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Good Almost 5-month checkup today!

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  • #1

    Good Almost 5-month checkup today!

    I must admit, I have been nervous. I had this kookie idea in my head that maybe I was shrinking again or something. I know I had no reason to think so, but you know me and my mind. I couldn't even sleep last night; got 4 hours of sleep.

    At my last checkup (the first post-op xrays), he said I measured 35 and 30. This time, he measured and checked twice, and it measured to 34 and 22. I told him I like these measurements so much better!! Dr. Neuwirth said he just wants to make sure I'm not upset next time if we go in they measure back to 35 & 30. LOL I know there is room for error in the measurements, right?

    Anyway, he said he's seeing good fusion in the xrays, and I can do anything I want, except for skiing (yet). No problem, I never skied before and I don't intend to start now. (Sorry Ed, just not my thing! ) He asked me to bend forward as far as I could, then bend backwards---YIKES I never did that before. He wrote a RX for me to continue PT for 12 more weeks, which I just love. I go back in 4 months.

    PHEW. Now I can go take a nap. The lack of sleep caught up with me.
    __________________________________________
    Debbe - 50 yrs old

    Milwalkee Brace 1976 - 79
    Told by Dr. my curve would never progress

    Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
    Pre-Surgury Thorasic: 66 degrees
    Pre-Surgery Lumbar: 66 degrees

    Post-Surgery Thorasic: 34 degrees
    Post-Surgery Lumbar: 22 degrees
    Tags: None
  • #2
    I think I'll change my signature numbers!!

    Whoohooo!!!!
    __________________________________________
    Debbe - 50 yrs old

    Milwalkee Brace 1976 - 79
    Told by Dr. my curve would never progress

    Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
    Pre-Surgury Thorasic: 66 degrees
    Pre-Surgery Lumbar: 66 degrees

    Post-Surgery Thorasic: 34 degrees
    Post-Surgery Lumbar: 22 degrees

    Comment

    • #3
      That's great, Debbe!
      Chris
      A/P fusion on June 19, 2007 at age 52; T10-L5
      Pre-op thoracolumbar curve: 70 degrees
      Post-op curve: 12 degrees
      Dr. Boachie-adjei, HSS, New York

      Comment

      • #4
        whoo hoo for you!

        Debbe-- that's super news! I'm so excited for you! And it's hard to believe that 5 months have gone by!!!
        71 and plugging along... but having some problems
        2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
        5/4/07 posterior fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
        Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago
        Corrected to 15°
        CMT (type 2) DX in 2014, progressing
        10/2018 x-rays - spondylolisthesis at L4/L5 - Dr. DeWald is monitoring

        Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

        Comment

        • #5
          Debbe

          That's good news. You know, I grew 4 inches after surgery. Its a good thing because at Sierra at Tahoe ski area, they received 58 inches in 24 hours on Wednesday.

          That puts my nose just above the snow level.

          The Docs are worried about cracking fusions. That's why they say no skiing. I have permission for the bunny hill, and I haven't gone yet due to my lack of enthusiasm. Its like getting permission to play in the sandbox, and I failed sandbox in kindergarten. LOL

          Ed
          49 yr old male, now 63, the new 64...
          Pre surgery curves T70,L70
          ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
          Dr Brett Menmuir St Marys Hospital Reno,Nevada

          Bending and twisting pics after full fusion
          http://www.scoliosis.org/forum/showt...on.&highlight=

          My x-rays
          http://www.scoliosis.org/forum/attac...2&d=1228779214

          http://www.scoliosis.org/forum/attac...3&d=1228779258

          Comment

          • #6
            Debbe, it sounds like you had a great check-up!

            I can't say I've heard anyone say they enjoyed PT... you are the first.

            Not that I've spoken with many people about it though.
            Sharon, mother of identical twin girls with scoliosis

            No island of sanity.

            Question: What do you call alternative medicine that works?
            Answer: Medicine

            "We are all African."

            Comment

            • #7
              Great news, Debbe!! I couldn't be happier for you!!
              mariaf305@yahoo.com
              Mom to David, age 17, braced June 2000 to March 2004
              Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

              https://www.facebook.com/groups/ScoliosisTethering/

              http://pediatricspinefoundation.org/

              Comment

              • #8
                Wow ... I can't believe it's been almost 5 months. Congrats on the good news!
                Fusion is NOT the end of the world.
                AIDS Walk Houston 2008 5K @ 33 days post op!


                41, dx'd JIS & Boston braced @ 10
                Pre-op ±53°, Post-op < 20°
                Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston

                VIEW MY X-RAYS
                EMAIL ME

                Comment

                • #9
                  Originally posted by Pooka1 View Post
                  Debbe, it sounds like you had a great check-up!

                  I can't say I've heard anyone say they enjoyed PT... you are the first.

                  Not that I've spoken with many people about it though.
                  Yep, I'm a nut job. I like to be challenged--that is, until I overdo it one day and then pay for a week (or longer.) I don't have a job right now, so it gets me out of the house 2 mornings per week.

                  Seriously though, this PT is so wonderful. She pays attention to me, head to toe, not just my back. The last place I went for PT before surgery--those people were dopes. They said they wouldn't know what to do with me after surgery with such a long fusion. I found a new place fast. This new lady was recommended by a friend who told me that she works with patients who have no arms and legs. I figured if she can work with them, she'll know what to do with me. I was right. She's had lots of others with long fusions and is very creative on giving me exercises.

                  Moral of the story: just like you don't always go with the first doctor; don't always go with the first PT!
                  __________________________________________
                  Debbe - 50 yrs old

                  Milwalkee Brace 1976 - 79
                  Told by Dr. my curve would never progress

                  Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
                  Pre-Surgury Thorasic: 66 degrees
                  Pre-Surgery Lumbar: 66 degrees

                  Post-Surgery Thorasic: 34 degrees
                  Post-Surgery Lumbar: 22 degrees

                  Comment

                  • #10
                    That is wonderful! Congrats on such a great check-up!
                    Janet

                    61 years old--57 for surgery

                    Diagnosed in 1965 at age of 13--no brace
                    Thoracic Curve: 96 degrees to 35 degrees
                    Lumbar Curve: 63 degrees to 5 degrees
                    Surgery with Dr. Lenke in St. Louis--March 30, 2009
                    T-2 to Pelvis, and hopefully all posterior procedure.

                    All was posterior along with 2 cages and 6 osteotomies.

                    Comment

                    • #11
                      Hi Debbe
                      this is great news - so glad to hear all went well with your recent check up - and great measurements too!
                      Keep up the good work in PT sounds like its doing real good!
                      Louissex
                      Diagnosed aged 17 thoracic curve of 40°/48? given brace worn for short time but was then told that I had stopped growing and it wasn’t likely to get worse. Follow ups ‘got lost in the system’ and I chose to ignore until age approx 33, after two children. Now nearly 42yrs curve was progressing (last xrays 67 degrees) and increasing 'backache' so surgery (posterior T3 - L1) went ahead beginning of September 2008 in UK - thoracic curve now approx 20° and I look a lot straighter!

                      Comment

                      • #12
                        Congratulations, Debbe! That's great news! Hope you enjoyed your nap.

                        Comment

                        • #13
                          Hi Debbei,
                          I'm so happy for you with such a good report from your Doctor. It will just keep getting better and better.
                          Sally
                          Diagnosed with severe lumbar scoliosis at age 65.
                          Posterior Fusion L2-S1 on 12/4/2007. age 67
                          Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
                          Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
                          New England Baptist Hospital, Boston, MA
                          Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

                          "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

                          Comment

                          • #14
                            Congrats Debbe!! Im so happy for you!! You and I are headed down the right path!! I would do this all over again if given the choice. Now, about a month ago, those words would NEVR had come out of my mouth...lol...but now its all worth it! Sooo glad your doing so good!! Take care & chat w/u soon!!!

                            happy Friday!
                            Lynn -30.... something
                            DxD @ 8 yrs old: 10* curve-no brace-no nothin'!
                            At age 26: Thorasic 48*/Lumbar 50*
                            At age 34: Thorasic 58*/Lumbar 60*
                            Posterior T5-L4 Fusion Jan 14th, 2009 w/Dr Tribus
                            UW Madison, WI Hospital
                            **AFTER: less than 10* Thorasic/15* Lumbar**

                            Comment

                            • #15
                              thanks everyone,

                              I'm still smiling because of my appointment. As I said, I love going to PT, and the therapist who works with me is wonderful. Today we discussed that once summer is here, she will come to my house and show me exercises that I can do in my pool with noodles and Lord knows what else. I offered to pay her and she refused! I owe this woman a serious batch of homemade cookies once my PT ends.
                              __________________________________________
                              Debbe - 50 yrs old

                              Milwalkee Brace 1976 - 79
                              Told by Dr. my curve would never progress

                              Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
                              Pre-Surgury Thorasic: 66 degrees
                              Pre-Surgery Lumbar: 66 degrees

                              Post-Surgery Thorasic: 34 degrees
                              Post-Surgery Lumbar: 22 degrees

                              Comment

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