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  • Spinal Cord Stimulation Option

    Hello All,

    It's been awhile since I've posted, but I am now 15 months post surgery and recently had my follow up with surgeon who seemed please with the work he'd done---just to recap, this is my third spinal fusion, the first two were with harrington rods w/spinal fusion and drummond buttons (two surgeries were 20 years apart!) and then this most recent due to degenerative disc disease, spinal stenois, radiculitis and osteoarthritis. Since the surgery I have continued to have the radiculitis particularly down my right leg to my toes, sometimes in left leg below the knee. I have seen some on the forum who are not fans of chiropractic, but I have to say after 4 months of PT (land) and then 5months of aquatic, my 4 months under chiropractic have given me the most relief. Unfortunately, as I said I still have recurring lower lumbar and leg pain which causes me not to sit for more than 2 hours max , can't drive long distances and sleeping patterns are steadily interrupted due to pain. I am currently taking celebrex, hydrocodone and Lyrica. Today my surgeon sent me to a pain management specialist. Sorry this is so long, but this is where the title comes in. The PMS wants to treat as follows: take me off the Lyrica (I only take at night) and put me on topomax and give me an SI Injection (believes cause is due to residual saciriliac joint and nerve) and possible implantation of spinal cord stimulation implant.

    Whew, now my question is has anyone else ever heard of this or experienced this. Remember, this is my THIRD fusion down to sacrum (most recent was L4 to Sacrum) Any feedback is appreciated. My hope is that I want to come off all those pain meds and move back to a "normal" quality of life. I'm 45 and a single mom of a 15 year old who wants to ride a bike again and go white water rafting again!!!!

    Any feedback would be appreciated.

    LJ

  • #2
    question

    Hi LJ

    I'm sorry, I can't answer your questions, but after reading your post I have a couple for you. I have degenerative disc disease, spinal stenosis and decompression. I'm heading in for surgery in June. As of now they're going to try to correct without fusing (but will likely need to fuse sometime down the road).

    My question, how was your recovery. I've heard all sorts of stories, from a 4-6 weeks to 4-6 months. I too am a single mom (my son's now 18). I'd like to get back to a "normal" life...although it's been such a long time I'm not really sure what that means anymore.

    Any info you're able to share would be appreciated.

    Comment


    • #3
      15 months post surgery

      but I am now 15 months post surgery
      by dealornodeal.

      I really needed something for pain until 18 months post-op. And continued healing continues this far out-6 years. What I mean by this far out is that numb areas are still waking up and my breathing continues to improve. I am a great fan of Pilates--modified based on my range of motion. I am now pain free. I had 2 surgeries at age 13 and 2 at age 60==a total of 4. Not sure you really need a spinal nerve stimulator. This is invasive. You had a lot of surgery and you just might need more time.
      Whatever helps you is the right thing.
      Original scoliosis surgery 1956 T-4 to L-2 ~100 degree thoracic (triple)curves at age 14. NO hardware-lost correction.
      Anterior/posterior revision T-4 to Sacrum in 2002, age 60, by Dr. Boachie-Adjei @Hospital for Special Surgery, NY = 50% correction

      Comment


      • #4
        spinal cord simulation

        Hi Sunny 45,

        I sent you a PM.

        LJ

        Comment


        • #5
          Originally posted by Karen Ocker View Post
          by dealornodeal.

          I really needed something for pain until 18 months post-op. And continued healing continues this far out-6 years. What I mean by this far out is that numb areas are still waking up and my breathing continues to improve. I am a great fan of Pilates--modified based on my range of motion. I am now pain free. I had 2 surgeries at age 13 and 2 at age 60==a total of 4. Not sure you really need a spinal nerve stimulator. This is invasive. You had a lot of surgery and you just might need more time.
          Whatever helps you is the right thing.
          Thanks Karen,

          At this point, I know I'm not going to explore this invasive procedure again. I've spoken with several of my other doctors about recovery and they also agree it's a matter of time. I'm taking a fluidity bar class that I love, I know they also offer Pilates, I'm a little apprehensive about that right now until I hopefully get a little more range of motion, but I will try it. I love the fluidity bar class. Thanks for the info. Hopefully at 45 I'm done with the surgical and will continue to explore all alternative and non invasive methods.

          Comment

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