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Kitty
12-31-2008, 08:32 AM
Hi everyone

"Happy New Year" :D

OK, can anyone share their views on curvature of the spine after surgery. I mean, is this possible and can the spine still curve after one has had rods inserted. If so, what (if any) are the contributing factors, eg., age, anterior vs posterior, risser (growth) factor, etc.

My daughter had surgery 6 weeks ago today and I am worried this might occur?

Rgds,
Lisa

smileyskl
12-31-2008, 10:18 AM
Lisa, I just asked that exact question to my daughters surgeon yesterday. She is 11 and is going to have a fusion on January 26th. Her risser is 2 and with her period already starting, he decided to fuse instead of doing the growing rods. He said that the spine would settle in the months following fusion and could lose some correction but not alot. He also, said there is a chance for twisting and further curvature of the part (in her case the lower part) of the spine without instrumentation. He added that this is a small chance, but that he has had to fix these. I have a 20 year old friend that was fused at age 10 and she has lost some correction (about 7 degrees) over the last 10 years so I know that it is possible. This doesn't however, change my decision in my daughters case, because I believe it is the best treatment for her now. I have done tons of research and talked to many doctors (including Shriners) and everyone agrees that there is not a better option at this time. Hope this helps. How is your daughter six weeks post-op?? I am wondering if I can make it through the surgery. It's all I think about right now.:(:)

Smileyskl

Snoopy
12-31-2008, 03:57 PM
Hi Lisa,

My daughter had a posterior spinal fusion at the age of 13 for both Scoliosis and Kyphosis. Jamie is fused from T3-L2 and had reached skeletal maturity before surgery.

Jamie developed what her doctor calls "junctional Kyphosis" above her fusion. Her doctor told us this does occasionally happen, but he assured us (before surgery) that he would do everything in his power to avoid it. He fused an extra vertebrae and used extra wires/hooks etc. at the top of her fusion and it still curved.


Mary Lou

txmarinemom
01-01-2009, 05:17 PM
OK, can anyone share their views on curvature of the spine after surgery. I mean, is this possible and can the spine still curve after one has had rods inserted. If so, what (if any) are the contributing factors, eg., age, anterior vs posterior, risser (growth) factor, etc. ...

My daughter had surgery 6 weeks ago today and I am worried this might occur?

Lisa, you know I sympathize with you for everything you and Tahlia have been through, and I think you're a great mom ... but, I think in this case you're adding stress to your life worrying over what *might* happen. There's not a thing you can do to prevent it at this point; all you can do is keep an eye out for apparent changes (outside the regular follow up visits).

Yes, curvature can occur after fusion (in kids OR adults), but typically, it's above or below the unfused area. When this happens, the most common reason is all involved vertebra in the structural curve were not included in the fusion (it's called "decompensation"). There are certainly special cases, as Mary Lou pointed out, and from what I've read, it seems a good portion of them involve cases where kyphosis is also present.

While smileskl was told her daughter's curve could settle and *lose* correction, I (and several other adults on here) were told just the opposite - that our curves would *continue* to correct for 6 months post-op.

I'm pretty sure a low Risser is the largest factor at play, but then again, a "post-menarche/Risser 2" can make for a quick jump to skeletal maturity (i.e., the risk of curve progression *should* be lowered).

Without knowing either about smileskl's friend fused at age 10 (Risser - or whether menarche occurred pre-fusion), it's hard to compare the two scenarios. They could very well be completely different.

Try not to worry yourself, hon.

Regards,
Pam

Kitty
01-01-2009, 08:56 PM
One of the things that frustrates me about this condition is precisely that, Pam. There is nothing you can do - no exercises, no pills, no nothing. It's purely a waiting game and i hate that. And that was always clear to me and particularly so prior to surgery when we did the bracing to try and halt it and it didn't work, so i kind of felt like we were at it's mercy (or lack of). So yes, you're absolutely right and i guess we just have to see, and there's probably no point worrying or stressing about it until we have (hopefully never) that conversation with the surgeon who says it has curve, but i guess i'm sort of preparing myself for that by trying to determine the likelihood. I am certainly not stressing or anything and am happy with where things are at now and know that Tahlia is and we are focusing on the benefits that she has enjoyed since her surgery, but i will ask my surgeon about it in 2 weeks' time.

However, Pam, i was interested to hear the comments of one of the HDA (high dependency area) doctors at the hospital when Tahlia was in the HDA who was showing me the x-rays. Tahlia was fused from T2-L3 and I noticed the rod in the top thoracic area was curved away from the direction of her natural scoliosis curve and when I asked about that, the doc said it was designed to provide further correction and straightening over time. I haven't allowed myself to get excited over this, because, like you say, this is unpredictable and I guess i'm preparing myself for anything. Is this what you mean when you say you were told that the curves would continue to correct?

Mary Lou, my daughter sounds similiar to yours in terms of age, type of fusion and vertebrae fused. How mch further did her curve progress and what, if anything, is the surgeon recommending to address that? However, I am not sure what a "kyphosis" is? I have heard that term many times on this forum, but my surgeon has never mentioned this with regards to my daughter.

Smiley, Tahlia is doing really well now. She has not taken pain meds for weeks and is very independent, walking and getting out occasionally too. We are on school holidays for the summer break so it is an ideal time for her to recover andnot hve to worry about school for at least another month. You will be fine. As everyone else on this forum will tell you,I'm sure, the lead-up to surgery is the worst part. I was very nervous in the weeks beforehand, but on the day of surgery i was very calm, knowing my daughter was in good, capable hands. Your daughter will be too. Please feel free to ask any questions or share anything you like on here, as there are only too many people willing to help and provide support and honestly, it was what got me through.

CHeers,Lisa

smileyskl
01-02-2009, 12:43 AM
Thanks Lisa,

I really lost it tonight, it came from out of nowhere, tons of tears. I guess I have been so calm, there was bound to come a breaking point. I tell everyone how good I am doing and how I know surgery is the right thing and then it just hit me. The reality of the surgery. It's nothing anyone wants their child to go through. This is much harder than anything I have dealt with so far as a parent, though I know it could be much worse, and I thank God that it isn't. When I get on this sight, it is not for debate or anything else. I answer questions if I think I may can help. I am just a scared parent waiting on surgery for my daughter and sometimes the best thing at that moment is for someone to say that you will make it through. Just knowing others have been where I am and have made it gives me strength. I hope that your daughter or my daughter for that matter, doesn't lose correction. But one thing Pam said that is for sure - we can't live our life worrying about what "might" happen. I just try to take things one day at a time. I know with God's help my daughter and I will get through this. Thank you for the encouragement and best of luck for you and your daughter. :(:):)

Smileyskl

Snoopy
01-02-2009, 06:52 AM
Lisa,

Kyphosis is a normal "front to back" curve that we all have. In my opinion, it is seen the best if you look at the spine from the side--it curves forward at the top and cuves in at the bottom (I think that's called Lordosis). Anyway, it is a normal curve. If my memory is correct, normal Kyphosis is about 40* and at the time of surgery, Jamie's was 71*.

Jamie's junctional Kyphosis was a new curve after surgery. She curved from C6-T3 which is all above her fusion and was not part of her original Kyphosis. The first mention of junctional Kyphosis was at her six month post-op appointment. The curve progressed from 18* to 39* in a year's time. Her surgeon told us at one point that he needed to extend her fusion. At the time, Jamie and I weren't ready to hear that and I asked if we could continue to follow her closely and see if it continued to curve or not. He reluctantly agreed as long as I understood that if it continued, we would have to discuss surgery. By the time we got to her next appointment, her curve stopped progressing. It settled in at about 36*. Jamie's most recent follow-up was July 2007 and the surgeon's report states that she has a "stable junctional Kyphosis of 36*" and we were told she didn't need to be seen for two years.

Am I sorry I didn't agree to extend her fusion? At this point, no. I knew that neither Jamie nor I were ready for more surgery at that point. Will she need more surgery in the future? Who knows. Jamie's neck curves forward, and to my trained eye, it is very noticable. To everyone else, no one even notices! If Jamie had spoke up and told her surgeon she didn't like her appearance, he probably would have considered surgery. I told Jamie that at this point I feel surgery would be more for a cosmetic reason than a medical one and I would not make that decision for her. She chose not to have more surgery.

I understand your worries. You have to trust your doctor and yourself. You made the best decision possible for your daughter and you need to believe in that.

Mary Lou

Snoopy
01-02-2009, 07:10 AM
Smileyskl,

I totally understand what you are going through! It is perfectly normal.

You sound a lot like me. I've always told Jamie she was chosen by God to have Scoliosis. I told her He only gives stuff like this to those who can handle it, so, you can handle it, I know you can. I've always told Jamie and she's seen first hand, that her back condition is nothing compared to other children's backs.

Hopefully this will be the hardest thing you ever have to face.

I sent you a private message. Hang in there.

Mary Lou

WNCmom
01-02-2009, 01:12 PM
Smileyskl--

Just want to add my support here. My 13yo son was fused 7 weeks ago and we go for the first post-op checkup on Tuesday. He seems to be doing very well so far. He went for a long walk in the woods--a hike, really--on New Year's Day and commonly walks up to 3.5 miles a day. He's been off any meds for weeks, was in school for half days the week before Christmas and will be back in school full time next week.

You will do fine through the upcoming surgery, although you probably won't believe it until you go through it. We will all be behind you.

Mary Ellen

smileyskl
01-02-2009, 04:23 PM
Thanks everyone!! I know that I will make it because I firmly believe God doesn't give us more than we can handle. However, right now, I have to remind myself of that and it helps to have encouragement from others. I appreciate your comments and support. It helps alot everytime someone says "I made it and you will too". It reminds me that there is an "After Surgery". Right now, it seems to be consuming our lives. Thanks again!!

smileyskl
01-02-2009, 04:44 PM
Thanks everyone!! I know that I will make it because I firmly believe God doesn't give us more than we can handle. However, right now, I have to remind myself of that and it helps to have encouragement from others. I appreciate your comments and support. It helps alot everytime someone says "I made it and you will too". It reminds me that there is an "After Surgery". Right now, it seems to be consuming our lives. Thanks again!!


Mary Lou, I sent you a PM


Mary Ellen, thats great that your son is doing so well after only 7 weeks. I hope we will be able to say the same. Thanks for the encouragemet and keep us posted.

babachi
01-02-2009, 07:18 PM
Smileskl,
My son is almost 3 weeks post surgery. The anticipation is the worst and it is completely normal/understandable to be emotional.
I just wanted to shout out and let you know I'll be thinking of you. I was so glad to have found this forum. It has really helped me preparing for Jesse's surgery.
Bethany

Kitty
01-02-2009, 09:27 PM
Thanks Lisa,

I really lost it tonight, it came from out of nowhere, tons of tears. I guess I have been so calm, there was bound to come a breaking point. I tell everyone how good I am doing and how I know surgery is the right thing and then it just hit me. The reality of the surgery. It's nothing anyone wants their child to go through. This is much harder than anything I have dealt with so far as a parent, though I know it could be much worse, and I thank God that it isn't. When I get on this sight, it is not for debate or anything else. I answer questions if I think I may can help. I am just a scared parent waiting on surgery for my daughter and sometimes the best thing at that moment is for someone to say that you will make it through. Just knowing others have been where I am and have made it gives me strength. I hope that your daughter or my daughter for that matter, doesn't lose correction. But one thing Pam said that is for sure - we can't live our life worrying about what "might" happen. I just try to take things one day at a time. I know with God's help my daughter and I will get through this. Thank you for the encouragement and best of luck for you and your daughter. :(:):)

Smileyskl

HI Smiley,

Let me reassure you that we have ALL been there. We have ALL lost it and gotten emotional and broken down and we have ALL been terrified of the unknown. But let me also reassure you that we made it through. What you're going through is completely normal, so take a deep breath, take it one day at a time and remember you are in the company of many other mums who have been exactly where you are and gotten through it. And so will you.

It always warms my heart when i see so many people on this forum, complete strangers, whom I will never meet and don't even know what they look like, offering words of comfort and support and assistance. It's just lovely. I of course, am referring to people like Mary Lou, Mary Ellen and Bethany who were all there for me and who I know will be there for you.

So chin up hon, you've got lots of support here.

Take care,
Lisa

Kitty
01-02-2009, 09:35 PM
Mary Lou,
Thank you so much for your response. It has given me a lot to think about and I will probably refer back to your comments often, I think. I too, would not be ready for surgery a 2nd time, so if this happens to us i think I would also ask the surgeon if we could monitor closely before making a decision. It sounds like it was the right call in your case.
I must say it scared me a little when i read your comments, knowing this was a possibility for my daughter (oops! I hope Pam's not reading this :p), but I would rather be prepared and know what the possibilities are.

I am guessing your daughter has her 2 year follow-up sometime this year?

Thanks heaps,
Lisa

Kitty
01-02-2009, 09:41 PM
Smileyski--

Just want to add my support here. My 13yo son was fused 7 weeks ago and we go for the first post-op checkup on Tuesday. He seems to be doing very well so far. He went for a long walk in the woods--a hike, really--on New Year's Day and commonly walks up to 3.5 miles a day. He's been off any meds for weeks, was in school for half days the week before Christmas and will be back in school full time next week.

You will do fine through the upcoming surgery, although you probably won't believe it until you go through it. We will all be behind you.

Mary Ellen

Hi there Mary Ellen,
How wonderful it was to read that Sidney is walking so far everyday. It never ceases to amaze me how much and how quickly our kids recover and what they can do now, considering not long ago they were in a hospital bed recovering from major surgery. I encourage Tahlia to walk and she and I probably walk about 1-1 and a half kilometres a day (about 1/2 to 1 mile). I thought maybe that was pushing it, but perhaps not if Sidney is walking the distnces he is. I wasn't told much about walking after surgery, so is this something i should be encouraging. Should I be aiming for more?

Glad to hear Sidney's doing so well.

Lisa

WNCmom
01-02-2009, 10:36 PM
Lisa--

I know Pam is right, it doesn't do any good to worry about what might happen. But just for the record, I also worry, even though I try not to. Even though most of Sidney's spine is fused, because at 13 he has so many years of growth left it seems anything could happen.

As for walking, we were told it was the only exercise that was okay before 3 months. I'm not sure long distance is as important as making sure it happens every day. Maybe others can comment on this. I've read that when the nerves in the soles of the feet are stimulated, it sends an electrical current up the spine, which is what makes bones grow and heal. Even for someone not recovering from spinal surgery, it keeps the body from getting stiff.

Sidney has been lucky and had no pain, so we have insisted that he walk. It's also a chance to get out and breathe some fresh air. We don't live in a neighborhood (we actually live in the woods) and he generally doesn't like to walk alone, so either my husband or I go with him, and although he has some say-so, we typically pick the distance and place. We've had some great conversations! The surgeon told us hiking would be fine if Sidney was up to it. He is able to do more, and it can't hurt to do more, so we do. Today, though, he was walking with my husband on a trail, and even though my husband had warned him about it, he slipped on a wet log step and fell on his knee. It wasn't a bad fall and he seems to be okay, but my husband said it was scary. We will all be more careful in the future.

Sounds like Tahlia is doing great.

Mary Ellen

smileyskl
01-02-2009, 11:27 PM
Yes, Lisa, I am hearing from some of these lovely people, including yourself, and I don't feel so alone. I guess it doen't matter that we are all from different places or countries, or whatever. We are loving caring parents coming together to help each other.:) I am so glad to have a place like this when so many people don't seem to understand - I have somewhere to get information and support. Thanks.:)

txmarinemom
01-03-2009, 03:33 AM
Y'all ... I have kids too. And I know I'm very lucky it was me that needed surgery instead of them.

I do understand the fear of turning over your child to someone else, and I never meant to infer otherwise.

All I was saying is "what's done is done" ... and every second you waste on worry after the fact serves no purpose. Enjoy today - and every day that follows, until (or IF) you have reason to *not*. Life is too short.

Hugs to all you Moms,
Pam

Snoopy
01-03-2009, 08:08 AM
Lisa,

I'm sorry, I didn't mean to scare you with my reply. Sometimes I hesitate before posting about Jamie because her story is so different from others. 1) She has Kyphoscoliosis (both Kyphosis and Scoliosis); 2) She has a very long fusion and 3) She doesn't have any screws in her back. All of this makes her case even more distinct. We all have to remember that we are all sharing in hopes of helping someone, but we all must remember, ever patient is different.

Yes, Jamie is due for a follow-up this summer. Within two months after Jamie's last appointment, her surgeon moved from Pennsylvania to Arizona. So we will be starting over with a new surgeon. I will be taking her to an adult surgeon this time since she will be 18 in August :eek:. (You want something to worry about---Jamie will graduate high school in June, start college full time in July and turn 18 in August!!! Now that's scary and something to worry about. )

Mary Lou

Snoopy
01-03-2009, 08:19 AM
Mary Ellen

I bet your husband's heart stopped when Sidney fell!

I've always tried to be a mom who doesn't panic. And usually I don't. However, I failed miserably once. We were in the middle of Toys R Us and Jamie decided to try a pogo stick. She was more than one year post-op, so I didn't stop her. Needless to say, she fell. I saw it happening but there was nothing I could do to catch her. She landed on her backside, got up with a look of embarrassment and assured me she was okay. I can only imagine the look on my face. Jamie seemed more concerned about me than herself. She reminded me that she was allowed to do anything and that she wants to try new things and get back to doing everything she did before surgery. She reminded me that her back was strong and not to worry so much.

I then had to explain myself. See, I was worried about her back, but not her spinal fusion. All I could see when she was falling was the fact she was going to hit her back on one of the shelves slide down and then hit the bottom shelf with her back. All I could picture was a major brushburn the whole length of her back! I was also worried about her hitting her head.

I guess what I'm saying is that as moms we will always have something to worry about. It just never ends. It does feel go though to worry about the normal everyday things instead of spine issues.

Mary Lou

pmsmom
01-04-2009, 09:48 PM
Dear Smiley,

I do understand what you're going through. My dd isn't scheduled for surgery yet--we go in Feb. to have the dr. recheck her curve.

So you are definitely not alone. I am encouraged by what I've read on this forum and have followed Mary Lou's, Lisa's, Mary Ellen's, Bethany's, and others' stories about their children's surgeries (many of them *very* recent). I am very happy for their successful outcomes and am praying that when the time comes for us, we will have the strength as well to get through our dd's surgery. I found that reading of their experiences has helped alleviate some of the anxiety I feel as there are many similarities and I have an idea of what to expect.

This forum is great for support! Soon we will be on the "other side" and be able to lend our support to others just starting out.

Btw, Bethany, how is Jesse doing after having to go back into the hospital?

Marian

pmsmom
01-04-2009, 09:51 PM
Oh my goodness! I just read where Sidney fell and my heart was in my throat. :eek:

Moms!

Kitty
01-04-2009, 10:31 PM
I worry about Tahlia tripping all the time. I am worried she'll jolt her spine and the screw will come loose. Although, my main concern with Tahlia I think is UTIs. She had quite a few prior to surgery and the doc has said if she gets a UTI and the rods become infected (or seeded I think he said), that would be "disastrous". So i have her on cranberry tablets to ward off any nasty little infections.

So far, so good. :D

Lisa

smileyskl
01-04-2009, 10:57 PM
Marion,

I agree, this forum has been a great source of anxiety relief. I know how you feel now too. Its awful to be on the rollercoaster of when to do surgery and if you should do surgery. I was relieved to have a decision made about my daughters surgery only to trade that worry for the worry of the surgery itself:eek: I am sooo glad to be able to talk to those who are now on the other side of surgery. It is very comforting. Hope everything goes well at your appointment. Keep us posted. :):)

Sharon

WNCmom
01-06-2009, 11:08 AM
Hello All--

We've just come from Sidney's followup appointment at 7.5 weeks post-op. All looks good.

Dr. Cahill said that if his fall last week had had any effect they would have seen it on the x-rays. He was not concerned. I asked about crankshaft (S. is Risser 0) and he said it is unlikely, even though the top two vertebrae of the fusion have hooks (he said he likes to use those there to help reduce the small chance of junctional kyphosis).

I also asked about massages. He said that was a question he'd never been asked before, but that at 6 months post-op it would be okay for massages in the fusion area. Elsewhere would be fine before that.

Sidney still has a slight list to the left. He expects that to resolve within 9 months post-op; apparently a doc at Shriners has done a study on it and almost all of them do. Also, one of Sidney's shoulders is still higher than the other; he told us it would be up to S. to look in the mirror and hold himself straight, then remember how that feels and practice good posture. It was good for S. to hear it from Dr. Cahill, since his Dad and I have been reminding him of that so much.

We have the option of having a 3-month post-op x-ray done locally in NC and sent up for review (I think we will do that), and then we will return to Philadelphia at 6 months for a checkup in person.

Now if we can just get out of Philly-- the weather is not supposed to be good this afternoon!

Hang in there, Smileyskl....

Mary Ellen

laurieg6
01-06-2009, 01:14 PM
I'm glad to hear that Sydney's doctor said the same thing as ours about the shoulder height discrepancy. When Alexander thinks about evening them out it really helps with this. If only he could just do it without thinking, but it's still an effort - 1 1/2 years post-op. He just has more "normal" 13 year old boy things on his mind and his physical self right now isn't one of them.

That's great news about the fall not impacting his recovery and the overall good report you got from the doctor. We panicked when Alexander fell a few weeks after surgery too, but it also didn't seem to have a negative effect and he had no pain as a result.

Take care,

babachi
01-06-2009, 01:57 PM
Hi Ladies
Mary Ellen, I'm glad Sidney's fall was not serious.
Kitty, all of Jesse's team said it is great for him to walk. They never said how much, but I guess as much as he can handle. They said it would be good to loosen up his muscles and alleviate stiffness.
We are at Children's as I'm typing. Jesse started having drainage again from the incision. I hesitate to call it yellow and it's certainly not pus-y. It is a bit puffy around the area and I fear it's another "pocket" of fluid. On the plus side, there is no fever or redness.
I will keep you all updated and I'm glad for everyone who's child is doing well, and thinking about those who are awaiting surgery.
Bethany

pmsmom
01-06-2009, 03:52 PM
Hi Ladies
Mary Ellen, I'm glad Sidney's fall was not serious.
Kitty, all of Jesse's team said it is great for him to walk. They never said how much, but I guess as much as he can handle. They said it would be good to loosen up his muscles and alleviate stiffness.
We are at Children's as I'm typing. Jesse started having drainage again from the incision. I hesitate to call it yellow and it's certainly not pus-y. It is a bit puffy around the area and I fear it's another "pocket" of fluid. On the plus side, there is no fever or redness.
I will keep you all updated and I'm glad for everyone who's child is doing well, and thinking about those who are awaiting surgery.
Bethany

You and Jesse are in my thoughts and prayers, Bethany!

Do keep us posted!

Marian

babachi
01-06-2009, 05:18 PM
We had an appointment w/ the surgical nurse (who wanted to wait to see him tomorrow because she was booked tight today). Umm, I'm sorry, can you look at his records and see the problems we've been having with drainage? Ended up Jesse's surgeon was the doc on call and the nurse conferred w/him before we got there. He walked into the exam room not knowing it was us. Needless to say I was quite happy he was there. He took over at that point and remarked about my diligence. (so there, Nurse!)
He's not sure why there is this drainage. Possible scenario is the stitch used after the irrigation and debridement is irritating and maybe a staple, even though less cosmetic, may be the way to go. Of course my question was will he just staple that part of the wound or does he need to go in, remove the stitch, etc. Yep, that's more like it. If it gets to that point, he will go in again to take a look around, so a third surgery is not outside the realm of possibility. Treatment for now is to use a compression bandage and remain on stomach for next 24 hours. Change the dressing tomorrow. Jesse has his post op on Thursday, so we will reassess then. I'm under the impression that if there is still drainage, Jesse will be seeing the OR again.
Please cross your fingers for the drainage to stop!
Bethany

smileyskl
01-06-2009, 07:12 PM
Bethany,

:eek:I will be praying for Jesse also. When it comes to hospitals, you have to be a diligent and sometimes pushy parent. I think they expect that. Hope everthing goes well.

smileyskl

smileyskl
01-06-2009, 07:21 PM
Mary Ellen,

I am glad that Sidneys fall turned out okay. I would have totally flipped out. I am worrying about all of that kind of stuff already and Katelyn hasn't even had surgery yet:) I know I'm gonna make it. Thanks for the encouragment.

Sharon

WNCmom
01-07-2009, 10:24 AM
Bethany--

You sound so calm. It must be so disconcerting to have this drainage issue happening. Please keep us posted on what's happening. Hoping and hoping for a resolution that does not involve the OR again!

Mary Ellen

WNCmom
01-07-2009, 04:15 PM
Laurie--

Just to elaborate on the apparent shoulder discrepancy--Dr. Cahill had Sidney hold his arms out straight ("like a capitol T"). When Sidney did that, his shoulders were pretty even, so structurally they are okay--apparently it's, as you say, a habit of standing. Very frustrating for a parent who wants their child to grow straight, since there is so much growth left....but at least there is the opportunity to grow straight! We'll keep on working on it. He does appear to be straighter than immediately post-op.

Mary Ellen

pmsmom
01-08-2009, 11:03 AM
Mary Ellen--glad to hear that Sidney's check up looks good!

Bethany--still praying for you all with Jesse's drainage. When I first read about this, I wondered if it might not be an allergic reaction of some kind, but I don't know if an allergic reaction would cause a fever.

Thank you for sharing all that's happening with Jesse. I've been trying to keep up with your blog. I'm sure it's been very trying, but it has been a help to us here as well. I think it's good to know about things that can happen, so those of us who are still awaiting surgery can keep informed and question things with doctors and nurses.

Take care!
Marian

babachi
01-08-2009, 01:55 PM
No drainage in about 24 hours!!!! Yippee! Doctor said he can go back 1/2 days to school Monday as long as there's no more drainage. I posted new xrays from today on my blog. Holy screws, Batman! I had no idea they were that big! His spine looks to be a bit more curved than days post op, but the surgeon was still satisfied. Jesse has to go back in 2 weeks, so that will be on the front burner of questions. Today my focus was the drainage.
Overall, Jesse's recovery has been great, the exception being the drainage. Another theory is that because Jesse feels as good as he does and is up and around, that gravity is part of the reason for the drainage. So Jesse still needs to take it slow, lay down on his stomach as much as he can.
As far as fever goes, Jesse hasn't had one in days. According to nurses, anesthesiologists, etc. a low grade fever is common after surgery and we have been told by several people (including my best friend, a surgical ICU nurse), that the breathing exercises are key. For those not familiar with the exercises, Jesse had a small rectangular plastic thing that houses 3 chambers with a ball in each and a "straw" attached. The object is to suck in and get the balls to the top and hold them there. He was told to do this 10 times per hour in the beginning.
Bethany

WNCmom
01-08-2009, 08:17 PM
That's really wonderful news, Bethany. You must be so relieved. And he's feeling good enough to go back to school! Time does fly post-op, doesn't it.

Mary Ellen

smileyskl
01-09-2009, 12:38 AM
Bethany


Glad to hear everything is well. :)

sharon

Snoopy
01-09-2009, 07:13 AM
Bethany,

Let's hope all of Jesse's problems are behind you and you can start worrying about the "normal" stuff that comes with kids! ;)

Good luck on Monday. Just a warning: I think I was more nervous sending Jamie back to school after surgery than I was sending her off to her first day of K-4!

Mary Lou

pmsmom
01-11-2009, 02:30 PM
Doin' the happy dance here for you, Bethany! \o/

So how long has it been that the doctor is releasing him for 1/2 days on Mondays?

I have one of those breathing exercise thingies already at home--we were trying to have my dd use this *years* ago to help her lung function with her asthma. When I told her she'd have to use it after surgery, she groaned.

Won't it be a fun time around our house? ;)

Marian