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How/Why did you get scoliosis?

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  • How/Why did you get scoliosis?

    I'm looking for totally unrealistic, unscientific, off the wall reasons.
    Example: I got if from my aunt, or I use to sit funny, or I had a rough birth, etc.

    My reason is: When I was about four years old I got real sick. My parents took me to the hospital and the doctor thought I had spinal meningitus (sp?). They gave me a spinal tap and my parents think that caused my scoliosis.

    What's your crazy story?

    dd
    dd
    57 yr. old female
    Pembroke Pines, FL
    No Surgery, No Way, Not Ever, but I reserve the right to change my mind
    2003: rotatory component centered at L1 convexed to the left with a measurement of 68 degrees. Gentle compensatory thoracic curve and a more acute compensatory curve in the lumbar spine at L4-5 Superimposed fairly extensive degenerative change seen in the lumbar spine.

  • #2
    You are asking the million dollar question.

    My parents blame my condition on eachother. My mom says it comes from my dad's side of the family and vice versa. LMAO.
    __________________________________________
    Debbe - 50 yrs old

    Milwalkee Brace 1976 - 79
    Told by Dr. my curve would never progress

    Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
    Pre-Surgury Thorasic: 66 degrees
    Pre-Surgery Lumbar: 66 degrees

    Post-Surgery Thorasic: 34 degrees
    Post-Surgery Lumbar: 22 degrees

    Comment


    • #3
      My mother tells me both her and my father have it. Which, doctors tell me, means I was destined to get it.
      I get no empathy or sympathy from my parents because they can manage life with theirs. Even when their curves are hardly even visible and I'm all twisted...

      Comment


      • #4
        My sisters have very small curves, but mine was large and progressing quickly. I was in a car accident when I was 4 and took a bad jolt. Ironically, my younger daughter, who developed scoliosis was in a car accident when she was 4.
        T12- L5 fusion 1975 - Rochester, NY
        2002 removal of bottom of rod and extra fusion
        3/1/11 C5-C6 disc replacement
        Daughter - T7 - L3 fusion 2004

        Comment


        • #5
          mine was discovered after a high school wrestling injury. before that i was screened in junior high and supposedly did not have it at that time. nobody including myself ever paid attention. i never notice any deformity. i never had a sinlge back pain ever until my injury. then, suddenly it hurt all the time no matter what. my parents and school nurse said i must have pulled a muscle and to take it easy. after weeks of not sleeping i woke my mother up and asked to go to the dr. she asked me to take my shirt off and bend over so she could look at my back. then she gasped after seeing the rib hump. she then noticed my spine was crooked. DRs all told me it was unrelated to the injury and just a coincidence we found it then. im convinced the injury had something to do with it. is that crazy?

          daniel

          Comment


          • #6
            No, it's not crazy. It seems no one really knows how or why. Maybe everyone's own perception of how it happened to them may give some insight to some researcher somewhere that could help future generations.
            dd
            dd
            57 yr. old female
            Pembroke Pines, FL
            No Surgery, No Way, Not Ever, but I reserve the right to change my mind
            2003: rotatory component centered at L1 convexed to the left with a measurement of 68 degrees. Gentle compensatory thoracic curve and a more acute compensatory curve in the lumbar spine at L4-5 Superimposed fairly extensive degenerative change seen in the lumbar spine.

            Comment


            • #7
              My middle school nurse noticed one shoulder was slightly higher than the other one and just said it was probably from wearing my backpack on one shoulder and then dismissed it. 2 years later i have 2 30 degree curves in my spine haha good goin nurse.

              Comment


              • #8
                how i got scoliosis

                hi, this is my first time on this site. i fell down a flight of stairs at work, landing on my head. i ended up with scoliosis, extensive nerve damage, and i was just diagnosed with fms. i now can only walk with a walker at home and a wheelchair when we leave the house. my back pain has become unbearable but i have trouble getting an appointment with a back specialist as they don't consider me a surgical candidate. has anyone else developed scoliosis from a fall? good luck to you all!!!
                patty

                Comment


                • #9
                  Hi Patty,
                  I would be interested to know how old you were when you fell and how old you are now. Also, what is fms? Do they think you will you be able to walk without the walker again? I'm sorry to hear about your fall and all your problems. Best of luck to you on finding a good doctor.
                  dd
                  dd
                  57 yr. old female
                  Pembroke Pines, FL
                  No Surgery, No Way, Not Ever, but I reserve the right to change my mind
                  2003: rotatory component centered at L1 convexed to the left with a measurement of 68 degrees. Gentle compensatory thoracic curve and a more acute compensatory curve in the lumbar spine at L4-5 Superimposed fairly extensive degenerative change seen in the lumbar spine.

                  Comment


                  • #10
                    I'm blaming DD's on her father.

                    He has scoliosis, his dad has scoliosis, his grandfather had scoliosis (i.e. dad's dad)....so basically that seems, in our case, genes played the biggest role in it.

                    I think scoliosis is one of those weird things that no one has been able to pinpoint why X person gets it but Y person also gets it, however the reasoning is probably totally different. I'm sure it's being researched somewhere but there are so many variables I'm sure it will be hard to pinpoint anything.

                    For example...even in DH's family, his sister didn't get scoliosis even though it tends to be higher in females than males. As of right now, Carolyn's 3 younger brother's don't have scoliosis either...they have the same parents so I don't know. They are younger though but one of her brother's is the same age she was when hers was discovered. Is there a gene for scoliosis & is it dominant or recessive?

                    It's quite possible I have people in my line that have scoliosis too so combine the 2 genes, even if it's recessive and wah-lah, you get scoliosis. However, if it's dominant, then even just having one of the genes could cause it.

                    Or is there some totally different thing?
                    Becky
                    Mom to DD (15) with S 48*+ curve
                    Had her surgery March 9, 2009

                    Comment


                    • #11
                      Becky,

                      You know, I've never thought about this before but I think one of my uncles and one of his sons may have had scoliosis. They may not have ever been diagnosed as such and it was never mentioned in my family but they both had that "man scoliosis posture" so to speak.

                      dd
                      dd
                      57 yr. old female
                      Pembroke Pines, FL
                      No Surgery, No Way, Not Ever, but I reserve the right to change my mind
                      2003: rotatory component centered at L1 convexed to the left with a measurement of 68 degrees. Gentle compensatory thoracic curve and a more acute compensatory curve in the lumbar spine at L4-5 Superimposed fairly extensive degenerative change seen in the lumbar spine.

                      Comment


                      • #12
                        Answer to DD from Patty

                        Hi DD, I was 44 when I had my accident and now I am 47. FMS is also known as Fibromyalgia it is a disease of the central nervous system, there is no cure for this. My doctor has told me that it is a disease that can develope from injury to spine, which is my case. The pain I can only describe as when you have a bad flue you have horrible muscle aches and pains, well times that by a hundred. I unfortunately am getting worse, but we are hoping that with the correct medications we can control the pain and perhaps one day work on getting me walking again. Take care DD. Patty

                        Comment


                        • #13
                          This is the question that's always haunted me too. My great-aunt apparently had scoliosis and my 62 year old mom is showing signs of it now, so the gene is definitely in my family.

                          When I was diagnosed with it in 1990 at 14 years old, after I went in to get a gymnastics injury checked out, my dad started to do a ton of research on it. He discovered this study that showed ballet dancers had a higher incidence of it than others and it was suggested this was linked to not eating a lot and exercising a ton. Well, I had just gone through a phase where I was exercising a ton and not eating much. For years, I blamed myself for causing my scoliosis. However, since then, I've seen very little about those ballet dancer studies, so I'm guessing that hypothesis didn't take. I'm still trying to let myself off the hook for it.
                          - 39 years old
                          - At age 14, curve progressed from 45 degrees to 62 degrees in two months.
                          - Surgery in 1990 at the Children's Hospital of Eastern Ontario (CHEO) with Dr. Letts. Fused T5 to L2. Corrected to about 30 degrees.
                          - Harrington rod
                          - Herniated disc - L5/S1 - January 2008. Summer 2009 - close to making a full recovery.
                          - New mommy as of February 2011
                          - Second child - September 2013
                          - Staying relatively painfree through physio exercises!

                          Comment


                          • #14
                            SIsForSarah,

                            When I was in elementary school there was only one way I could sit in the hard school chair. I scooted my butt all the way to the front left side and I kind of hunched and twisted my upper body on the right back of the chair.

                            I use to think I got it because of the way I sat in school. I later realized that I sat that way because it was the only way I didn't have pain. It's funny the things we tell ourselves.

                            ddr
                            dd
                            57 yr. old female
                            Pembroke Pines, FL
                            No Surgery, No Way, Not Ever, but I reserve the right to change my mind
                            2003: rotatory component centered at L1 convexed to the left with a measurement of 68 degrees. Gentle compensatory thoracic curve and a more acute compensatory curve in the lumbar spine at L4-5 Superimposed fairly extensive degenerative change seen in the lumbar spine.

                            Comment


                            • #15
                              Total luck of the Irish

                              Always Smilin'
                              Colleen

                              1982 fused T2-L1
                              pre op 45 - post op 33 (left thoracic)
                              pre op 53 - post op 18 (right thoracic)

                              recheck 2006
                              right thoracic 57
                              lower lumbar 34

                              surgical revision April 28,2009
                              revision T3-L1; new fusion L1-L4
                              unsure of degrees at this point

                              Comment

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