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View Full Version : Have to share my excitment!



Trish1023
01-17-2009, 12:09 PM
Hello everyone! I haven't been on here in a very long time but I wanted to share with people who would understand. Brief background, my son Tyler was diagnosed with Idiopathic Infantile at 9 months. With a starting degree in the 30's I believe. We have gone through 4+ TLSO braces with no luck, his back progressed over time to 65 degrees. He will be 5 April 17th. We have seen Dr. Ashfin Aminian every 6 months since he was diagnosed. Well as we were right about to move to the next step we decided to try a nighttime bending brace aka, Charleston Bending Brace to see how that worked.

We went to his biannual visit yesterday to see that in 6 months he improved to 52 degrees!! I'm so happy. I know it's not cured, I know that the likeliness of surgery is still prevalent one day, but any improvement is a win in my book! So we are definitely going to continue on with this brace for the time being. I just had to share.:p

michele27
01-17-2009, 12:42 PM
That's fantastic! I hope you continue to see great results!! :)

Michele

Pooka1
01-17-2009, 02:36 PM
I wish you and your son continued success.

mariaf
01-17-2009, 03:03 PM
Great news!! I'm so happy for you and Tyler.

Dr. Aminian's name is also listed on the VBS site as one of only a handful of surgeons in the country performing the procedure.

My best wishes to you for continued success!

Trish1023
01-18-2009, 11:59 AM
Great news!! I'm so happy for you and Tyler.

Dr. Aminian's name is also listed on the VBS site as one of only a handful of surgeons in the country performing the procedure.

My best wishes to you for continued success!

I LOVE Dr. Aminian. He is a fantastic doctor. He does everything he can in Tyler's best interest. If he was a General Prac. I'd switch my entire family to him.

Thank you all for your kind words!!!:p

jillw
01-19-2009, 12:19 PM
That's great - I hope he turns out to be one of the children whose growth works IN his favor!