notch and I couldn't be more pleased with their team approach and thoroughness.

      If you would like more information I'd be happy to send you a pm - just let me know okay?

      again, welcome and please keep asking questions
      Julie - 51 yrs old

      Dx'd 1973 - 43* thoracic curve / rotation
      Wore Milwaukee brace 1973 - 1979
      Pre-surgery: 63* thoracic / 52* lumbar curves


      Surgeries: P - March 16, 2009 - Fused T3-S2 with pelvic fixation
      A -April 14, 2009 - Fused L5-S1
      Achieved +70% Correction
      Dr. Khaled Kebaish, (and team) Johns Hopkins Hospital, Baltimore


      Standing x-ray
      New Spine 03/19/2009
      New Spine Lateral 03/19/2009

      Comment


      • #4
        Doctors in the VA/DC/MD area

        Welcome Mauxi

        I too am new to this forum and will be consulting with a top notch adult scoliosis surgeon at Georgetown University Hospital in DC in May (earlier if I can). Like you, my scoliosis has progressed badly and I have no other option but surgery at this point.

        The surgeon's name is: Dr. William Lauerman. Three other people at my church have had scoliosis surgery with him and have been thrilled. Here are three references you may want to check out:

        1) Do a search for Lauerman on this forum. When you find someone who had surgery with him, send them a message

        2) Scoliosis Research Society (http://www.srs.org). Do a search and enter "DC" and "Adult Scoliosis"

        3) Do a search for "Lauerman" at: http://www.georgetownuniversityhospital.org

        Hope this helps.

        Karen
        Karen, 66 years "young"
        Polio at 6
        Diagnosed with scoliosis at school; no treatment
        Lumbar curve in 2005: 40; moderate pain
        Lumbar curve in 2009: 55; pain severe
        Lumbar curve after surgery: 21
        Surgeon - Dr. William Lauerman, Georgetown University Hospital, Washington, DC
        Three surgeries in one week:
        8/24/09 L3 to S1 anterior spinal fusion with Harm cage
        8/28/09 Posterior spinal fusion from T10 to S1 with instrumentation
        9/1/09 Partial revision of instrumentation

        Comment


        • #5
          Originally posted by Doodles View Post
          Welcome Mauxi! It seems we are getting a lot of new people lately. I wish it was for a happier reason. You were lucky to not experience the pain but sorry your curves have worsened. I'm in the Midwest so can't help you out there; just wanted to welcome you to the forum. Janet
          Thanks for your welcoming e-mail! Best luck during your surgery and recovery. This forum is incredible. I think it'll be invaluable to help me make a good decision.

          Maria
          _____________________________

          Diagnosed at 9, Boston brace during teenage years
          56* left thoracolumbar curve, slight rib hump
          Deciding on timing for surgery

          Comment


          • #6
            Hi Karen, I am pretty new to this forum also. How did everything go at Georgetown? My Dr. in central VA wants to wait a year and watch my 49* curve. I am in pain a lot and starting to research surgical options, just "for fun" (ha!). This recommendation is appreciated. Let me know how it went; thanks!

            --Christina
            34L at diagnosis; Boston Brace 1979
            Current: 50L, 28T

            Comment


            • #7
              pain

              hi christina
              just wondering if you've been to any pain management doctors? i have & they have helped me w/pain..i am resisting surgey, & so have just finished a series of 3 epidurals...the 1st & 3rd (yesterday!) helped me the most...will also repeat facet block injections & nerve ablation...all tx seems to have temporary results, but i'm grateful for every bit of help, & for anything that helps me reduce my amount of oral pain meds!

              write any time
              take care
              jess

              Comment


              • #8
                Thanks so much Jess for your encouaraging post. The Dr. gave me Daypro to take and that helped for a while; I am also finding now that if I do my PT exercises (core and flexibility mainly) daily, my body gets into a better alignment, which is helping the pain. Yesterday I had no pain so there are good days and bad, I guess. How bad is your curve? I guess it's a mute issue as the pain level is what matters. Thanks for the tips on the epidurals and facet block and nerve treatments. Good to know. I just ordered a Lafuma recliner - my boss got one and it's amazing - takes the weight off the hips. Thanks again and keep in touch. --Christina
                34L at diagnosis; Boston Brace 1979
                Current: 50L, 28T

                Comment


                • #9
                  Hi Christina

                  I won't be having my surgery with Dr. William Lauerman at Georgetown University Hospital until August 24. For sure, I'll report back on the experience.

                  Karen
                  Karen, 66 years "young"
                  Polio at 6
                  Diagnosed with scoliosis at school; no treatment
                  Lumbar curve in 2005: 40; moderate pain
                  Lumbar curve in 2009: 55; pain severe
                  Lumbar curve after surgery: 21
                  Surgeon - Dr. William Lauerman, Georgetown University Hospital, Washington, DC
                  Three surgeries in one week:
                  8/24/09 L3 to S1 anterior spinal fusion with Harm cage
                  8/28/09 Posterior spinal fusion from T10 to S1 with instrumentation
                  9/1/09 Partial revision of instrumentation

                  Comment


                  • #10
                    Welcome Mauxi! I live in Northern Virginia and my doctor is C. Michael Reing. You won't find much by Googling him. He is known as a pediatric orthoepedist and scoliosis specialist. I met him when he was recommended to look at my son's broken finger...now we all go to him! (my daughter has a very tiny curve and my son is very asymmetrical ...one leg longer than the other and hasn't started maturing yet...so I'm worried!). I like him, but you wait about an hour and a half everytime you go to his office.

                    My doctor when I was a teen was Wood Lovell (google him!), who I know now was a pioneer in pediatric orthopaedics...I believe he was involved in developing the Boston Brace. I was his last patient (at Scootish Rite Hospital in Atlanta) before he retired. Anyway...info you don't need, but Dr. Reing of course studied all his work and we talk about that a lot.

                    I'll be having my surgery at Fairfax Hospital on Aug. 26. Good Luck!
                    Kathy, 43
                    Diagnosed as a teen
                    Boston brace 2 years
                    63 degree lumbar curve
                    Surgery August 26, 2009
                    Anterior approach fused T12-L4
                    now 28 degrees

                    Comment

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